The quality of life and accessibility of medical care in persons with bronchial asthma in the Republic of Kazakhstan

2019 ◽  
Vol 27 (5) ◽  
Author(s):  
Gazalieva M. A. ◽  
◽  
Zhumabekova B. K. ◽  
Kozhanova R. T. ◽  
Kasymbekova B. K. ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Medical Care ◽  
Bronchial Asthma ◽  
The Republic

scholarly journals FEATURES OF BRONCHIAL ASTHMA CONTROL AND COURSE IN CHILDREN WITH AN ALTERNATIVE ONSET OF THE DISEASE

2020 ◽  
Vol 8 (4) ◽  
pp. 383-392
Author(s):  
О.К. Koloskova ◽  
Т.М. Bilous ◽  
N.O. Shevchenko ◽  
V.V. Bilous
Keyword(s):  
Quality Of Life ◽  
Respiratory Tract ◽  
Medical Care ◽  
Asthma Control ◽  
Bronchial Asthma ◽  
Diagnostic Procedures ◽  
Individualized Treatment ◽  
Economic Losses ◽  
Non Invasive

Despite the large number of studies on the diagnosis and treatment of asthma and the constant updating of recommendations for the provision of medical care to patients with asthma, this disease still has a significant impact on the quality of life of patients and their families and significant economic losses. However, the peculiarities of bronchial asthma and the diagnosis of certain phenotypes of the disease in children, depending on biomarkers of inflammatory activity in the airways, require greater use of non-invasive diagnostic procedures and optimization of individualized treatment depending on the nature and intensity of inflammation in the respiratory tract.

scholarly journals Beneficial Effects of Remote Medical Care for Patients with Hereditary Hemorrhagic Telangiectasia during the COVID-19 Pandemic

2021 ◽  
Vol 10 (11) ◽  
pp. 2311
Author(s):  
Eleonora Gaetani ◽  
Fabiana Agostini ◽  
Luigi Di Martino ◽  
Denis Occhipinti ◽  
Giulio Cesare Passali ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Emergency Room ◽  
Medical Care ◽  
Hereditary Hemorrhagic Telangiectasia ◽  
Iron Supplementation ◽  
Quality Care ◽  
Psychological Status ◽  
Blood Transfusions ◽  
Emergency Room Visits

Background: Hereditary hemorrhagic telangiectasia (HHT) needs high-quality care and multidisciplinary management. During the COVID-19 pandemic, most non-urgent clinical activities for HHT outpatients were suspended. We conducted an analytical observational cohort study to evaluate whether medical and psychological support, provided through remote consultation during the COVID-19 pandemic, could reduce the complications of HHT. Methods: A structured regimen of remote consultations, conducted by either video-calls, telephone calls, or e-mails, was provided by a multidisciplinary group of physicians to a set of patients of our HHT center. The outcomes considered were: number of emergency room visits/hospitalizations, need of blood transfusions, need of iron supplementation, worsening of epistaxis, and psychological status. Results: The study included 45 patients who received remote assistance for a total of eight months. During this period, 9 patients required emergency room visits, 6 needed blood transfusions, and 24 needed iron supplementation. This was not different from what was registered among the same 45 patients in the same period of the previous year. Remote care also resulted in better management of epistaxis and improved quality of life, with the mean epistaxis severity score and the Euro-Quality of Life-Visual Analogue Scale that were significantly better at the end than at the beginning of the study. Discussion: Remote medical care might be a valid support for HHT subjects during periods of suspended outpatient surveillance, like the COVID-19 pandemic.

Living with an MPN in Ireland: patients' and caregivers' perspectives

2021 ◽  
Vol 30 (17) ◽  
pp. S24-S30
Author(s):  
Geraldine Walpole ◽  
Mary Kelly ◽  
Joy Lewis ◽  
Avril Gleeson ◽  
Ann-Marie Cullen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Unmet Needs ◽  
Negative Impact ◽  
Peer Group ◽  
Myeloproliferative Neoplasms ◽  
Symptom Burden ◽  
Emotional Wellbeing ◽  
The Republic ◽  
The Impact

Myeloproliferative neoplasms (MPNs) are associated with a high disease burden, reduced quality of life and shortened survival. The aim of this questionnaire was to gain patients' and caregivers' perspectives on the impact of living with an MPN in the Republic of Ireland. An Irish adaptation of the ‘Global MPN Landmark survey’ was conducted. Fifty-one patients and 44 caregivers completed the questionnaire. Patients reported a wide variety of symptoms at the time of questionnaire completion; fatigue, bone pain and pruritus being most frequently reported. Approximately one-third of respondents from each of the groups (patients and caregivers) reported a negative impact of MPNs on their emotional wellbeing and daily lives. The study findings revealed that, despite treatment, symptom burden remains high, and several unmet needs exist, including educational, emotional and peer group support. Interventions that focus on reducing symptom burden and addressing these unmet needs, may improve the quality of life for patients with MPNs and their caregivers.

scholarly journals Quality of life of the elderly population during the virus Covid-19 pandemic with special reference to agriculturists

2020 ◽  
Vol 67 (4) ◽  
pp. 1155-1167
Author(s):  
Pavle Radanov ◽  
Ivana Lešević ◽  
Pavle Brzaković ◽  
Dragan Pajić
Keyword(s):  
Quality Of Life ◽  
Rural Areas ◽  
Urban Areas ◽  
Elderly Population ◽  
The Elderly ◽  
Special Importance ◽  
Negative Consequences ◽  
State Of Emergency ◽  
The Republic

In the Republic of Serbia, on March 15 th , 2020 Government decided to declare a state of emergency due to the Covid-19 pandemic. One of the measures was a movement ban for people over 65 in urban areas and those over 70 in rural areas. This research should indicate how people over 65 in urban areas have endured this situation, especially in relation to the same population in rural areas, as well as implications of the movement ban on the quality of life of the elderly population. Special importance is given to the rural population engaged in agriculture. A tool of data collection in this research was anonymous survey. Respondents' answers were statistically processed, which led to clear conclusions about the large negative consequences for the elderly population, including the agricultural activities in rural areas. Covid-19 is still present, which opens further questions related to the quality of life of the elderly population, if necessity for similar measures recurs in the future.

scholarly journals A study on prevalence and effects of allergic rhinitis and asthma on quality of life among secondary school’s student in Kinta District, Perak

2019 ◽  
Vol 10 (SPL1) ◽  
Author(s):  
Soe AK ◽  
Aizat AF ◽  
Bellahcene MA ◽  
Atiqah N ◽  
Husna N
Keyword(s):  
Quality Of Life ◽  
Allergic Rhinitis ◽  
Secondary School ◽  
Bronchial Asthma ◽  
Secondary School Students ◽  
School Students ◽  
Cross Sectional ◽  
Chronic Respiratory Diseases ◽  
Validated Questionnaire

Allergic rhinitis (AR) and bronchial asthma (BA) are common inflammatory chronic respiratory diseases, and they are significant public health challenges on a global scale. The prevalence of these diseases are on the rise in all regions of the world, affecting all ages but more commonly among children and adolescences. Both AR and BA affect patients to a different extent with variable restrictions in the physical, emotional, and social aspects of the patient's life. They may be seen as two presentations of the same disease by sharing common epidemiologic, histologic, physiologic, and immunopathologic linkages. To determine the prevalence and impact of allergic rhinitis, asthma and allergic rhinitis with asthma on quality of life among secondary school students in Kinta District, Perak. A cross-sectional study was done among secondary school students from randomly selected three schools in Kinta District, Ipoh, Perak. A well-vetted and validated questionnaire was used to collect the data, and statistical analysis was done to determine the prevalence and impact of AR, BA, or both. A total of 250 secondary school students were involved in this study. Malays were the majority among the participants. The prevalence of AR alone, BA alone, and disease co-occurance were 27.2%, 9.2%, and 8%, respectively. Nearly 20% of the participants were troublesome but low scale in terms of quality of life followed by disturbed sleep, restricted participation in school, and daily activities. Only 6% of the participants experienced sleep disturbance due to asthma, but daily anti-asthmatic medication was essential in only 1.2%. This study showed that although a relatively high prevalence of allergic rhinitis and bronchial asthma. There was no significant low quality of life among sufferers.  

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