scholarly journals The Perceived Impact of Length of the Diagnostic Pathway Is Associated with Health-Related Quality of Life of Sarcoma Survivors: Results from the Dutch Nationwide SURVSARC Study

Cancers ◽  
2020 ◽  
Vol 12 (8) ◽  
pp. 2088
Author(s):  
Vicky L. M. N. Soomers ◽  
Ingrid M. E. Desar ◽  
Lonneke V. van de Poll-Franse ◽  
Michiel A. J. van de van de Sande ◽  
Jacco J. de Haan ◽  
...  
Keyword(s):  
Negative Impact ◽  
Interval Length ◽  
Actual Length ◽  
Time To Diagnosis ◽  
Related Quality ◽  
Health Related ◽  
Diagnostic Interval ◽  
Perceived Impact ◽  
Total Interval

Background: Sarcoma patients often experience a long time to diagnosis, known as the total interval. This interval can be divided into the patient (time from symptoms to doctor consultation) and diagnostic intervals (time from first consultation to diagnosis). In other cancers, a long total interval has been associated with worse outcomes, but its effect on health-related quality of life (HRQoL) has never been investigated among sarcoma patients. This study investigates the association between (1) the actual time to diagnosis and HRQoL; (2) the perceived impact of the diagnostic interval length and HRQoL; (3) the actual length and perceived impact of the length and the HRQoL of sarcoma survivors. Methods: A cross-sectional study was performed among sarcoma patients aged ≥18, diagnosed 2–10 years ago in the Netherlands. The participants completed a questionnaire on HRQoL, the time to diagnosis, the perceived impact of the diagnostic interval on HRQoL, and coping. Results: 1099 participants were included (response rate, 58%). The mean time since diagnosis was 67.4 months. More than half reported a patient (60%) or diagnostic interval (55%) ≥1 month. A third (31%) perceived a negative impact of the diagnostic interval length on HRQoL. Patient or diagnostic interval length was not associated with HRQoL. By contrast, participants perceiving a negative impact (32%) had lower HRQoL scores than those perceiving a positive (11%) or no impact (58%) (p = 0.000). This association remained significant in a multivariable model, in which maladaptive coping strategies and tumour characteristics were also found to be associated with HRQoL. Participants perceiving a negative impact of the length of the diagnostic interval related this to high psychological distress levels, more physical disabilities, and worse prognosis. Conclusion: The perceived impact of the diagnostic interval length was associated with the HRQoL of sarcoma survivors, whereas the actual length was not associated with HRQoL. Maladaptive coping strategies were independently associated with HRQoL. This offers opportunities for early intervention to improve HRQoL.

scholarly journals The psychosocial effects of severe caries in 4-year-old children in Recife, Pernambuco, Brazil

2005 ◽  
Vol 21 (5) ◽  
pp. 1550-1556 ◽  
Author(s):  
Sandra Feitosa ◽  
Viviane Colares ◽  
Jimmy Pinkham
Keyword(s):  
Oral Health ◽  
Negative Impact ◽  
Health Related Quality ◽  
Psychosocial Effects ◽  
Validated Questionnaires ◽  
Free Data ◽  
Related Quality ◽  
Health Related ◽  
Children’S Oral Health

The aim of this study was to analyze the psychosocial effects of severe caries in 4-year-old children in Recife, Pernambuco, Brazil. The clinical examination was conducted by a single examiner in order to select children with severe caries and caries-free (kappa = 1). Of the 861 children examined, 77 (8.1%) had severe caries and 225 (23.6%) were caries-free. Data were collected by applying validated questionnaires answered by the parents or guardians. Most of the parents or guardians of children with severe caries reported that their children complained of toothache (72.7%), and a significant portion stated that their children had problems eating certain kinds of food (49.4%) and missed school (26.0%) because of their teeth. Most of the parents or guardians of children with severe caries (68.8%) stated that oral health affects their children's life, while the same was stated by 9.8% of the parents or guardians of the caries-free children. Severe caries was found to have a negative impact on children's oral health-related quality of life.

scholarly journals A betegség és a szociodemográfiai háttér hatása a cerebralis bénulásban szenvedő gyermekek életminőségére

2021 ◽  
Vol 162 (7) ◽  
pp. 269-279
Author(s):  
Melinda Fejes ◽  
Beatrix Varga ◽  
Katalin Hollódy
Keyword(s):  
Quality Of Life ◽  
Family Environment ◽  
Negative Impact ◽  
The Body ◽  
Life Questionnaire ◽  
Functional Difference ◽  
Healthy Children ◽  
Related Quality ◽  
Health Related

Összefoglaló. Bevezetés: A kutatócsoport 99 fő, cerebralis paresisben (CP) szenvedő gyermek (8–18 éves) önállóan közölt életminőségét értékelte, és az eredményeket összehasonlította egy 237 fős kontrollcsoport adataival, amelyek hasonló életkorú, egészséges általános populációhoz tartozó gyermekektől származtak. Célkitűzés: A kutatás célja annak megismerése volt, hogy a CP-ben szenvedő gyermekek hogyan vélekednek egészségi állapotukról és társadalmi helyzetükről. Módszer: Életminőség-kérdőív alkalmazása. Betegségspecifikus és társadalmi-demográfiai mutatók mérése, kiértékelése. Eredmények: Az CP-ben szenvedő gyermekek és szüleik az egészséggel kapcsolatos életminőséget rosszabbnak ítélték meg, mint társaik. Eredményeink azt mutatják, hogy a női nem, a rosszabb motoros funkció és a komorbiditások (epilepszia, incontinentia és intellektuális károsodás) negatív hatású. A szülői vélemény alkalmas volt proxyjelentésként a korreláció mért erőssége miatt. Figyelemre méltó, hogy az agyi bénulás típusai közül az egyoldali spasticus CP-ben szenvedő gyermekek életminőség-értéke a legalacsonyabb. A válaszadók valószínűleg a test két oldala között lévő funkcionális különbséget érezték. A szellemi fogyatékosság a betegpopuláció több mint felénél fordult elő. Testvéreik között a mentális betegség 5,7-szer gyakoribb. A CP-s gyerekek családi környezete sokkal hátrányosabb volt, mint az egészséges gyermekeké. A kutatás eredményei alapján megállapítható, hogy a szülő alacsonyabb iskolai végzettsége és munkaerőpiaci inaktivitása, valamint az egyszülős család a CP-s gyerekeknél szignifikánsan magasabb arányban fordult elő, és ezek a tényezők negatív hatást gyakoroltak az életminőségre. Következtetés: A fogyatékkal élő gyermekek életminőségét a betegség és a szociodemográfiai környezet egyaránt befolyásolja. Orv Hetil. 2021; 162(7): 269–279. Summary. Introduction: Self-reported health-related quality of life (HRQoL) of 99 children (8–18 years) with cerebral palsy (CP) was assessed and compared with 237, age-matched healthy control children from the general population. Objective: The aim was to find out the opinions of children with CP about their health status and social condition. Method: Assessment of quality of life questionnaire was carried out. Measurements of disease-specific and sociodemographic variables were done. Results: Children with CP and their parents rated HRQoL poorer than their counterparts. Our results show that female sex, worse gross motor function and comorbidities (epilepsy, incontinence and intellectual impairment) had negative impact. The parental opinion was suitable as proxy report because of the measured strength of the correlation. Among the types of CP, interestingly, children with unilateral spastic CP had the poorest HRQoL. They were likely to feel a functional difference between the two sides of the body. Intellectual disability occurred in more than half of our patient population. Among their siblings, mental illness is 5.7 times more common. The family environment was much more disadvantageous than in the case of healthy children. As our study shows, lower education, inactive status in the labour market and single-parent family occurred at a much higher rate and worsened the quality of life. Conclusion: Quality of life of children with disability was influenced by both the sociodemographic background and the disease. Orv Hetil. 2021; 162(7): 269–279.

scholarly journals Impact of malocclusion on oral health–related quality of life in young adults

2014 ◽  
Vol 85 (6) ◽  
pp. 986-991 ◽  
Author(s):  
Mu Chen ◽  
Zhi-Cai Feng ◽  
Xue Liu ◽  
Zheng-Ming Li ◽  
Bin Cai ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Orthodontic Treatment ◽  
Negative Impact ◽  
Health Related Quality ◽  
Treatment Need ◽  
Related Quality ◽  
Health Related ◽  
Psychological Disability

ABSTRACT Objective:  To assess oral health–related quality of life (OHRQoL) in young adult patients with malocclusion and to measure the association between orthodontic treatment need and OHRQoL. Materials and Methods:  The study sample comprised 190 young adults aged 18 to 25 years who were attending orthodontic clinics at the Faculty of Dentistry. The Index of Orthodontic Treatment Need-Dental Health Component was used to measure orthodontic treatment need. Each participant was assessed for OHRQoL before and after treatment by using the Oral Health Impact Profile, Chinese version (OHIP-14). Results:  Patients who had little or no, borderline, and actual need for orthodontic treatment represented 21.6%, 50.5%, and 27.9% of the total sample, respectively. OHRQoL (total OHIP-14 score and score for each domain) improved after treatment (P < .05). Significant differences in summary OHIP-14 scores were apparent with respect to orthodontic treatment need. Participants with high treatment need reported a significantly greater negative impact on the overall OHRQoL score. The greatest impact was seen in the psychological discomfort domain and the psychological disability domain. Conclusion:  Malocclusion has a significant negative impact on OHRQoL. This is greatest for the psychological discomfort and psychological disability domains. The orthodontic treatment of malocclusion improves OHRQoL of patients.

Impact of Caries Severity/Activity and Psychological Aspects of Caregivers on Oral Health-Related Quality of Life among 5-Year-Old Children

2018 ◽  
Vol 52 (6) ◽  
pp. 570-579 ◽  
Author(s):  
Ana Flávia Granville-Garcia ◽  
Monalisa Cesarino Gomes ◽  
Matheus França Perazzo ◽  
Carolina Castro Martins ◽  
Mauro Henrique Nogueira Guimarães Abreu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Negative Impact ◽  
Cross Sectional Study ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Statistical Adjustment ◽  
Related Quality ◽  
Health Related

The aim of the present study was to evaluate the influence of the severity/activity of dental caries as well as sense of coherence (SOC) and locus of control (LOC) on oral health-related quality of life (OHRQoL) among 5-year-old children. A cross-sectional study was conducted involving 769 children at schools in a city in northeast Brazil. Parents/caregivers answered validated questionnaires addressing SOC and LOC. The children and parents/caregivers answered their respective modules of the Brazilian version of the Scale of Oral Health Outcomes for 5-year-old children (SOHO-5). Data were also collected on sociodemographic characteristics, visits to the dentist, and the occurrence of toothache. Clinical examinations were performed by 2 trained examiners. A directed acyclic graph was used to select covariates for statistical adjustment, and logistic regression for complex samples was used to test associations between the dependent and independent variables (α = 5%). For parents/caregivers, the variables associated with a negative impact on OHRQoL were the occurrence of toothache (odds ratio, OR: 10.53; 95% confidence interval, CI: 6.34–17.51; p < 0.001) and a low SOC (OR: 2.17; 95% CI: 1.37–3.43; p = 0.001). According to the children’s perceptions, the following variables were associated with a negative impact on OHRQoL: toothache (OR: 3.58; 95% CI: 2.30–5.55; p < 0.001), caries activity (OR: 1.97; 95% CI: 1.07–3.62; p = 0.028), and traumatic dental injury (OR: 1.71; 95% CI: 1.15–2.53; p = 0.007). Among parents/caregivers, a low SOC led to poorer OHRQoL. For the children, however, neither psychological aspect affected OHRQoL. In the perception of both the parents/caregivers and children, toothache was the oral condition that exerted a negative impact on OHRQoL.

scholarly journals Malocclusion and oral health-related quality of life in Brazilian school children

2012 ◽  
Vol 83 (1) ◽  
pp. 83-89 ◽  
Author(s):  
Fernanda Sardenberg ◽  
Milene T. Martins ◽  
Cristiane B. Bendo ◽  
Isabela A. Pordeus ◽  
Saul M. Paiva ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Negative Impact ◽  
Anterior Segment ◽  
Bivariate Analysis ◽  
Fisher Exact Test ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Abstract Objective: To test the hypothesis that malocclusion and its impact on quality of life has no effect on 8- to 10-year-old Brazilian schoolchildren as measured by an oral health-related quality of life (OHRQoL) instrument. Materials and Methods: A cross-sectional study was carried out with a population-based sample of 1204 8- to 10-year-old children attending elementary schools in Belo Horizonte, Brazil. Dental examinations were carried out by two calibrated examiners. OHRQoL was assessed using the Brazilian version of the Child Perceptions Questionnaire. The Dental Aesthetic Index was used for the clinical assessment of malocclusion. Dental caries and socioeconomic factors were used as controlling variables. Bivariate analysis involved the chi-square test and the Fisher exact test. A Poisson regression model was employed for the multivariate analysis (P &lt; .05). Results: Anterior segment spacing and anterior mandibular overjet were significantly associated with impact on OHRQoL (P &lt; .05). Schoolchildren with malocclusion were 1.30-fold (95% CI: 1.15–1.46; P &lt; 0.001) more likely to experience a negative impact on OHRQoL than those without malocclusion. Children belonging to families with an income less than or equal to two times the minimum wage were 1.59-fold (95% CI: 1.35–1.88; P &lt; 0.001) more likely to experience a negative impact on OHRQoL than those belonging to families with the highest income. Conclusions: Schoolchildren with malocclusion from lower-income families experience a greater negative impact on OHRQoL.

Health-related Quality of Life among Diabetics visiting RajaRajeswari Medical College and Hospital, Bengaluru

2016 ◽  
Vol 2 (2) ◽  
pp. 31-35
Author(s):  
Samantha S Komal ◽  
V Srividya
Keyword(s):  
Quality Of Life ◽  
Negative Impact ◽  
Outpatient Department ◽  
Hypoglycemic Agents ◽  
Health Related Quality ◽  
Medical College ◽  
Related Quality ◽  
Health Related ◽  
The Mean

ABSTRACT Introduction Diabetes mellitus is independently associated with lower levels of health-related quality of life (HRQoL). Quality of life (QoL) is an important aspect in diabetes because poor QoL leads to diminished self-care, which in turn leads to worsened glycemic control, increased risks for complications, and exacerbation of diabetes overwhelming in both the short run and the long run. Objective To assess the HRQoL among diabetics aged 18 years and above visiting the Medicine Outpatient Department at RajaRajeswari Medical College and Hospital, Bengaluru. Materials and methods We conducted a hospital-based study using a generic instrument, Audit of Diabetes Dependent Quality of Life 18 (ADDQoL 18) to measure the QoL of diabetic subjects aged ≥18 years. One hundred and forty diabetics, including 68 males and 72 females, were selected from the Medicine Outpatient Department at RajaRajeswari Medical College and Hospital. Data was analyzed using Statistical Package for the Social Sciences for Windows, version 22. Results The mean age of the participants was 55.7 ±12.5 years. Majority of them (75.7%) were Hindu by religion and most of the study participants (60%) had received formal education. Majority (48.6%) belonged to grade 3 socioeconomic status. Diabetic patients who were employed constituted 52.9%. On the type of diabetes, 91.4% of the participants had type 2 diabetes, while 8.6% had type 1 diabetes. The mean duration of diabetes since diagnosis was 8.2 ±6.5 years. With regard to presence or absence of complications, 38.6% of the participants suffered from complications of diabetes, while 61.4% did not. With regard to treatment, 59.3% of them were consuming only oral hypoglycemic, whereas 40.7% were on insulin. It was observed that diabetes had a negative impact on the present QoL with a mean negative impact of –0.45 and a mean negative average weighted impact of –5.16 on the individual life domains. The negative impact of diabetes on the QoL was greater among those receiving insulin ±oral hypoglycemic agents and among those who had complications. The domains “freedom to eat,” “freedom to drink,” “enjoyment of food,” and “working life” had the greatest negative impact in all patient subgroups. It was observed that male diabetics had a poorer QoL as compared with female diabetics, but this was found to be not statistically significant. Conclusion Diabetes had an adverse effect on the QoL of these study subjects. How to cite this article Komal SS, Srividya V. Health-related Quality of Life among Diabetics visiting RajaRajeswari Medical College and Hospital, Bengaluru. J Med Sci 2016;2(2):31-35.

Comorbid Migraine is Associated with a Negative Impact on Quality of Life in Patients with Major Depression

Cephalalgia ◽  
2006 ◽  
Vol 26 (1) ◽  
pp. 26-32 ◽  
Author(s):  
C-I Hung ◽  
C-Y Liu ◽  
J-L Fuh ◽  
Y-Y Juang ◽  
S-J Wang
Keyword(s):  
Quality Of Life ◽  
Negative Impact ◽  
Short Form ◽  
Physical Symptom ◽  
Sf 36 ◽  
Related Quality ◽  
Health Related ◽  
And Gender ◽  
The Impact

This study investigated the impact of migraine on health-related quality of life (HRQoL) among patients with major depressive disorder (MDD). We prospectively enrolled 151 consecutive psychiatric out-patients meeting DSM-IV criteria for MDD. Migraine and other headache types were diagnosed based on the International Classification of Headache Disorders, 2nd edition (2004). The Short Form-36 (SF-36) was administered as a generic instrument of HRQoL. Among 151 patients with MDD, migraine ( N = 73, 48.3%) was very common. Comorbidity of migraine predicted a significantly negative impact on all physical subscales and vitality but not on the other mental subscales of the SF-36 after controlling for depression, age and gender. The presence of migraine should be considered as an important physical symptom in clinic-based MDD samples. Simultaneous management of depression and severe headaches, especially migraine, might improve HRQoL in patients with MDD.

scholarly journals The Impacts of Depression Treatment on Health-Related Quality of Life in Cancer Patients: A Systematic Review

Jurnal NERS ◽  
2020 ◽  
Vol 14 (3) ◽  
pp. 209
Author(s):  
Andrik Hermanto ◽  
Gabriel Wanda Sinawang ◽  
Mohamad Roni Alfaqih ◽  
Rohmatul Faizah
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Cancer Patients ◽  
Negative Impact ◽  
Depression Treatment ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Introduction: Cancer diagnosis can have a profound negative impact on the health-related quality of life (HRQoL) of cancer patients. Cancer patients also suffer from psychological pressures including sadness, depression, hopelessness, anxiety and worry. The literature review was employed to determine the effects of depression on health-related quality of life (HRQoL) in cancer patients.Methods: A systematic review was conducted by searching the Science Direct, Scopus and Google Scholar databases. The integrative review of the 10 articles was focused on the 10 years period from 2008 to 2018. The language used was English and the search was conducted using predefined keywords.Results: All of the journals discussed the impact of depression treatment on health-related quality of life in cancer patients. Based on all of the journals, depression can be reduced by health education, physical activity and medicine therapyConclusion: Despite the treatment for depression, the patient’s HRQoL did not improve during the measurement timeframe. Quality of life is a priority health outcome in cancer treatment but the clinical approaches to ameliorate depression in cancer patients appear to be suboptimal.

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