scholarly journals Development of the Readiness for Home-Based Palliative Care Scale (RHBPCS) for Primary Family Caregivers

Healthcare ◽  
2021 ◽  
Vol 9 (5) ◽  
pp. 608
Author(s):  
Meng-Ping Wu ◽  
Lee-Ing Tsao ◽  
Sheng-Jean Huang ◽  
Chieh-Yu Liu
Keyword(s):  
Palliative Care ◽  
Family Caregivers ◽  
Goodness Of Fit ◽  
Item Analysis ◽  
Reliability And Validity ◽  
Good Reliability ◽  
Hospital System ◽  
Home Based ◽  
Confirmatory Factor ◽  
Primary Family

In Chinese or Eastern society, most end-of-life (EOL) patients still choose to die at home. However, primary family caregivers usually do not prepare themselves to face the death of patients. Therefore, a measurement of the readiness for home-based palliative care for primary family caregivers is needed. In this study, the readiness for home-based palliative care scale (RHBPCS) for primary family caregivers was developed to assess the readiness of primary family caregivers. This study recruited 103 participants from five branches of one municipal hospital system. The reliability and validity of the RHBPCS was evaluated using expert validity examination, confirmatory factor analysis (CFA), and item analysis. The results showed that the RHBPCS had strong goodness-of-fit and good reliability and validity. In summary, the RHBPCS is suggested for assessing the readiness for home-based palliative care of primary family caregivers.

The Life Experiences Among Primary Family Caregivers of Home-Based Palliative Care

2020 ◽  
Vol 37 (10) ◽  
pp. 816-822 ◽  
Author(s):  
Meng-Ping Wu ◽  
Sheng-Jean Huang ◽  
Lee-Ing Tsao
Keyword(s):  
Palliative Care ◽  
Home Care ◽  
End Of Life ◽  
Family Caregivers ◽  
Family Members ◽  
Assessment Tools ◽  
Theory Approach ◽  
Home Based ◽  
Number Of Patients ◽  
Primary Family

Background: An increasing number of patients with terminal illnesses prefer to die in their own homes due to aging, high medical payments, a limited number of hospitalization days, and the ability to receive care from family members. However, few studies have been conducted on the subjective perception and value of caregivers for home-based palliative care (HBPC). Objective: To identify common themes and topics of primary family caregivers’ lived experiences with HBPC when taking care of terminally ill family members. Methods: We conducted audio-recorded transcripts of one-on-one in-depth interviews of primary family caregivers of HBPC. Through a purposive sampling method, the participants were all interviewed; these interviews were transcribed verbatim and analyzed using a grounded theory approach. Results: A total of 22 primary family caregivers participated in the study. “Wholeheartedly accompanying one’s family to the end of life at home” was the core category. Six main themes describing caregivers’ experiences emerged from the interviews: (1) learning the basic skills of end-of-life home care, (2) arranging the sharing and rotation of care, (3) preparing for upcoming deaths and funerals, (4) negotiating the cultural and ethical issues of end-of-life home care, (5) ensuring a comfortable life with basic life support, and (6) maintaining care characterized by concern, perseverance, and patience. Conclusions: Primary family caregivers of HBPC need support and must learn home care skills by means of the holistic approach. It is crucial to establish assessment tools for caregivers’ preparedness for HBPC, including biopsychosocial and cultural considerations.

scholarly journals Validation of the Patient-Centred Care Competency Scale Instrument for Finnish Nurses

2021 ◽  
Vol 11 (6) ◽  
pp. 583
Author(s):  
Riitta Suhonen ◽  
Katja Lahtinen ◽  
Minna Stolt ◽  
Miko Pasanen ◽  
Terhi Lemetti
Keyword(s):  
Factor Analysis ◽  
Root Mean Square ◽  
Goodness Of Fit ◽  
Item Analysis ◽  
Healthcare Delivery ◽  
Mean Square ◽  
Cronbach’S Alpha ◽  
Patient Centred Care ◽  
Cronbach's Alpha ◽  
Confirmatory Factor

Patient-centredness in care is a core healthcare value and an effective healthcare delivery design requiring specific nurse competences. The aim of this study was to assess (1) the reliability, validity, and sensitivity of the Finnish version of the Patient-centred Care Competency (PCC) scale and (2) Finnish nurses’ self-assessed level of patient-centred care competency. The PCC was translated to Finnish (PCC-Fin) before data collection and analyses: descriptive statistics; Cronbach’s alpha coefficients; item analysis; exploratory and confirmatory factor analyses; inter-scale correlational analysis; and sensitivity. Cronbach’s alpha coefficients were acceptable, high for the total scale, and satisfactory for the four sub-scales. Item analysis supported the internal homogeneity of the items-to-total and inter-items within the sub-scales. Explorative factor analysis suggested a three-factor solution, but the confirmatory factor analysis confirmed the four-factor structure (Tucker–Lewis index (TLI) 0.92, goodness-of-fit index (GFI) 0.99, root mean square error of approximation (RMSEA) 0.065, standardized root mean square residual (SRMR) 0.045) with 61.2% explained variance. Analysis of the secondary data detected no differences in nurses’ self-evaluations of contextual competence, so the inter-scale correlations were high. The PCC-Fin was found to be a reliable and valid instrument for the measurement of nurses’ patient-centred care competence. Rasch model analysis would provide some further information about the item level functioning within the instrument.

scholarly journals ‘My wife is my doctor at home’: A qualitative study exploring the challenges of home-based palliative care in a resource-poor setting

2020 ◽  
pp. 026921632095110
Author(s):  
Yakubu Salifu ◽  
Kathryn Almack ◽  
Glenys Caswell
Keyword(s):  
Prostate Cancer ◽  
Palliative Care ◽  
Family Caregivers ◽  
End Of Life Care ◽  
Advanced Prostate Cancer ◽  
Healthcare Professionals ◽  
Life Care ◽  
Home Based ◽  
Resource Poor ◽  
At Home

Background: Family caregiving is common globally, but when a family member needs palliative and end-of-life care, this requires knowledge and expertise in dealing with symptoms, medication, and treatment side effects. Caring for a family member with advanced prostate cancer in the home presents practical and emotional challenges, especially in resource-poor contexts, where there are increasing palliative cases without adequate palliative care institutions. Aim: The study explored palliative and end-of-life care experiences of family caregivers and patients living at home in a resource-poor context in Ghana. Design: This is a qualitative study using thematic analysis of face-to-face interviews at two-time points. Participants: Men living with advanced prostate cancer ( n = 23), family caregivers ( n = 23), healthcare professionals ( n = 12). Findings: Men with advanced prostate cancer face complex issues, including lack of access to professional care and a lack of resources for homecare. Family caregivers do not have easy access to professional support; they often have limited knowledge of disease progression. Patients have inadequate access to medication and other practical resources for homecare. Caregivers may be overburdened and perform the role of the patient’s ‘doctor’ at home-assessing patient’s symptoms, administering drugs, and providing hands-on care. Conclusion: Home-based care is promoted as an ideal and cost-effective model of care, particularly in Westernised palliative care models. However, in resource-poor contexts, there are significant challenges associated with the implementation of this model. This study revealed the scale of challenges family caregivers, who lack basic training on aspects of caring, face in providing home care unsupported by healthcare professionals.

The validity and reliability of the revised Chinese version of the Situational Self-Awareness Scale

2009 ◽  
Vol 37 (6) ◽  
pp. 743-752 ◽  
Author(s):  
Xu-Feng Liu ◽  
Yong-Cong Shao ◽  
Ye-Bing Yang ◽  
Sheng-Jun Wu ◽  
Hai Yang ◽  
...  
Keyword(s):  
Undergraduate Students ◽  
Reliability And Validity ◽  
Chinese Version ◽  
Self Awareness ◽  
Validity And Reliability ◽  
Good Reliability ◽  
The Public ◽  
Confirmatory Factor ◽  
Public Setting ◽  
Test Retest Reliability

In this study a Chinese version of the Situational Self-Awareness Scale (SSAS; Govern & Marsch, 2001) was developed and tested for validity and reliability. Participants were 1,244 undergraduate students. Exploratory and confirmatory factor analysis and other statistical methods yielded results indicating a good correlation of items in the Chinese (C-SSAS) and English version of the scale. When private self-awareness was assessed in a private setting the score of participants was significantly greater and likewise the public self-awareness scores were higher when the scale was completed in a public setting. Test-retest reliability was significant across situations and time. The reallocation of one item to public self-awareness in the C-SSAS from private in the SSAS was indicative of differences between Eastern and Western cultures and this is discussed. In general, the results indicated that the Chinese version of the SSAS has good reliability and validity. The scale should, therefore, be suitable as a reference to develop scales for evaluating personnel working in specific occupations.

The Youth Version of the Positive and Negative Affect Schedule: A Psychometric Validation

1998 ◽  
Vol 15 (3) ◽  
pp. 187-193 ◽  
Author(s):  
Kay Wilson ◽  
Eleonora Gullone ◽  
Simon Moss
Keyword(s):  
Negative Affect ◽  
Convergent Validity ◽  
Reliability And Validity ◽  
Psychometric Validation ◽  
Dimensional Structure ◽  
Positive And Negative Affect ◽  
Divergent Validity ◽  
Good Reliability ◽  
Confirmatory Factor ◽  
High Internal Consistency

This study investigated the psychometric properties of the revised Positive and Negative Affect Schedule for Children (PANAS-C; Joiner, Catanzaro & Laurent, 1996) in 228 nonclinical children and adolescents aged between 8 and 15 years. The results revealed that the PANAS-C possesses high internal consistency and encouraging convergent validity, as demonstrated by correlations with the theoretically related constructs of Neuroticism and Extraversion. Construct validity was supported through confirmatory factor analysis, which revealed a two dimensional structure comprising Negative and Positive Affect. Divergent validity was confirmed by the nonsignificant correlation between positive and negative affect. Thus, the PANAS-C was demonstrated to have good reliability and validity, subject to minor changes in item content.

Spanish Version of the Pain Vigilance and Awareness Questionnaire: Psychometric Properties in a Sample of Women with Fibromyalgia

2014 ◽  
Vol 17 ◽  
Author(s):  
M. Pilar Martínez ◽  
Elena Miró ◽  
Ana I. Sánchez ◽  
María J. Lami ◽  
Germán Prados ◽  
...  
Keyword(s):  
Psychometric Properties ◽  
Convergent Validity ◽  
Goodness Of Fit ◽  
Pain Syndrome ◽  
Optimal Cutoff ◽  
Good Reliability ◽  
Confirmatory Factor ◽  
Spanish Women ◽  
Optimal Cutoff Point ◽  
Attention To Pain

AbstractExcessive attention to pain is a common psychological characteristic among people who suffer from chronic pain. The Pain Vigilance and Awareness Questionnaire (PVAQ) is an internationally accepted tool to assess this feature, although there is no validated version of this measure for Spanish people with fibromyalgia. Since this pain syndrome mainly affects women, the aim of this study was to determine the psychometric properties of the PVAQ in Spanish women with fibromyalgia. A group of 242 women diagnosed with fibromyalgia aged between 20 and 66 years participated in the study. The goodness of fit of several structures of the PVAQ reported in previous studies was compared via confirmatory factor analysis. A two-factor solution (active vigilance and passive awareness) of the 9-item shortened version (PVAQ-9) was identified as the most appropriate (RMSEA = .08, NNFI = .96, CFI = .97, GFI = .87). It showed good reliability (internal consistency α = .82), convergent validity and divergent validity (p < .01). The optimal cutoff point for identifying fibromyalgia women with worse daily functioning was a score of 24.5, with a sensitivity of .71 and a specificity of .75. The relevance of vigilance to pain for clinical research in fibromyalgia is discussed.

Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care

2008 ◽  
Vol 22 (3) ◽  
pp. 270-280 ◽  
Author(s):  
P Hudson ◽  
K Quinn ◽  
L Kristjanson ◽  
T Thomas ◽  
M Braithwaite ◽  
...  
Keyword(s):  
Palliative Care ◽  
Family Caregivers ◽  
Educational Group ◽  
Home Based ◽  
Group Programme

scholarly journals A Study on the Competence Characteristics of Psychological Hotline Counselors During the Outbreak of COVID-19

2021 ◽  
Vol 12 ◽  
Author(s):  
Linyu You ◽  
Xiaoming Jia ◽  
Yaping Ding ◽  
Qin An ◽  
Bo Li
Keyword(s):  
Factor Analysis ◽  
Confirmatory Factor Analysis ◽  
Exploratory Factor Analysis ◽  
Reliability And Validity ◽  
Average Score ◽  
Second Phase ◽  
Good Reliability ◽  
Confirmatory Factor ◽  
Competence Scale ◽  
Psychological Assistance

Introduction: After the outbreak of COVID-19, psychological hotlines functioned as a main channel of psychological assistance and required a large number of professionals to provide services. These hotlines mostly offered a single-use service with short session times and allowed callers to retain anonymity. They functioned as a psychological counseling service for stress experienced in the COVID-19 public health emergency. Hotline psychological counselors must meet special competency requirements. The selection and evaluation tools for recruiting hotline counselors need to be developed.Materials and Methods: The initial scale of competence for psychological hotline counselors was formed by expert evaluation based on theoretical constructs and by using the Delphi method. A link to the questionnaire was sent to a WeChat group of counselors from 36 major psychological hotlines in China in two stages. The questionnaire consisted of questions to elicit basic demographic information and the initial competence scale. In the first phase, 343 valid samples were used to perform exploratory factor analysis. In the second phase, 334 valid samples were used to perform confirmatory factor analysis. The status of the competence of psychological hotline counselors was also analyzed.Results: The factor structure of the Psychological Hotline Counselor Competence Scale was verified and defined in terms of skills, attitude, and knowledge. The results of exploratory factor analysis and confirmatory factor analysis showed that the scale has good reliability and validity (χ2/df = 1.758, GFI = 0.86, RMSEA = 0.05, CFI = 0.96, NFI = 0.91, NNFI = 0.95). The McDonald’s omega for each factor was calculated (ωF1 = 0.927, 95%CI [0.914, 0.940]; ωF2 = 0.958, 95%CI [0.951, 0.965]; ωF3 = 0.954, 95%CI [0.945, 0.961]). Meanwhile, it was found that the psychological hotline counselors’ self-assessed competence had a high average score (n = 334).Conclusion: The Competence Scale for Psychological Hotline Counselors for Major Public Emergencies developed in this study has good reliability and validity, and can be a reliable tool for organizing psychological assistance and screening hotline psychological counselors during public emergencies in the future.

scholarly journals Development of a questionnaire assessing nursing staff’s knowledge, attitude, and practice on the prevention of the nosocomial infection in elderly patients: testing reliability and validity†

2021 ◽  
Vol 8 (2) ◽  
pp. 141-151
Author(s):  
Fu-Lin Cai ◽  
Xiu-Feng Chen ◽  
Yong-Xin Wang
Keyword(s):  
Factor Analysis ◽  
Nosocomial Infection ◽  
Elderly Patients ◽  
Goodness Of Fit ◽  
Reliability And Validity ◽  
Mean Square ◽  
Attitude And Practice ◽  
Confirmatory Factor ◽  
Fit Index ◽  
Knowledge Attitude And Practice

Abstract Objective To develop a questionnaire assessing nursing staff’s knowledge, attitude, and practice on the prevention of the nosocomial infection in elderly patients and test its reliability and validity. Methods After the drafted questionnaire was developed, two rounds of Delphi survey were conducted by consulting experts to improve the questionnaire. Subsequently, 700 copies of the questionnaire were distributed to nursing staff to assess its reliability and validity. Results Exploratory factor analysis (EFA) identifies 3 aspects, namely knowledge, attitude, and practice, with a total of 38 items. The Cronbach’s α coefficients of the questionnaire and each of the aspects are 0.85, 0.80, 0.886, and 0.77 (>0.7), respectively. Confirmatory factor analysis (CFA) of each of the aspects are c2/df = 3.99, 2.26, and 3.32; Goodness-of-fit index (GFI) = 0.91, 0.97, and 0.92; Root mean square error of approximation (RMSEA) = 0.06, 0.04, and 0.05; Comparative fit index (CFI) = 0.91, 0.96, and 0.90. Conclusions Through this study, it can be ascertained whether the developed questionnaire enjoys sound reliability and validity in assessing nursing staff’s knowledge, attitude, and practice on preventing the nosocomial infection in elderly patients and thus has certain application value.

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