scholarly journals The Role of Parent/Caregiver with Children Affected by Rare Diseases: Navigating between Love and Fear

2021 ◽  
Vol 18 (7) ◽  
pp. 3724
Author(s):  
Beni Gómez-Zúñiga ◽  
Rafael Pulido ◽  
Modesta Pousada ◽  
Manuel Armayones
Keyword(s):  
Grounded Theory ◽  
Rare Disease ◽  
Theoretical Models ◽  
Role Identity ◽  
Theory Approach ◽  
Structured Interviews ◽  
General Outline ◽  
Disease Experience ◽  
Grounded Theory Approach

In this paper, we propose a vision of the role of parent/caregiver with children affected by a rare disease. This vision is rooted in data obtained from our own research; however, our analysis and interpretation of this data have been subsequently checked against existing theoretical models. The research aims to explore how parents who look after children with a rare disease experience their role as caregivers and how they assimilate their role identity in this task. Semi-structured interviews were performed with parents of 10 children, and a qualitative data analysis was conducted using grounded theory. We have identified ten main categories using a grounded theory approach: stress, disorientation, insecurity, isolation, faith, trust, attention, communication with professionals, private proactivity and public proactivity. Our results also show that when parents perceive a greater burden due to looking after a child with a rare disease, the result is a change in the usual parental role. In our contribution, we offer a general outline of how parents build a role identity centred on caring for a child with a rare disease. We posit that this role identity is the outcome of the parents’ success or failure in gradually overcoming fear through love. We have conceptualized this process as navigating between love and fear.

Use of 4.0 (I4.0) technology in HRM: a pathway toward SHRM 4.0 and HR performance

foresight ◽  
2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Rajasshrie Pillai ◽  
Shilpi Yadav ◽  
Brijesh Sivathanu ◽  
Neeraj Kaushik ◽  
Pooja Goel
Keyword(s):  
Grounded Theory ◽  
Industry 4.0 ◽  
Design Methodology ◽  
Extensive Literature ◽  
Theory Approach ◽  
Structured Interviews ◽  
Content Type ◽  
Hr Managers ◽  
The Impact ◽  
Grounded Theory Approach

Purpose This paper aims to investigate the use of Industry 4.0 (I4.0) technology and its barriers in human resourcemanagement (HRM) for Smart HR 4.0 and its impact on HR performance. Design/methodology/approach The research has been conducted using the grounded theory approach. Semi-structured interviews were conducted with 122 senior HR officers of national and multi-national companies in India after the extensive literature review. NVivo 8.0 software was used for the analysis of the interview data. Findings I4.0 technology is used for HRM functions by HR professionals. It is revealed that Smart HR 4.0 that emerged from the I4.0 technology has leveraged the HR performance. It is also found that usage barriers, traditional barriers and risk barriers affect the use of I4.0 technology in HRM. Originality/value A model is developed using the grounded theory approach for HR managers to understand the impact of I4.0 on HRM. This study reveals the barriers affecting the use of I4.0 technology in HRM. It also provides the model for HR performance that emerged through the use of I4.0 technology in HR and Smart HR 4.0. The research delivered key insights for the HR professionals, marketers of HR technology and technology developers.

Exploring bullying among Indian managers: a grounded theory approach

2019 ◽  
Vol 13 (4) ◽  
pp. 588-611 ◽  
Author(s):  
Upasna A. Agarwal ◽  
Arpana Rai
Keyword(s):  
Grounded Theory ◽  
Workplace Bullying ◽  
Study Data ◽  
Theory Approach ◽  
Validity Of Results ◽  
Content Type ◽  
Outcome Relationship ◽  
Grounded Theory Approach ◽  
Intervening Factors

Purpose This paper aims to explore the phenomenon of workplace bullying – its nature, antecedents, direct and indirect effects – from victim’s perspective. Design/methodology/approach The study adopted grounded theory approach and centered on the participants experiences and interpretations of bullying. A total of 23 self-reported victims formed the sample of our study. Data from interviews were analyzed using the coding procedure of grounded theory methodology. To enhance validity of results, in addition to interviews, creative drawings were used for triangulation. Findings The study reveals some similarities and culturally relevant variation in the sources and outcomes of bullying. The role of culture on bullying is visible. The study also adds to the limited literature on underlying and intervening factors in bullying–outcome relationship. Research limitations/implications The study examined bullying from the victim’s perspective. Perpetrator and bystander’s perspectives would have added interesting insights into the findings. Practical implications Effective identification of, prevention of and intervention in workplace bullying are imperative for individuals and organizations. Rich descriptions from victims on enablers of bullying and how these events have affected their everyday experiences may also boost practitioners’ and policymakers’ willingness to rectify the potential issues leading to bullying in organizations. Originality/value The present study contributes to the workplace bullying research in general and Indian context in particular by examining contextually relevant antecedents, consequences as well as underlying and intervening factors.

The Virtuous Circle: A Grounded Theory Exploration of the Good Lives Model

Sexual Abuse ◽  
2018 ◽  
Vol 31 (8) ◽  
pp. 908-929
Author(s):  
Miriam Ryan ◽  
Mathew McCauley ◽  
Davina Walsh
Keyword(s):  
Grounded Theory ◽  
Constructivist Grounded Theory ◽  
Future Research ◽  
Theory Approach ◽  
Structured Interviews ◽  
Community Based ◽  
Good Lives Model ◽  
Sexual Offenses ◽  
Grounded Theory Approach ◽  
Good Lives

Sexual offenses evoke strong emotional responses and frequently elicit demands from society that offenders be indefinitely incarcerated or treated until they are deemed safe, which may impact the provision of therapeutic treatment for offenders. However, in recent years, there has been a proposal to move toward a positive, strengths-based treatment approach, namely the Good Lives Model (GLM). The present study used semi-structured interviews and a constructivist grounded theory approach to examine the experience of 13 men who were voluntarily engaging in or had completed a GLM community-based treatment program. A conceptual model emerged which outlines the process the men underwent, the factors they identified as crucial for change, and the perceived gains. The model extends previous work by exploring the process from the clients’ perspective. Implications for future research, prevention, and treatment are discussed.

A Theoretical Model of Spousal Caregiving Postintensive Care

2019 ◽  
Vol 32 (2) ◽  
pp. 120-126 ◽  
Author(s):  
Margie E. Burns
Keyword(s):  
Grounded Theory ◽  
Theoretical Model ◽  
Critical Illness ◽  
Literature Review ◽  
Empirical Adequacy ◽  
Nursing Interventions ◽  
Theory Approach ◽  
Spousal Caregiving ◽  
Grounded Theory Approach

Assuming the role of caregiver for a life partner after critical illness can be both a rewarding and challenging experience for spouses. Using a grounded theory approach, Ågård, Egerod, Tønnesen, and Lomborg developed a theoretical model describing the experience from spouse to caregiver and back. To further develop this theoretical model, a literature review was completed and nursing interventions were identified and included in the model. Testing of this theoretical model is recommended to determine its empirical adequacy.

What Counts as an Apology? Exploring Stakeholder Perceptions in a Hypothetical Organizational Crisis

2017 ◽  
Vol 32 (2) ◽  
pp. 202-232 ◽  
Author(s):  
Joshua M. Bentley
Keyword(s):  
Grounded Theory ◽  
Crisis Communication ◽  
Comparative Method ◽  
Two Dimensions ◽  
Organizational Crisis ◽  
Theory Approach ◽  
Constant Comparative Method ◽  
To Receive ◽  
Grounded Theory Approach

Many scholars have studied the role of organizational apologies in crisis communication, but they have defined and operationalized apologies inconsistently. This study uses a grounded theory approach to explore what constitutes an effective organizational apology from the perspective of organizational stakeholders. One hundred participants were asked to imagine being the victims of a data breach at an online retailer and to write the kind of apology they would like to receive from the organization. One hundred more participants were asked to write suggestion lists for how the organization could make its apology effective. These data were analyzed using a constant comparative method. Fifteen apology elements were identified and organized along two dimensions: (a) whether the element involved primarily words or behavior and (b) whether the element focused on fixing the problem or rebuilding relationships. Based on the data, these elements must be combined to make an apology effective with stakeholders.

scholarly journals PEDAGOGY OF CALCULUS IN INDIA: AN EMPIRICAL INVESTIGATION

2020 ◽  
Vol 17 (34) ◽  
pp. 164-180
Author(s):  
Ashraf ALAM
Keyword(s):  
Grounded Theory ◽  
Real Life ◽  
Teaching Experience ◽  
Study Data ◽  
Extensive Study ◽  
Pedagogical Practices ◽  
Theory Approach ◽  
Structured Interviews ◽  
Before And After ◽  
Grounded Theory Approach

When students learn a calculus construct, both a concept image as well as a concept definition is imprinted in their mind, and because of it, concrete and real-life examples become a prerequisite for a contextually rich learning environment for the abstractions inherently present in calculus. In the light of aforementioned propositions, the current study focusses on delving into several issues, few of the prominent ones include the epistemological nature of calculus curriculum in India’s senior-secondary schools, role of Indian calculus teachers in students’ cognition, possibility of enumeration of characteristics of a successful calculus teacher with regards to India’s socio-cultural milieu, challenges regarding complete immersion of calculus in manipulation of symbols that eventually give rise to cognitive obstacles, interrelationship between teachers’ calculus content knowledge and their pedagogical practices, effect of secondary school calculus on performance of Indian students’ college calculus, and the nature of effect on Indian learners having calculus in school on their procedural and conceptual performance. For this extensive study, data were collected from PGTs and Assistant/Associate Professors having more than 8 years of calculus teaching experience drawn from 76 different schools, colleges and universities belonging to 23 different states and union territories of India. A total of 323 teachers took part in this study. Multiple methods of data collection were used including naturalistic observation, structured interviews, classroom observations, focussed group interviews, and informal discussions, and these were done both before and after the classroom teaching. The researcher transcribed the interviews, identified emerging and repeated themes, and used NVivo and Concordance software to conduct content and classroom discourse analysis, with simple counting methods and applied grounded theory approach using which empirical data were thematically categorized and in the process of it, employed the induction approach. The researcher analyzed the transcripts using N5 (NUD*IST 5.0; QSR International, Melbourne) with the grounded theory approach. This research study is purely qualitative in nature and its framework lies within the interpretative paradigm. The current study was carried out between June 2016 and March 2019. Findings indicate that there are lots of cognitive obstacles in understanding the concepts inbuilt in calculus: two of the prominent ones that came out from the study include the one related to intuitions and the other related to linguistic/representational aspects.

scholarly journals Telemedicine in The Context of Covid-19- A Qualitative Study of Cancer Patients and Clinicians

2021 ◽  
Author(s):  
Dylan Chan Tai Kong ◽  
Ashfaq Chauhan ◽  
Anaïs Tiffany Ah Leung ◽  
Melvin Chin
Keyword(s):  
Qualitative Study ◽  
Theory Approach ◽  
Structured Interviews ◽  
Hospital Data ◽  
Metropolitan Regions ◽  
Theoretical Sampling ◽  
Proper Training ◽  
Grounded Theory Approach

Abstract Background:Prior to the Covid-19 pandemic, telemedicine was only used to deliver health care to patients living in remote areas of Australia. However, the spread of the Covid-19 virus pushed the widespread uptake of telemedicine across Australia, including in metropolitan regions. This qualitative study will explore the medical oncology (MO) patient and clinician experience of telemedicine in a metropolitan setting as a result of Covid-19.Method:Participants were selected and invited to participate by theoretical sampling from MO clinicians and patients attending MO clinics at Prince of Wales Hospital. Data was collected by in-depth semi-structured interviews. Thematic analysis was performed to analyse the interview data. Transcripts were coded using the grounded theory approach to identify overarching themes.Results:Twelve participants were recruited to the study. Most participants viewed the adoption of telemedicine positively because it was considered as convenient, efficient and could be used in order to reduce the spread of Covid-19. Nonetheless, participants complained about the poor implementation of telemedicine, technical difficulties and lack of proper training. Finally, providers expressed mixed views over the lack of personal interaction and the lack of physical examination from telemedicine. However, both clinicians and patients viewed telemedicine as acceptable to be used in the context of routine follow-ups.Conclusion:Although some operational improvements are necessary, the role of telemedicine in the follow up of MO patients seems likely to continue beyond Covid-19.

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