scholarly journals ASSOCIATION OF LEVEL OF BURDEN AND QUALITY OF LIFE AMONG HOME-BASED THERAPISTS OF STROKE SURVIVORS

2020 ◽  
Vol 9 (1) ◽  
pp. 23-28
Author(s):  
Maha Khan

ABSTRACT OBJECTIVES The incidence of stroke is high among the Pakistani population as compared to developed countries. Studies concluded that home based rehabilitation therapy increases the quality of life of survivors; however, it also increases the burden on rehabilitation therapists. Thus, this study aims to investigate the association between the level of burden and quality of the therapist’s life to address health-related outcomes STUDY DESIGN Cross-sectional survey. STUDY SETTINGS & PARTICIPANTS Total numbers of 100 therapists working in home-based rehabilitation were selected through the non-probability sampling technique. The data was collected through the World Health Organization Quality Of Life (WHQoL) questionnaire and Zarit Burden Interview. RESULTS A total number of 150 participants enrolled in the study, which comprised of 50 males and 100 females with a mean age of 25.8±5.14 years, while 50 refused to participate. The results show no significant association between the level of burden and quality of life. On the WHOQoL scale, 39% of the participants showed moderate to severe level of burden, 21% had mild to moderate burden while 19% had a level of severe burden. CONCLUSION Home-based therapy for stroke survivors has shown beneficial impact by implementing client-centred practice, however it also increases the burden on the caretakers and therapy service providers. The participants of the recent study have an average quality of life and an increased level of burden therefore, further studies are required to address the healthcare needs of therapists working in a home-based setting to improve health outcomes of both the therapist and the patient.

Author(s):  
Roy Eilat ◽  
Barak Hazor ◽  
Eli Carmeli

Abstract: Wheelchair basketball, a popular sport that allows for the inclusion of different levels of disability, has been played since 1946. It became a Paralympics sport in 1988. The aim of the study was to examine the association between quality of life (QOL) and achievement among wheelchair basketball players on a national level.Seven German players and 11 Israeli players participated in the study. The 36-Item Short Form Health Survey and the the World Health Organization Quality of Life questionnaires were used to measure QOL, and a sociodemographic questionnaire was used for individual athletic lifestyles.: Due to low compliance by several countries, only Germany and Israel were surveyed. There was no significant difference in the QOL scores between Israeli and German players. Israeli players were, on average, older than German players and had higher incomes. German players dedicated more time to the sport than Israeli players.QOL and team achievement were influenced by hours of practice and younger age, which were related to physical ability requirements for athletic performance. QOL was not contingent on income level or achievement.


2019 ◽  
Author(s):  
Sherphard Chidarikire ◽  
Merylin Cross ◽  
Isabelle Skinner ◽  
Michelle Cleary

Abstract Background Schizophrenia is a complex and severe mental disorder affecting more than 20 million people worldwide. Although understanding peoples’ experiences of living with an illness is core to assessment, planning and delivering culture specific health care, little is known about the experiences of people living with schizophrenia in resource-poor countries. This article reports on a study that explored the everyday lives of eighteen people living with schizophrenia in Zimbabwe and its impact on their quality of life. Methods This focused ethnography was conducted over a three-month period in 2015. Data were collected using semi-structured interviews, non-participant observational fieldwork, and the short form of the World Health Organization Quality of Life questionnaire. Interview data were digitally recorded, transcribed and translated from Shona (local language) to English. Descriptive statistics and non-parametric tests were used to analyse questionnaire data. Qualitative data were analysed thematically using an established framework. Results Survey data indicate internal consistency in the psychological and social relationships domains and poor quality of life for people aged 20-40. The major factors related to quality of life were: age, gender, family dislocation: living with stigma and discrimination; and limited and variable access to treatment and support. Obtaining and paying for antipsychotic medications were challenging and female participants recounted experiencing gender-based stigma. Conclusions Findings from our study suggest that age, gender, family dislocation, stigma, discrimination, and variable limited access to affordable medications and support undermine quality of life by disrupting participants’ ability to function in socially acceptable ways, their sense of belonging and self-worth, and family, work and social relations. Strengthening access to mental health services, addressing the affordability and availability of medications and initiatives to alleviate stigma and promote a sense of belonging, especially for younger adults and women should be a priority for government and health service providers. Further research on managing mental health issues such as schizophrenia in Zimbabwe, should focus on initiatives to strengthen quality of life.


2021 ◽  
Vol 11 (11) ◽  
pp. 1509
Author(s):  
Eva Lourenço ◽  
Mário Rui dos Mártires Sampaio ◽  
Hipólito Nzwalo ◽  
Emília Isabel Costa ◽  
José Luis Sánchez Ramos

Introduction: the perception of Quality of Life (QoL) has been used to evaluate the treatment and evolution of several pathologies. QoL evaluation allows a better understanding of the patient and his adaptation to the disease. An observational, community-based and descriptive correlational study was carried out to analyze stroke survivors’ perception of QoL. Methods: consecutive case-series of stroke survivors (≥3 months) followed in a single public primary health center (“Tavira Primary Health Centre”) from Algarve, southern Portugal. The Portuguese version of the World Health Organization Quality of life instrument was administered in 102 stroke survivors. Results: Perception of QoL was associated (p < 0.05) with specific sociodemographic (age, sex, marital status, academic training), economic (monthly family income) and clinical factors (number of vascular risk factors, type of stroke, evolution, chronic mRankin score). On multivariate analysis, chronic mRankin score on physical (R2 = 0.406; F = 8.757; p < 0.001), psychological (R2 = 0.286; F = 5.536; p < 0.001) and general domain (R2 = 0.357; F = 7.287; p < 0.001); and family income (R2 = 0.160; F = 3.156; p < 0.005) on environmental domain, emerged as predictors of QoL. Conclusion: Different socio-demographic, economic and health factors are associated with post-stroke QoL. Description of QoL contributes to the overall evaluation of the impact of stroke on health and should be a priority for health professionals.


2020 ◽  
Vol 2 (1) ◽  
pp. 68-75
Author(s):  
Jonathan Quartey ◽  
◽  
Felix Appiah Lartey ◽  
Hosea Boakye ◽  
Samuel K. Kwakye ◽  
...  

Background:The impact of stroke on the quality of life of stroke caregivers is often given lower priority in its management, regardless of the consequences of caregiving and its economic benefits to the patient and community at large. Currently there is paucity of research data on quality of life among caregivers of stroke survivors in Ghana.Objective: To investigate the quality of life (QoL) among caregivers of stroke survivors.Methods:Fifty stroke survivors and their caregivers attending physiotherapy at Korle-Bu Teaching Hospital, Accra and fifty non-caregivers were purposively recruited for this cross-sectional study. World Health Organization Quality of Life Scale (WHOQoL)-Bref was used to obtain information regarding the QoL of the caregivers and non-caregivers. The level of functional independence of the stroke survivors was assessed with Barthel Index. Independent t-test and unpaired t-test were used to analyse the data obtained.Results:The mean age of the caregivers, stroke survivors and the non-caregivers were 41.6±14.2, 59.5±10.9, and 41.5±14.8 respectively. Out of the 50 caregivers, 31(62%) were females. The overall QoL of the caregivers and non-caregivers were 54.5±10.3 and 59.3±9.8 respectively. There was significant difference in the physical health between caregivers and non-caregivers. Conclusion: Caregivers of stroke survivors in Accra have reduced QoL. The level of functional independence of the stroke survivor, age and educational status of the caregiver can influence caregivers’ QoL. Keywords: Stroke, caregivers, stroke survivors, quality of life, non-caregiver


Author(s):  
Osunwale D. Oni ◽  
Andrew T. Olagunju ◽  
Victor O. Olisah ◽  
Olatunji F. Aina ◽  
Francis I. Ojini

Objectives: To investigate the prevalence of post-stroke depression (PSD), its associated factors and impact on quality of life (QoL) among outpatients in a Nigerian hospital.Methods: This cross-sectional study was carried out among 140 adults made up of 70 stroke survivors and matched controls with stable hypertension. Participants were administered questionnaires to profile their socio-demographic and clinical characteristics. Subsequently, they were assessed with the modified mini-mental state examination (MMSE), modified Rankin Scale (mRS), schedule for clinical assessment in neuropsychiatry (SCAN) and World Health Organization Quality of Life-BREF (WHOQoL-BREF).Results: The mean ages (± s.d.) of stroke survivors and controls were 57.43 (± 9.67) years and 57.33 (± 9.33) years, respectively. Majority of stroke survivors (n = 55 [78.6%]) had infarctive stroke, and 37 (52.9%) had right hemispheric lesion. Sixteen (22.9%) stroke survivors had PSD, with moderate to severe depression (F32.1) being the most prevalent, while none of the controls was clinically depressed. PSD correlated positively with monthly health bill above 10 000 naira ($61), significant post-stroke disability and poorer scores on all QoL domains (p < 0.05).Conclusion: Depression was 20-fold prevalent in stroke survivors compared to controls with stable hypertension, and sevenfold the life-time prevalence reported among adult general population in Nigeria. Furthermore, increased health care bills per month, significant post-stroke disability and poorer QoL indicated survivors more likely to have depression. Findings in this study support the need to pay closer attention to psychosocial needs of stroke survivors to improve well-being. Future longitudinal study on psychosocial burden of stroke is warranted.


2013 ◽  
Vol 61 (1) ◽  
pp. 17-26 ◽  
Author(s):  
Katrin Leenen ◽  
Michael Rufer ◽  
Hanspeter Moergeli ◽  
Hans-Jörgen Grabe ◽  
Josef Jenewein ◽  
...  

Aus Untersuchungen in der Normalbevölkerung ist bekannt, dass Menschen mit erhöhten Alexithymiewerten eine verminderte Lebensqualität (LQ) aufweisen. Für Patienten mit psychischen Störungen wurde dieser Zusammenhang jedoch kaum untersucht. Ziel dieser Studie war es, den möglichen Zusammenhang zwischen alexithymen Patientenmerkmalen und der LQ bei Patienten mit Angststörungen zu überprüfen. Bei 79 ambulanten Patienten mit Angststörungen wurden alexithyme Charakteristika mit der Toronto Alexithymia Scale (TAS-20), die LQ mit der Kurzversion des World Health Organization Quality of Life Questionnaire 100 (WHOQOL-BREF) erfasst. Darüber hinaus fand eine Erhebung der psychischen Symptombelastung (SCL-90-R) und depressiven Symptomatik (MADRS) statt. Mittels hierarchischer Regressionsanalysen wurde der Zusammenhang zwischen der alexithymen Charakteristika und den unterschiedlichen LQ-Domänen berechnet. Die Patienten zeigten eine im Vergleich zur Normalbevölkerung deutlich verminderte LQ. Als Hauptergebnis fand sich, auch nach Kontrolle von Depression, Ängstlichkeit und Geschlecht, ein signifikanter Zusammenhang zwischen den beiden TAS-20 Subskalen Schwierigkeiten, Gefühle zu identifizieren und zu beschreiben und vor allem der psychischen LQ. Unsere Ergebnisse sprechen dafür, bei der Diagnostik und Therapieplanung von Patienten mit Angststörungen alexithyme Merkmale einzubeziehen. Im Falle von ausgeprägten alexithymen Merkmalen sollten psychotherapeutische Interventionen zur Verbesserung der Schwierigkeiten Gefühle wahrzunehmen und zu kommunizieren in Betracht gezogen werden.


2020 ◽  
Vol 21 (1) ◽  
pp. 49
Author(s):  
Augusto Baumhardt Guidoti ◽  
Ângelo Pereira Cattani ◽  
Cintia Laura De Araujo ◽  
Fernanda Beatriz Costa Delacoste ◽  
Guilherme Scotta Hentschke ◽  
...  

The Glittre ADL-test (TGlittre) has been designed and validated to measure functional capacity during daily living activities in patients with chronic obstructive pulmonary disease (COPD) but is now used in several other situations. The aim of this study was to evaluate the applicability of TGlittre in a sample of overweight and obese eutrophic elderly. This was an experimental and cross-sectional study, which included 21 elderly women, allocated by BMI, in eutrophic (n = 8), overweight (n = 6) and obese (n = 7) groups. They were assessed for functional capacity (TGlittre and 6MWT), quality of life (QOL) with the questionnaire World Health Organization Quality of Life for Older People (WHOQOL-OLD) and handgrip strength (HGS). TGlittre correlated with age (p = 0.0040) and with 6MWT (p = 0.0086), but no statistical difference was found in TGlittre's performance time and the distance covered in 6MWT between groups. TGlittre did not correlate with HGS (p = 0.1493) and WHOQOL-Old (p = 0.0905). The data obtained in the present study corroborate that TGlittre is used as a functional measurement variable in the elderly population.Keywords: aged, obesity, exercise intolerance.­­­


2008 ◽  
Vol 66 (2a) ◽  
pp. 163-167 ◽  
Author(s):  
Heloísa Rovere ◽  
Sueli Rossini ◽  
Rubens Reimão

OBJECTIVE: To evaluate the perception of Quality of Life (QL) in Brazilian patients with narcolepsy. METHOD: 40 adult patients aged between 20 and 72 years (mean=41.55; SD=14.50); (28 F; 12M), with the diagnosis of chronic narcolepsy were followed up at the outpatient clinic (Patient Group). The Control Group was composed of 40 adults. The instrument utilized was the World Health Organization Quality of Life (WHOQOL-BREF). RESULTS: The two groups were homogeneous and no difference was found with regards to age, sex, and demographic characteristics. The perception of QL in physical, psychological and social domains showed lower scores in those patients with narcolepsy than in the control group (p<0.05). Concerning physical domain, all the aspects evaluated were significantly impaired, in patient group, including sleep satisfaction (p<0.001); energy for daily activities (p=0.039); capacity to perform activities (p=0.001); and capacity to work (p=0.001). CONCLUSION: The perception of QL showed severe impairment in patients with narcolepsy for physical, psychological and social domains.


Author(s):  
Huan-Hwa Chen ◽  
Chich-Hsiu Hung ◽  
Ai-Wen Kao ◽  
Hsiu-Fen Hsieh

Irritable bowel syndrome (IBS) is a common recurrent functional gastrointestinal disorder that impacts on patients physically and mentally. Studies on IBS have focused on adults, yet few studies have examined IBS among female university students. The aim of this study was to investigate the prevalence of IBS for female university students and its related factors. Using a cross-sectional study design, a total of 2520 female university students were recruited in southern Taiwan. The structured questionnaires, including the Rome III IBS diagnostic questionnaire, IBS symptom severity scale, Perceived Stress Scale, and World Health Organization Quality of Life BREF questionnaire (WHOQOL-BREF) were used for data collection. A total of 1894 female students complete the questionnaires. The response rate was 75.15%. The results indicated 193 female students with IBS and the prevalence of IBS was 10.1%. IBS female students had higher levels of stress and lower QOL than non-IBS female students. The risk factors for female university students developing IBS were dysmenorrhea, food avoidance, class absenteeism, and the lower physical domain of QOL. It is advised to consider these factors when providing students with counselling and relevant services in the expectation of alleviating their IBS symptoms, reducing the incidence rate of IBS, and further improving their QOL.


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