scholarly journals On the issue of introducing an electronic database of children with oncological diseases into specialized medical organizations: results of a medical and social research

2021 ◽  
Vol 2 (1) ◽  
pp. 57-64
Author(s):  
M. Yu. Rykov ◽  
O. A. Manerova

Accounting for children with cancer is characterized by low reliability of statistics. In addition, the available data do not have significant scientific value., Since they represent only an approximate number of patients identified annually and some general information (incidence, prevalence, etc.). Moreover, subsequent analysis of the accumulated information is of particular importance. An electronic database of children with cancer has been developed that meets these requirements and has been introduced into the clinical practice of pilot medical organizations.Purpose of the study. Our aim was to study the opinions of pediatric oncologists on the issues of registration of children with oncological diseases.Materials and methods. In order to assess the results of the implementation of the electronic database, a "Questionnaire for a survey of a pediatric oncologist to assess the effectiveness of the implementation of an electronic database" was developed, which contained 15 questions. For objectivity, the questionnaires were filled in anonymously by the respondents.Results. The medico- social study involved 187 pediatric oncologists. The majority of respondents (71.3 ± 3.3%) noted that currently there is no register of children with cancer in the Russian Federation, 15.4 ± 2.6% noted the regional register, 9.1 ± 2.1% – independent in individual medical organizations, 1.7 ± 0.9% is a single register for the Russian Federation and 2.5 ± 1.1% are not aware of this. Among respondents, 81.9 ± 2.8% noted that the electronic database is an effective tool for recording children with cancer, while as an advantage, 15.1 ± 2.6% noted an increase in the reliability of statistical data, 9.2 ± 2.1% – reduction of time for searching patient information, 4.4 ± 1.5% – optimization of working time, 71.3 ± 3.3% – a combination of the above options.Conclusion. A medical and social study showed the feasibility of introducing an electronic database of children with cancer into the clinical practice of pediatric oncologists.

Author(s):  
M. Yu. Rykov ◽  
O. A. Manerova ◽  
I. A. Turabov ◽  
V. V. Kozlov ◽  
V. A. Reshetnikov

.Objective. To study the opinion of parents (legal representatives) on the problems of medical care for children with oncological diseases.Methods. The study was based on the Questionnaire for parents (legal representatives) on medical care children with cancer. The questionnaire consisted of 27 questions, the respondents were asked to choose one or several answers or to enter their own option.Results. This medical and social study demonstrated that 81.1±1.9% of respondents are not satisfied with the attitude of doctors and nurses towards them and their children, 15.9±1.8% of respondents are partially satisfied and only 3±0.8% of respondents are fully satisfied. The reasons for dissatisfaction were as follows: rude communication (35.8±2.4%), inadequate attention of medical personnel (21.3±2.0%) and lack of interest in the treatment success (19.7±2.0%). The combination of these options was noted by 23.2±2.0% of the respondents. 63.7±2.4% of respondents would prefer to treat their children at a medical organization of federal subordination, 33.9±2.4% – at medical organization outside the territory of the Russian Federation, of which 57.4±2.4% would like to receive a patient-oriented service and simplified routing between medical organizations during treatment. 12.7±1.6% mistrust in the qualifications of medical personnel in the Russian Federation, 11.8±1.6% of respondents indicated the lack of comfortable conditions for examination and treatment, 5.3±1.1% of respondents indicated the lack of necessary diagnostic and treatment methods and 12.8 1.6% of respondents indicated a combination of the above options.Conclusion. The results obtained indicate the need to implement patient-oriented approaches and to improve the routing of children with cancer.


2020 ◽  
Vol 19 (1) ◽  
pp. 53-59
Author(s):  
Maxim Y. Rykov ◽  
Olga A. Manerova ◽  
Ivan A. Turabov ◽  
Vasily V. Kozlov ◽  
Vladimir A. Reshetnikov

To study the opinions of parents (legal representatives) on the problems of organizing medical care for children with oncological diseases, a medical and social study was conducted. This study aims to examine the opinions of parents on the problems of organizing medical care for children with oncological diseases. This study was conducted based on the developed questionnaire for recording the opinions of parents (legal representatives) on improving the organization of medical care for children with cancer. The questionnaire comprised 27 questions, in which the respondents were asked to choose one or more answer options for each of them. For objectivity, the questionnaires were filled in anonymously. This medical and social study showed that 81.1 1.9% of the respondents are not satisfied with the attitude of doctors and nursing staff toward them and their children, 15.9 1.8% are only partially satisfied, and 3 0.8% are fully satisfied (roughness in communication (35.8 2.4%), lack of sufficient attention from medical personnel (21.3 2.0%), and lack of interest in the success of treatment (19.7 2.0%)). The combination of these options was noted by 23.2 2.0% of respondents. As the preferred treatment site for their children, 63.7 2.4% of the respondents indicated a medical organization of federal subordination and 33.9 2.4% a medical organization located outside the territory of the Russian Federation, in which 57.4 2.4 % of the respondents mentioned the possibility of receiving a patient-oriented service and complex routing during treatment between the medical organizations in the Russian Federation as a reason for choosing. Furthermore, 12.7 1.6% of the respondents indicated a lack of confidence in the qualifications of medical personnel in the Russian Federation; 11.8 1.6%, the lack of comfortable conditions for examination and treatment; 5.3 1.1%, the lack of necessary diagnostic and treatment methods; and 12.8 1.6%, a combination of the listed options. Overall, the findings of this study indicate the need to further improve the organization of medical care for children with cancer: introducing patient-oriented approaches and improving patient routing to create a patient-centric health care system for organizing medical care for children with cancer are necessary.


Author(s):  
M. Yu. Rykov ◽  
O. A. Manerova ◽  
I. A. Turabov ◽  
V. V. Kozlov ◽  
V. A. Reshetnikov

Actuality. Over the past decades, there has been a steady increase in the number of oncological diseases in children, most of which are detected at common stages. Moreover, only 5.2% of patients are actively detected (during routine preventive examinations).Material and methods. In order to detect oncological diseases in children in the early stages, an “Algorithm for determining the feasibility of referring a patient for consultation with a pediatric oncologist” (hereinafter referred to as the Algorithm) has been developed, which is a questionnaire of 20 questions. Answering with unambiguous answers (yes / no), a local pediatrician may decide on further tactics of examination and treatment of the patient. In order to analyze the results of the implementation of the Algorithm, a “Questionnaire for a local pediatrician to evaluate the effectiveness of the implementation of the Algorithm for determining the feasibility of referring a patient for a consultation with a pediatric oncologist” has been developed, which consisted of 10 questions.Results. 427 district pediatricians took part in the medical and social study, taking into account stratification by federal districts of the Russian Federation: from the Central Federal District – 101 (23.6%) respondents, from the North-West Federal District – 40 (9.2%), from the Southern Federal District – 47 (10.9%), from the North Caucasus Federal District – 32 (7.7%), from the Volga Federal District – 92 (21.4%), from the Ural Federal District – 32 (7.7%), from the Siberian Federal District – 55 (12.9%) ), from the Far Eastern Federal District – 28 (6.6%). After the implementation of the Algorithm in clinical practice, the number of patients referred for consultation with a pediatric oncologist increased, which was noted by 61.9±2.4% of respondents. In this case, the Algorithm is used by 11.3±1.5% of the respondents, sometimes used by 12.6±1.6%, used if they are suspected of having an oncological disease by 21.9±2.0%. Among those who do not apply the Algorithm in clinical practice, 78.1±2.0% indicated that they had not received it before.Conclusion. A survey showed the feasibility of introducing into clinical practice the “Algorithm for determining the feasibility of referring a patient for consultation with a pediatric oncologist”.


2019 ◽  
Vol 18 (2) ◽  
pp. 5-14 ◽  
Author(s):  
M. Yu. Rykov

Background. Planning the organization of medical care for children diagnosed with cancer as well as assessing the quality of care is based on the statistical data analysis.The purpose of the study was to analyze the main parameters characterizing medical care for children with cancer in the central Federal district.Material and methods. The reports of the executive authorities in the sphere of health protection of 18 subjects of the Russian Federation included into the central Federal district were analyzed for 2017.Results. The number of children aged 0–17 years was 6 824 049, the number of pediatric oncology departments was 9, the number of hospital beds for children with cancer was 464, the number of bed-days per year was 319.3. the number of physicians providing pediatric cancer care was 91, of them 64 (70.3 %) had a certificate of a pediatric oncologist. in 11 subjects of the Russian Federation, there were no departments of pediatric oncology, and in 1of them, there were no hospital beds for children with cancer. the number of patients newly diagnosed with cancer was 821. the number of patients who died of cancer was 156, of them 66 were diagnosed with cancer in 2017. the cancer incidence rate was 12 per 100,000 children aged 017 years; the mortality rate was 2.3 per 100,000 children aged 017 years. the one-year mortality rate was 8 %. the mean time taken to establish the diagnosis and the time interval between diagnosis and initiation of treatment was unknown, since the reports did not contain precise information. twelve (1.5 %) patients left the territory of the Russian Federation for receiving treatment outside the Russian Federation.Conclusion. The information provided in most reports was not statistically reliable. the cancer incidence rates were significantly lower than those in countries with high statistical reliability. For reliable estimation of the number of inpatient beds for children with cancer and the percentage of children referred for the treatment to the federal medical centers, it is necessary to implement a unified database for pediatric oncology in the Russian Federation.


2016 ◽  
Vol 3 (2) ◽  
pp. 67-79
Author(s):  
M.Yu. Rykov ◽  
◽  
E.N. Baibarina ◽  
O.V. Chumakova ◽  
V.G. Polyakov ◽  
...  

2020 ◽  
Vol 6 ◽  
pp. 35-44
Author(s):  
L. A. Shmarov ◽  

Based on the analysis of citizens’ claims against medical organizations, as well as on the basis of the analysis of the courts’ consideration of such claims, significant differences were found in the amount of compensation for non-pecuniary damage under various conditions related to both the condition of the victim of medical assistance rendered with defects and on the number of patients. It was shown that it is necessary to further accumulate material in order to obtain a more objective picture of satisfied claims and unification in the Russian Federation. Similar calculations can be carried out for other situations related to the possibility of causing moral harm, for example, disseminating information defaming the honor and dignity of a citizen, or compensating moral harm caused by unlawful actions of a law enforcement officer during criminal proceedings. Using the established average values, the court can, on the basis of established factual circumstances, calculate the amount of compensation for non-pecuniary damage in a particular case.


Author(s):  
G.A. Nurlygayanova ◽  
◽  
V.I. Belousov ◽  
A.A. Varentsova ◽  
A.S. Sharypov ◽  
...  

In the Russian Federation, for the period from 2014 to 2019, the largest number of patients with brucellosis was detected among cattle – 55,591 heads and small cattle - 8,814 heads, which is 80.7 % and 12.8 %, respectively, of the total number of animals that respond positively to brucello-sis. Brucellosis of cattle was detected in 28 subjects of the Russian Federation, brucellosis of small cattle-in 8, brucellosis of horses in 9, brucellosis of pigs and deer (marals) in three subjects, respec-tively. In 2019, 397 cases of the disease were registered in the country.


2020 ◽  
Vol 18 (3) ◽  
pp. 115-140
Author(s):  
Natalia Sienko

The starting point for this article was research conducted from February to April 2017 and in January and February 2020. The purpose of the work is to show the image and position of the Russian Federation in the eyes of respondents who participated (incl. residents of Moscow, Arkhangelsk, Saint Petersburg and Vladivostok) in in-depth interviews conducted by the author. The principal analysis concerns the results obtained in 2017, and the specific changes observed three years after the initial surveys were completed.


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