scholarly journals The burden of care, quality of life and depression in relatives of patients with serious mental illness treated at Lentegeur Hospital

2018 ◽  
Vol 24 ◽  
Author(s):  
Sihle Nhlabathi ◽  
John Parker ◽  
Bonginkosi Chiliza ◽  
Lebogang Phahladira
Keyword(s):  
Quality Of Life ◽  
Mental Illness ◽  
Caregiver Burden ◽  
Psychosocial Support ◽  
Subjective Evaluation ◽  
Care Quality ◽  
Burden Of Care ◽  
Cross Sectional ◽  
Symptoms Of Depression

Background: The association between caregiver burden, quality of life and depression in patients with mental illness in a resource-limited setting is underresearched. Factors associated with caregiver burden may be amenable to intervention.Aim: To describe the level of caregiver burden and its association with quality of life and depression.Methods: The cross-sectional study was carried out in a psychiatric hospital in the Cape Flats, which is an urban area on the periphery of Cape Town. Data were collected from 104 caregivers of patients attending the outpatients service. Caregiver burden was measured using the Zarit Burden Interview questionnaire. The PHQ-9 questionnaire was to screen and measure severity of symptoms of depression. The WHOQOL-BREF was used to measure the subjective evaluation of the quality of life.Results: Most caregivers were female (76.92%), and caregivers were mild to moderately stressed (mean ZBS score 33.38 ± 21.59) and experienced moderate depression (mean PHQ-9 score). These effects were significantly associated with quality of life in psychological and social domains.Conclusion: Caring for patients with mental illness can lead to immense physical and psychological distress, leading to poor quality of life. Strategies that may reduce the burden of care may include improving the patients’ quality of life and addressing psychosocial support, and clinicians should consider screening for symptoms of depression in caregivers.

scholarly journals Quality of life of patients with lung cancer: A scoping review

2019 ◽  
Vol 22 (2) ◽  
Author(s):  
Rafael Turano Mota ◽  
Helder Márcio Ferreira Júnior ◽  
Fabiane Silva Pereira ◽  
Maria Aparecida Vieira ◽  
Simone de Melo Costa
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Scoping Review ◽  
Prospective Studies ◽  
Current Knowledge ◽  
Care Quality ◽  
Life Questionnaire ◽  
Cross Sectional ◽  
European Organization

Abstract Objective: To characterize scientific publications on the quality of life of people with lung cancer in order to explore current knowledge of the subject, with emphasis on assessment instruments and methodological aspects. Method: A scoping type literature review was performed. Articles were sought in the databases of the Virtual Health Library, in an integrative manner, with the descriptors: Quality of life and Lung Neoplasms, with no date of publication or language restrictions (n=138). The selection of articles was based on inclusion and exclusion criteria defined in the study proposal. Results: We included 18 publications published between 2006 and 2017, the majority (n = 10) of which had a cross-sectional design. Eight different instruments were used to evaluate the quality of life of patients with lung cancer, four of which were specific for people with cancer. There was a prevalence of the use of the European Organization for Research and Treatment of Cancer Care Quality of Life Questionnaire - EORTC QLQ-C30 (n=8). Prospective studies (n=8) assessed quality of life before and after chemotherapy, physical therapy or pulmonary resection. The studies adopted different methodologies and provided conflicting results of quality of life. Cross-sectional studies with comparatively healthy subjects found an inferior quality of life for people with lung cancer. Conclusion: The scoping review contributed to the identification of the multiple evaluated instruments, both generic and specific. It found a lack of homogeneity in the methodological approaches of the studies. Further prospective studies with a specific instrument and methodological standardization to evaluate the quality of life of people with lung cancer are recommended.

scholarly journals Quality of life in patients with severe mental illness: a cross-sectional survey in an integrated outpatient health care model

2020 ◽  
Vol 29 (8) ◽  
pp. 2073-2087 ◽  
Author(s):  
Anne Berghöfer ◽  
Luise Martin ◽  
Sabrina Hense ◽  
Stefan Weinmann ◽  
Stephanie Roll
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Mental Illness ◽  
Severe Mental Illness ◽  
Care Model ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Health Care Model

Burden of Care and Quality of Life in Home Caregivers of Patients With Stroke in Iran

2019 ◽  
Vol 31 (4) ◽  
pp. 213-218 ◽  
Author(s):  
Nooshin Masoudian ◽  
Mohammad Sarmadi ◽  
Rasool Najafi ◽  
Fereshteh Najafi ◽  
Shirin Maleki
Keyword(s):  
Quality Of Life ◽  
Cross Sectional Study ◽  
Burden Of Care ◽  
Cross Sectional ◽  
Outpatient Unit ◽  
Sf 36 ◽  
Neurology Clinic ◽  
Bivariate Regression ◽  
The Relationship

The purpose of this study was to investigate the relationship between Burden of Care and Quality of Life in informal home caregivers of stroke patients in Iran. Also we were trying to explore the factors that affect the burden of care. In this cross-sectional study, we have selected 62 informal home caregivers of the patients admitted to “the stroke outpatient unit of the neurology clinic” of the central hospital in Semnan province, Iran, to take part in the investigation. We interviewed them using the Caregiver Burden Inventory and SF-36 Questionnaire for assessing their quality of life. There was a negative and significant correlation between different aspects of quality of life and burden of care. In the bivariate regression model, being married and having lower levels of education (minimum years of schooling) were associated with higher levels of the burden. Our study shows that increasing burden of care in informal home caregivers reduces the quality of life in all domains. Thus, the results of this study indicate that an increase in the burden of caregiving on caregivers lowers their quality of life in all aspects; especially, caregivers who provide care to their spouses encountered more burden. Therefore, these caregivers must be in the center of interest while planning to reduce the burden of care.

scholarly journals Influence of symptoms of depression on the quality of life of men diagnosed with prostate cancer

2018 ◽  
Vol 21 (1) ◽  
pp. 70-78
Author(s):  
Taysi Seemann ◽  
Fernanda Pozzobom ◽  
Melissa de Carvalho Souza Vieira ◽  
Leonessa Boing ◽  
Zenite Machado ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Prostate Cancer ◽  
Cross Sectional Study ◽  
Chi Square ◽  
Related Factors ◽  
Cross Sectional ◽  
European Organization ◽  
Exact Test ◽  
Symptoms Of Depression

Abstract Objective: to evaluate the prevalence of symptoms of depression among men diagnosed with prostate cancer and their association with quality of life and treatment-related factors. Methods: a cross-sectional study of 85 men with a mean age of 66±8 years who were diagnosed with prostate cancer was performed. The survey was based on a questionnaire with previously validated instruments which investigated social, demographic and economic characteristics, the history of the disease, quality of life (European Organization for Research and Treatment of Cancer Questionnaire C30 - EORTC QLQ-C30 / QLQ-PR25) and symptoms of depression (Beck Depression Inventory). The presence of symptoms of depression was considered an outcome, and statistical analyzes were performed using the Chi-square test, Fisher's exact test, Mann Whitney U test and Poisson regression (p<0.05). Results: significant results were found for quality of life in relation to symptoms of depression in the functional, global and symptomatic health scale (p<0.001). This demonstrates that the presence of symptoms of depression is related to a negative quality of life. Conclusions: for a greater understanding of prostate cancer and its consequences on the quality of life of patients it is important to consider possible disorders in psychological aspects caused by the illness, as symptoms of depression are frequent in patients undergoing treatment for prostate cancer.

scholarly journals Differences in Functionality Between Independent, Slight, and Moderate Dependent Older Adults: A Cross-sectional Study

2021 ◽  
Author(s):  
María Teresa Valenzuela ◽  
Claudia Rodriguez ◽  
Diego González ◽  
Andres Glasinovic ◽  
Rodrigo Guzmán-Venegas ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Barthel Index ◽  
Cross Sectional Study ◽  
Cognitive Capacity ◽  
Cross Sectional ◽  
Symptoms Of Depression ◽  
Gradual Process ◽  
Climbing Stairs

Abstract Background: Aging is a gradual process characterized by damage to the physiological functions that frequently lead to dependence in the older adults of 60 years or older. We hypothesize significant differences in mental and physical capacity between fully independent older adults and slight to moderate dependent older adults. Method: A cross-sectional analysis of 322 older adults of 60 years or more, with a Barthel Index equal to or higher than 60, who attended day centers during August 2018 in Santiago-Chile was used. Quality of life, physical ability, cognitive capacity, and symptoms of depression of fully independent with slight to moderate dependent older adults are compared.Results: A higher proportion of older adults with complete independence have higher levels of quality of life and mobility. Even a small reduction in independence has a significant reduction in quality of life. An increase from a 60-90 score to a 91-99 score in the Barthel Index rises 42% [CI95% 18-66] the EQ-5D score, this difference increases to 49% [CI95% 29-70] for full independence. Climbing stairs and incontinence in urination are the two main activities related to having a lower independence level (lower than 100 Barthel Index score). Ambulation and climbing stairs are the two main activities related with lower than the cutoff levels of normality for quality of life (EQ5D) and physical condition (TUG). Finally, urine and bowel incontinence, and lower levels of ambulation are the main activities related with symptoms of depression (Yesavage score).Conclusion: There were significant differences in health-related measures among different levels of independent older adults. Understanding the potential causes of these differences could help prioritize the focus of multidimensional programs on health and prevention with the aim of prolonging older adults’ state of independence and improving their quality of life.

scholarly journals Social support and unmet social needs in life after stroke: a cross-sectional observational study

2019 ◽  
Author(s):  
Sophie Mirabell Lehnerer ◽  
Benjamin Hotter ◽  
Inken Padberg ◽  
Petra Knispel ◽  
Dike Remstedt ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Caregiver Burden ◽  
Unmet Needs ◽  
Social Needs ◽  
Stroke Patients ◽  
Cross Sectional ◽  
Degree Of Disability

Abstract Background: Stroke patients are often affected by long-term disabilities with needs concerning social issues. There is relatively little consideration of social recovery of patients and the support required to return to work, receive social benefits, participate in daily life activities, maintain contact with family and friends and to organize financial affairs. In our study we aimed to investigate if existing tools record social needs adequately. We analyzed the current provision of social support provided in long-term care after stroke and whether unmet social needs were associated with quality of life, caregiver burden, overall function and degree of disability. Methods: Our analysis is part of the Managing Aftercare of Stroke study (MAS-I), a cross-sectional observational study of patient needs 2-3 years after initial stroke. Assessment tools included the Nikolaus-score (social situation), the EuroQoL (quality of life), the German Burden Scale for Family Caregivers (caregiver burden), the modified Rankin Scale (disability / dependence), Stroke Impact Scale (function and degree of disability) and the Stroke Survivor Needs Questionnaire (unmet needs). Results: Overall 57 patients were included in MAS-I, with ten patients classified in urgent need of socio-economic support according to the Nikolaus-score. Patients with lower than normal Nikolaus-score had a higher degree of disability. Thirty percent of all patients had never received professional social support. Social worker contact happened mostly during the stay in acute hospital or rehabilitation institution. Only four patients (11%) reported long-term support after discharge. Apart from social worker contact during acute care, 43% of patients had unmet needs in the long-term aftercare. Forty percent of all patients included in MAS-I were recommended for social work intervention after an in-depth analysis of their situation. Finally, we saw that unmet social needs were associated with lower quality of life and higher caregiver burden. Conclusions: Our data suggest significant unmet needs in social care in long-term stroke patients. Screening tools for unmet social needs such as the Nikolaus-score do not holistically report patients’ needs.

scholarly journals The relationship between internalized stigma and quality of life among people with mental illness: are self-esteem and sense of coherence sequential mediators?

2017 ◽  
Vol 26 (9) ◽  
pp. 2471-2478 ◽  
Author(s):  
Piotr Świtaj ◽  
Paweł Grygiel ◽  
Anna Chrostek ◽  
Izabela Nowak ◽  
Jacek Wciórka ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Illness ◽  
Sense Of Coherence ◽  
Psychiatric Treatment ◽  
Self Esteem ◽  
Internalized Stigma ◽  
Cross Sectional ◽  
People With Mental Illness ◽  
Sectional Analysis

Abstract Purpose To elucidate the mechanism through which internalized stigma reduces the quality of life (QoL) of people with mental illness by exploring the mediating roles of self-esteem and sense of coherence (SOC). Methods A cross-sectional analysis of 229 patients diagnosed with schizophrenia or affective disorders was undertaken to test a sequential mediation model assuming that more severe internalized stigma is related to lower self-esteem, which is associated with weaker SOC, which in turn relates to worse QoL. Results The proposed model was supported by the data. A sequential indirect effect from internalized stigma to QoL via self-esteem and SOC turned out to be significant [beta = −0.06, SE = 0.02; 95% CI (−0.11, −0.03)]. Support was also found for simple mediation models with either self-esteem or SOC as single mediators between internalized stigma and QoL. Conclusions Self-esteem and SOC are personal resources that should be considered as potential targets of interventions aiming to prevent the harmful consequences of internalized stigma for the QoL of people receiving psychiatric treatment.

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