The Active Role of Material Things: An Environment-Based Conceptual Framework to Understand the Well-Being of People with Dementia

No contexto em que tudo que se ouve é crise, urgência e mudança, falar sobre as possibilidades de ação em prol de um futuro sustentável é uma necessidade. Estão surgindo, em diversos lugares no mundo, iniciativas com capacidade de propor uma visão de bem-estar renovada, calcada na sustentabilidade e no agir coletivo, conhecidas como organizações colaborativas. Tais empreendimentos promovem pequenas rupturas locais no modelo econômico vigente, ao mesmo tempo que criam casos promissores de inovação social. Ao observar as características das organizações colaborativas e as relações que estabelecem com o ecossistema onde estão inseridas, o presente estudo estabelece uma conexão comparativa entre essas organizações e os sistemas abertos, apresentando um conceito que amplia o entendimento acerca do funcionamento e das possibilidades de ação das organizações. O objetivo, com isso, é apontar as possibilidades do design – encarado aqui sob seu viés estratégico – em fomentar as atividades de inovação social das organizações colaborativas. Utilizando o framework conceitual do metadesign, são sugeridas duas contribuições para dar suporte à organização; para habilitar seus atores a serem co-criadores; e também para transformar o próprio designer, que se assume então o papel de articulador desse sistema complexo: o co-design e o seeding.ABSTRACT In a context where all you can hear is crisis, urgency and change, to speak about the possibilities of action towards a sustainable future is a necessity. Initiatives are emerging in several places around the world, that are able to propose a renewed vision of well being based on sustainability and collective action, known as collaborative organizations. Such projects promote small local ruptures on the current economic model, while creating promising cases of social innovation. By observing the characteristics of these collaborative organizations and the relations they establish with the ecosystem where they are inserted, the present study establishes a comparative connection between these organizations and open systems, presenting a concept that amplifies the understanding of the operation and possibilities of action of such organizations. With this, the goal is to point the possibilities of design – understood here under its strategic scope – to foster the actions of social innovation of these collaborative organizations. Using the conceptual framework of metadesign, two contributions are suggested to support the organization; to enable its actors to be co-creators; and to transform the designer himself, who then assumes the role of articulator of this complex system: co-design and seeding.

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Conduct in Dementia: Video Analysis of Arts Interventions

Sociological Research Online ◽

10.1177/1360780419835564 ◽

2019 ◽

Vol 24 (4) ◽

pp. 514-540

Author(s):

Christian Morgner ◽

Spencer Hazel ◽

Justine Schneider ◽

Victoria Tischler

Keyword(s):

Cultural Values ◽

Facial Expressions ◽

Video Analysis ◽

Cultural Context ◽

Visual Art ◽

Meaning Making ◽

Well Being ◽

Art Exhibition ◽

People With Dementia

This study applies video analysis to an investigation of interactions among people with dementia in a cultural context, specifically a visual art exhibition in a gallery. The study adopts a sociologically informed approach to explore the role of artworks and how these may be beneficial to dementia care, by focusing on meaning-making conversational practices among people living with dementia. The interactions of different individuals with various forms of dementia were recorded during three gallery visits, including their engagement with gallery attendants and artworks. The findings reveal the socially empowering impact of interactions related to artwork, with complex patterns in bodily behaviour and facial expressions meaning that orientation to dementia became negligible. The article makes a contribution to the growing field of sociology of ageing and well-being from an interaction analytic perspective, indicating that cultural values can play a greater role in the care of people living with dementia.

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A qualitative analysis of trainer/coach experiences of changing care home practice in the Well-being and Health in Dementia randomised control trial

Dementia ◽

10.1177/1471301218772178 ◽

2018 ◽

Vol 19 (2) ◽

pp. 237-252 ◽

Cited By ~ 3

Author(s):

Jane Fossey ◽

Lucy Garrod ◽

Azucena Guzman ◽

Ingelin Testad

Keyword(s):

Care Home ◽

Well Being ◽

Relationship Building ◽

Randomised Control Trial ◽

Main Theme ◽

Training Methods ◽

Care Home Staff ◽

People With Dementia ◽

Health And Social Care

Objectives This study explored the experiences of a range of health and social care professionals employed in the role of trainer/coaches to support care home staff to implement a psychosocial intervention for residents living with dementia. It aimed to identify the factors which are pertinent to these roles, in the context of a cascade model of training. Method A focus group was convened involving dementia trainer/coaches and supervisors who had worked on Well-being and Health for people with Dementia randomised control trial. Twelve participants explored their preparedness for and experiences of their role as ‘Well-being and Health for people with Dementia therapists’. They reflected on their perceptions of the resources and support required. The data were transcribed verbatim and subjected to inductive thematic analysis. Results Three main themes emerged from the data. Within the theme of ‘skills in relationship building’ were two subthemes of developing trust and getting to know individual staff and each care home. In the second main theme of ‘making use of tangible resources’ two subthemes relating to using the Well-being and Health for people with Dementia manuals and the supervision of the therapists arose. The third theme, ‘being an agent for change’ contained three subthemes: effective training methods, creating opportunities for Dementia Champions to reflect and therapists' perceived rewards of their role. Conclusion The findings provide new insights into the trainer/coach role applicable to the practices of services recruiting, training and providing ongoing professional support to practitioners in-reaching into care homes.

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Staff–resident interactions in long-term care for people with dementia: the role of meeting psychological needs in achieving residents’ well-being

Aging & Mental Health ◽

10.1080/13607863.2014.944088 ◽

2014 ◽

Vol 19 (5) ◽

pp. 444-452 ◽

Cited By ~ 13

Author(s):

Bernadette M. Willemse ◽

Murna Downs ◽

Lonneke Arnold ◽

Dieneke Smit ◽

Jacomine de Lange ◽

...

Keyword(s):

Long Term Care ◽

Well Being ◽

Psychological Needs ◽

Term Care ◽

People With Dementia

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The Biofeedback Odyssey: From Neal Miller to Current and Future Models of Regulation

Biofeedback ◽

10.5298/1081-5937-38.4.05 ◽

2010 ◽

Vol 38 (4) ◽

pp. 136-141 ◽

Cited By ~ 4

Author(s):

Nava Levit Binnun ◽

Yulia Golland ◽

Michael Davidovitch ◽

Arnon Rolnick

Keyword(s):

Operant Conditioning ◽

Self Regulation ◽

Well Being ◽

Active Role ◽

Interpersonal Interactions ◽

Active Involvement ◽

Regulatory Capacity ◽

Large Repertoire ◽

Health And Well Being

Abstract Neal Miller's research on animals and humans launched the field of self-regulation, enabling individuals to take a more active role in their health and well-being. However, his inquiry into whether autonomic operant conditioning occurs remains open to debate. This article contends that present-day biofeedback therapists continue to be confronted by this dilemma. In addition, the authors suggest other models of biofeedback in which the role of the practitioner has been expanded and to which a large repertoire of self-regulation techniques have been added. They propose that, in the future, the regulatory capacity of interpersonal interactions is recognized as in the proffered model of biofeedback, dyadic biofeedback (DBF). DBF allows for real-time training of interpersonal interactions, emphasizing learning through direct observation and active involvement, thus making a return to Miller's model.

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The Homestead: Developing a Conceptual Framework through Co-Creation for Innovating Long-Term Dementia Care Environments

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18010057 ◽

2020 ◽

Vol 18 (1) ◽

pp. 57

Author(s):

Bram de Boer ◽

Belkis Bozdemir ◽

Jack Jansen ◽

Monique Hermans ◽

Jan P. H. Hamers ◽

...

Keyword(s):

Conceptual Framework ◽

Conceptual Model ◽

Residential Care ◽

Well Being ◽

Research Approach ◽

Care Model ◽

Residential Care Facilities ◽

Formal Caregivers ◽

People With Dementia ◽

Older Citizens

Alternative care environments for regular nursing homes are highly warranted to promote health and well-being of residents with dementia that are part of an age-friendly and dementia-friendly city and society. Insight is lacking on how to translate evidence-based knowledge from theory into a congruent conceptual model for innovation in current practice. This study reports on the co-creation of an alternative nursing home model in the Netherlands. A participatory research approach was used to co-create a conceptual framework with researchers, practitioners and older people following an iterative process. Results indicate that achieving positive outcomes for people with dementia, (in)formal caregivers, and the community is dependent on how well the physical, social and organizational environment are congruently designed. The theoretical underpinnings of the conceptual model have been translated into “the homestead,” which is conceptualized around three main pillars: activation, freedom and relationships. The Homestead Care Model is an illustrative example of how residential care facilities can support the development of age-friendly communities that take into consideration the needs and requirements of older citizens. However, challenges remain to implement radical changes within residential care. More research is needed into the actual implementation of the Homestead Care Model.

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«NEW NOBLEWOMEN» IN ENGLAND OF THE FIRST HALF OF THE XV CENTURY: BETWEEN THE NORM AND REALITY

Bulletin of Nizhnevartovsk State University ◽

10.36906/2311-4444/19-3/01 ◽

2019 ◽

pp. 3-11

Author(s):

L. N. Chernova

Keyword(s):

Well Being ◽

Active Role ◽

The Family ◽

The Status ◽

Role Of Women ◽

Rights And Interests

The article is devoted to the urgent and poorly known problem of the place and role of women in the English gentry’s community of the first half of the XV century. Using the information from the correspondence of the Armburghs (The Armburgh Papers), the author traces the main stages of Joan Armburgh's life and varieties of her fortune and that of her nieces and finds out how typical they were in accordance with generally accepted ideas about the place and mission of a woman from the gentry’s family. The article shows that the status of a woman was determined by the family and her well-being depended on the relatives - her father and husband. However, this did not exclude the active role of the woman in asserting her rights and interests of the family. The biography of Joan Armburgh and the facts from the life of her nieces, who belonged to the gentry, contradict the idea of weakness and humility of wives in noble families. Difficulties that they had to deal with forced these women to show a surprising for noblewomen activity and persistent desire to defend their interests, relying on their own connections in society and knowledge of law, and on men’s support.

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The Role of Collaborative Healthcare in Improving Social Sustainability: A Conceptual Framework

Sustainability ◽

10.3390/su12083195 ◽

2020 ◽

Vol 12 (8) ◽

pp. 3195 ◽

Cited By ~ 2

Author(s):

Tahereh Maghsoudi ◽

Rosalía Cascón-Pereira ◽

Ana Beatriz Hernández Lara

Keyword(s):

Conceptual Framework ◽

Current Trend ◽

Social Sustainability ◽

Well Being ◽

Healthcare Services ◽

Collaborative Networks ◽

Policy Makers ◽

The Social ◽

Service Distribution

Healthcare systems around the world face both increasing demands and inequality in service distribution. The current trend is for collaboration among healthcare actors, named as collaborative healthcare, in order to address challenges such as these to improve the social sustainability of the system. That is to provide accessible and equitable healthcare services to meet people’s health and well-being needs. Based on an integrative literature review, this study aims at crafting a conceptual framework to explore how collaborative healthcare networks contribute to social sustainability and the specific actors involved in these collaborations. It identifies relationships between different collaborative healthcare networks and social sustainability. Interprofessional networks have been the most studied in relation to social sustainability. Communication and sharing information or knowledge have been identified as used collaborative healthcare practices. This study contributes theoretically by considering a new model of the healthcare organization in which collaborative networks play a central role in improving social sustainability. In terms of practical implications, the study provides managers and policy makers with investment insights on a range of collaborative networks and practices.

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Dementia-friendly heritage settings: a research review

International Journal of Building Pathology and Adaptation ◽

10.1108/ijbpa-01-2019-0005 ◽

2019 ◽

Vol 38 (2) ◽

pp. 279-310

Author(s):

Monika Sharma ◽

Angela Lee

Keyword(s):

Well Being ◽

Research Review ◽

Future Research ◽

Content Type ◽

Built Heritage ◽

Current State ◽

People With Dementia ◽

Heritage Buildings ◽

Psychosocial Processes

Purpose Preserving our built heritage from the onslaught of weather, pollution, development and the effects of tourism is a complex endeavour. Appended to this is the need to ensure that heritage buildings are inclusive to all users. Thus, built heritage is plagued with contradictions and conflict between conservation goals and those to support inclusivity given the limited resources often available. Dementia has been purposely selected for this study as numbers of diagnosed sufferers are increasing at an alarming rate, and enagement with heritage has been proven to support well-being. The paper aims to discuss this issue. Design/methodology/approach This research review draws on systematic principles and presents an analysis of the available literature on well-being programmes designed for people living with dementia and their care supporters, with particular reference to programmes in heritage settings, and the resulting impact for users. Findings This review critically evaluates the available evidence from published literature on the role of the heritage setting, on how it impacts on the experience of dementia participants. In doing so, it draws on findings from the experiences and well-being of people living with dementia and their care supporters; assesses the current state of knowledge, identifies support implications and makes recommendations for future research. In doing so, it highlights a dearth in the literature on research related to the physical environment setting, particular addressing any cognitive impairments that may arise that can alter psychosocial processes, such as lighting, temperature, acoustics and materiality, so that they can be understood and suitably adapted to support the well-being of those living with dementia. Originality/value The scant lack of financial resources to support inclusivity in built heritage, and the argument that some heritage cannot be adapted, often leads to only limited opportune for people with dementia. Thus, there is an inherent need for an understanding of current research and well-being programmes so that it can be focalled in the future to support built heritage tourism in a way that it is inclusive to all.

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The Use of Mobile Applications as Communication Aids for People with Dementia: Opportunities and Limitations

Journal of Alzheimer s Disease Reports ◽

10.3233/adr-200259 ◽

2021 ◽

pp. 1-12

Author(s):

Anjay Ambegaonkar ◽

Craig Ritchie ◽

Sofia de la Fuente Garcia

Keyword(s):

Communication Technology ◽

Mobile Applications ◽

Well Being ◽

Communication Aids ◽

People With Dementia ◽

Communication Difficulties ◽

Technological Intervention ◽

Communication Needs

Background: Communication difficulties are one of the primary symptoms associated with dementia, and mobile applications have shown promise as tools for facilitating communication in patients with dementia (PwD). The literature regarding mobile health (mHealth) applications, especially communications-based mHealth applications, is limited. Objective: This review aims to compile the existing literature on communications-based mobile applications regarding dementia and assess their opportunities and limitations. A PICO framework was applied with a Population consisting of PwD, Interventions consisting of communication technology, focusing primarily on mobile applications, Comparisons between patient well-being with and without technological intervention, and Outcomes that vary but can include usability of technology, quality of communication, and user acceptance. Methods: Searches of PubMed, IEEE XPLORE, and ACM Digital Library databases were conducted to establish a comprehensive understanding of the current literature on dementia care as related to 1) mobile applications, 2) communication technology, and 3) communications-based mobile applications. Applying certain inclusion and exclusion criteria, yielded a set of articles (n = 11). Results: The literature suggests that mobile applications as tools for facilitating communication in PwD are promising. Mobile applications are not only feasible socially, logistically, and financially, but also produce meaningful communication improvements in PwD and their caregivers. However, the number of satisfactory communications-based mobile applications in the mHealth marketplace and their usability is still insufficient. Conclusion: Despite favorable outcomes, more research involving PwD using these applications are imperative to shed further light on their communication needs and on the role of mHealth.

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