scholarly journals The New Perceptions on Life of Iranian Patients with Ankylosing Spondylitis: A Qualitative Study

Author(s):  
Sara Shahba ◽  
Reza Jafari-Shakib ◽  
Mahdi Mahmoudi ◽  
Ahmadreza Jamshidi ◽  
Mahdi Vojdanian ◽  
...  

Various studies suggest that ankylosing spondylitis (AS) as a chronic inflammatory disease with many disabilities can have impacts on different aspects of patients’ life. Despite many quantitative studies, only few qualitative studies have thus far been published on this subject. For the first time, the present study aims at gaining insight into the life experience of Iranian AS patients. We performed a content analysis through semi-structured interviews with twenty-eight patients diagnosed with AS, including three females and twenty-five males with an average age of 38.5 years, to gain insight into their experiences. Whatever the patients expressed was written and transcribed verbatim. Then, we did analysis of the results after each interview. The detailed information completely extracted from the interviews was classified as sub-themes and main themes. Three main themes were identified by the analysis: (i) “Always with pain” describing the effects were found in regard to pain on patients’ life, (ii) “The perceived limitation” describing many difficulties that people may face in the society as a result of their disease, and (iii) “Fearing the unknown future” which implies to both patients and their families have concerns about the future and what will happen. Our research findings in line with other qualitative studies showed that AS disease puts a heavy and intolerable burden on patients and their family. It seems that the experiences of people living with AS can be useful to meet challenges caused by the disease and it can enhance their coping with the disease.

2017 ◽  
Vol 17 (1) ◽  
pp. 113-133 ◽  
Author(s):  
Mala D Naraine ◽  
Margot R Whitfield ◽  
Deborah I Fels

In this article, the authors present the first documented implementation of a director-produced and delivered audio description (AD) for devising theatre. In a single live, audio-described performance of Highway 63: The Fort Mac Show at Theatre Passe Muraille in Toronto, Canada, the director/describer’s artistically informed approach focuses on entertainment value for blind and low vision (B/LV) theatregoers. In-depth, semi-structured interviews with the director/screenwriter/describer garnered insight into a director’s unique perspective on the development process for the integrated approach to AD, including her artistic choices, expectations and delivery style as a first-time amateur director/describer. The process of developing and delivering integrated AD had a transformative effect on her as a director.


2020 ◽  
Vol 25 (7) ◽  
pp. 747-761
Author(s):  
Angus J. Duff ◽  
Scott B. Rankin

PurposeThe purpose of this study is to understand the lived experience of workers who live in vans to explore how work and non-work interact when one's living environment is mobile.Design/methodology/approachIn this qualitative study, semi-structured interviews were carried out with 18 participants. Thematic analysis of interview transcripts, coded while listening to each interview recording, provided a rich account of the interaction of work and non-work life domains.FindingsSeveral themes were identified, including seeing the van as a home, hidden or disclosed identity stemming from living in a van, financial freedom, career freedom and work/non-work synchronization. Overall, findings suggest that flexible home arrangements, the relocation of one's home to adapt to work, aligned work and non-work domains to positively impact their overall work and non-work satisfaction, providing career freedom and expanded career opportunities.Research limitations/implicationsThe understanding of workers who live in vans broadens one’s understanding of mobile work and the work/non-work interface, providing insight into the dual alignment of work and home to accommodate each other, which the authors term work/non-work synchronization.Originality/valueThis is one of the first studies to consider van living from a work and career perspective and for the first time conceptualizes the notion of flexible home arrangements.


Healthcare ◽  
2021 ◽  
Vol 9 (2) ◽  
pp. 161
Author(s):  
Suzanne Hodgson ◽  
Jon Painter ◽  
Laura Kilby ◽  
Julia Hirst

Fathers in the UK are becoming more involved in the care of their infants and children. A constructivist grounded theory approach was adopted to explore men’s transition to fatherhood. This paper reports on one of the sub-categories derived from the data. First-time fathers with a child under two were recruited predominantly via social media. Audio-recorded semi-structured interviews were undertaken with an opening question asking men to tell their story of becoming a father. Interviews were transcribed and analysed using constructivist grounded theory methods. This paper reports one core aspect of the research findings which has particular relevance for healthcare professionals. The men in this study were highly appreciative of the care their partner and baby received but consistently reported a lack of father-specific support throughout their journey to fatherhood. This ranged from generally poor communication with healthcare professionals to being ignored and side-lined in maternity settings where they continued to be treated as visitors before, during and after the birth of their baby. Despite similar findings being reported over the last 30 to 40 years and policy directives emphasising the importance of working with fathers, change within healthcare services remains slow. Currently, fathers’ needs are not being adequately met by perinatal services.


Author(s):  
Melanie Schädlich ◽  
Daniel Erlacher

In a lucid dream the dreamer is aware of the dream state and can carry out actions deliberately. Lucid dream practice (LDP) is the rehearsal of movements during lucid dreams and constitutes a specific form of mental practice. Previous studies demonstrated that LDP can enhance physical performance. To gain deeper insight into LDP on a qualitative level, sixteen semi-structured interviews were conducted with lucid dreamers from different countries. Inductive content analysis revealed that many different sports and movements can be practiced in lucid dreams. LDP experiences were very realistic, including kinesthetic perception. Required equipment or sparring partners usually were available or could be created and adjusted by the athletes. Thirteen interviewees (81.3%) reported positive effects of LDP. In particular, 10 participants reported to have improved their physical performance through LDP, confirming findings of previous studies. Other positive effects were, for example, strengthened confidence, insights for physical practice (PP), improved flexibility, and positive emotions. The results also demonstrate the special possibilities of LDP like deliberate manipulation of practice conditions, speed, and perspective. Furthermore, problems occurring during LDP are described and how they can be dealt with. Based on the results, practical advice for interested athletes is provided. In conclusion, the present study demonstrates the great potential of LDP for sports practice. LDP could also be applied in other areas that involve motor learning, like rehabilitation, music, or surgery. The present study complements previous LDP findings and provides input and new ideas for future LDP studies. Furthermore, it is an important contribution to general MP research. Findings from LDP research–a small but growing field–should be incorporated into conceptual discussions on MP. Also, by extending LDP research, athletes and coaches could become more aware of this unique and effective method and could start to integrate it into sports practice.


2020 ◽  
Vol 2019 (25) ◽  
pp. 124
Author(s):  
Raymond Arthur ◽  
Rachel Dunn ◽  
Nicola Wake

<p>The article adopts a mixed method approach to evaluating sports and arts-based interventions within Secure Children’s Homes in England and Wales; an under-researched area of the criminal justice system. The research adopts the innovative Diamond9 model and semi-structured interviews to evaluate the study. This is the first time the model has been adopted within a Secure Children’s Home. The results provide an original insight into the voice of this currently underrepresented demographic of the Secure Estate, and highlight future approaches to evaluating rehabilitative models for this hard to reach group.</p><p>Keywords: Dance interventions; Diamond9; Secure Children’s Homes; Sports interventions; Young People.</p>


2020 ◽  
pp. 128-138
Author(s):  
A. S. Bik-Bulatov

The article uses little known letters of M. Gorky, many of which were published for the first time in 1997, as well as findings of Samara-based experts in local history to shed light on the writer’s work as editor-in-chief of the Samarskaya Gazeta newspaper in 1895. The researcher introduces hitherto unstudied reminiscences of the journalist D. Linyov (Dalin) about this period, which reference a letter by Gorky, now lost. The paper details a newly discovered episode of Gorky’s professional biography as a journalist: it concerns his campaign against a Samara ‘she-wolf,’ the madam of a local brothel A. Neucheva. Linyov’s reminiscences turn out to be an important and interesting source, offering an insight into the daily grind of the young editor Gorky, providing new evidence of his excellent organizational skills, and describing his moral and social stance. The author presents his work in the context of a recently initiated broader discussion about the need to map out all Russian periodicals for the period until 1917, as well as all research devoted to individual publications.


Delirium is a common serious complication in dementia that is associated with poor prognosis and a high burden on caregivers and healthcare professionals. Appropriate care is therefore important at an early stage for patients with delirium superimposed on dementia To gain insight into the care of six patients with delirium superimposed on dementia, 19 semi-structured interviews were conducted focused on the experiences of caregivers and professionals. The interviews revealed four themes that appeared to play a role: 1. experiences with and views on behavioral problems of these patients, 2. recognition and diagnosis of delirium in dementia, 3. views on good care and 4. organizational aspects. Knowledge gaps about delirium in dementia, as well as ethical considerations, play an important role in organizing timely and adequate care for patients with delirium superimposed on dementia.


Author(s):  
Andrew Erskine

Plutarch wrote twenty-three Greek Lives in his series of Parallel Lives—of these, ten were devoted to Athenians. Since Plutarch shared the hostile view of democracy of Polybius and other Hellenistic Greeks, this Athenian preponderance could have been a problem for him. But Plutarch uses these men’s handling of the democracy and especially the demos as a way of gaining insight into the character and capability of his protagonists. This chapter reviews Plutarch’s attitude to Athenian democracy and examines the way a statesman’s character is illuminated by his interaction with the demos. It also considers what it was about Phocion that so appealed to Plutarch, first by looking at his relationship with the democracy and then at the way he evokes the memory of Socrates. For him this was not a minor figure, but a man whose life was representative of the problems of Athenian democracy.


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