scholarly journals Effect of Family-Centered Care on Maternal Coping and Care Participation for their Children with Congenital Heart Diseases

2021 ◽  
Vol 3 (2) ◽  
pp. 10
Author(s):  
Amira S. E. Hussein ◽  
Wafaa E. A. Ouda ◽  
Randa M. Adly
Keyword(s):  
Congenital Heart ◽  
Heart Surgery ◽  
Heart Diseases ◽  
Congenital Heart Diseases ◽  
Family Centered Care ◽  
Care Intervention ◽  
Significant Difference ◽  
Centered Care ◽  
Maternal Coping ◽  
Family Centered

Contents: Families of children with congenital heart disease face frequent healthcare encounters due to their child's care trajectory. With an emphasis on assuring caring in healthcare, it is necessary to understand parents’ perceptions of healthcare providers’ actions when their child undergoes heart surgery. Aim:  This study aimed to evaluate the effect of family-centered care intervention on maternal coping and participation in care for their children with congenital heart diseases. Methods: A quasi-experimental design was used. The study was carried out at the pediatric inpatient department in Cardiovascular Hospital, affiliated to Ain Shams University Hospitals. A purposive sample of 50 children undergoing heart surgery and their accompanying mothers. The study was used a structured interview questionnaire, the family-centered care scale, the index of mothers' participation, mothers’ practice observational checklists, and the coping process scale to collect the study’s data. Results: The study reveals a statistically significant difference in the mothers' total coping pattern after family-centered care intervention compared to before intervention at p=0.000. A statistically significant difference was also revealed regarding the total mothers' participation in the care of their children with congenital heart disease at p=0.000. There was a strong positive correlation between total mothers' coping patterns, participation, and mothers' total actual practices regarding their children's care suffering from congenital heart diseases after the intervention. Conclusion: The family-centered care intervention effectively improved mothers' coping patterns and participation in care for their children with congenital heart diseases. Emphasizing the importance of family (usually the mother) participation in care for their children with congenital heart diseases during hospitalization for heart surgery. Designing and carrying out educational programs for pediatric nurses to promote family-centered care in clinical practice.

scholarly journals The Practices of Family-Centered Care for Hospitalized Children: Comparison of Iranian Mothers and Nurses' Perceptions

2021 ◽  
Vol 11 (4) ◽  
pp. 20-24
Author(s):  
Parvaneh Vasli
Keyword(s):  
Neonatal Intensive Care ◽  
Cross Sectional Study ◽  
Care Staff ◽  
Family Centered Care ◽  
Cross Sectional ◽  
Significance Level ◽  
Significant Difference ◽  
Centered Care ◽  
The Difference ◽  
Family Centered

Background: Family-centred care (FCC) practices are challenging from the perspectives of both parents and health professionals. Purpose: This study aimed to compare experiences with FCC practices between Iranian mothers and nurses. Design and Methods: This comparative cross-sectional study was conducted in 2019 on 233 mothers with hospitalized infants or children and 233 nurses working in neonatal intensive care units or pediatric wards selected using convenience sampling at five hospitals in Iran. Data regarding experiences about FCC practices among mothers and nurses was collected through the Perceptions of FamilyCentered Care-Parent (PFCC-P) and the Perceptions of Family-Centered Care-Staff (PFCC-S) questionnaires containing the three subscales of Respect, Collaboration, and Support and 21 similar items. Descriptive and inferential statistics were utilized for data analysis using the IBM SPSS Statistics software. The significance level was set as p<0.05. Results: The mean and standard deviation of mothers' and nurses' experiences of FCC were 2.68±0.53 and 3.05±0.39; respectively (range, 1–4). The lowest score belonged to the subscale “respect.” There was a statistically significant difference between mothers and nurses in their experiences with FCC practices in all three subscales. The nurses reported more positive experiences with FCC practices than the mothers did (p<0.001). Conclusion: The mothers and nurses exercised FCC differently and nurses' experiences were more positive. Reasons behind the difference in mothers' and nurses' experiences with FCC practices should be investigated. Interventions are required to remove barriers associated with FCC practices in accordance with healthcare in Iran.

scholarly journals An ARC-Informed Family Centered Care Intervention for Children’s Community Based Mental Health Programs

2015 ◽  
Vol 25 (1) ◽  
pp. 275-289 ◽  
Author(s):  
Su-chin Serene Olin ◽  
Anthony L. Hemmelgarn ◽  
Kappy Madenwald ◽  
Kimberly E. Hoagwood
Keyword(s):  
Mental Health ◽  
Health Programs ◽  
Family Centered Care ◽  
Community Based ◽  
Care Intervention ◽  
Centered Care ◽  
Mental Health Programs ◽  
Family Centered

scholarly journals Variation in clinical usefulness of biomarkers of acute kidney injury in young children undergoing cardiac surgery

2020 ◽  
Vol 63 (4) ◽  
pp. 151-156
Author(s):  
Hee Sun Baek ◽  
Youngok Lee ◽  
Hea Min Jang ◽  
Joonyong Cho ◽  
Myung Chul Hyun ◽  
...  
Keyword(s):  
Acute Kidney Injury ◽  
Cardiac Surgery ◽  
Young Children ◽  
Serum Creatinine ◽  
Congenital Heart ◽  
Heart Diseases ◽  
Kidney Injury ◽  
Clinical Usefulness ◽  
Congenital Heart Diseases ◽  
Significant Difference

Background: Acute kidney injury (AKI) is one of the most significant postoperative complications of pediatric cardiac surgery. Because serum creatinine has limitations as a diagnostic marker of AKI, new biomarkers including neutrophil gelatinase-associated lipocalin (NGAL), kidney injury molecule-1 (KIM-1), and interleukin-18 (IL-18) are being evaluated to overcome these limitations and detect AKI at an early stage after cardiac surgery.Purpose: This study aimed to investigate the clinical usefulness of these biomarkers in young children.Methods: Thirty patients with congenital heart diseases who underwent cardiac surgery using cardiopulmonary bypass (CPB) were selected, and their urine and blood samples were collected at baseline and 6, 24, and 48 hours after surgery. Serum creatinine and blood urea nitrogen levels as well as NGAL, KIM-1, and IL-18 levels in urine samples were measured, and clinical parameters were evaluated.Results: Of the 30 patients, 12 developed AKI within 48 hours after cardiac surgery. In the AKI group, 8 of 12 (66.6%) met AKI criteria after 24 hours, and urine KIM-1/creatinine (Cr) level (with adjustment of urine creatinine) peaked at 24 hours with significant difference from baseline level. Additionally, urine KIM-1/Cr level in the AKI group was significantly higher than in the non-AKI group at 6 hours. However, urine NGAL/Cr and IL-18/Cr levels showed no specific trend with time for 48 hours after cardiac surgery.Conclusion: It is suggested that urine KIM-1/Cr concentration could be considered a good biomarker for early AKI prediction after open cardiac surgery using CPB in young children with congenital heart diseases.

scholarly journals PENERAPAN FAMILY CENTERED-CARE (FCC) TERHADAP KETERAMPILAN ORANG TUA DALAM PERAWATAN BAYI PREMATUR

2019 ◽  
Vol 5 (2) ◽  
pp. 119-127
Author(s):  
Anafrin Yugistyowati
Keyword(s):  
Intervention Group ◽  
Premature Baby ◽  
Control Group ◽  
Family Centered Care ◽  
Significant Difference ◽  
Before And After ◽  
Centered Care ◽  
Quasi Experimental ◽  
Associated Family ◽  
Family Centered

Background:Parents’ skillsin taking care of premature babies need to be developed to promote parents role in nurturing. The application of Family-Centered Care (FCC) through associated family program is one of the interventions to optimalize parent’s capability. Objective:This study aimed to identify the parent’s skill in the care of premature baby before and after the application of FCC. Methods:The research design was quasi-experimental,employing pre- and post-test with nonequivalent control group. Data were collectedin a non-probability sample with consecutive sampling method. Sample wereparents who hadpremature babiesandwere hospitalized at Perinatology Unit Saras Husada HospitalPurworejo.This research involved 36 respondents. Data were analyzedwith the Wilcoxon Signed Ranks Test. Result:There was not a significant difference on parents’ skills in control group (p= 0.083). Parents in intervention group showed difference in skills after the intervention (p= 0.025). Conclusion: There were significant differences in parents’ skills, before and after the intervention of FCC. Keywords:Premature Baby, Family-Centered Care, Skill Parents

scholarly journals 3D Modeling and Printing in Congenital Heart Surgery: Entering the Stage of Maturation

2021 ◽  
Vol 9 ◽  
Author(s):  
Shi Joon Yoo ◽  
Nabil Hussein ◽  
Brandon Peel ◽  
John Coles ◽  
Glen S. van Arsdell ◽  
...  
Keyword(s):  
3D Printing ◽  
Surgical Training ◽  
Congenital Heart ◽  
Heart Surgery ◽  
Surgical Simulation ◽  
Heart Diseases ◽  
Congenital Heart Surgery ◽  
Congenital Heart Diseases ◽  
3D Printed ◽  
The Impact

3D printing allows the most realistic perception of the surgical anatomy of congenital heart diseases without the requirement of physical devices such as a computer screen or virtual headset. It is useful for surgical decision making and simulation, hands-on surgical training (HOST) and cardiovascular morphology teaching. 3D-printed models allow easy understanding of surgical morphology and preoperative surgical simulation. The most common indications for its clinical use include complex forms of double outlet right ventricle and transposition of the great arteries, anomalous systemic and pulmonary venous connections, and heterotaxy. Its utility in congenital heart surgery is indisputable, although it is hard to “scientifically” prove the impact of its use in surgery because of many confounding factors that contribute to the surgical outcome. 3D-printed models are valuable resources for morphology teaching. Educational models can be produced for almost all different variations of congenital heart diseases, and replicated in any number. HOST using 3D-printed models enables efficient education of surgeons in-training. Implementation of the HOST courses in congenital heart surgical training programs is not an option but an absolute necessity. In conclusion, 3D printing is entering the stage of maturation in its use for congenital heart surgery. It is now time for imagers and surgeons to find how to effectively utilize 3D printing and how to improve the quality of the products for improved patient outcomes and impact of education and training.

Family Centered Care For Patients With Congenital Heart Defects: Enhancing The Role Of Palliative Care

2021 ◽  
Author(s):  
Jesse Boyett Anderson ◽  
Alida Yee ◽  
Allie Kiley ◽  
Kristin Shadman ◽  
Shardha Srinivasan ◽  
...  
Keyword(s):  
Palliative Care ◽  
Congenital Heart Defects ◽  
Congenital Heart ◽  
Heart Defects ◽  
Family Centered Care ◽  
Centered Care ◽  
Family Centered

PENERAPAN FAMILY CENTERED-CARE (FCC) TERHADAP KETERAMPILAN ORANG TUA DALAM PERAWATAN BAYI PREMATUR

2016 ◽  
Vol 5 (2) ◽  
pp. 119-127
Author(s):  
Anafrin Yugistyowati
Keyword(s):  
Intervention Group ◽  
Premature Baby ◽  
Control Group ◽  
Family Centered Care ◽  
Significant Difference ◽  
Before And After ◽  
Centered Care ◽  
Quasi Experimental ◽  
Associated Family ◽  
Family Centered

Background:Parents’ skillsin taking care of premature babies need to be developed to promote parents role in nurturing. The application of Family-Centered Care (FCC) through associated family program is one of the interventions to optimalize parent’s capability. Objective:This study aimed to identify the parent’s skill in the care of premature baby before and after the application of FCC. Methods:The research design was quasi-experimental,employing pre- and post-test with nonequivalent control group. Data were collectedin a non-probability sample with consecutive sampling method. Sample wereparents who hadpremature babiesandwere hospitalized at Perinatology Unit Saras Husada Hospital Purworejo.This research involved 36 respondents. Data were analyzedwith the Wilcoxon Signed Ranks Test. Result:There was not a significant difference on parents’ skills in control group (p= 0.083). Parents in intervention group showed difference in skills after the intervention (p= 0.025). Conclusion: There were significant differences in parents’ skills, before and after the intervention of FCC. Keywords:Premature Baby, Family-Centered Care, Skill Parents

scholarly journals The effect of pre-hospital discharge care program on mothers’ knowledge and reported practice for children with congenital heart surgery

2018 ◽  
Vol 8 (9) ◽  
pp. 122
Author(s):  
Fatma Ahmed Elsobky ◽  
Samah Abdalha Mohamed Amer ◽  
Ahlam Elahmady Mohamed Sarhan
Keyword(s):  
Hospital Discharge ◽  
Congenital Heart ◽  
Heart Surgery ◽  
Heart Diseases ◽  
Heart Defects ◽  
Care Program ◽  
Congenital Heart Surgery ◽  
Care Practice ◽  
Discharge Care ◽  
Significant Difference

Heart surgery in children is done to repair heart defects for a child born with congenital heart defects and heart diseases. The aim of the study was to evaluate the effect of pre-hospital discharge care program on mothers’ knowledge and reported practice regarding discharge care of children with congenital heart surgery. The study was conducted in the Heart Surgery Department at Abo-EL Riesh University Children Hospital. The sample included 30 mothers and their children that were available during the period of data collection. Three tools were used to collect data including: Tool I: Interviewing questioner sheet of the participants categorized into two parts. Part I and part II: Personal characteristics of the children and their mothers. Tool II: Assessment of mothers’ knowledge regarding care of children after congenital heart surgery. Tool III: Mother’s reported care practice checklist. Results: The results of the present study revealed that there was a highly significant difference in all items of care knowledge (activity, food, medication and follow-up) before, after immediately and after one month from discharge program with highly significant statistically (p < .001). Discharge program improve mothers’ knowledge and practice regarding care of their children after congenital heart surgery. Recommendations: Comprehensive, multidisciplinary discharge planning should deign early and should include the mothers and children contain education regarding congenital heart surgery care.

scholarly journals The Effect of Family-centered Care Model on Sleep Quality and Medication Compliance of Children With Simple Congenital Heart Disease After Transcatheter Intervention

2021 ◽  
Author(s):  
Wang-Sheng Dai ◽  
Wen-Peng Xie ◽  
Jian-Feng Liu ◽  
Qiang Chen ◽  
Hua Cao
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Sleep Quality ◽  
Congenital Heart ◽  
Medication Compliance ◽  
Control Group ◽  
Study Group ◽  
Family Centered Care ◽  
Centered Care ◽  
Family Centered

Abstract Objective: This study aimed to explore the effect of a family-centered care model on the sleep quality and medication compliance of children with simple congenital heart disease undergoing transcatheter interventional. Methods: 50 children with simple congenital heart disease who underwent transcatheter interventional in the cardiac surgery department of a provincial hospital in China from January 2020 to December 2020 were selected, and the children were randomly divided into the study group (n=25) and the control group (n=25) by a random number table method. The children in the control group were given routine care, and the children in the study group were given family-centered care on the basis of the control group. One month later, the sleep quality and medication compliance of all children were retrospectively studied. The Pittsburgh Sleep Quality Index was used to assess the children’s sleep quality, and the Chinese revised version of Morisky Medication Adherence Scale was used to evaluate the children’s medication compliance. Results: The sleep quality score of the study group was significantly lower than that of the control group, and the medication compliance score of the study group was significantly higher than that of the control group. The differences were statistically significant (P<0.05).Conclusion: The family-centered care model was beneficial to improve the sleep quality and medication compliance of children with simple congenital heart disease after transcatheter intervention, and provided important reference information for the postoperative follow-up of such children.

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