Onder het oppervlak van alledaagse zorg

KWALON ◽  
2015 ◽  
Vol 20 (3) ◽  
Author(s):  
Michael Kolen ◽  
Guus Timmerman ◽  
Frans Vosman
Keyword(s):  
Qualitative Research ◽  
Intellectual Disability ◽  
Institutional Ethnography ◽  
Analysis Tool ◽  
Mild Intellectual Disability ◽  
Care Relationship ◽  
Institutional Influences ◽  
The Everyday ◽  
Institutional Impact ◽  
Everyday Interaction

Under the surface of everyday care. On the development of an underwater screen, an instrument that identifies institutional influences on the everyday care relationship Under the surface of everyday care. On the development of an underwater screen, an instrument that identifies institutional influences on the everyday care relationship In our qualitative research project we look at the everyday interactions between young people with a mild intellectual disability and their caregivers, and we are interested in the institutional impact on the everyday dealings. We have developed an analysis tool that helps to identify these institutional influences. In addition, we have used the research methodology institutional ethnography. This tool also offers opportunities for other areas of research, because it sensitizes the researchers for the ruling relations that shape the everyday interaction between people.

Onder het oppervlak van alledaagse zorg (deel II)

KWALON ◽  
2016 ◽  
Vol 21 (2) ◽  
Author(s):  
Michael Kolen ◽  
Guus Timmerman ◽  
Frans Vosman
Keyword(s):  
Qualitative Research ◽  
Intellectual Disability ◽  
Young People ◽  
Institutional Ethnography ◽  
Analysis Tool ◽  
Mild Intellectual Disability ◽  
Institutional Influences ◽  
The Everyday ◽  
Institutional Impact ◽  
Everyday Interaction

Below the surface of everyday care (Part II): Working with the underwater screen in the analysis of research on interaction between lvb youth and their caregivers In our qualitative research project we look at the everyday interaction between young people with a mild intellectual disability and their caregivers, and we are interested in the institutional impact on the everyday dealings. We have developed an analysis tool that helps identify these institutional influences. In addition, we have used the research methodology Institutional Ethnography. This tool also offers opportunities for other areas of research, because it sensitizes the researchers for the ruling relations that shape the everyday interaction between people. In Part 1 of this article (KWALON 2015, 3), we describe the development of our underwater screen. In this article (Part 2), we discuss the operation of the instrument.

School-Based Sexual Violence Among Female Learners With Mild Intellectual Disability in South Africa

2012 ◽  
Vol 18 (3) ◽  
pp. 309-321 ◽  
Author(s):  
Tlakale Nareadi Phasha ◽  
Doris Nyokangi
Keyword(s):  
Qualitative Research ◽  
Intellectual Disability ◽  
Sexual Violence ◽  
Sex Education ◽  
Developmentally Appropriate ◽  
Mild Intellectual Disability ◽  
School Practices ◽  
School Based ◽  
Qualitative Research Methodology ◽  
Common Misconceptions

Following qualitative research methodology, this article presents school-based sexual violence experiences of female learners with mild intellectual disability. A total of 16 learners aged 16 to 24 years participated in the study. The findings revealed that learners with intellectual disability are not immune to school-based sexual violence. Modes of behavior that occurred frequently included touching, threats, and intimidation. School practices that reinforced school-based sexual violence are identified. The findings contradict common misconceptions that people with intellectual disability do not understand what is happening to them. The study recommends that school policies for sexual violence be intensified and learners receive developmentally appropriate sex education.

scholarly journals Masculinity from the perspective of men with intellectual disability

2020 ◽  
Author(s):  
Anna Gutowska
Keyword(s):  
Qualitative Research ◽  
Intellectual Disability ◽  
Everyday Experience ◽  
Specific Nature ◽  
Scientific Publications ◽  
Research Material ◽  
The Everyday ◽  
The Subject ◽  
New Perspective

Current scientific publications present different paradigms of masculinity, but research in this area is a relatively new perspective. However, the specific nature of the everyday experience of people with intellectual disability is still neglected and unrecognised. The aim of this article is to show the concept of masculinity from the perspective of men with intellectual disability. The research is placed in the stream of qualitative research using a case study as a method. The subject of the research covers the statements of men with intellectual disability concerning masculinity. The analysis of the research material obtained from 12 interviews allowed for the identification of four types of masculinity.

scholarly journals Online education of students with mild intellectual disability and autism spectrum disorder during the COVID-19 pandemic

2020 ◽  
pp. 149-171
Author(s):  
Marzena Buchnat ◽  
Aneta Wojciechowska
Keyword(s):  
Autism Spectrum Disorder ◽  
Intellectual Disability ◽  
Distance Learning ◽  
Online Education ◽  
Everyday Life ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Mild Intellectual Disability ◽  
The Everyday ◽  
Education Of Students

The situation of the pandemic of SARS-CoV-2 virus that causes COVID-19 disease is a new and unknown situation for everyone, causing fear and uncertainty. It is also a situation that has led to numerous changes in the everyday life of many people, including students who had to adapt to the new reality of distance education from day to day. The paper concerns with the situation of online education of students with mild intellectual disability and autism spectrum disorder. It is an attempt to indicate the difficulties encountered by this group of students in the situation of distance learning from a perspective of both the student and the teacher. The paper also indicates the issues which should be considered in this education, the way of its adaptation to the possibilities of the discussed group of students, as well as elementswhich are really important in this education.

scholarly journals Od nastoletniego macierzyństwa do życia w dorosłości w wypowiedziach kobiety z niepełnosprawnością intelektualną

2018 ◽  
pp. 99-116
Author(s):  
Aleksandra Mach
Keyword(s):  
Qualitative Research ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Implementation Research ◽  
Teenage Pregnancy ◽  
Electronic Device ◽  
Adult Woman ◽  
Mild Intellectual Disability ◽  
Difficult Situation ◽  
Financial Situation

Maternity in the case of women with intellectual disabilities is exposed to many factors hindering its implementation. Research on this occurrence shows that one of the main reasons for that is insufficient or inept support for this group of women in different areas, such as educational, financial, informative, emotional. Teenage mothers with disabilities are in a particularly difficult situation. The article presents the analysis of statements of an adult woman with mild intellectual disability on her experience of teenage pregnancy as well as maternity as an adult woman. The humanistic attitude of giving the floor to the respondent allowed to determine other meaningful matters in the woman’s life (among others: relationships with life partners, relationship with the mother, vision of the future, financial situation) The methodology of research used was qualitative research. Two open interviews took place 8 months apart. The interviews were recorded to an electronic device. The material obtained was later transcribed. Triangulation of the sources was included (two family assistants were interviewed).

Mediators of Inclusion

2019 ◽  
pp. 109-120 ◽  
Author(s):  
Vanessa Cox ◽  
Treena Orchard ◽  
Pamela Cushing ◽  
Elizabeth Anne Kinsella
Keyword(s):  
Qualitative Research ◽  
Intellectual Disability ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Social Relationships ◽  
Sexual Relationships ◽  
Sexual Life ◽  
Mild Intellectual Disability ◽  
Daily Lives ◽  
Study Participants

Adults with mild intellectual disability (MID) often rely on professionals and family for support, giving caregivers the power to control many aspects of their daily lives This extends to research, where investigators wanting to include adults with MID must seek the cooperation of caregivers. This chapter features data from a qualitative study conducted in London, Ontario, that explored independence, sexuality, and social relationships in 15 adults with MID, six family caregivers, and six professionals. Key findings discussed here include the ways in which caregivers influence socio-sexual relationships in adults with MID, the challenges to including adults with MID in research, and the experiences of adults with MID as study participants. These findings contribute new insights to the disability literature that explores research inclusion in adults with MID, as well as the nature of socio-sexual life among these adults, whose first-hand experiences are rarely included in qualitative research.

scholarly journals Comprehensive study of 28 individuals with SIN3A-related disorder underscoring the associated mild cognitive and distinctive facial phenotype

2021 ◽  
Author(s):  
Meena Balasubramanian ◽  
Alexander J. M. Dingemans ◽  
Shadi Albaba ◽  
Ruth Richardson ◽  
Thabo M. Yates ◽  
...  
Keyword(s):  
Intellectual Disability ◽  
Protein Function ◽  
Autism Spectrum ◽  
Loss Of Function ◽  
Mild Intellectual Disability ◽  
Related Disorder ◽  
Feeding Difficulties ◽  
Facial Phenotype ◽  
Novel Variants ◽  
Common Behaviour

AbstractWitteveen-Kolk syndrome (OMIM 613406) is a recently defined neurodevelopmental syndrome caused by heterozygous loss-of-function variants in SIN3A. We define the clinical and neurodevelopmental phenotypes related to SIN3A-haploinsufficiency in 28 unreported patients. Patients with SIN3A variants adversely affecting protein function have mild intellectual disability, growth and feeding difficulties. Involvement of a multidisciplinary team including a geneticist, paediatrician and neurologist should be considered in managing these patients. Patients described here were identified through a combination of clinical evaluation and gene matching strategies (GeneMatcher and Decipher). All patients consented to participate in this study. Mean age of this cohort was 8.2 years (17 males, 11 females). Out of 16 patients ≥ 8 years old assessed, eight (50%) had mild intellectual disability (ID), four had moderate ID (22%), and one had severe ID (6%). Four (25%) did not have any cognitive impairment. Other neurological symptoms such as seizures (4/28) and hypotonia (12/28) were common. Behaviour problems were reported in a minority. In patients ≥2 years, three were diagnosed with Autism Spectrum Disorder (ASD) and four with Attention Deficit Hyperactivity Disorder (ADHD). We report 27 novel variants and one previously reported variant. 24 were truncating variants; three were missense variants and one large in-frame gain including exons 10–12.

Sign in / Sign up

Export Citation Format

Share Document