scholarly journals Abandoning questionnaires

2021 ◽  
pp. 53-64
Author(s):  
Anna Mann
Keyword(s):  
Quality Of Life ◽  
Daily Life ◽  
Life Questionnaire ◽  
Clinical Practices ◽  
Dialysis Unit ◽  
The Past ◽  
Care Approach ◽  
Good Provision ◽  
Specific Care

Care-concepts have proliferated over the past couple of years, and have been used tostudy all kinds of practices, situations and sites. This begs the question: What is gained bystudying practices in terms of care? The paper addresses this question by using a specificcare-approach, which is the study of daily life dealings (Mol et al., 2010). It mobilises thisapproach to investigate a particular object, namely a good provision of haemodialysistreatment in nephrology practice. It does so in a given place, a dialysis unit in Austria.Based on ethnographic fieldwork with a focus on how patients' quality of life was improved,the paper reports how, in this dialysis unit, a quality of life questionnaire was introducedbut soon abandoned. It first analyses how the prominent ideal that quality of life is to bemeasured with a questionnaire arrived in the goings-on in the unit. It then teases out howconnecting and disconnecting patients to dialysis machines, and seeing them during thedaily round enacted knowing, improving and quality of life in other ways than the prominentpractice. It argues that questionnaires, forms, protocols, and the prominent practice theyare part of may not only be made to fit into daily clinical practices or that daily life dealingsare other to prominent practices. Daily clinical practices may also be the basis upon whichquestionnaires, forms, protocols, and the prominent practice they are part of are evaluated,abandoned, and forgotten. Recommending further investigation into the conditions ofpossibilities for alternative enactments of a good provision of health care to thrive, thepaper concludes that what has been gained by using this specific care-approach to studythis particular object are insights into daily life practices that have so far been othered innephrology practice and STS.

scholarly journals Quality of Life of Patients after Kinesio Tape Applications Following Impacted Mandibular Third Molar Surgeries

2021 ◽  
Vol 10 (10) ◽  
pp. 2197
Author(s):  
Aleksandra Jaroń ◽  
Olga Preuss ◽  
Berenika Konkol ◽  
Grzegorz Trybek
Keyword(s):  
Quality Of Life ◽  
Third Molar ◽  
Infectious Complications ◽  
Life Questionnaire ◽  
Kinesio Tape ◽  
Impacted Third Molar ◽  
The Past ◽  
Kinesio Taping ◽  
Lower Molar

Today, extraction of the impacted third molar is the most common procedure performed in oral surgery departments. One of the methods currently investigated—in terms reducing the severity of non-infectious complications and decreasing Quality of Life following third molar surgeries—is Kinesio Taping (KT). The aim of the study was to evaluate the impact of Kinesio Tape application on Quality of Life. A total of 100 asymptomatic patients with impacted third lower molar were included. The study participants were randomly divided into two groups: a study group with the application of KT (n = 50) and a control group (without KT) (n = 50). Removal of the impacted third lower molar was performed in each patient in a standardized fashion. For assessment of Quality of Life, the modified University of Washington Quality of Life Questionnaire (UW-QoL v4) was used. Patients with Kinesio Tape application scored higher in all domains. Statistically significant differences between the two groups were found in the following domains: “Activity”, “Mood”, “Health-related QoL during the past 7 days” and “Overall QoL during the past 7 days”. There were no significant differences in significant problems and important issues between groups. Kinesio Taping has a significant impact on Quality of Life after impacted third molar removal. It should be considered as one of the noninvasive methods to reduce postoperative non-infectious complications.

scholarly journals Cognitive Rehabilitation in Patients with Gliomas and Other Brain Tumors: State of the Art

2016 ◽  
Vol 2016 ◽  
pp. 1-11 ◽  
Author(s):  
E. Bergo ◽  
G. Lombardi ◽  
A. Pambuku ◽  
A. Della Puppa ◽  
L. Bellu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Literature Review ◽  
Brain Tumors ◽  
Cognitive Deficits ◽  
Cognitive Rehabilitation ◽  
State Of The Art ◽  
Daily Life ◽  
The Past ◽  
Disease Prognosis

Disease prognosis is very poor in patients with brain tumors. Cognitive deficits due to disease or due to its treatment have an important weight on the quality of life of patients and caregivers. Studies often take into account quality of life as a fundamental element in the management of disease and interventions have been developed for cognitive rehabilitation of neuropsychological deficits with the aim of improving the quality of life and daily-life autonomy of patients. In this literature review, we will consider the published studies of cognitive rehabilitation over the past 20 years.

scholarly journals Executive functions and quality of life in children with neurofibromatosis type 1

2021 ◽  
Vol 16 (1) ◽  
Author(s):  
Arnaud Roy ◽  
Jean-Luc Roulin ◽  
Christèle Gras-Le Guen ◽  
Marie-Laure Corbat ◽  
Sébastien Barbarot
Keyword(s):  
Quality Of Life ◽  
Executive Function ◽  
Executive Functions ◽  
Neurofibromatosis Type 1 ◽  
School Environment ◽  
Daily Life ◽  
Neurofibromatosis Type ◽  
Life Questionnaire

Abstract Background To examine the impact of executive function disorders on health-related quality of life (QoL) in children with neurofibromatosis type 1 (NF1), we conducted a prospective single-center study among 40 children with NF1 aged 8–12 years (mean = 9.7, SD = 1.4) and their parents, comparing them with 56 healthy control children matched for age, sex, parental education level, and handedness. We collected children’s self-reports and parents’ proxy reports of QoL with the Kidscreen-52 questionnaire, and measured executive functions by combining seven performance-based tests and a daily life questionnaire completed by parents and teachers. Results Several QoL domains were significantly impaired in the children with NF1, compared with healthy controls, mainly according to their parents’ reports (3 out of 9 scales; Cohen’s d: 0.57–0.76), with particularly low scores in the social support and peers and school environment domains. Executive function difficulties (Cohen’s d: 0.64–1.72) significantly predicted the impairment of QoL domains as perceived by the children or their parents, regardless of the indirect indicators of learning disabilities. Conclusions Both performance-based executive function scores and behavioral ratings of executive functions in daily life by parents and teachers were associated with low QoL levels in the children with NF1. The school environment and social integration appear to be particularly affected and should therefore be targeted in the management of the disease.

scholarly journals Long-term impact of olfactory dysfunction on daily life

2020 ◽  
Author(s):  
Alice B. Auinger ◽  
Gerold Besser ◽  
David T. Liu ◽  
Bertold Renner ◽  
Christian A. Mueller
Keyword(s):  
Quality Of Life ◽  
Daily Life ◽  
Olfactory Dysfunction ◽  
World Health ◽  
Subjective Rating ◽  
Life Questionnaire ◽  
Patient Counselling

Summary Background Olfactory dysfunction (OD) is common in the general population, affects the quality of life (QoL), and is suspected to cause depression. Long-term outcome data are lacking and there is a need to improve patient counselling regarding prognosis. We aimed to assess subjective long-term recovery rates, the QoL, and mood disturbance in a group of 65 patients, who were affected with OD. Methods Out of 325 patients treated for OD between 2003 and 2009  at a smell and taste clinic, 65 patients were included for a follow-up after an average of 8.6 years. A total of 28 patients answered questionnaires only and 37 patients were provided with an additional smell identification test. Among others, questionnaires included a short form of the World Health Organization quality of life questionnaire (WHOQOL-BREF) and the Beck’s depression inventory. Results In the long run, subjective improvement was stated in 33.8% of all patients, with the highest rate of 42.3% in patients with postinfectious OD. The subjective rating of olfactory function on a visual analogue scale was significantly higher at study follow-up compared to first clinical contact (median 1.25 vs. 4.5; U = 469.5, p = 0.001), as were mean identification scores (6.0 ± 3.0 vs. 8.0 ± 4.0, t(18) = 2.51, p = 0.021). The QoL in general was considered reduced in 40% of all patients at follow-up. Furthermore, participants exhibited only minor, if any, depressive symptoms. Conclusion Despite negative effects of OD on certain activities in daily life, such as cooking, detecting spoiled food, or personal hygiene, it seems that the patients included in this study adapted to the OD in the long-term. The current findings should aid clinicians in patient counselling.

Phase II Trial of Palliative Radiotherapy for Hepatocellular Carcinoma and Liver Metastases

2013 ◽  
Vol 31 (31) ◽  
pp. 3980-3986 ◽  
Author(s):  
Hany Soliman ◽  
Jolie Ringash ◽  
Haiyan Jiang ◽  
Kawalpreet Singh ◽  
John Kim ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hepatocellular Carcinoma ◽  
Liver Metastases ◽  
Phase Iii ◽  
Life Questionnaire ◽  
The Past ◽  
Eortc Qlq C30 ◽  
Eortc Qlq

Purpose To evaluate the feasibility and response of liver radiotherapy (RT) in improving symptoms and quality of life in patients with hepatocellular carcinoma (HCC) or liver metastases (LM). Patients and Methods Eligible patients had HCC or LM, unsuitable for or refractory to standard therapies, with an index symptom of pain, abdominal discomfort, nausea, or fatigue. The Brief Pain Inventory (BPI), Functional Assessment of Cancer Therapy–Hepatobiliary (FACT-Hep), and European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire C30 (EORTC QLQ-C30) were completed by patients at baseline and each follow-up. The primary outcome was the percentage of patients with a clinically significant change at 1 month in the BPI subscale of symptom on average in the past 24 hours. Secondary outcomes were improvement in other BPI subscales and at other time points, FACT-Hep and EORTC QLQ-C30 at each follow-up, and toxicity at 1 week. Results Forty-one patients (30 men and 11 women) with HCC (n = 21) or LM (n = 20) were accrued. At 1 month, 48% had an improvement in symptom on average in the past 24 hours. Fifty-two percent of patients had improvement in symptom at its worst, 37% at its least, and 33% now. Improvements in the FACT-G and hepatobiliary subscale were seen in 23% and 29% of patients, respectively, at 1 month. There were also improvements in EORTC QLQ-C30 functional (range, 11% to 21%) and symptom (range, 11% to 50%) domains. One patient developed grade 3 nausea at 1 week. Conclusion Improvements in symptoms were observed at 1 month in a substantial proportion of patients. A phase III study of palliative liver RT is planned.

scholarly journals Almitrine bismesylate treatment in patient with chronic obstructive pulmonary disease and moderate chronic respiratory failure. Open prospective multicentre trial

2005 ◽  
pp. 92-100 ◽  
Author(s):  
A. G. Chuchalin ◽  
S. N. Avdeev ◽  
A. V. Bezlepko ◽  
V. A. Dobrich ◽  
V. A. Ignatiev ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multicentre Trial ◽  
Daily Life ◽  
Chronic Obstructive ◽  
Life Questionnaire ◽  
Obstructive Pulmonary Disease ◽  
Almitrine Bismesylate ◽  
Daily Life Activities ◽  
Copd Patients

The efficacy and safety of almitrine bismesylate treatment was assessed in COPD patients in 6 month open prospective multicentre trial. 77 COPD patients with moderate hypoxemia were included (males / females — 57 / 20, mean age 63.2 ± 9.7 years; mean FEV1 0.95 ± 0.38 L, mean PaO2 63.3 ± 5.4 mmHg, mean PaСO2 44.1 ± 7.3 mmHg). We used an intermittent regime of almitrine administration: 1 mg / kg / day, for 3 months, then a "window" of 1 month, and again active therapy for 2 months. Almitrine therapy resulted in improvement of РаО2: rise after 1 month to 71.5 ± 10.6 mmHg, after 3 month — to 70.3 ± 8.3 mmHg, and after 6 month — to 72.5 ± 14.2 mmHg (р < 0.001). There was a significant fall in dyspnea during daily life activities (MRC score): from 3.5 ± 0.9 to 3.0 ± 0.9 (1 month), 2.8 ± 0.9 (3 month), 2.6 ± 0.7 (6 month) (р < 0.001). The distance during 6 minute walk test (6 MWT) increased from 334 ± 108 m to 371 ± 101 m (1 month), 377 ± 88 m (3 month), 398 ± 104 m (6 month) (р < 0.001). The levels of desaturation and Borg dyspnea score during 6 MWT significantly decreased (both р < 0.001). During almitrine treatment an improvement in almost all domains of SF 36 quality of life questionnaire was noted. 58 COPD patients completed the study. The most common adverse effects were parasthesia (6.4 %) and worsening of dyspnea (5 %), pulmonary artery pressure did not change during study. Conclusions: almitrine treatment in COPD patients with moderate hypoxemia resulted in improvement of arterial oxygenation, reduction of dyspnea during daily life activities and exercise, increase of physical capacity and improvement of health related quality of life.

scholarly journals Physical Activity and Quality of Life of University Students, Their Parents, and Grandparents in Poland—Selected Determinants

2021 ◽  
Vol 18 (8) ◽  
pp. 3871
Author(s):  
Katarzyna Kotarska ◽  
Maria Alicja Nowak ◽  
Leonard Nowak ◽  
Paweł Król ◽  
Artur Sochacki ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Physical Education ◽  
University Students ◽  
World Health ◽  
Physical Culture ◽  
Life Questionnaire ◽  
Mothers And Fathers ◽  
The Past

Physical activity is one of the factors conditioning human health. Research shows a positive impact of regular physical activity on the quality of human life. The aim of the study was to determine the relationship between the physical activity of university students, their parents, and their grandparents, and the overall quality of their lives in individual domains (physical, mental, social, environmental), as well as the perceived state of health in relation to selected determinants. The research included 1001 participants, including 253 students related to physical culture and health promotion studying at the University of Szczecin (faculties: physical education, tourism and recreation, public health, sports diagnostics), and their 336 parents and 412 grandparents. Purposive sampling was used to outline the determinants of quality of life and family factors in physical activity. The diagnostic survey was carried out based on the standardized WHOQOL-BREF (World Health Organization Quality of Life) questionnaire. Statistically significant differences were shown in the studied generations regarding the assessment of quality of life and satisfaction with health in the physical, psychological, social, and environmental domains. The oldest generation gave the lowest assessment of quality of life and was the least satisfied with their health regarding particular domains. Female students were more satisfied with their health compared to grandmothers and grandfathers, whereas male students compared to mothers and fathers. Fathers achieved the highest scores in the psychological and social domains, but, in case of the latter, differences were found between mothers’ and fathers’ assessments. Intergenerational differences were found in quality of life and the assessment of health status. Current participation in broadly understood physical culture was often a result of positive attitudes towards physical education and doing sport in the past, which meant higher scores in the physical domain each time. The study demonstrated that taking up physical activity impacted the quality of life and assessment of health in the past and currently.

Endovascular treatment of head and neck arteriovenous malformations: long-term angiographic and quality of life results

2016 ◽  
Vol 9 (9) ◽  
pp. 860-866 ◽  
Author(s):  
Dan Meila ◽  
Dominik Grieb ◽  
Bjoern Greling ◽  
Katharina Melber ◽  
Collin Jacobs ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Endovascular Treatment ◽  
Head And Neck ◽  
Functional Impairment ◽  
Arteriovenous Malformations ◽  
Daily Life ◽  
Endovascular Embolization ◽  
Life Questionnaire

AimTo present the long-term angiographic and subjective results of patients with head and neck arteriovenous malformations (HNAVMs) after endovascular treatment.MethodsWe retrospectively analyzed the medical files of 14 patients with HNAVM who were treated between 2000 and 2014. The treatment of choice was a transarterial superselective microcatheter-based approach followed by embolization using liquid embolic agents. The patients were asked to answer a quality of life questionnaire about the following symptoms before and after treatment: pain, functional impairment, cosmetic deformity, impairment in daily life, and bleeding.ResultsComplete or >90% closure of the AVM was achieved in 6 of 14 patients (43%). >50% shunt reduction was achieved in 10 patients (71%). Three complications were encountered in a total of 86 interventional procedures. Six patients presented with bleeding which was cured in all cases (100%). Four of the 14 patients (29%) specified pain which was resolved in two of them. Another six patients (43%) presented with functional impairment; four were cured and two noted an improvement. All 14 patients presented with cosmetic concerns; four were cured and eight experienced a clearly visible improvement. Nine of 13 patients (69%) presented with impairment in daily life which was resolved in five patients and four reported an improvement.ConclusionsEndovascular embolization is a well-tolerated therapy for HNAVM with a low complication rate. Good angiographic results, positive subjective results, and improvement in different aspects of quality of life can be achieved.

scholarly journals PSY220 - IMPACT OF KERATOCONUS AND ITS TREATMENTS ON PATIENTS’ DAILY LIFE: QUALITATIVE PHASE OF THE DEVELOPMENT OF A QUALITY OF LIFE QUESTIONNAIRE

2018 ◽  
Vol 21 ◽  
pp. S474
Author(s):  
M. Acquadro ◽  
P. Fournié ◽  
C. Couderc ◽  
K. Benmedjahed ◽  
B. Tugaut ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Daily Life ◽  
Life Questionnaire ◽  
Quality Of Life Questionnaire ◽  
Qualitative Phase

scholarly journals Lupus Erythematosus Quality of Life Questionnaire (LEQoL): Development and Psychometric Properties

2020 ◽  
Vol 17 (22) ◽  
pp. 8642
Author(s):  
Elena Castellano-Rioja ◽  
María del Carmen Giménez-Espert ◽  
Ana Soto-Rubio
Keyword(s):  
Quality Of Life ◽  
Psychometric Properties ◽  
Lupus Erythematosus ◽  
Cutaneous Lupus Erythematosus ◽  
Psychometric Evaluation ◽  
Life Questionnaire ◽  
Clinical Practices ◽  
Cross Sectional ◽  
Average Variance

Lupus erythematosus (LE) affects patients’ quality of life. Nevertheless, no instrument has been developed to assess the quality of life in systemic lupus erythematosus (SLE) and cutaneous lupus erythematosus (CLE) patients. This study aims to develop and psychometrically test the “Quality of Life of Patients with Lupus Erythematosus Instrument” (LEQoL) and study the quality of life of these patients. Finally, percentiles for interpreting scores of LEQoL in patients with LE are provided. This study is cross-sectional, with a sample of 158 patients recruited from a lupus association for the psychometric evaluation of the final version of LEQoL. The scale’s reliability was assessed by Cronbach’s alpha, composite reliability (CR), and average variance extracted (AVE). Validity was examined through exploratory factorial analyses (EFA) and confirmatory factorial analyses (CFA). The definitive model, composed of 21 items grouped into five factors, presented good psychometric properties. Mean levels of quality of life were observed in patients with systemic LE, with higher values in patients with cutaneous LE. The LEQoL instrument is a useful tool for assessing the quality of life of patients with LE, allowing the evaluation of current clinical practices, the identification of educational needs, and the assessment of the effectiveness of interventions intended to improve the quality of life of patients with LE, SLE, and CLE.

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