Staying alive? Navigating Uncertainty in Cancer in Childhood

2018 ◽  
Vol 14 (26) ◽  
Author(s):  
Pia Løvschal-Nielsen ◽  
Rikke Sand Andersen ◽  
Lotte Meinert

Abstract In this article we explore how institutions and individuals in Denmark deal with uncertainty of cancer in childhood. Based on a seven months ethnographic fieldwork conducted on a paediatric oncology ward from 2011-2013, we examine how uncertainty and insecurities manifest in the interface between cancer treatment and childhood in the Danish welfare state. We develop our argument theoretically with the American pragmatist philosophy and its ideas that people are responding to a hazardous world in constant transformation. Through a focus on micro practices we explore how uncertainty manifests especially for children and their families, and how they navigate insecurities. Important collective attempts to create some measure of certainty and security are done in treatment practices, but we argue that biomedical practices dealing with uncertainty of cancer paradoxically give rise to existential and social uncertainty among children and their families, which they struggle with, also after the end of cancer treatment, as long-term social effects of cancer in childhood. We suggest that more attention could be paid to assist children in dealing with uncertainty and insecurities imminent to being in cancer treatment in the Danish welfare state and the social effects of this.

2018 ◽  
Vol 14 (27) ◽  
Author(s):  
Pia Løvschal-Nielsen ◽  
Rikke Sand Andersen ◽  
Lotte Meinert

This article explores how institutions and individuals in Denmark deal with the uncertainty of cancer in children. Based on a seven months ethnographic fieldwork conducted on a paediatric oncology ward during the period 2011-2013, the article examines how uncertainty manifests itself in the interface between cancer treatment and institutional childhood in the Danish welfare state. The argument is based on American pragmatist philosophy and its ideas about how people respond to a hazardous world in constant transformation. Through a focus on practices, the article explores how clinical and existential uncertainty arises for children and their families, and how they deal with this by navigating their way round the more tangible forms of insecurities. Important collective attempts to circumscribe clinical uncertainty are part of this navigation, but the article argues that epidemiologically based practices of dealing with the clinical uncertainty of cancer paradoxically gives rise to existential and social uncertainty for the affected children and their families, which they struggle with during treatment and even as long-term social effects into adolescence and young adulthood. The article suggests that more attention should be paid to assist children to manage the social and existential uncertainty that emerges in the interface between being a child in cancer treatment and being a child in the Danish welfare state.


Author(s):  
Richard M. Titmuss

The author of this book was a pioneer in the field of social administration (now social policy) and this reissued classic contains a selection of his most famous writing on social issues. It covers subjects ranging from the position of women in society, changes in family life, and the social effects of industrialisation, to the problems of an ageing population, pensions, social security and taxation policy, and the development of the national health service. This collection contains one of the author's most original contributions to the analysis of welfare policy — his reflections on ‘The social division of welfare’. The book stands the test of time as representative of his thinking, and as an inspiration to those who wrestle with the complex issues of our welfare state.


2014 ◽  
Vol 55 (3) ◽  
pp. 327-364 ◽  
Author(s):  
David Garland

AbstractWhat, in fact,isthe Welfare State? This article traces the emergence of the welfare state as a specific mode of government, describing its distinctive rationality as well as its characteristic forms, functions and effects. It identifies five sectors of welfare governance, the relations between them, and the various forms these take in different times and places. It discusses the contradictory commitments that shape welfare state practices and the problems associated with these practices and contradictions. It situates welfare state government within a long-term account of the changing relations between the social and the economic spheres. And it argues that the welfare state ought to be understood as a “normal social fact”—an essential (though constantly contested) part of the social and economic organization of modern capitalist societies.


2006 ◽  
Vol 120 (5) ◽  
pp. 381-384 ◽  
Author(s):  
S Robertson ◽  
S Loughran ◽  
K MacKenzie

Background: In the absence of surgical treatments with demonstrable long-term efficacy, conservative treatments for snoring remain appropriate. Only limited evidence evaluating the use of ear protection by partners has been published.Methods: Eligible couples were invited to participate in a two-month trial, with each partner using custom-moulded ear plugs. Five questionnaires were completed by patients and their partners, at baseline and after two months: the snoring outcomes survey (SOS) or the spouse/bed partners survey (SBPS), the Epworth sleepiness scale (ESS), the general health questionnaire-12 (GHQ-12), the Nottingham health profile (NHP) and the Golombok–Rust inventory of marital status (GRIMS).Results: After two months, there was a significant improvement in the SOS score for patients (p = 0.005), the SBPS score for partners (p = 0.001) and the ESS for partners (p = 0.004).Conclusions: For selected couples, ear plugs represent an effective short-term treatment for some of the social effects of disruptive snoring, as determined by the SOS, SBPS and ESS questionnaires.


2020 ◽  
Vol 51 (1-2) ◽  
pp. 5-24
Author(s):  
Anna Bræmer Warburg ◽  
Steffen Jensen

This article explores the social and moral implications of Duterte's war on drugs in a poor, urban neighbourhood in Manila, the Philippines. Drawing on long-term ethnographic fieldwork, surveys, and human rights interventions, the article sheds light on policing practices, social relations, and moral discourses by examining central perspectives of the state police implementing the drug war, of local policing actors engaging with informal policing structures, and of residents dealing with everyday insecurities. It argues that the drug war has produced a climate of ambiguous fear on the ground, which has reconfigured and destabilised social relations between residents and the state as well as among residents. Furthermore, this has led to a number of subordinate moral discourses — centred on social justice, family, and religion — with divergent perceptions on the drug war and the extent to which violence is deemed legitimate.


2019 ◽  
Vol 5 (1) ◽  
pp. 96-114
Author(s):  
Matti Weisdorf ◽  
Birgitte Refslund Sørensen

Based on long-term ethnographic fieldwork in and around a so-called War Hero Village (Ranavirugama) in northwestern Sri Lanka, this article traces the social (un)becomings of Sri Lankan Army veterans injured during the civil war with the Tamil liberation front. It argues that such veterans have long been able to draw on a materially rewarding narrative of sacrifice and carnal capital—epitomized in the honorific ranaviru (war hero)—in order to produce a particular kind of veteran citizenship, let alone subjectivity, and thus to pursue socially meaningful post-injury existences. In the eyes of the veterans themselves, however, this celebratory narrative is eroding and a “collective narrative” characterized by a kind of social forgetting of the injured veteran is emerging. Material benefits notwithstanding, this narrative contestation entails a “struggle for recognition” that threatens to leave them not only disabled but also with no one to be, or become.


2013 ◽  
Vol 329 ◽  
pp. 467-471
Author(s):  
Fang Liu ◽  
Qi Wu

This article has embedded welfare triangle paradigm in empirical research by social exclusion and social policy. Starting from the situation in Sweden and Finland, it has analyzed the convergence and the differences in paradigm content. At the same time, by using the social research to quantitative analysis the data, it has drawn the economic recession and recovery. Based on the above analysis, it is necessary to build a welfare system that in line with the national condition, to select a long-term welfare system mechanism, and to constantly improve the prototype of the welfare system that has begun to take shape.


2017 ◽  
Vol 13 (25) ◽  
pp. 14-23
Author(s):  
Ditte Tofteng ◽  
Mette Bladt

Tværprofessionelt samarbejde er tidens løsen på komplekse sociale problemstillinger. Den moderne velfærdsstats borgerindsatser synes at kræve et særligt samkoordineret arbejde mellem professioner. Men nogle gange ser det ud til, at det tværprofessionelle ender med at stå i vejen for en sagsgang og indsats, der er faglig meningsfuld og foregår rettidigt. Artiklen vil – med udgangspunkt i en case fra et længevarende aktionsforskningsforløb på en skole i Københavnsområdet – sætte fokus på, hvordan det tværprofessionelle samarbejde kan blive et benspænd for opgaveløsningen. Artiklen viser, at det tværprofessionelle nogen gange ender med at blive systemets svar på de af systemet skabte problemer.Inter-professional cooperation is often the solution for complex social problems. The social work of the modern welfare state seems to demand a specialized coordinated cooperation between professions. But sometimes it looks like, the inter-professional work end up being in the way of an administration and effort, which is timely and professional sound. Based on a long term action research project the article will, be focused on how the inter-professional work sometimes becomes a trip up for problem solving. The article shows that the inter-professional sometimes become the systems answer to problems created by the organizational structures of the system.


2021 ◽  
pp. 152-171
Author(s):  
Simone Scarpa

Previous research has predominantly analysed the retrenchment of the Swedish welfare state from a long-term perspective, examining restructuring processes from the financial crisis of the early 1990s until recent years. This study instead takes a short-term perspective and focuses on welfare state developments in the post-consolidation phase, after the recovery from the crisis. The aim is to investigate how the fiscal policy reforms introduced during the recovery years forced subsequent governments to continue on the path of "frugality". Specifically, the paper focuses on the effects of austerity politics on two policy domains: income redistribution through the benefit and tax system and the municipalities' role as social service providers and employers. The analysis indicates that the Swedish model is showing increasing signs of dualisation due to the gradual segmentation of prior universalistic welfare programmes and to the worsening of working conditions in the social service sector.


Sign in / Sign up

Export Citation Format

Share Document