scholarly journals Staying alive? Dealing with the Uncertainty of Childhood Cancer

2018 ◽  
Vol 14 (27) ◽  
Author(s):  
Pia Løvschal-Nielsen ◽  
Rikke Sand Andersen ◽  
Lotte Meinert

This article explores how institutions and individuals in Denmark deal with the uncertainty of cancer in children. Based on a seven months ethnographic fieldwork conducted on a paediatric oncology ward during the period 2011-2013, the article examines how uncertainty manifests itself in the interface between cancer treatment and institutional childhood in the Danish welfare state. The argument is based on American pragmatist philosophy and its ideas about how people respond to a hazardous world in constant transformation. Through a focus on practices, the article explores how clinical and existential uncertainty arises for children and their families, and how they deal with this by navigating their way round the more tangible forms of insecurities. Important collective attempts to circumscribe clinical uncertainty are part of this navigation, but the article argues that epidemiologically based practices of dealing with the clinical uncertainty of cancer paradoxically gives rise to existential and social uncertainty for the affected children and their families, which they struggle with during treatment and even as long-term social effects into adolescence and young adulthood. The article suggests that more attention should be paid to assist children to manage the social and existential uncertainty that emerges in the interface between being a child in cancer treatment and being a child in the Danish welfare state.

2018 ◽  
Vol 14 (26) ◽  
Author(s):  
Pia Løvschal-Nielsen ◽  
Rikke Sand Andersen ◽  
Lotte Meinert

Abstract In this article we explore how institutions and individuals in Denmark deal with uncertainty of cancer in childhood. Based on a seven months ethnographic fieldwork conducted on a paediatric oncology ward from 2011-2013, we examine how uncertainty and insecurities manifest in the interface between cancer treatment and childhood in the Danish welfare state. We develop our argument theoretically with the American pragmatist philosophy and its ideas that people are responding to a hazardous world in constant transformation. Through a focus on micro practices we explore how uncertainty manifests especially for children and their families, and how they navigate insecurities. Important collective attempts to create some measure of certainty and security are done in treatment practices, but we argue that biomedical practices dealing with uncertainty of cancer paradoxically give rise to existential and social uncertainty among children and their families, which they struggle with, also after the end of cancer treatment, as long-term social effects of cancer in childhood. We suggest that more attention could be paid to assist children in dealing with uncertainty and insecurities imminent to being in cancer treatment in the Danish welfare state and the social effects of this.


2014 ◽  
Vol 55 (3) ◽  
pp. 327-364 ◽  
Author(s):  
David Garland

AbstractWhat, in fact,isthe Welfare State? This article traces the emergence of the welfare state as a specific mode of government, describing its distinctive rationality as well as its characteristic forms, functions and effects. It identifies five sectors of welfare governance, the relations between them, and the various forms these take in different times and places. It discusses the contradictory commitments that shape welfare state practices and the problems associated with these practices and contradictions. It situates welfare state government within a long-term account of the changing relations between the social and the economic spheres. And it argues that the welfare state ought to be understood as a “normal social fact”—an essential (though constantly contested) part of the social and economic organization of modern capitalist societies.


2013 ◽  
Vol 329 ◽  
pp. 467-471
Author(s):  
Fang Liu ◽  
Qi Wu

This article has embedded welfare triangle paradigm in empirical research by social exclusion and social policy. Starting from the situation in Sweden and Finland, it has analyzed the convergence and the differences in paradigm content. At the same time, by using the social research to quantitative analysis the data, it has drawn the economic recession and recovery. Based on the above analysis, it is necessary to build a welfare system that in line with the national condition, to select a long-term welfare system mechanism, and to constantly improve the prototype of the welfare system that has begun to take shape.


2017 ◽  
Vol 13 (25) ◽  
pp. 14-23
Author(s):  
Ditte Tofteng ◽  
Mette Bladt

Tværprofessionelt samarbejde er tidens løsen på komplekse sociale problemstillinger. Den moderne velfærdsstats borgerindsatser synes at kræve et særligt samkoordineret arbejde mellem professioner. Men nogle gange ser det ud til, at det tværprofessionelle ender med at stå i vejen for en sagsgang og indsats, der er faglig meningsfuld og foregår rettidigt. Artiklen vil – med udgangspunkt i en case fra et længevarende aktionsforskningsforløb på en skole i Københavnsområdet – sætte fokus på, hvordan det tværprofessionelle samarbejde kan blive et benspænd for opgaveløsningen. Artiklen viser, at det tværprofessionelle nogen gange ender med at blive systemets svar på de af systemet skabte problemer.Inter-professional cooperation is often the solution for complex social problems. The social work of the modern welfare state seems to demand a specialized coordinated cooperation between professions. But sometimes it looks like, the inter-professional work end up being in the way of an administration and effort, which is timely and professional sound. Based on a long term action research project the article will, be focused on how the inter-professional work sometimes becomes a trip up for problem solving. The article shows that the inter-professional sometimes become the systems answer to problems created by the organizational structures of the system.


2021 ◽  
pp. 152-171
Author(s):  
Simone Scarpa

Previous research has predominantly analysed the retrenchment of the Swedish welfare state from a long-term perspective, examining restructuring processes from the financial crisis of the early 1990s until recent years. This study instead takes a short-term perspective and focuses on welfare state developments in the post-consolidation phase, after the recovery from the crisis. The aim is to investigate how the fiscal policy reforms introduced during the recovery years forced subsequent governments to continue on the path of "frugality". Specifically, the paper focuses on the effects of austerity politics on two policy domains: income redistribution through the benefit and tax system and the municipalities' role as social service providers and employers. The analysis indicates that the Swedish model is showing increasing signs of dualisation due to the gradual segmentation of prior universalistic welfare programmes and to the worsening of working conditions in the social service sector.


2019 ◽  
Vol 30 (1) ◽  
pp. 18-35
Author(s):  
Gowri Parameswaran

Adults between the ages of 18 and 25 live in an era of economic and social uncertainty. Outsourcing, automation, and decreased governmental social spending have led to lowered living standards for youth; they frequently change jobs, are more likely to live with other people and have few benefits attached to their employment thereby prohibiting them from thinking about their long-term goals. The bio-psychological sciences have responded by offering a new life stage that they call emerging adulthood (EA). The new characterization disempowers youth and naturalizes their new uncertainties as a biological condition. This article argues that the stage offers little new insight about the experiences of youth and limits individual empowerment. In addition, such a conceptualization of youth is indicative of the narrow range of possibilities for adulthood in a post-industrial world that offers few pathways to get there.


2013 ◽  
Vol 21 (3) ◽  
pp. 448-464
Author(s):  
Chaim Shinar

When the debate on globalization started in the early 1990s, the dominant assumption was that globalization was a shocking new phenomenon. Moreover, this new development was seen as an attempt to undermine the sovereignty and economic functions of the nation state, hence undermining the fundamental basis of the welfare state. According to this perspective, the welfare state was expected to collapse as a result of economic constraints. Some influential publications promoted the idea that countries would find themselves captured in a global trap. At least in the field of social sciences, this thesis was interpreted differently: the weakening of the nation state by globalization was considered a myth that served as an excuse for cutting government budgets. Since then, the social sciences have developed an approach to globalization as a long-term trend within the capitalistic framework, driven by economic and political developments and dependent on pre-existing social conditions.


Author(s):  
Del Roy Fletcher

Wacquant has argued that a transnational political process, comprising harsh penal and social policies, is underway to exert social control over marginal populations created by economic liberalism and welfare state retrenchment. This chapter considers the relevance of Wacquant’s ideas to the UK by drawing upon new primary research which has explored offender experiences of both ‘prisonfare’ and ‘workfare’. It shows how the social atomisation associated with economic liberalism is intensified and institutionalised by prison with dire consequences for the ability of ex-prisoners to display the behaviour necessary to make and sustain a claim for out-of-work benefits. Moreover, the indications are that long-term imprisonment often leaves a legacy of alienation, dependency and conflict which leads to benefit sanctions and further criminal activity.


2016 ◽  
Vol 1 (2) ◽  
Author(s):  
Νίκος Κουτσιαράς

<p>The post-war growth of the European welfare state was made possible by the exceptionally high rates of economic growth and the spectacular performance of European labour markets during that (golden) era. Yet, it also contributed to economic success. However, since the early ’70s, weak growth and high unemployment have made evident the impact of social and labour market policy failures, resulting in heavy economic distortions, whilst also putting in doubt the adequacy and (long-term) sustainability of the European welfare state. Reform of the social and labour market policies and institutions should, therefore, primarily<br />aim at removing heavy economic distortions, thereby improving efficiency.</p>


2018 ◽  
Vol 30 (2) ◽  
pp. 272-300
Author(s):  
Jack Lucas

Abstract:Scholars of social policy development in the United States and elsewhere have recently focused on the historical and contemporary importance of complex, delegated welfare state governance. In this article, I outline the emergence of a coordinated urban welfare state in the city of Toronto between 1870 and 1929, describing the creation of both public and private forms of coordination and centralization. I argue that we must understand social policy development in this period as resulting from the interaction of three policy coalitions: municipal traditionalists, municipal progressives, and social work professionals, and that social policy centralization occurred as a result of an alliance between municipal progressives and social work professionals. To explain the long-term development of social policy in Canada and elsewhere, I argue, we must understand the interaction among these internal coalitions in the social policy field and the ways that broader fiscal and cultural changes strengthened or weakened each coalition over time.


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