demographic data collection
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2021 ◽  
Vol 10 (4) ◽  
Author(s):  
Nina Exner ◽  
Erin Carrillo ◽  
Sam A. Leif

Objective: We consider how data librarians can take antiracist action in education and consultations. We attempt to apply QuantCrit thinking, particularly to demographic datasheets. Methods: We synthesize historical context with modern critical thinking about race and data to examine the origins of current assumptions about data. We then present examples of how racial categories can hide, rather than reveal, racial disparities. Finally, we apply the Model of Domain Learning to explain why data science and data management experts can and should expose experts in subject research to the idea of critically examining demographic data collection. Results: There are good reasons why patrons who are experts in topics other than racism can find it challenging to change habits from Interoperable approaches to race. Nevertheless, the Census categories explicitly say that they have no basis in research or science. Therefore, social justice requires that data librarians should expose researchers to this fact. If possible, data librarians should also consult on alternatives to habitual use of the Census racial categories. Conclusions: We suggest that many studies are harmed by including race and should remove it entirely. Those studies that are truly examining race should reflect on their research question and seek more relevant racial questions for data collection.


Demography ◽  
2021 ◽  
Author(s):  
Sasha Shen Johfre ◽  
Aliya Saperstein ◽  
Jill A. Hollenbach

Abstract Will the rise of genetic ancestry tests (GATs) change how Americans respond to questions about race and ancestry on censuses and surveys? To provide an answer, we draw on a unique study of more than 100,000 U.S. adults that inquired about respondents' race, ancestry, and genealogical knowledge. We find that people in our sample who have taken a GAT, compared with those who have not, are more likely to self-identify as multiracial and are particularly likely to select three or more races. This difference in multiple-race reporting stems from three factors: (1) people who identify as multiracial are more likely to take GATs; (2) GAT takers are more likely to report multiple regions of ancestral origin; and (3) GAT takers more frequently translate reported ancestral diversity into multiracial self-identification. Our results imply that Americans will select three or more races at higher rates in future demographic data collection, with marked increases in multiple-race reporting among middle-aged adults. We also present experimental evidence that asking questions about ancestry before racial identification moderates some of these GAT-linked reporting differences. Demographers should consider how the meaning of U.S. race data may be changing as more Americans are exposed to information from GATs.


Author(s):  
Bastawy Al Fawal ◽  
Ahmed Ibrahim ◽  
Mohamed Abd Elhamed

Abstract Background Cognitive impairment is an important aspect for stroke survivors. Little data are available about the frequency and risk factors of post-stroke dementia in Egypt. Objectives The aim of this study is to evaluate the frequency and predictors of post-stroke dementia and its impact on outcome. Methods A total of 380 patients with acute stroke were included. Patients were subjected to demographic data collection, neurological examination, and assessment of vascular risk factors. Furthermore, assessment of stroke severity by Barthel Index was done. After 6 months, patients were assessed for outcome and development of post-stroke dementia. Results Post-stroke dementia was detected in 20.8% of patient. It was recorded more in old ages, illiterates, unmarried, unemployed, and those with recurrent stroke and with cerebral infarction (significantly with cardio-embolic). Conclusion Post-stroke dementia is high in Egypt, especially in those with illiteracy, atrial fibrillation, brain atrophy, severe strokes, and those presented with hemiplegia, sphincter affection, abnormal gait, and psychotic features. Assessment for post-stroke dementia should be done during follow up of stroke patients.


Author(s):  
Dr. A H M Delwar

Objective: To find out the frequency, prevalence, and epidemiological aspects of the adenoidectomy bleeding and share the new ordinary procedure to manage it by spongstan with the nasopharyngeal pack. Study Design: Cohort retrospective study. Setting: Academic tertiary care hospitals. Subject and Methods: A total of 23 adenoidectomy children’s demographic data collection and analyzed who suffered from complications of bleeding in the department of Otolaryngology and Head-Neck Surgery, Comilla Medical College Hospital, and Comilla Medical Centre, concerned Clinic of Central Medical College from 01 July 2016 to 31 June 2019. Results: Incidence of adenoidectomy bleeding among total operative patients was 0.32%, adenoidectomy-Tonsillectomy patients 2.66%, and the yearly prevalence of 33.35%. Off them, the male was 09 (39.17%), and the female 14 (60.87%), 11-15 years children have highest bleeding complications was 17 (73.91%), commonest presenting features was nasal obstruction (91.30%), mouth breathing (82.61%), and hearing loss (78.26%).


2020 ◽  
pp. OP.20.00193
Author(s):  
Nat C. Jones ◽  
Monica E. Reyes ◽  
Gwendolyn P. Quinn ◽  
Matthew B. Schabath

PURPOSE: Biobanks usually do not collect transgender and gender-diverse (TGD) demographic information, hindering research on cancer risk and biological effects related to gender-affirming interventions. METHODS: In August 2019, 172 scientists involved in biobanking research at a single institution (H. Lee Moffitt Cancer Center and Research Institute, Tampa, FL) were invited to complete a survey measuring knowledge and attitudes about TGD health and research practices. Quantitative and qualitative analyses were performed. RESULTS: Among 47 respondents, there was high agreement (77%) regarding the importance of collecting TGD identities and histories of gender-affirming treatments with biospecimens, which was contrasted by low self-reported rates of respondents’ biorepositories allowing for the entry of TGD identities (14.9%) and histories of gender-affirming interventions (8.5%). There was high interest in receiving education regarding the unique cancer health needs of TGD patients (74%), and knowledge questions yielded high percentages of “neutral” and “don’t know or prefer not to answer” responses. After completing the survey, confidence in knowledge of health needs for TGD patients decreased significantly (48.9% were confident during the presurvey assessment v 36.2% in the postsurvey assessment; P < .001). Qualitative analysis of open-ended questions indicated overall support of TGD data inclusion in biobanks along with perceived barriers to inclusion of such data in biobanks. CONCLUSION: To our knowledge, this was the first study of researchers to assess knowledge, attitudes, and research practices regarding TGD patients. Overall, there was limited knowledge about TGD health and cancer needs and low rates of TGD demographic data collection but a high interest in receiving education regarding this community.


Author(s):  
Sahodra Rambharose ◽  
Ruth Durkenne ◽  
Tamica Daniels-Williamson

Objective: To determine the incidence of depression among the chronic disease patients attending the Campbellville chronic disease clinic. Methods: Data were collected at the Campbellville Health Centre, during the chronic disease clinic hours from the 8th–18th April, 2019. Information was collected using PHQ9 questionnaires and a demographic data collection sheet. Results: Of the 98 patients analyzed, nine (9) patients scored 10 or more points on the PHQ9 questionnaire which translated to an incidence of depression of 9.1%. Of the patients with a positive screen for depression; 6 (66.7%) were females and 3(33.3%) males, 5 (55.5%) Afro Guyanese, 4 (44.4%) were East Indians, 5 (55.5%) patients were between 50-69yrs and 4 (44.4%) were more than 70 years old. Of these patients, there were 8 (88.8%) Christians and 1(11.1%) Hindu, 5 (55.5%) were married, 2 (22.2%) single and 2 (22.2%) were widowed, while 7 (77.7%) were unemployed, 2 (22.2%) were employed and 6 (66.6%) patients were diagnosed with at least 2 chronic diseases. Conclusion: Depression is a mental health disorder that affects persons with chronic disease. The incidence of depression at Campbellville Health Centre was found to be 9.1%.  The PHQ9 is a validated, free and easy to use tool for screening and follow up of these patients. Recommendations: A national screening guideline along with adequate materials to diagnose and manage depression should be made available, including access to councilors and medications within the primary care setting.


2019 ◽  
Vol 16 (1) ◽  
pp. 63-81
Author(s):  
Christopher Lewis

AbstractU.S. federal agencies should treat Latinos as a racial or quasi-racial group in demographic data collection, rather than an ethnic or pan-ethnic group, as they do currently. Survey data must rely on self-reported racial and ethnic identification. But people often identify their own race differently from how others perceive them. In order for self-reported survey data to be useful for the enforcement of antidiscrimination law, it is important that it tracks how others perceive the respondents’ race and ethnicity, not just how they see themselves. To capture racial perceptions of Latinos, government surveys need to balance three subsidiary criteria: the promotion of self-reported racial identifications that are useful as a proxy for the perceptions of others; the ability to measure intra-group differences in how Latinos are racially perceived; and the extent to which Latinos are collectively perceived as a race. A survey format that treated Latinos as a racial group would likely be more amenable to these goals than the current format, but there are some areas, which this paper identifies, where further empirical research is needed in order to be sure.


2017 ◽  
Vol 1 (1) ◽  
pp. 5-8
Author(s):  
Intan Kusuma Pramusinta

Documenting the population is something that is very very important for each village. because every village in definite need of complete data from the start of births, deaths and the displacement of each population. A large number of residents in a village will be very high in the village administrative irregularities such as population data etc. By mindless, we KKN PPM students Adi Buana University PGRI Surabaya tried to present the latest innovations for data collection on the population of a village to be more organized and structured. That is by using the application of unisoft. This application will make it easier for the village to look for and create data villagers, manufacture and maintenance of correspondence family card. In addition to demographic data collection is also our online mapping the form of making a village map that is useful to know the location-graphic layout of the village. Our way to introduce the modern-based applications to the village is by directing the secretary of the village and its ranks against unisof applications. our hope they can use this application with wise and appropriate. the results seen in the last month when we menjankan corruption in the village of Bulang Prambon. with piecemeal village books organized and easy to manufacture letters associated with the village.


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