Self-efficacy, coping, and difficulties interacting with health care professionals among women living with breast cancer in rural communities

Today, social media is increasingly used by patients to openly discuss their health. Mining automatically such data is a challenging task because of the non-structured nature of the text and the use of many abbreviations and the slang terms. Our goal is to use Patient Authored Text to build a French Consumer Health Vocabulary on breast cancer field, by collecting various kinds of non-experts’ expressions that are related to their diseases and then compare them to biomedical terms used by health care professionals. We combine several methods of the literature based on linguistic and statistical approaches to extract candidate terms used by non-experts and to link them to expert terms. We use messages extracted from the forum on ‘ cancerdusein.org ’ and a vocabulary dedicated to breast cancer elaborated by the Institut National Du Cancer. We have built an efficient vocabulary composed of 192 validated relationships and formalized in Simple Knowledge Organization System ontology.

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Videoconferencing and Dietitian Services: In Rural Ontario Communities

Canadian Journal of Dietetic Practice and Research ◽

10.3148/73.4.2012.176 ◽

2012 ◽

Vol 73 (4) ◽

pp. 176-180

Author(s):

Diana Stenlund

Keyword(s):

Health Care ◽

Rural Communities ◽

Health Care Professionals ◽

Access To Health Care ◽

Health Care Services ◽

Future Research ◽

Short Supply ◽

Care Services ◽

Alternative Approach ◽

Access To Health

Registered dietitians (RDs) are regulated health professionals in short supply in Ontario and throughout Canada. Projected workforce studies indicate the situation will likely worsen. Accessing these nutrition specialists is an even greater concern for residents living in rural or remote regions of the province. Smaller communities are increasingly using telehealth as a way to deliver health care services and to improve access to health care professionals. The adoption of interactive videoconferencing as a telehealth application is examined as an alternative approach for accessing RDs in rural communities. While valid reasons exist for implementing videoconferencing, other issues must be considered. These include costs, technological requirements, organizational readiness, and legal and ethical concerns. Future research must fully address the concept of videoconferencing in relation to the Canadian dietetic workforce and practice requirements.

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An assessment of breast cancer survivorship awareness and educational needs among health care professionals

Journal of Clinical Oncology ◽

10.1200/jco.2009.27.15_suppl.e17542 ◽

2009 ◽

Vol 27 (15_suppl) ◽

pp. e17542-e17542 ◽

Cited By ~ 1

Author(s):

P. De Fusco ◽

R. Chlebowski

Keyword(s):

Breast Cancer ◽

Health Care ◽

Cancer Survivorship ◽

Cancer Survivor ◽

Health Care Professionals ◽

Educational Needs ◽

Survivorship Care Plan ◽

Survivorship Care ◽

Breast Cancer Survivorship ◽

Patient Advocates

e17542 Background: Tremendous advances in detection and treatment have improved breast cancer survival rates. However, with nearly 22.4 million people worldwide living with cancer, optimal survivorship care has become a major focus of health care professionals (HCPs) and patient advocates. The Breast Cancer Survivorship Alliance (BCSA) is a group of HCPs and patient advocates dedicated to enhancing patient survivorship care and encouraging HCPs to look beyond the diagnosis and treatment of breast cancer. Methods: To identify educational needs in breast cancer survivorship, a 25-question survey was fielded at the 2007 San Antonio Breast Cancer Symposium. Electronic and print surveys were available at the Y-Me National Breast Cancer Organization and AstraZeneca booths. Results: Of the 516 respondents, 29% were from the United States, 63% were from the rest of the world, and 8% did not specify a location. A total of 73% were physicians, 7% were oncology nurses, nurse practitioners, or physician assistants, and 20% represented other aspects of breast cancer care (e.g., advocates and patients). The survey revealed a lack of consensus on the definition of cancer survivor, with only 26% of respondents selecting the definition established by the National Coalition for Cancer Survivorship (ie, from the moment of cancer diagnosis and for the balance of life). More than half (i.e., 51%) defined cancer survivor as a patient who has been disease-free for 5 years. Overall wellness promotion, adherence, and management of treatment-related side effects were ranked as the 3 most essential aspects of survivorship care. While most practices engage in posttreatment survivorship counseling, only 16% provide patients with an end-of-treatment summary or survivorship care plan. Most respondents indicated that their institution has a survivorship program in place (39%) or in development (30%). Conclusions: Although progress has been made in understanding and implementing survivorship care, additional education is needed to optimize care of breast cancer survivors. [Table: see text]

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Physical Activity and Breast Cancer: A Qualitative Study on the Barriers to and Facilitators of Exercise Promotion from the Perspective of Health Care Professionals

Physiotherapy Canada ◽

10.3138/ptc.2015-84 ◽

2016 ◽

Vol 68 (4) ◽

pp. 383-390 ◽

Cited By ~ 18

Author(s):

Jenna Smith-Turchyn ◽

Julie Richardson ◽

Richard Tozer ◽

Margaret McNeely ◽

Lehana Thabane

Keyword(s):

Breast Cancer ◽

Physical Activity ◽

Health Care ◽

Qualitative Study ◽

Health Care Professionals ◽

Exercise Promotion

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Xigua Video as a Source of Information on Breast Cancer: Content Analysis

Journal of Medical Internet Research ◽

10.2196/19668 ◽

2020 ◽

Vol 22 (9) ◽

pp. e19668

Author(s):

Peng Pan ◽

Changhua Yu ◽

Tao Li ◽

Xilei Zhou ◽

Tingting Dai ◽

...

Keyword(s):

Breast Cancer ◽

Health Care ◽

Health Information ◽

Health Care Professionals ◽

Medical Information ◽

Statistical Significance ◽

Misleading Information ◽

Global Quality ◽

Information Group ◽

Source Of Information

Background Seeking health information on the internet is a popular trend. Xigua Video, a short video platform in China, ranks among the most accessed websites in the country and hosts an increasing number of videos with medical information. However, the nature of these videos is frequently unscientific, misleading, or even harmful. Objective Little is known about Xigua Video as a source of information on breast cancer. Thus, the study aimed to investigate the contents, quality, and reliability of breast cancer–related content on Xigua Video. Methods On February 4, 2020, a Xigua Video search was performed using the keyword “breast cancer.” Videos were categorized by 2 doctors based on whether the video content provided useful or misleading information. Furthermore, the reliability and quality of the videos were assessed using the 5-point DISCERN tool and 5-point global quality score criteria. Results Out of the 170 videos selected for the study, 64 (37.6%) were classified as useful, whereas 106 (62.4%) provided misleading information. A total of 41.8% videos (71/170) were generated by individuals compared to 19.4% videos (33/170) contributed by health care professionals. The topics mainly covered etiology, anatomy, symptoms, preventions, treatments, and prognosis. The top topic was “treatments” (119/170, 70%). The reliability scores and global quality scores of the videos in the useful information group were high (P<.001). No differences were observed between the 2 groups in terms of video length, duration in months, and comments. The number of total views was higher for the misleading information group (819,478.5 vs 647,940) but did not reach a level of statistical significance (P=.112). The uploading sources of the videos were mainly health care professionals, health information websites, medical advertisements, and individuals. Statistical differences were found between the uploading source groups in terms of reliability scores and global quality scores (P<.001). In terms of total views, video length, duration, and comments, no statistical differences were indicated among the said groups. However, a statistical difference was noted between the useful and misleading information video groups with respect to the uploading sources (P<.001). Conclusions A large number of Xigua videos pertaining to breast cancer contain misleading information. There is a need for accurate health information to be provided on Xigua Video and other social media; health care professionals should address this challenge.

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Exploring Strategies for Using Social Media to Self-Manage Health Care When Living With and Beyond Breast Cancer: In-Depth Qualitative Study (Preprint)

10.2196/preprints.16902 ◽

2019 ◽

Author(s):

Cathy Ure ◽

Anna Mary Cooper-Ryan ◽

Jenna Condie ◽

Adam Galpin

Keyword(s):

Breast Cancer ◽

Health Care ◽

Social Media ◽

Health Care Professionals ◽

Cancer Survival ◽

Management Strategies ◽

Survival Rates ◽

Self Management ◽

Health Providers ◽

Psychosocial Needs

BACKGROUND As breast cancer survival rates improve and structural health resources are increasingly being stretched, health providers require people living with and beyond breast cancer (LwBBC) to self-manage aspects of their care. OBJECTIVE This study aimed to explore how women use and experience social media to self-manage their psychosocial needs and support self-management across the breast cancer continuum. METHODS The experiences of 21 women (age range 27-64 years) were explored using an in-depth qualitative approach. The women varied in the duration of their experiences of LwBBC, which facilitated insights into how they evolve and change their self-management strategies over time. Semistructured interviews were analyzed inductively using a thematic analysis, a polytextual analysis, and voice-centered relational methods. RESULTS The use of multiple social media platforms, such as YouTube, Facebook, WhatsApp, and Twitter, enabled women to self-manage aspects of their care by satisfying needs for timely, relevant, and appropriate support, by navigating identities disrupted by diagnosis and treatment and by allowing them to (re)gain a sense of control. Women described extending their everyday use of multiple platforms to self-manage their care. However, women experienced social media as both empowering and dislocating, as their engagement was impacted by their everyday experiences of LwBBC. CONCLUSIONS Health care professionals (HCPs) need to be more aware, and open to the possibilities, of women using multiple social media resources as self-management tools. It is important for HCPs to initiate value-free discussions and create the space necessary for women to share how social media resources support a tailored and timely self-managed approach to their unique psychosocial needs.

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A New Exclusive Breastfeeding Booklet to Improve Self-Efficacy

KnE Life Sciences ◽

10.18502/kls.v6i1.8765 ◽

2021 ◽

pp. 870-880

Author(s):

Suryani Hartati ◽

Nuraini Hakim

Keyword(s):

Health Care ◽

Experimental Design ◽

Health Education ◽

Exclusive Breastfeeding ◽

Health Care Professionals ◽

Self Efficacy ◽

Postnatal Period ◽

Quasi Experimental ◽

The Mean ◽

Provide Health Education

Breastfeeding self-efficacy is defined as the mother’s belief in their ability to breastfeed the baby. Health education is important to increase the mother’s confidence. The purpose of this study was to test the effect of an exclusive breastfeeding booklet to increase breastfeeding self-efficacy in prenatal mothers until the postnatal period. This study was conducted using a quasi-experimental design. The results showed that providing a booklet for mothers increased self-efficacy towards exclusive breastfeeding with the mean after intervention was 60.97, p<0.005. Our study suggests health care professionals provide health education and motivate mothers to improve their confidence with regards to breastfeeding for at least six months. Keywords: Breastfeeding self-efficacy, exclusive breastfeeding, health education

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