More Than SF-36? Using Narratives to Elaborate Health and Well-Being Data in Recent Lower-Limb Amputees

Author(s):  
Narelle Warren ◽  
Lenore Manderson ◽  
RoseAnne Misajon
2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 528-528
Author(s):  
Michel Bedard ◽  
Hillary Maxwell ◽  
Isabelle Gelinas ◽  
Shawn Marshall ◽  
Gary Naglie ◽  
...  

Abstract A bias inherent to prospective studies is focusing only on individuals who remain in the study; these individuals may differ from those who leave early. To examine this issue, we analyzed SF-36 scores by completion status for individuals enrolled in the seven-year Candrive cohort. The SF-36 provides a self-reported evaluation of health and well-being along two subscales, the Physical Component Summary (PCS) and the Mental Component Summary (MCS). Of 928 participants in the cohort, 887 had at least two consecutive years of data starting at baseline (age=76.17, SD=4.81; 61.9% male). A total of 142 participants had 7 years of data. Study discontinuation (due to withdrawal, driving cessation, or death) happened least in early years, and peaked after 6 years (n=235). When analyzed according to completion status, patterns of change in SF-36 scores varied. For example, participants with 7 years of data had mean PCS scores ranging from 51.41 (SD=7.92) at baseline to 46.93 (SD=9.46) at year 7, a change of 0.75 points per year. For those with only two years of data, scores were lower and dropped from 45.82 (SD=9.98) to 43.59 (SD=10.90), a change of 2.23 points over a single year (p<.001). Differences are also evident for other groups. While the results indicate relative stability of SF-36 scores among participants who remained in the study, participants who dropped out reported greater deterioration in scores. These results highlight important differences between participants based on completion status.


2016 ◽  
Vol 41 (5) ◽  
pp. 469-475 ◽  
Author(s):  
Jan Christensen ◽  
Patrick Doherty ◽  
Jakob Bue Bjorner ◽  
Henning Langberg

Background:Most amputees live with their prostheses for a long time. Therefore, quality of life is an important outcome for lower limb amputees.Objective:To translate the Prosthesis Evaluation Questionnaire (PEQ) and evaluate psychometric properties.Study Design:Methodological research.Methods:Lower limb amputees responded to electronic versions of the PEQ and SF-36v2 at baseline (n=64), after two weeks (n=51), and after 12 weeks (n=50). Reliability was assessed using Cronbach’s alpha and intraclass correlation coefficient (ICC) analyses of the baseline and two weeks test-retest data. Estimates for standard error of measurement (SEM) were calculated based on reliability estimates. Construct validity was evaluated by testing using hypotheses testing.Results:Reliability estimates (ICC/Cronbach’s alpha) for the nine subscales were: Social Burden (0.85/0.76), Appearance (0.85/0.72), Residual Limb Health (0.80/0.69), Well-Being (0.78/0.90), Utility (0.76/0.89), Frustration (0.74/0.90), Perceived Response (0.62/0.80), Ambulation (0.61/0.94), Sounds (0.51/0.65). Construct validity was supported in three out of four subscales evaluated.Conclusions:The subscales Social Burden, Appearance, Well-Being, Utility and Frustration had consistent high reliability, supporting their use in assessing the prosthesis related quality of life in lower limb amputees. Results were mixed on three other scales (Residual Limb Health, Perceived Response, and Ambulation), while one scale, Sounds, had consistent low reliability.Clinical relevanceFor the first time a patient reported disease specific quality of life measure for lower limb amputees is available in Danish. Health care providers can now identify patients with reduced quality of life and measure treatment and rehabilitation effects over time.


2011 ◽  
Vol 35 (1) ◽  
pp. 90-96 ◽  
Author(s):  
Richa Sinha ◽  
Wim JA van den Heuvel ◽  
Perianayagam Arokiasamy

Background: Quality of life (QoL) is increasingly being recognized as an important outcome for rehabilitation programs, and has mainly been used to compare the efficacy of interventions or to compare amputees with other diseased populations. There is relatively a limited number of studies primarily focusing on analyzing the multitude of factors influencing QoL in amputees.Objectives: To identify important background and amputation related factors which affect quality of life (QoL) in lower limb amputees, and to compare QoL profile of amputees’ to that of general population.Study design: Cross-sectional.Methods: Lower limb amputees 18 years and above from a rehabilitation centre, a limb-fitting centre and four limb-fitting camps were interviewed ( n = 605). Structured questionnaires included patient background and amputation characteristics, and the MOS short-form health survey (SF-36) for assessing QoL. The SF-36 was administered to a general adult population using purposive sampling ( n = 184).Results: SF-36 PCS and MCS scores were found to be significantly lower for amputees when compared to those for the general population. In this study, employment status, use of an assistive device, use of a prosthesis, comorbidities, phantom-limb pain and residual stump pain were found to predict both PCS and MCS scores significantly, and explained 47.8% and 29.7% of variance respectively. Age and time since amputation accounted for an additional 3% of variance in PCS scores.Conclusions: The abovementioned factors should be addressed in order to ensure holistic reintegration and participation, and to enable the amputees to regain or maintain QoL. Prospective longitudinal studies are recommended to systematically study the change in QoL over time and to assess its determinants.Clinical relevanceProper appraisal of abovementioned factors in the rehabilitation programme would assist in establishing a treatment protocol, which would adequately address QoL in amputees.


1996 ◽  
Vol 9 (1) ◽  
pp. 13-21 ◽  
Author(s):  
Kathleen M. Beusterien ◽  
Bruce Steinwald ◽  
John E. Ware

Longitudinal data from a clinical trial were analyzed to evaluate the usefulness of the SF-36 Health Survey in estimating the impact of depression and changes in severity over time on the functional health and well-being of 532 patients, 60 to 86 years of age, who met DSM-III-R criteria for major depressive disorder. The Hamilton Depression Rating Scale, the Clinician's Global Impression of Severity and Improvement, and the Geriatric Depression Scale were used to define clinical severity and changes in severity over a 6-week period. Answers to SF-36 questions tended to be complete and to satisfy assumptions underlying methods of scale construction and scoring. As hypothesized, the SF-36 Mental Health Scale and Mental Component Summary measure, shown in previous studies to be most valid in measuring differences in mental health, exhibited the strongest associations with severity of depression in cross-sectional analyses and were most responsive to changes in severity in longitudinal comparisons. We conclude that the SF-36 Health Survey is useful for estimating the burden of depression and in monitoring changes in functional health and well-being over time among the depressed elderly.


1995 ◽  
Vol 7 (S1) ◽  
pp. 125-137 ◽  
Author(s):  
John H. Heiligenstein ◽  
John E. Ware, Jr ◽  
Kathy M. Beusterien ◽  
Paul J. Roback ◽  
Carol Andrejasich ◽  
...  

In a randomized 6-week trial comparing fluoxetine with placebo, the Medical Outcomes Study 36-Item Short-Form Health Status Survey (SF-36) scales were used to measure the effects of treatment on functional health and well-being among elderly (age ≥ 60 years) outpatients with major depression. In the fluoxetine and placebo groups, 261 and 271 patients, respectively, completed the SF-36 before treatment and at Weeks 3 and 6. Compared with national norms for individuals over age 60, study patients before treatment exhibited baseline decrements on the following SF-36 scales: mental health, role limitations due to emotional problems, social functioning, vitality, role limitations due to physical problems, and bodily pain. Analyses of SF-36 changed scores from baseline to Week 6 revealed that the fluoxetine group improved more than the placebo group across all scales. Differences in changes of scores between groups were significant (p < .05), favoring the fluoxetine group for the scales of mental health, role limitations due to emotional problems, physical functioning, and bodily pain. Improvements observed in the fluoxetine group were both clinically and socially significant.


Author(s):  
Iris Malka ◽  
Iacob Hanțiu

ABSTRACT. Background. Physical activity (PA) is highly recommended for older adults in order to improve physical functioning, health and well-being. Aims. The purposes of this pilot research were: to investigate the influence of Harmonic Gymnastics (HG) on flexibility, dynamic balance, health and well-being of older adults, and to verify the feasibility of the research tools. Methods. In this pilot research 15 healthy men and women, mean age 58.7 (6.5), from Tel Aviv, Israel, volunteered to participate in the research program, which included 50 min. of HG practice, three times a week, for six weeks. Three questionnaires – SF-36 Health and quality of life questionnaire, The Global Physical Activity Questionnaire (GPAQ) and the Mindfulness Awareness Assessment Scale (MAAS) – and two physical skills testing equipment – Y Balance Test (YBT) and the Back Saver Sit and Reach test (BSSR) – were used to assess the subjects. Results. Post-test results showed significant improvements of total score of health and well-being by SF-36 (p < 0.05) and body awareness by MAAS (p <0.0001), but no significant results for SF-36 (0.0629) subscales nor for the global PA measured by GPAQ (p= 0.391). Participants improved hamstring flexibility (p < 0.05) and dynamic balance of right leg (p < 0.001) and left leg (p = 0.00001). Conclusions. This pilot research indicates the feasibility of YBT, BSSR, MAAS and SF-36. HG was found to be tailored for older adults. Older adults improved functioning capabilities, body awareness, health and well-being after the program.


2018 ◽  
Vol 2018 ◽  
pp. 1-10 ◽  
Author(s):  
Chun-Yi Lin ◽  
Tze-Taur Wei ◽  
Chen-Chen Wang ◽  
Wan-Chen Chen ◽  
Yu-Min Wang ◽  
...  

Qigong is a gentle exercise that promotes health and well-being. This study evaluated the acute physiological and psychological effects of one session of qigong exercise in older practitioners. A total of 45 participants (mean age, 65.14 years) were recruited. Meridian electrical conductance, State-Trait Anxiety Inventory (STAI), heart rate variability (HRV), and Short Form 36 (SF-36) were evaluated and compared before and after one session of qigong exercise. The results revealed that the electrical conductance of all meridians, except spleen and bladder meridians, increased significantly (p<0.05). Compared with baseline values, upper to lower body ratio and sympathetic/vagal index were significantly improved and closer to 1 (p=0.011 and p=0.007, resp.). STAI-S and STAI-T scores decreased significantly (p<0.001 and p=0.001, resp.). The RR interval of HRV decreased significantly (p=0.035), a significant positive correlation was observed between kidney meridian electrical conductance and SF-36 physical scores (r=0.74, p=0.018), and a positive correlation was observed between pericardium meridian electrical conductance and SF-36 mental scores (r=0.50, p=0.06). In conclusion, one session of qigong exercise increased meridian electrical conductance, reduced anxiety, and improved body and autonomic nervous system balance. These findings provide scientific evidence for acute physiological and psychological effects of qigong exercise in older practitioners.


2003 ◽  
Vol 93 (1) ◽  
pp. 75-83
Author(s):  
R. Feld ◽  
A. Colantonio ◽  
K. Yoshida ◽  
F. Odette

This study investigated scores for mental health and vitality in a large community-based sample of women with physical disabilities. The scores from two subscales of the SF-36 were collected from 1,096 women with physical disabilities through a mailed survey regarding health and well-being. These scores were compared to normative data using t tests. The mean scores of the vitality subscale were significantly lower than that of the normed sample when analyzed by age groups. The mental health scores were significantly lower as well, except for one age group (65-74 yr.). These results suggest that health care workers should address aspects of mental health and energy when caring for women with physical disabilities, as these areas are often overlooked in this population. Health promotion programs aimed at these topics should be designed specifically for this population as well.


Work ◽  
2021 ◽  
pp. 1-10
Author(s):  
Allison Naber ◽  
Logan Willhite ◽  
Whitney Lucas Molitor

BACKGROUND: Office workers spend significant time in sedentary behaviors. Exploration of interventions to address this concern is warranted. OBJECTIVE: This study explored the impact of individualized goals and ergonomic modifications on sedentary behaviors and perceived health and well-being among office workers. METHODS: A six-week, one-group, pre- and post-test design was utilized to assess sedentary behaviors and perceptions of health and well-being among office workers using the RAND 36-Item Short Form Survey (SF-36), Numerical Pain Rating Scale (NPRS), Pittsburgh Sleep Quality Index (PSQI), Sedentary Behavior Questionnaire (SBQ), actigraphy, and a workstation assessment. RESULTS: Statistically significant improvements were noted from pre- to post-test on the RAND SF-36 for energy/fatigue (p = 0.000) and emotional well-being (p = 0.049) and subjective sleep quality using the PSQI (p = 0.005). Participants (n = 17) could set up to two goals related to health and well-being. A majority of the 31 established goals were met: increase physical activity (n = 11/16), reduce sedentary behavior (n = 8/11), and improve personal health (n = 3/4). CONCLUSIONS: The use of individualized goals and ergonomic modifications is effective for addressing perceived health and well-being among office workers. However, limited statistical significance was found regarding the impact of these interventions on sedentary behaviors or activity levels.


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