Why Bother Talking? On Having Cerebral Palsy and Speech Impairment: Preserving and Promoting Oral Communication Through Occupational Community and Communities of Practice

Author(s):  
Rick Stoddart ◽  
David Turnbull
2014 ◽  
Vol 16 (4) ◽  
pp. 427-435 ◽  
Author(s):  
Cristina Mei ◽  
Sheena Reilly ◽  
Dinah Reddihough ◽  
Fiona Mensah ◽  
Angela Morgan

2020 ◽  
Vol 51 (3) ◽  
pp. 882-896 ◽  
Author(s):  
Phoebe Natzke ◽  
Ashley Sakash ◽  
Tristan Mahr ◽  
Katherine C. Hustad

Purpose Accurate measurement of speech intelligibility is essential for children with speech production deficits, but wide variability exists in the measures and protocols used. The current study sought to examine relationships among measures of speech intelligibility and the capacity of different measures to capture change over time. Method Forty-five children with cerebral palsy (CP) with and without speech motor impairment were observed at ages 6, 7, and 8 years. The speech performance of each child was rated using four measures at each time point: standardized articulation test scores, multiword intelligibility scores obtained from naïve listeners, parent ratings of intelligibility, and percent intelligible utterances obtained from language transcripts. We analyzed the correlations of measures within each age and within three different severity groups, and we analyzed how these measures changed year over year in each severity group. Results For children with CP who have mild and moderate speech deficits, different measures of speech production were weakly associated, and for children with CP with severe speech impairment, these measures showed stronger associations. The four measures also differed in their ability to capture change over time. Finally, results from standardized assessments of articulation were not found to inform overall speech intelligibility for children with mild and moderate speech deficits. Conclusions Results suggest that speech production is not fully described by any single clinical measure. In order to adequately describe functional speaking abilities and to capture change over time, multiple levels of measurement are required.


2021 ◽  
Vol 12 ◽  
Author(s):  
Jennifer M. Ryan ◽  
Grace Lavelle ◽  
Nicola Theis ◽  
Cherry Kilbride ◽  
Marika Noorkoiv

Background: Although the provision of healthcare for people with cerebral palsy (CP) is typically focussed on childhood, many people with CP require access to services periodically throughout their life. Few studies have examined patterns of health service use among young people with CP in England. Understanding patterns of use may inform future service development.Objective: To describe patterns of visits to rehabilitation and medical professionals among ambulatory young people with CP living in England, and identify factors associated with service use.Methods: Sixty-two young people with CP aged 10–19 years [mean (SD) age 13.7 (2.5) years] in Gross Motor Function Classification System (GMFCS) levels I-III reported visits to a range of health professionals, hospital admissions and visits to the emergency department over a median duration of 34 weeks (min–max: 12–34 weeks). Negative binomial models were used to examine factors associated with number of visits.Results: Physiotherapists were the most commonly used professional, with 67.7% of participants visiting a physiotherapist at least once, followed by dentists (66.1%), general practitioners (48.4%), occupational therapists (40.3%) and orthopaedic surgeons (40.3%). Physiotherapists were also the most frequently visited professional with a total of 473 visits (13.3 visits per person-year). Speech and language therapists (5.0 visits per person-year), occupational therapists (4.5 visits per person-year) and nurses (4.3 per person-year) were the next most frequently visited professionals. Age, GMFCS level, and speech impairment were associated with rate of visits to a physiotherapist.Conclusions: The proportion of young people who visited medical and rehabilitation professionals during the study period varied considerably depending on the profession. Generally, the proportion of young people using services was low. In the context of limited resources, data on service use in combination with data on unmet need, may support the reorganisation of services to maximise benefits to young people with CP.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Roseline E. Duke ◽  
Chimaeze Torty ◽  
Uche Okorie ◽  
Min J. Kim ◽  
Nnena Eneli ◽  
...  

Abstract Background To describe the pattern of comorbidities in school-aged children with cerebral palsy (CP) and to identify which, if any, were associated with poor school attendance. A cross-sectional study, using the key informant methodology, between December 2017 and July 2018 was conducted in Cross River State, Nigeria. Assessments, confirmation of CP and identification of systemic comorbidities using standard tools and questionnaires were performed. Children confirmed to have CP between the ages 4 to 15 years were included. Results Three hundred and eighty-eight children were confirmed to have CP, 59% males. The mean age was 9.2 years ± SD 4.0; 28% were non-ambulatory (gross motor function classification system (GMFCS) level IV-V) and spastic CP was seen in 70%. Comorbidities included Speech impairment 85%, feeding difficulties 86%, and swallowing difficulties 77%, learning difficulties 88%, abnormal behaviour 62%, visual acuity impairment 54%, objective perceptual visual disorders 46%, communication difficulties 45%, epilepsy 35%, hearing impairment 12% and malnutrition 51%. Learning difficulties (OR 10.1, p < 0.001; CI: 3.6–28.1), visual acuity impairment (OR 2.8, p = 0.002; CI: 1.5–5.3), epilepsy (OR 2.3, p = 0.009; CI:1.2–4.3) manual ability classification scale 4–5 (OR 4.7,p = 0.049; CI:1.0–22.2) and CP severity (GMFCS V-VI) OR 6.9 p = 0.002, CI: 2.0–24.0.) were seen as increasing the likelihood of poor school attendance. Conclusion Comorbidities were common, and some were associated with limited school attendance. A multidisciplinary tailored approach to care, with application of available therapeutic interventions for comorbidities is suggested. This may be useful in reducing barriers to school attendance.


2016 ◽  
Vol 27 (1) ◽  
pp. 10-13
Author(s):  
Vinay Goyal ◽  
Nonica Laisram ◽  
Tufail Muzaffar ◽  
Shikha Bhatnagar

Abstract Background There may be change in clinical spectrum of cerebral palsy (CP) due to improvement in maternal and child care health service. The clinical profi le, aetiological factors and comorbidities of children with CP attending Department of PMR, VMMC & Safdarjang Hospital during the years 1981- 1989 and 2008 - 2012 were therefore compared and analysis done. Methods Four hundred and ten (group B) children with CP registered in last 4 years (2008 - 2012) at PMR Department of VMMC & Safdarjang Hospital were compared with previous study of 544 (group A) children during year 1981 - 1989 from same centre. Results Spastic CP remained most common in both the groups. Diplegia is commonest type of CP (38.78%) as compared to previous group where quadriplegia (34.9%) was most common. The mixed type showed a statistical signifi cant increase in percentage (group A: 0.18 % versus group B: 3.7 %). In aetiology, there is decrease in prenatal and postnatal causes and increase in natal causes which were statistically signifi cant. Birth asphyxia (50.3 %) remains the main aetiological factor as earlier (24.5%). Speech problems (59.7%), mental retardation (31.7%) and seizures (26.8%) are common comorbidities as compared to previous studies where mental retardation (47.2 %) was found to be most common followed by speech impairment (37%), visual impairment (9%) and seizures (8.8%). Conclusions Clinical profile of CP has evolved with an increase in diplegic and a decrease in quadriplegic CP.


2019 ◽  
Vol 9 (1) ◽  
pp. 52-60
Author(s):  
V. V. Dulnev ◽  
Т. A. Slyusar’

Background. In children with cerebral palsy, high risk of cognitive impairments connected with sensory disintegration – delayed visual and auditory perception.The objective – assessment of temporary and amplitude characteristics brainstem auditory evoked potentials of children with cerebral palsy.Materials and methods. Neurological examination, retrospective analysis of magnetic resonance imaging data of brain and 2-channel brainstem auditory evoked potentials registration with left- and right-ear stimulation and analysis was performed for 60 children aged 4–17 years, with mean age 11.80 ± 0.56 years.Results. There are no significant difference in brainstem auditory evoked potentials latencies of children’s with cerebral palsy age subgroups. A significantly increasing of III–V peak latencies of brainstem auditory evoked potentials and also I–III and I–V interpeak latencies was observed in children with cerebral palsy in comparison of control group. Latencies of different brainstem auditory evoked potentials peaks were significantly higher in children with uni- and bilateral form of cerebral palsy and speech impairment. Group with periventricular leucomalation (on magnetic resonance imaging) is characterized by significantly increased brainstem auditory evoked potentials latencies and normal interpeak intervals. These abnormalities may be linked to non-progressive impairment of brainstem acoustic afferentation.Conclusion. Impairment of brainstem auditory evoked potentials maturation and it’s difference in various cerebral palsy forms may be potentially clinical applicable for assessment of the children and early detection of sensory impairment.


2018 ◽  
Vol 4 (1) ◽  
pp. 97-118 ◽  
Author(s):  
Anja Voeste

AbstractBased on letters from prison written by a peasant farmer, this tentative, exemplar study tries to show the interconnection of two sides of the same historical process: the striving for linguistic ‘expression’ and the development of the modern self. The analysis shows that the letters’ author, J. H. Friedrich, succeeded in the creative act of expressing his psychological self on paper when the circumstances pushed him to do so. He communicated complex facts by using a rather elaborate syntax (while his writings also reveal misspellings and an erroneous morphosyntax). However, Friedrich did not archive his pragmatic aim of maintaining his much needed social bonds to his wife, family, and friends. The paper discusses the possibility that this might have been the case because his written style contrasted starkly with the oral communication of his former communities of practice. The study contributes to the third-wave approach in historical sociolinguistics (Conde-Silvestre, J. C. 2016, A ‘third-wave’ historical sociolinguistic approach to late Middle English correspondence: Evidence from the Stonor Letters. In Cinzia Russi (ed.),Current trends in historical sociolinguistics, 46–66. Warsaw & Berlin: de Gruyter) that seeks to present in detail that historical ‘speakers’ are anything but stable carriers of a given language variety but ‘tailor’ their own linguistic styles.


1978 ◽  
Vol 30 (1) ◽  
pp. 50-58 ◽  
Author(s):  
L.J. Platt ◽  
Gavin Andrews ◽  
Margrette Young ◽  
P.D. Neilson

2013 ◽  
Vol 3 (3) ◽  
pp. 222-226
Author(s):  
Mirela Babajić ◽  
Emira Švraka ◽  
Dijana Avdić

Introduction: Cerebral palsy (CP) connotes a group of non-progressive, but often variable symptoms of motor impairment of movement and posture, as well as other impairments which are a consequenceof anomalies or brain impairment in different phases of its development. CP is a pathological condition characterised in the fi rst place by motor function impairment to which other disorders such as: visual andhearing impairment, intellectual defi cit, emotional problems, behaviour disorder, speech disorder, epileptic seizure and similar can join. The aim of this study is to determine frequency of joined disabilities ofchildren with cerebral palsy in Tuzla Canton.Methods: The research covers a total sample of 48 examinees, chronological age from 2-19 years, in Tuzla Canton. Research instrument was a Structural Questionnaire for the parents of children and adolescentswith cerebral palsy. Research data were processed by nonparametric statistics method. Basic statistical parameters of frequency and percentages were calculated, and tabular presentation was made.Results: After classification of examinees as per frequency of joined disabilities was done, work results have shown that speech impairment occurred with 35.4 % of children, visual impairment 33.3 %, epilepsy29.3 %, whereas hearing impairment occurred with 2 % of children.Conclusion: In research of frequency of joined disabilities of children with cerebral palsy in Tuzla Canton, most expressed are speech and visual disorders with children, then epilepsy, whereas a small percentageof children are with hearing disorder.


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