scholarly journals Spiritual quality of life in family carers of patients with advanced cancer—a cross-sectional study

2021 ◽  
Author(s):  
Ingebrigt Røen ◽  
Anne-Tove Brenne ◽  
Cinzia Brunelli ◽  
Hans Stifoss-Hanssen ◽  
Gunn Grande ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Higher Education ◽  
Social Support ◽  
Advanced Cancer ◽  
Health Care Professionals ◽  
Multivariate Regression ◽  
Meaning Making ◽  
Well Being ◽  
Cross Sectional

Abstract Purpose Caring affects carers’ psychological and physical health, mortality, and quality of life (QoL) negatively. Lower spiritual QoL is associated with anxiety and depression, but the spiritual dimension is rarely investigated in carers. The present study aimed to explore which patient- and carer-related characteristics were associated with spiritual QoL in carers of patients with advanced cancer. Methods Secondary analyses were conducted using data from a prospective study investigating integration between oncology and palliative care. Adult patients with advanced cancer and their carers were included, and baseline data considering demographics, clinical characteristics, symptoms, social support, and religious meaning-making were registered. Spiritual QoL was measured using the Functional Assessment of Chronic Illness Therapy - Spiritual well-being (FACIT-Sp-12) questionnaire. Associations to spiritual QoL were explored by bivariate and multivariate regression models. Results In total, 84 carers were included, median age was 62.5 years, 52 (62%) were female, and the average spiritual QoL score was 23.3. In bivariate analyses, higher education, social support, and lower patients’ symptom burden were significantly associated with higher spiritual QoL. The multivariate regression model (n=77) had an explained variance (R2) = 0.34 and showed a significant association for social support, higher education, having children < 18 years living at home, and patient’s age. Conclusion The study indicates that spiritual QoL in carers were low and were negatively affected by several factors related to both carers and patients. However, there could be other important factors not yet described. Health care professionals should be aware of the known associated factors, as carers who hold these may need extra support.

Assessment of Quality of Life in Outpatients With Advanced Cancer: The Accuracy of Clinician Estimations and the Relevance of Spiritual Well-Being—A Hoosier Oncology Group Study

2003 ◽  
Vol 21 (14) ◽  
pp. 2754-2759 ◽  
Author(s):  
Michael J. Fisch ◽  
Michael L. Titzer ◽  
Jean L. Kristeller ◽  
Jianzhao Shen ◽  
Patrick J. Loehrer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Advanced Cancer ◽  
Performance Status ◽  
Well Being ◽  
Categorical Variables ◽  
Therapeutic Trial ◽  
Slight Variation ◽  
Cross Sectional ◽  
Spiritual Well Being

Purpose: To evaluate the association between quality-of-life (QOL) impairment as reported by patients and QOL impairment as judged by nurses or physicians, with and without consideration of spiritual well-being (SWB). Patients and Methods: A total of 163 patients with advanced cancer were enrolled onto a therapeutic trial, and cross-sectional data were derived from clinical and demographic questionnaires obtained at baseline, including assessment of patient QOL and SWB. Clinicians rated the QOL impairment of their patients as mild, moderate, or severe. Clinician-estimated QOL impairment and patient-derived QOL categories were compared. Correlation coefficients were estimated to associate QOL scores using different instruments. The analysis of variance method was used to compare Functional Assessment of Cancer Therapy–General scores on categorical variables. Results: There was no significant association between self-assessment scores and marital status, education level, performance status, or predicted life expectancy. However, a strong relationship between SWB and QOL was noted (P < .0001). Clinician-estimated QOL impairment matched the level of patient-derived QOL correctly in approximately 60% of cases, with only slight variation depending on the method of categorizing patient-derived QOL scores. The accuracy of clinician estimates was not associated with the level of SWB. Interestingly, a subset analysis of the inaccurate estimates revealed an association between lower SWB and clinician underestimation of QOL impairment (P = .0025). Conclusion: Clinician estimates of QOL impairment were accurate in more than 60% of patients. SWB is strongly associated with QOL, but it is not associated with the overall accuracy of clinicians’ judgments about QOL impairment.

scholarly journals Quality of life and Social Support Among Diagnose Bipolar Patients

2021 ◽  
Vol 15 (5) ◽  
pp. 932-935
Author(s):  
M Adnan ◽  
T Khan ◽  
B Razzaq ◽  
R Ghaffar ◽  
S Batool ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Psychiatric Treatment ◽  
Bipolar Affective Disorder ◽  
Well Being ◽  
Recovery Phase ◽  
Cross Sectional ◽  
Quality Of Life Scale ◽  
Bipolar Patients

Aim: To ascertain the relationship between quality of life and social support in bipolar patients who have been diagnosed. STUDY DESIGN: cross-sectional research design Place and duration of the study: The research was performed impatiently on the Sheikh Zayed Medical College, Rahim Yar Khan at the Department of Psychiatry and Behavioral Sciences, which ran from January 2018 to July of 2019. Method: Data was retrieved from 100 patients, with diagnosed patients of bipolar affective disorder. Quality of life and social support were assessed by quality of life scale (QOLS) developed by Burckhardt and Berline social support scale (BSSS) developed by Berline. Results: Research claims a close relationship between the presence of such things as quality of life and social help for people with Bipolar Disorder. Conclusion: Bipolar is linked to inadequate health and quality of life and social isolation, mostly due to ineffective social skills. Social support is critical to emotional stability and quality of life. It may help patients deal with difficulties and reduce depression and help in both the recovery phase and positive results of psychiatric treatment. What is currently being sought to be learned is how social care has an impact on the level of well-being for bipolar patients. Keywords: Quality of life, bipolar, validation, generalization

scholarly journals The influence of social support on COPD outcomes mediated by depression

PLoS ONE ◽  
2021 ◽  
Vol 16 (3) ◽  
pp. e0245478
Author(s):  
Leonard Turnier ◽  
Michelle Eakin ◽  
Han Woo ◽  
Mark Dransfield ◽  
Trisha Parekh ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Depressive Symptoms ◽  
Functional Status ◽  
Perceived Social Support ◽  
Well Being ◽  
Institutional Review Boards ◽  
Longitudinal Analyses ◽  
Cross Sectional

Background The purpose of this study was to explore the association between perceived social support and COPD outcomes and to determine whether the associations are mediated by depressive symptoms. Methods Subjects with COPD who were enrolled as part of SPIROMICS were included in this analysis. Questionnaires relating to quality of life, symptom burden, and functional status were administered at annual clinic visits for over a 3 year period. In both cross-sectional and longitudinal analyses, we examined the association of social support as measured by the FACIT-F with COPD outcomes. Cross sectional analyses used multivariable linear or logistic regression, adjusting for covariates. For longitudinal analyses, generalized linear mixed models with random intercepts were used. Models were adjusted with and without depressive symptoms and mediation analyses performed. Results Of the 1831 subjects with COPD, 1779 completed the FACIT- F questionnaire. In adjusted cross-sectional analysis without depressive symptoms, higher perceived social support was associated with better quality of life, well-being, 6 minute walk distance, and less dyspnea. When also adjusting for depressive symptoms, all associations between social support and COPD outcomes were attenuated and no longer statistically significant. Mediation analysis suggested that depressive symptoms explained the majority (> = 85%) of the association between social support and measured COPD outcomes. Results of the longitudinal analysis were consistent with the cross-sectional analyses. There was no association between social support and odds of exacerbations. Conclusion Higher social support was associated with better COPD outcomes across several measures of morbidity including quality of life, respiratory symptoms, and functional status. In addition, these associations were largely attenuated when accounting for depressive symptoms suggesting that the beneficial association of social support with COPD outcomes may be largely mediated by the association between social support and depression. Trial registration SPIROMICS was approved by Institutional Review Boards at each center and all participants provided written informed consent (clinicaltrials.gov: NCT01969344).

scholarly journals PENGARUH DUKUNGAN SOSIAL KELUARGA TERHADAP KUALITAS HIDUP DAN KESEJAHTERAAN LANSIA

2018 ◽  
Vol 5 (1) ◽  
pp. 1-8
Author(s):  
Mulyati Mulyati ◽  
Rasha Rasha ◽  
Kenty Martiatuti
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Well Being ◽  
The Elderly ◽  
Cross Sectional Study ◽  
Urban Elderly ◽  
Sectional Study ◽  
Cross Sectional ◽  
Purposive Sampling

This study aims to determine the influence of social support on the quality of life and welfare of the elderly living with families residing in the Urban and Sub Urban areas. This study was conducted for 3 months starting from July until September 2017. The research method is cross sectional study. This research was conducted in East Jakarta area. The research location was chosen by purposive sampling based on data from local health office. The data collection time will be conducted from July-September 2017 using WHOQOL-BREF for live, Smet and Sarafino quality measurements for the measurement of social support and SWLS Ed Diener for measuring well-being. The results showed no significant differences in quality of life and social support in urban and sub-urban elderly. But there are differencesin the dimensions of social support and information support. There is a correlation between quality of life, social support and the well-being of the elderly. Positive relationship between the quality of life and welfare where the better the quality of life the better the welfare of the elderly. The quality of life and well-being is influenced by the support of awards and support of the instrument. Keyword : elderly, social support, the quality of life, welfare   Abstrak Penelitian ini bertujuan untuk mengetahui pengaruh dukungan social terhadap kualitas hidup dan kesejahteraan lansia yang tinggal dengan keluarga yang berada di daerah Urban dan Sub Urban. Penelitian ini dilakukan selama 3 bulan terhitung mulai bulan juli sampai septembertahun 2017 dengan obyek penelitin lansia yang tinggal dengan keluarga dan lansia yang tinggal  di panti werda. Metode penelitian adalah cross sectional study.  Penelitian ini dilakukan di wilayah Jakarta Timur Pemilihan lokasi penelitian dilakukan secara Purposive Sampling berdasarkan data dari Dinas Kesehatan setempat.  Waktu pengambilan data akan dilakukan pada bulan Juli-September 2017 menggunakan WHOQOL- BREF untuk pengukuran kualtas hidup, Smet dan Sarafino untuk pengukuran dukungan social dan SWLS Ed Diener untuk mengukur kesejahteraan. Hasil penelitian menunjukkan tidak terdapat perbedaan yang nyata pada kualitas hidup dan dukungan sosial pada lansia urban dan sub urban . Tetapi terdapat perbedaan pada dimensi dukungan sosial dan dukungan informasi.Terdapat korelasi antara kualitas hidup, dukungan sosial dan kesejahteraan lansia. Hubungan yang positif antara kualitas hidup dengan kesejahteraan dimana semakin baik kualitas hidup maka semakin baik kesejahteraan lansia.Kualitas hidup dan kesejahteraan dipengaruhi oleh dukungan penghargaan dan dukungan instrumen.  Kata kunci : Lansia, Dukungan Sosial, Kualitas Hidup, Kesejahteraan    References  Biro Hukum Departemen Sosial. 1998. Undang-Undang Republik Indonesia Nomor 13 Tahun 1998 Tentang Kesejahteraan Lanjut Usia. Jakarta: Departemen Sosial.BPS. 2000. Statistika Indonesia (Statistical Year Book of Indonesia). BPS,Jakarta.Central Bureau of Statistics (Indonesia). 1993. Population of Indonesia, Result of the 1990 Population Census. Jakarta: Biro Pusat Statistik.Cutrona. 1996. Social support in couple: Marriage as a resources in time of stress. California: Sage Publication. IncCutrona C.E & Russel D.w. 1994. Type of social support and specific stress : Toward a theory of optimal matching. In B.R Sarason, I G. Sarason & G.R. Pierce (Eds), Social support : an international view (pp. 319-366). New York : WileyFelton Bj, Berry C. 1992. Psychology and Aging Do The Source Of Urban Elderly Social support, Determine its Psychological Consequance. Journal Of Pernonality and Social Psychology. Vol 7. 89-87Hardywinoto, Setiabudhi. 2005. Panduan Gerontologi ; Tinjauan dari Berbagai Aspek. Jakarta. PT Gramedia Pustaka UtamaJauhari M. 2003. Status Gizi, Kesehatan dan Kondisi Mental Lansia di Panti Sosial Tresna Werdha Mulia 4 Jakarta (Thesis). Sekolah Pasca Sarjana IPBKuntjico, Zainuddin Sr, 2002 . Dukungan Sosial Pada Lansia, http://www.epsikologi.com/usia/160402.htm, diakses 2 Desember 2016Suhartini R. 2004. Faktor-faktor Yang Mempengaruhi Kemandirian Orang Lanjut Usia (Studi Kasus di Kelurahan Jambangan). [Thesis] . Pasca Sarja. Universitas Airlangga. Surabaya.

scholarly journals The Quality of Life and Psychosocial Implications of Cancer-Related Lower-Extremity Lymphedema: A Systematic Review of the Literature

2020 ◽  
Vol 9 (10) ◽  
pp. 3200 ◽  
Author(s):  
Catharine Bowman ◽  
Katherine-Ann Piedalue ◽  
Mohamad Baydoun ◽  
Linda E. Carlson
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Lower Extremity ◽  
Health Care Professionals ◽  
Negative Relationship ◽  
Well Being ◽  
Observational Research ◽  
Cross Sectional ◽  
The Impact

Lower-extremity lymphedema (LEL) is a progressive, lifelong complication of cancer that places a substantial burden upon cancer survivors’ quality of life (QOL) and psychosocial well-being. Despite its prevalence, cancer-related LEL is inconsistently diagnosed, treated, and poorly recognized by health care professionals. The purpose of this systematic review was to summarize and appraise the quantitative literature evaluating the impact of cancer-related LEL on patients’ psychosocial well-being and QOL. Three databases (PubMed, PROQuest, and Scopus) were searched for observational research articles published before May 1st, 2020. Twenty-one articles were eligible (cross-sectional (n = 16), prospective cohort designs (n = 3), and retrospective cohort designs (n = 2)). The majority of studies reported a negative relationship between cancer-related LEL and global QOL and/or one or more psychosocial domains including (1) physical and functional; (2) psycho-emotional; (3) social, relational and financial. A greater number of LEL symptoms and higher LEL severity were associated with poorer QOL. Although the evidence to date suggests a negative relationship between cancer-related LEL and patients’ QOL and psychosocial well-being, there is a substantial need for longitudinal analyses to examine the directionality and temporality of this effect in order to inform cancer survivorship care modelling and improve patient outcomes after cancer.

scholarly journals Associations between health behaviour, secondary health conditions and quality of life in people with spinal cord injury

2019 ◽  
Vol 8 ◽  
Author(s):  
Mokgadi K. Mashola ◽  
Diphale J. Mothabeng
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Health Behaviour ◽  
Well Being ◽  
Health Conditions ◽  
Cross Sectional ◽  
Cord Injury

Background: The development of secondary health conditions (SHCs) after spinal cord injury (SCI) is common and can affect an individual’s emotional well-being, and his or her health-related quality of life (QOL). Little is known about relationships between performing health-benefiting behaviours and the presence (or absence) of SHCs and QOL, particularly in South Africa.Objectives: This research study was conducted in order to determine the associations between health behaviour, SHCs and QOL in people with SCI (PWSCI).Method: This cross-sectional study included 36 PWSCI discharged from a private rehabilitation facility in Pretoria, South Africa. The PWSCI completed questionnaires pertaining to lifestyle, independence, presence of SHCs, social support and QOL. Data were analysed using descriptive and inferential statistics such as correlation tests and chi-square test of independence (x2) using the SPSS v25. Moderate, moderately high and high correlations are reported (Pearson r ≥ 0.4). Results were significant if p  0.05.Results: Participation in health-benefiting behaviour was associated with increased QOL (r = 0.457, p  0.01) and increased social support from family and friends (r = 0.425, p  0.01), which was associated with increased QOL (r = 0.671, p  0.001). Not participating in specific neuromusculoskeletal health behaviours was found to be associated with the overall presence of SHCs (r = -0.426, p  0.01).Conclusions: Participating in health-benefiting behaviour can reduce the development of SHCs and subsequently increase QOL in PWSCI. Health professionals must focus on minimising the development of SHCs by providing specific education on good health-benefiting behaviour.

scholarly journals Recognising the Significance of Bioethical Reflections for the Promotion of Teachers' Health in Higher Education: A Cross-Sectional Study

2019 ◽  
Author(s):  
Ivaní Nadir Carlotto ◽  
Maria Alzira Pimenta Dinis
Keyword(s):  
Quality Of Life ◽  
Higher Education ◽  
Health Promotion ◽  
Qualitative Content Analysis ◽  
Well Being ◽  
Cross Sectional Study ◽  
World Health ◽  
Cross Sectional ◽  
Conceptual Clarity

This research is part of the Doctoral thesis "Perceptions of university professors on Health Promotion and Sustainability: a research proposal based on Health Promoting Universities (HPU) / World Health Organization (WHO) ", University Fernando Pessoa (UFP) / Porto - Portugal, authored by Ivan&iacute; Nadir Carlotto: (1) Background: Universities are essential institutions for health promotion (HP). Bioethics, as a transversal discipline, seeks to analyse and systematise these values in an ethical way, strengthening the synergy between health and HP. Ecological models are a possibility to develop health actions in a holistic, sustainable and salutogenic way, stimulating positive aspects related to ethics, well-being and quality of life; (2) Methods: Exploratory-descriptive methodology and quantitative-qualitative approach. Sample: Teachers from 9 higher education institutions (HEI), random sample, probabilistic for convenience, CI = 95%, n = 1400 persons; (3) Results: Production of 6 main components through Factorial Analysis categorized and interpreted by Qualitative Content Analysis and MAXQDA&reg; software; (4) Conclusions: Universities function as research and learning venues to strengthen HP's activities. Bioethics and HP aim to build qualified actions in health, to defend and promoting well-being, quality of life, equity, inclusion, sustainability and social justice, with the proper conceptual clarity that distinguishes it.

Mutual Effects of Depression on Quality of Life in Patients and Family Caregivers

2019 ◽  
pp. 208-216
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Structural Equation ◽  
Well Being ◽  
Equation Modeling ◽  
Cross Sectional ◽  
For Profit ◽  
Patients With Cancer

Objectives: To elucidate the importance of mutual effects within dyads by examining the contribution of depression on quality of life (QOL) in patients with advanced cancer and their family caregivers (FCs). Sample & Setting: 716 patients with advanced cancer paired with their FCs at two large, private not-for-profit hospices. Methods & Variables: A descriptive, cross-sectional design with the baseline data of a randomized hospice clinical trial was used. Structural equation modeling helped examine four hypotheses by integrating the features of the Actor-Partner Interdependence Model. Variables included QOL and depression. Results: Depression in patients with cancer and their FCs exhibited significant actor effects on an individual’s QOL after controlling for the partner effects. Among the spousal pairs, depression in FCs exhibited a positive partner effect on the functional well-being of patients with cancer, indicating that depressive symptoms occurring in FCs may increase patients’ functional well-being. Implications for Nursing: This study suggests the importance of consistent assessment in emotional well-being for dyads with cancer because their concerns may be transmitted to each other.

Spiritual Well-Being, Social Support, and Depression Among American Indian Women Cancer Survivors: The Mediating Effect of Perceived Quality of Life

2019 ◽  
Vol 101 (1) ◽  
pp. 83-94
Author(s):  
Yi-Ping Hsieh ◽  
Soonhee Roh ◽  
Yeon-Shim Lee
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Cancer Survivors ◽  
American Indian ◽  
Well Being ◽  
Mediating Effect ◽  
Cross Sectional ◽  
Perceived Quality Of Life ◽  
Spiritual Well Being

This study aims to examine the mediating effect of quality of life on associations between both spiritual well-being and social support and depression among American Indian (AI) women cancer survivors. We collected cross-sectional data from AI women in the Midwest who were cancer survivors ( n = 73) with a self-administered survey. We employed a series of linear regression to examine the mediation model. We found spiritual well-being and social support were negatively associated with depression. These results indicate the importance of spiritual well-being and social support as protective and resilient factors in reducing the risk of depression. Moreover, these associations were fully mediated by the women’s self-perception of their quality of life. Considering cultural-specific resilience, our findings would be useful for the design, adjustment, and implementation of future psychotherapeutic protocols for AI cancer survivors.

scholarly journals Social support and subjective assessment of psychophysical condition, health, and satisfaction with quality of life among women after pregnancy loss

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Grażyna Iwanowicz-Palus ◽  
Mariola Mróz ◽  
Agnieszka Bień ◽  
Krzysztof Jurek
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Ectopic Pregnancy ◽  
Pregnancy Loss ◽  
Well Being ◽  
Subjective Assessment ◽  
Cross Sectional ◽  
Obstetric History ◽  
The Impact

Abstract Background The task of modern medicine is not just to heal, but also to improve the patient’s well-being and achieve non-medical goals in the therapy process that enable effective physical, mental and social functioning of the patient. Social support in difficult situations mobilizes an individual’s strength and resources to cope with problems. Research on social support and women’s condition after pregnancy loss reflects a holistic approach to the patient and is important from the perspective of increasing the level of hospital care. Objective The aim of our study was to assess the impact of social support on the psychophysical condition, health, and satisfaction with quality of life among women after miscarriage and ectopic pregnancy. Methods The cross-sectional study was carried out in a group of 500 patients after miscarriage and 110 with ectopic pregnancy, hospitalized in hospitals in Lublin (Poland). The study was conducted with the use of a diagnostic survey, comprising the Berlin Social Support Scales (BSSS) and an original survey questionnaire (psychophysical condition, satisfaction with health and quality of life on a scale of 1–4, sources of support on a scale of 1–10, with 1 being the poorest rating). Results Respondents after miscarriage and those after ectopic pregnancy assigned the highest scores to the degree of perceived available instrumental support (respectively, miscarriage: M = 3.79, EP: M = 3.77). Women after pregnancy loss assigned the highest score to the support obtained from their partner (respectively, miscarriage: M = 9.26, EP: M = 9.23). Social support was significantly correlated with the condition of patients hospitalized as a result of pregnancy loss (p < 0.05). The assessment of psychophysical condition, health, and QoL of the respondents is determined by their education, financial standing, and obstetric history (p < 0.05). Conclusions Women hospitalized due to miscarriage and ectopic pregnancy assigned high scores to the level of perceived available instrumental, emotional, and actually received social support. There is a positive relationship between social support and subjective opinion about psychophysical condition, health and satisfaction with quality of life among women after pregnancy loss. The assessment is determined by sociodemographic factors and the respondents’ obstetric history.

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