Mutual Effects of Depression on Quality of Life in Patients and Family Caregivers

2019 ◽  
pp. 208-216

Objectives: To elucidate the importance of mutual effects within dyads by examining the contribution of depression on quality of life (QOL) in patients with advanced cancer and their family caregivers (FCs). Sample & Setting: 716 patients with advanced cancer paired with their FCs at two large, private not-for-profit hospices. Methods & Variables: A descriptive, cross-sectional design with the baseline data of a randomized hospice clinical trial was used. Structural equation modeling helped examine four hypotheses by integrating the features of the Actor-Partner Interdependence Model. Variables included QOL and depression. Results: Depression in patients with cancer and their FCs exhibited significant actor effects on an individual’s QOL after controlling for the partner effects. Among the spousal pairs, depression in FCs exhibited a positive partner effect on the functional well-being of patients with cancer, indicating that depressive symptoms occurring in FCs may increase patients’ functional well-being. Implications for Nursing: This study suggests the importance of consistent assessment in emotional well-being for dyads with cancer because their concerns may be transmitted to each other.

2003 ◽  
Vol 21 (14) ◽  
pp. 2754-2759 ◽  
Author(s):  
Michael J. Fisch ◽  
Michael L. Titzer ◽  
Jean L. Kristeller ◽  
Jianzhao Shen ◽  
Patrick J. Loehrer ◽  
...  

Purpose: To evaluate the association between quality-of-life (QOL) impairment as reported by patients and QOL impairment as judged by nurses or physicians, with and without consideration of spiritual well-being (SWB). Patients and Methods: A total of 163 patients with advanced cancer were enrolled onto a therapeutic trial, and cross-sectional data were derived from clinical and demographic questionnaires obtained at baseline, including assessment of patient QOL and SWB. Clinicians rated the QOL impairment of their patients as mild, moderate, or severe. Clinician-estimated QOL impairment and patient-derived QOL categories were compared. Correlation coefficients were estimated to associate QOL scores using different instruments. The analysis of variance method was used to compare Functional Assessment of Cancer Therapy–General scores on categorical variables. Results: There was no significant association between self-assessment scores and marital status, education level, performance status, or predicted life expectancy. However, a strong relationship between SWB and QOL was noted (P < .0001). Clinician-estimated QOL impairment matched the level of patient-derived QOL correctly in approximately 60% of cases, with only slight variation depending on the method of categorizing patient-derived QOL scores. The accuracy of clinician estimates was not associated with the level of SWB. Interestingly, a subset analysis of the inaccurate estimates revealed an association between lower SWB and clinician underestimation of QOL impairment (P = .0025). Conclusion: Clinician estimates of QOL impairment were accurate in more than 60% of patients. SWB is strongly associated with QOL, but it is not associated with the overall accuracy of clinicians’ judgments about QOL impairment.


2021 ◽  
Vol 9 (1) ◽  
Author(s):  
Clara Rahme ◽  
Marwan Akel ◽  
Sahar Obeid ◽  
Souheil Hallit

Abstract Background This study highlights the significant association between cyberchondria and quality of life among the Lebanese population in the time of COVID-19. The aim was to assess the association between cyberchondria and quality of life (QOL) of Lebanese community during the COVID-19 pandemic and assess the mediating effect of fear of COVID-19, depression, anxiety, stress and Yale-Brown Obsessive–Compulsive Scale in this association. Methods This cross-sectional study was carried out between December 2020 and January 2021, during the COVID-19 pandemic. A total of 449 persons participated in this study by filling the online questionnaire. Structural equation modeling (SEM) was performed to examine the structural relationship between cyberchondria severity, the mediator (anxiety, stress, depression, obsessive–compulsive disorder (OCD) and fear of COVID-19) and physical/mental QOL. Results Having a university level of education and older age were significantly associated with higher physical QOL scores, whereas higher obsession-compulsion disorder, higher stress and higher anxiety were significantly associated with lower physical QOL scores. Higher anxiety was significantly associated with lower mental QOL scores. The results of the SEM showed that stress, fear of COVID-19 and to a lesser limit OCD, mediated the association between cyberchondria severity and physical QOL, whereas anxiety, stress and fear of COVID-19 mediated the association between cyberchondria severity and mental QOL. Conclusion This research reported interesting results encouraging more exploration of cyberchondria and its association with quality of life during this unique period of the pandemic. However, this virus has altered the lives of individuals all across the world, and the consequences will last for a long time. Along with all of the steps done to stop the development of COVID-19 and improve physical outcomes, mental health requires immediate care. More research is needed to determine the coping techniques people are employing to deal with the pandemic.


Author(s):  
Yi Liu ◽  
Jason Draper

Participants attending a festival(s) with children is a family activity that influences family relationships. This study examines the relationship between attending status (e.g., with or without children), event experience, subjective well-being, and family quality of life (FQOL). A total of 585 festival participants’ data analyzed by structural equation modeling (SEM) revealed that participants attending with children have a higher level of subjective well-being and FQOL compared to those without children. Participants attending with children have a higher level of cognitive engagement and experience novelty in festivals compared to those without children. Event experience results in a significant positive relationship with subjective well-being. This study expands current event literature in terms of FQOL and provides a practical guideline to event organizers to better understand the significance of festivals.


Author(s):  
Noemí Sansó ◽  
Laura Galiana ◽  
Amparo Oliver ◽  
Macià Tomás-Salvá ◽  
Gabriel Vidal-Blanco

Background: Dealing with suffering, grief, and death on a daily basis, together with the particular working conditions, may produce high levels of burnout in nurses, and hinder their well-being. The purpose of this research is to study the effect of self-care and self-compassion on nurses’ professional quality of life and well-being. Methods: The research had a cross-sectional design, used correlational methodology and a structural equation model was hypothesized. Along the study, 210 nurses from the Healthcare Public System of the Balearic Islands, participated. The study took place from June to September 2018. Results: The hypothesized model showed an overall adequate fit. Practice environment predicted both self-care and self-compassion, whereas nursing stress did not. Self-care and self-compassion predicted nurses’ professional quality of life, whereas the practice environment and nursing stress were not predictors. Finally, professional quality of life showed a positive relationship with life satisfaction. Conclusions: The study presents a comprehensive structural equation model in which self-care and self-compassion are the best predictors of nurses’ professional quality of life. A direct relation of professional quality of life and nurses’ well-being has also been found, while controlling for the effects of nurses’ practice environment and stress.


Author(s):  
Hany M. Hassan ◽  
Mark R. Ferguson ◽  
Saiedeh Razavi ◽  
Brenda Vrkljan

Accessible and safe mobility is critical for those aged 65 years and older to maintain their health, quality of life, and well-being. Being able to move beyond one’s home and participate in activities in older adulthood requires consideration of both transportation needs and preferences. This paper aims to address a gap in evidence with respect to understanding factors that can affect older adults’ perceptions and willingness to use autonomous vehicles. In addition, it examines how these factors compare with those of younger adults to better understand the potential implications of this technology on mobility and quality of life. Using responses of those aged 65+ to a national survey of Canadians, structural equation modeling (SEM) was used to identify and quantify factors significantly associated with older adults’ willingness to use autonomous vehicles. The SEM results suggest that factors such as using other modes of transit (e.g., sharing rides as passenger, bicycle, public transit, commuter rail, ride and car sharing) as well as distance traveled by automobile, income, gender (being male), and living in urban areas, were all positively associated with older adults’ perceptions of using autonomous driving features. The findings also suggest that older Canadians are more concerned about autonomous vehicles than younger Canadians. This study provides valuable insights into factors that can affect the preferences of Canadians when it comes to autonomous technology in their automobiles. Such results can inform the way in which transportation systems are designed to ensure the needs of users are considered across both age and ability.


PLoS ONE ◽  
2021 ◽  
Vol 16 (5) ◽  
pp. e0252205
Author(s):  
Mahalingam Vasantha ◽  
Malaisamy Muniyandi ◽  
Chinnaiyan Ponnuraja ◽  
Ramalingam Srinivasan ◽  
Perumal Venkatesan

Background The use of Bayesian Structural Equation Model (BSEM) to evaluate the impact of TB on self-reported health related quality of life (HRQoL) of TB patients has been not studied. Objective To identify the factors that contribute to the HRQoL of TB patients using BSEM. Methods This is a latent variable modeling with Bayesian approach using secondary data. HRQoL data collected after one year from newly diagnosed 436 TB patients who were registered and successfully completed treatment at Government health facilities in Tiruvallur district, south India under the National TB Elimination Programme (NTEP) were used for this analysis. In this study, the four independent latent variables such as physical well–being (PW = PW1-7), mental well-being (MW = MW1-7), social well-being (SW = SW1-4) and habits were considered. The BSEM was constructed using Markov Chain Monte Carlo algorithm for identifying the factors that contribute to the HRQoL of TB patients who completed treatment. Results Bayesian estimates were obtained using 46,300 observations after convergence and the standardized structural regression estimate of PW, MW, SW on HRQoL were 0.377 (p<0.001), 0.543 (p<0.001) and 0.208 (p<0.001) respectively. The latent variables PW, MW and SW were significantly associated with HRQoL of TB patients. The age was found to be significantly negatively associated with HRQoL of TB patients. Conclusions The current study demonstrated the application of BSEM in evaluating HRQoL. This methodology may be used to study precise estimates of HRQoL of TB patients in different time points.


2021 ◽  
Vol 43 ◽  
pp. e54159
Author(s):  
Layla Beatriz Melo de Oliveira ◽  
Aline Costa de Oliveira ◽  
Daniel de Macêdo Rocha ◽  
Márcia Teles de Oliveira Gouveia ◽  
Rosana dos Santos Costa ◽  
...  

Assess the quality of life of family caregivers of children with microcephaly. This is an analytical cross-sectional study developed in Teresina-PI, carried out in a rehabilitation center. For data collection a form was used to investigate the sociodemographic profile and the Medical Outcomes Study 36 - Item Short-Form Health Survey instrument to assess quality of life. For data analysis, we used the statistical tests Student's t, ANOVA, U- Mann Whitney and Kruskal-Wallis. The descriptive analysis of the results showed that the functional capacity domain presented the most impairment by obtaining the highest score. The dimensions vitality and pain showed the lowest averages, representing the less affected domains. The associations between the sociodemographic characteristics and the domains of quality of life were significant between the variables marital status and pain, education and the domains vitality and emotional aspect, and between employment status and general health status. The quality of life of family caregivers presented losses related to the change of routine and the difficulties faced on a daily basis, highlighting the importance of covering the health of caregivers within the assistance offered to children with special needs, contributing to the well-being of those who care and consequently of those who are cared for.


Healthcare ◽  
2021 ◽  
Vol 9 (1) ◽  
pp. 81
Author(s):  
Amparo Oliver ◽  
Laura Galiana ◽  
Gustavo de Simone ◽  
José M. Tomás ◽  
Fernanda Arena ◽  
...  

Compassionate professional qualities traditionally have not received the most attention in either critical or end of life care. Constant exposure to death, time pressure and workload, inadequate coping with personal emotions, grieving, and depression urge the development of an inner curricula of competences to promote professional quality of life and compassionate care. The COVID-19 pandemic highlights the universality of these problems and the need to equip ourselves with rigorously validated measurement and monitoring approaches that allow for unbiased comparisons. The main objective of this study was to offer evidence on the generalizability of the awareness model of self-care across three care systems under particular idiosyncrasy. Regarding the sample, 817 palliative care professionals from Spain, Argentina, and Brazil participated in this cross-sectional study using a multigroup structural equation modeling strategy. The measures showed good reliability in the three countries. When testing the multigroup model against the configural and constrained models, the assumptions were fulfilled, and only two relationships of the model revealed differences among contexts. The hypotheses posited by the awareness model of self-care were supported and a similar predictive power on the professional quality of life dimensions was found. Self-care, awareness, and coping with death were competences that remained outstanding no matter the country, resulting in optimism about the possibility of acting with more integrative approaches and campaigns by international policy-makers with the consensus of world healthcare organizations.


2021 ◽  
Author(s):  
Joanna Chwaszcz ◽  
Rafał Piotr Bartczuk ◽  
Iwona Niewiadomska ◽  
Patrycja Sławska-Jaroszewska

Background and Objectives. This paper presents a study based on Hobfoll’s conservation of resources theory on resources and coping as predictors of the quality of life of those at risk of social exclusion. They are deprived of access to the public pool of psychosocial resources, the acquisition and accumulation of which are closely linked to the perceived quality of life.Design. A cross-sectional self-reported questionnaire study.Method. The sample of 1,074 individuals from various groups at risk of exclusion was surveyed using the Conservation of Resources–Evaluation questionnaire, the Strategic Approach to Coping Scale, and the WHO Quality of Life Questionnaire. Structural equation modeling was used to test mediational hypotheses in the analysis. Results. The significant variables that determined the relationship between resource gains and losses and the quality of life included active-passive and prosocial-antisocial coping strategies. The results were generally robust, but the level of education moderated the relationship between active antisocial coping and quality of life.Conclusion. The obtained dependencies are consistent with Hobfoll’s approach, confirming its usefulness. Prosocial coping boosts the positive prominence of the relationship between resource gains and the quality of life and reduces the effect of resource losses, causing the quality of life to decline.


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