Experiences of stigma and health care engagement among Black MSM newly diagnosed with HIV/STI

PURPOSE: Race and ethnicity have been shown to affect quality of cancer care, and patients with low English proficiency (LEP) have increased risk for serious adverse events. We sought to assess the impact of primary language on health care engagement as indicated by clinical trial screening and engagement, use of genetic counseling, and communication via an electronic patient portal. METHODS: Clinical and demographic data on patients with breast cancer diagnosed and treated from 2013 to 2018 within the Stanford University Health Care system were compiled via linkage of electronic health records, an internal clinical trial database, and the California Cancer Registry. Logistic and linear regression models were used to evaluate for association of clinical trial engagement and patient portal message rates with primary language group. RESULTS: Patients with LEP had significantly lower rates of clinical trial engagement compared with their English-speaking counterparts (adjusted odds ratio [OR], 0.29; 95% CI, 0.16 to 0.51). Use of genetic counseling was similar between language groups. Rates of patient portal messaging did not differ between English-speaking and LEP groups on multivariable analysis; however, patients with LEP were less likely to have a portal account (adjusted OR, 0.89; 95% CI, 0.83 to 0.96). Among LEP subgroups, Spanish speakers were significantly less likely to engage with the patient portal compared with English speakers (estimated difference in monthly rate: OR, 0.43; 95% CI, 0.24 to 0.77). CONCLUSION: We found that patients with LEP had lower rates of clinical trial engagement and odds of electronic patient portal enrollment. Interventions designed to overcome language and cultural barriers are essential to optimize the experience of patients with LEP.

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Predictors of Health Care Seeking Pace Among Newly-Diagnosed Pulmonary Tuberculosis Patients In Cebu City, Philippines: A Cross-Sectional Study

10.21203/rs.2.11528/v1 ◽

2019 ◽

Author(s):

MARK JOHNUEL MATABILAS DUAVIS1

Keyword(s):

Social Support ◽

Health Care ◽

Marital Status ◽

Perceived Social Support ◽

Social Stigma ◽

Health Care Seeking ◽

Care Seeking ◽

Newly Diagnosed ◽

Cross Sectional ◽

Perceived Dangerousness

Abstract Background Tuberculosis remains a major public health dilemma in the Philippines. While free and effective TB diagnosis and treatment have been made available since 1996, a number of patients still delay accessing them resulting to increased TB mortality and community transmission. This study is aimed at determining the significant variables that can predict a TB patient’s pace in seeking appropriate health care. Methods A descriptive, correlational cross-sectional survey was done to 127 newly-diagnosed TB patients from 10 government-owned TB DOTS facilities in Cebu City. Participants were categorically grouped into Prompt Health Seekers and Delayed Health Seekers using a norm-referenced median dichotomy. Descriptive and inferential analysis utilized included Chi-square Test, Pearson’s Correlation and Discriminant Analysis. Results A mean health care seeking delay of 59 days (median=49) was recorded. Most of the participants experienced unexplained cough which they perceived as only slightly dangerous. 38% of them reported not knowing any symptom related to TB while 39% were not aware of the free public TB services. Most patients have made 2-3 prior health recourses, mostly through self-medication, before finally contacting a DOTS facility. Marital status (p=0.004), the number of symptoms experienced (p=0.000), first symptom experienced (p=0.016), perceived dangerousness of all symptoms experienced (p=0.009), perceived dangerousness of the first symptom experienced (p=0.001), perceived social stigma (p=0.035) and, perceived social support (p=0.002) were found to be significantly associated with the patients’ health care seeking pace. Extending to multivariate analysis, five independent variables namely marital status (p=0.037), number of symptoms experienced (p=0.018), perceived dangerousness of all the symptoms experienced (p=0.028), perceived social stigma (p=0.026) and, perceived social support (p=0.001) can significantly predict the patients’ health care seeking pace. Conclusion A considerable health care seeking delay of 59 days was documented, especially among those with lower perception of social support, higher perception of social stigma and those who do not currently have partners. Patients who experienced more symptoms and those who view these symptoms as less dangerous were, however, likely to seek immediate health care. Reducing health care seeking delays through intensified health information campaigns, strengthening social support systems and reducing social stigma is recommended.

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