Audit of patients with intellectual disabilities accessing a specialist neuropsychiatry service for epilepsy management

2017 ◽  
Vol 41 (S1) ◽  
pp. S352-S352
Author(s):  
A. Adetoki
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Total Sample ◽  
Best Interest ◽  
Nice Guidelines ◽  
Specialist Services ◽  
Co Morbidity ◽  
Planning Processes ◽  
Competing Interest ◽  
Equity Of Access

IntroductionEpilepsy is a frequent co-morbidity in patients with intellectual disabilities, some of whom require specialist services. The National institute for health and care excellence (NICE) has recommended that there should be equity of access to high quality of care regardless of the existence of a diagnosis of intellectual disability.ObjectivesTo observe current practice with regards to NICE guidelines for epilepsy care in patients with intellectual disability.AimsTo identify the level of compliance with NICE guidelines and provide evidence which may inform care planning processes.MethodsA retrospective review of the electronic and paper-based records of a total sample of intellectually disabled patients who accessed a specialist neuropsychiatry service for the management of epilepsy during a six-month period was carried out.ResultsThe records of 21 patients whose ages ranged from 20 to 58 years were audited. The waiting period ranged from 4 weeks to 46 weeks. There was evidence of Carer involvement in the management of 100% of the patients and seizure improvement since referral was documented in 66%. Non- medication treatment was offered in 67% of cases. Evidence of special considerations in view of patient's intellectual disability was recorded in 24%, best interest considerations in 24% and capacity assessment in 19%.ConclusionsThere is a significant improvement in the symptoms of 66% of patients in this audit. However there is room for improvement and a more specific plan for patients with intellectual disabilities should facilitate this.Disclosure of interestThe author has not supplied his/her declaration of competing interest.

Involving people with intellectual disabilities in the formal assessment of psychiatrists’ skills

2016 ◽  
Vol 33 (S1) ◽  
pp. S16-S16
Author(s):  
S. Soni ◽  
I. Hall ◽  
P. Doulton ◽  
P. Bowie
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Healthcare Professionals ◽  
Quality Of Healthcare ◽  
Simulated Patients ◽  
Formal Assessment ◽  
People With Intellectual Disabilities ◽  
Competing Interest ◽  
Training Programmes ◽  
The Uk

PurposeIt is widely recognised that people with intellectual disabilities receive a poorer quality of healthcare than their non-disabled counterparts. Training for healthcare professionals in intellectual disability is often scant or non-existent. The purpose of this work is to explore the usefulness of employing actors with intellectual disabilities as simulated patients in the assessment of trainee psychiatrists.Design/methodology/approachThe development of a structured clinical exam “station” designed to assess the ability of trainee psychiatrists to communicate with a simulated patient played by an actor with an intellectual disability is described. The paper also assesses the potential benefits of this kind of assessment and the experience of actors and examiners taking part in this process.FindingsThe station was found to perform well in discriminating between candidates of various abilities and was well received by actors, examiners and observers. The station is now routinely used in the formal assessment of trainee psychiatrists in the UK.Practical implicationsThe use of people with intellectual disabilities in training and assessment appears to be advantageous in terms of improving knowledge, attitudes and skills amongst healthcare professionals and gives increased opportunities for people with intellectual disabilities to undertake valued social roles.Originality/valueFew institutions currently employ actors with intellectual disabilities as simulated patients as part of their training programmes and as a result there is little in the way of literature on this subject. This paper describes an alternative approach to teaching and assessment which falls in line with recommendations from the UK Department of Health to involve service users in the training of healthcare professionals.Disclosure of interestThe authors have not supplied their declaration of competing interest.

Prisoners with intellectual disability: How to adapt interventions and the environment

2016 ◽  
Vol 33 (S1) ◽  
pp. S38-S38
Author(s):  
V. Tort Herrando
Keyword(s):  
Learning Disabilities ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Learning Disability ◽  
Drug Misuse ◽  
Penal Law ◽  
Study Population ◽  
Rate Of Learning ◽  
Competing Interest ◽  
Borderline Iq

There is an increasing interest in the Spanish prison to give the appropriate care when they are in prison. This situation has a special meaning in inmates with learning disabilities, as they are a vulnerable group inside prison. They are vulnerable in different areas as they have a high prevalence dual diagnosis (both with mental illness and drug misuse), they could suffer from abuse from other inmates, difficulties to understand prison regulations, etc. The prevalence of intellectual disability (ID) in the prison setting has been poorly evaluated. In Spain, despite various approximations or estimates regarding people with intellectual disabilities no reliable data is available.In our presentation, we will give an overview of the care of this group of patients, presenting some data from an epidemiological study in Spain. The rate of learning disabilities was of 3.77% of the study population has an IQ below 70, and 7, 3% has borderline IQ rate. We also describe a new setting in one of wards of a prison of Barcelona where has a model of therapeutic community for treating offenders with intellectual disabilities. This resource open two years ago and is run between prison services and an organization “Accepta” (specialized in people with learning disability and penal law problems). This is an effort from the prison services to adapt to the needs of inmates and deliver a better service with a good post-release follow-up.And finally, we present some data about learning disability in penitentiary psychiatric settings (the prevalence as a main diagnose is around 10%).Disclosure of interestThe author has not supplied his declaration of competing interest.

scholarly journals HRM practices that support the employment and social inclusion of workers with an intellectual disability

2017 ◽  
Vol 46 (8) ◽  
pp. 1475-1492 ◽  
Author(s):  
Hannah Meacham ◽  
Jillian Cavanagh ◽  
Amie Shaw ◽  
Timothy Bartram
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Social Inclusion ◽  
Well Being ◽  
Case Study Methodology ◽  
Content Type ◽  
Hrm Practices ◽  
Employment Participation ◽  
Recruitment And Selection ◽  
Hr Managers

Purpose The purpose of this paper is to examine how HRM practices enhance and/or impede the employment, participation, and well-being of workers with intellectual disabilities in three hotels located in Australia. Design/methodology/approach The research employs a case study methodology, including interviews with three HR managers, three department managers, 17 workers with intellectual disabilities, and focus groups of 16 supervisors and 24 work colleagues. Findings The research found that the opportunities to participate in work are driven primarily by developing a social climate that enables social cohesion through the altruistic motives of managers/supervisors and reciprocal relationships. Originality/value The findings lend support for the importance of both formal and informal HR practices, such as inclusive recruitment and selection, mentoring, and training and development, as well as individualised day-to-day support provided by supervisors and colleagues, to improve the participation and well-being of workers with an intellectual disability.

Music Therapy in Enhancing Learning Attention of Children with Intellectual Disability

2021 ◽  
Vol 9 (4) ◽  
pp. 363-367
Author(s):  
Akintunde Oluseyi Dada ◽  
Owoade Philip Adeleke ◽  
Samson Akinwumi Aderibigbe ◽  
Michael Adeife Adefemi ◽  
Martina Ayibeya Apie ◽  
...  
Keyword(s):  
Intellectual Disability ◽  
Music Therapy ◽  
Intellectual Disabilities ◽  
Rating Scale ◽  
Home School ◽  
Analysis Of Covariance ◽  
Moderator Variables ◽  
Treatment Package ◽  
Therapy Treatment ◽  
Children With Intellectual Disability

Inattention is one of the significant problems that inhibit learning among children with intellectual disabilities. However, several strategies and therapies have been developed to solve the problem. This study, therefore, investigates the effectiveness of music therapy in enhancing attention among children with intellectual disability. A pretest-posttest control experimental research design was adopted. The experiment was carried out for six weeks using Music Therapy Treatment Package on 24 children with intellectual disability that were randomly selected Modupe Cole Momerial Childcare and Treatment Home/School, Akoka, Yaba, Lagos. A validated Attention Observation Rating Scale (AORS) with a reliability coefficient of 0.88 was used for this study. Three hypotheses were tested in the study, and Analysis of Covariance (ANCOVA) was used for data analysis. This study revealed that music therapy is effective in enhancing attention among children with intellectual disabilities. Sex and level of severity of the disability were also tested as moderator variables, but they have no significant main or interaction effect with music therapy in enhancing attention for children with intellectual disability. The finding is that music therapy is significantly effective in enhancing attention for children with intellectual disability regardless of their sex or level of severity. It was concluded that attention deficit could be improved for children with intellectual disability. Therefore, Music therapy was recommended for use in the school with adequate teacher training.

How Persons with Intellectual Disabilities Are Fighting for Decision-Making Rights

2022 ◽  
Vol 121 (831) ◽  
pp. 30-35
Author(s):  
Chester A. Finn ◽  
Matthew S. Smith ◽  
Michael Ashley Stein
Keyword(s):  
Decision Making ◽  
Intellectual Disability ◽  
United Nations ◽  
Intellectual Disabilities ◽  
Legal Capacity ◽  
Disability Rights ◽  
Persons With Disabilities ◽  
New Approach ◽  
The United Nations

Paternalistic attitudes about what is in the interests of a person with an intellectual disability have long led to abuses, and are embedded in the guardianship laws still in place in most countries. Self-advocates, who identify as people with intellectual or other disabilities and are committed to demanding their rights and educating others about them, are calling for a new approach. They have found support for reforms in the Convention on the Rights of Persons with Disabilities, adopted by the United Nations in 2006 and since acceded to by 182 countries. By supporting the fundamental right of those with disabilities to make decisions, it has enabled disability rights advocates to successfully challenge legal capacity restrictions and push for “supported decision-making.”

Coping With Criticism and Praise

2015 ◽  
Vol 120 (3) ◽  
pp. 258-268 ◽  
Author(s):  
Lynn Esdale ◽  
Andrew Jahoda ◽  
Carol Pert
Keyword(s):  
Intellectual Disability ◽  
Positive Affect ◽  
Intellectual Disabilities ◽  
The Self ◽  
Self Perceptions ◽  
Stigma And Discrimination ◽  
People With Intellectual Disabilities ◽  
Study Participants

AbstractThrough experiencing stigma and discrimination, people with intellectual disability may become more sensitive to criticism from others and be less likely to believe praise. This study compared how people with and without intellectual disability viewed praise and criticism, using a vignette task developed for the study. Participants were asked to imagine someone saying something praiseworthy or critical and were then asked about their emotions, beliefs, and thoughts. People with intellectual disability were more likely to believe and be distressed by criticism. Contrary to predictions, this group were also more likely to believe praise and experience positive affect. The results suggest that the self-perceptions of people with intellectual disabilities is more dynamic and reliant on the views of others.

Pregabalin use in adults with intellectual disabilities

2017 ◽  
Vol 41 (S1) ◽  
pp. S597-S597 ◽  
Author(s):  
K. Courtenay ◽  
S. Jaydeokar ◽  
B. Perera
Keyword(s):  
Anxiety Disorder ◽  
Intellectual Disabilities ◽  
Dose Range ◽  
Case Series ◽  
Generalised Anxiety Disorder ◽  
Anti Epileptic Drug ◽  
Mental Health Difficulties ◽  
People With Intellectual Disabilities ◽  
Adults With Intellectual Disabilities ◽  
Competing Interest

IntroductionPregabalin is a well-established anti-epileptic drug in the treatment of epilepsy. It is also indicated for the treatment of generalised anxiety disorder and neuropathic pain. In addition, it has mood modulating properties. In people with intellectual disabilities it is used to treat epilepsy. There is little evidence of the use of pregabalin in managing mental health difficulties in people with intellectual disabilities.ObjectivesTo describe the use of pregabalin in adults with intellectual disabilities.MethodA descriptive case series of adults with intellectual disabilities living in the community, under the care of a community psychiatrist, who are prescribed Pregabalin. Outcomes of treatment were measured using the health of the nation outcome scale for people with intellectual disabilities (HoNOS-LD).ResultsFourteen cases were identified in the community service of adults with Intellectual Disabilities. Twelve were men and two were women. The average age of the sample was 29 years. The range in duration of using pregabalin was from 3 to 72 months. Thirteen adults had a diagnosis of Autism of which three also had ADHD. The indications for using pregabalin and numbers were : anxiety (12); liability of mood (2); generalised anxiety disorder (1); epilepsy (1). The daily dose range was from 150 mg to 300 mg The mean change in HoNOS-LD scores was 32%.ConclusionsPregabalin is a useful treatment in people with intellectual disabilities who experience anxiety. It is especially effective among adults with ID and autism to modulate mood and anxiety symptoms.Disclosure of interestThe authors have not supplied their declaration of competing interest.

The Dietary Status of Adults With ADHD

2017 ◽  
Vol 41 (S1) ◽  
pp. s245-s245 ◽  
Author(s):  
J.N. Kjaer ◽  
L. Jakobsen ◽  
M. Lasgaard ◽  
P. Munk-Jørgensen
Keyword(s):  
Dietary Pattern ◽  
Representative Sample ◽  
Fruits And Vegetables ◽  
University Hospital ◽  
Sample Population ◽  
Co Morbidity ◽  
Public Health Survey ◽  
Competing Interest ◽  
Somatic Diseases ◽  
Physical Activity Scale

ObjectiveThe aim was to investigate the dietary status of adults with ADHD. Furthermore, we compared the group with a representative sample of a healthy adult Danish population.MethodData were collected from the ADHD database operated by the ADHD outpatient clinic at Aarhus university hospital. We used data from newly referred patients in a seven months period from April 2014 through October 2014. The collected data include weight, height, blood pressure, somatic or psychiatric co-morbidity, blood sample, physical activity scale. Concerning the diagnosis of ADHD: DIVA, ASRS, BRIEF-V. Inter99 was used to assess the dietary status. The representative sample was obtained as a part of a public health survey from 2010 called “how are you” conducted in the same region of Denmark as the location of the psychiatric hospital. Preliminary results, one hundred and forty-three patients were included in the study, 52% males. The mean age was 30.9 years. A larger proportion of ADHD patients fall in the category “unhealthy dietary pattern” compared to the representative sample population (26% vs. 12%), while the proportion in the “healthy dietary pattern” category is markedly lower (14% vs. 24%). The differences seem to be explained by lower than recommended intakes of fruits and vegetables.ConclusionOur findings suggest a general shift towards more unhealthy dietary patterns among patients with ADHD. This exposes them to higher risk of somatic diseases, notably diabetes mellitus and cardiovascular disease. Lifestyle interventions could be a necessary part of standard treatment for patients with ADHD.Disclosure of interestThe authors have not supplied their declaration of competing interest.

scholarly journals Project Capabilities and Adults With Intellectual Disabilities: Towards Effective Interviewing for a Better Social Participation

2014 ◽  
Vol 7 (2) ◽  
pp. 115-123
Author(s):  
Stefanie Corona ◽  
Christina Hannum ◽  
Ann-Louise Davidson
Keyword(s):  
Intellectual Disability ◽  
Motivational Interviewing ◽  
Social Networking ◽  
Intellectual Disabilities ◽  
Social Participation ◽  
Qualitative Data ◽  
Mobile Technologies ◽  
Qualitative Interviewing ◽  
Adults With Intellectual Disabilities ◽  
Interviewing Techniques

This practice-based paper presents a series of tips and techniques for interviewing for a better social participation. While we worked on Project Capabilities, we learned valuable lessons we wished to share with practitioners and researchers who work within an inclusive perspective. We argue that qualitative interviewing requires skillful means that are not always an integral part of research preparation, and we share tips and techniques that we developed throughout the process. As we collected the qualitative data through one-on-one interviews, and taught participants to selffilm using iPads, we found that traditional interviewing techniques were too rigid to engage with people living with an intellectual disability. Instead, we used a blend of motivational interviewing and collaborative inquiry techniques, and built rapport with the participants through online social networking. Mobile technologies were also used to build rapport, empowering participants and allowing non-intrusive filming of interviews.

scholarly journals Video Based Instructions Meningkatkan Praktik Kebersihan Diri Saat Menstruasi Pada Siswi Disabilitas Intelektual

2020 ◽  
Vol 5 (2) ◽  
pp. 62-70
Author(s):  
Endang Sri Wahyuni ◽  
Wa Ode Diana Harisa
Keyword(s):  
Intellectual Disability ◽  
Sampling Technique ◽  
Total Sample ◽  
T Test ◽  
Personal Hygiene ◽  
Test Results ◽  
Paired Sample ◽  
Post Test ◽  
The Mean ◽  
Based Instruction

Backgrounds: Intellectual Disability students must be able to master the practice of personal hygiene during menstruation skills. However, to teach this skill to them is not easy. They need certain methods to learn these skills to get effective results. Video-Based Instruction is one method to teach these skills. This study aims to determine whether there is an effect of Video-Based Instruction on the practice of personal hygiene during menstruation on Intellectual Disability students. Methods: This is quantitative research with pre-experimental type and one group pretest-posttest design. The data collection tool is a "personal hygiene" questionnaire. The data analysis method uses a paired sample t-test with the help of SPSS version 25. This research conducted at SLB Negeri 3 Central Jakarta with a total sample is 20 respondents selected by the purposive sampling technique. Results: Most respondents were 14 years old (20%), 7th grade (30%), get menarche at 12 and 13 years (25%). The mean score for the practice of personal hygiene during menstruation pre-test is 41.30 and post-test is 53.20. Paired sample t-test results showed that sig. (2-tailed) <0.001. Conclusion: The results showed that it received Ha, which means that there is an effect of Video-Based Instruction on the practice of personal hygiene during menstruation on Intellectual Disabilities students. The results also showed that there are mean score differences of the pre-test and post-test results, which is an increase in the mean score of the post-test results by 11,90.

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