scholarly journals Pain Intensity, Quality of Life, Quality of Palliative Care, and Satisfaction in Outpatients With Metastatic or Recurrent Cancer: A Japanese, Nationwide, Region-Based, Multicenter Survey

2012 ◽  
Vol 43 (3) ◽  
pp. 503-514 ◽  
Author(s):  
Akemi Yamagishi ◽  
Tatsuya Morita ◽  
Mitsunori Miyashita ◽  
Ayumi Igarashi ◽  
Miki Akiyama ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Pain Intensity ◽  
Life Quality ◽  
Recurrent Cancer ◽  
Multicenter Survey

scholarly journals Principles of questionnaires’ validation on the example the Caregiver Quality of Life-Cancer (CQOL-C) questionnaire

2014 ◽  
Vol 8 (3) ◽  
pp. 26-29
Author(s):  
Marta Gawlik ◽  
Donata Kurpas
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cancer Patients ◽  
English Language ◽  
Life Quality ◽  
Burnout Syndrome ◽  
World Health ◽  
Polish Version ◽  
Four Levels

In Poland, the statistics on the number of people diagnosed with cancer reveal an increase in the enormity of the problem. In consequence, these include an increase in the number of people taking care of cancer patients at homes. There are currently no available Polish version questionnaire, which allows the assessment of the quality of life for home caregivers. English-language questionnaire examining the quality of life of cancer patients’ caregivers has been developed by the team supervised by M.A.Weitzner and has been widely used since 1999. It contains 35 questions, which are aimed at assessing the level of functioning on four levels: mental, emotional, spiritual and financial. The validation of this questionnaire fulfils the guidelines of translation and validation for the questionnaires, which are deterrmined in a document about the process of translation and adaptation of the instruments of the World Health Organization. Cultural adaptation was an indispensable element for validation, which has met four criteria: allegiance to the translation of the questionnaire into Polish language, the criterion of functional equivalence, the principle of the facade equivalence and the criterion of accuracy reconstruction. The main goal of therapeutic teams in the palliative care is continuous enhancement of their patients and families life quality, including home environments. Both the Polish validation and the application of the questionnaire assessing the life quality of the cancer patients’ caregivers will make it possible to focus on the issues and needs of that population better. The scale may become a useful research tool for evaluation and prevention of the burnout syndrome experienced among family members providing care for cancer patients. Polish version of the CQOL-C questionnaire has met all the validation criteria and can be applied by the therapeutic teams in the palliative care.

scholarly journals THE OBJECTIFICATION OF STRATEGIES OF PALLIATIVE CARE OF PATIENTS WITH CHRONIC DISEASES IN THE CONTEXT OF REGIONAL MODEL

2017 ◽  
Vol 16 (1) ◽  
pp. 62-64
Author(s):  
I. L Krom ◽  
M. V Erugina ◽  
A. B Shmerkevitch ◽  
A. V Vodolagin ◽  
D. L Dorogaikin
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Chronic Diseases ◽  
Blood Circulation ◽  
Life Quality ◽  
Regional Model ◽  
Circulation System ◽  
Terminal Stage ◽  
Blood Circulation System

The prevention of medicalization and objectification of strategies of palliative care of patients with chronic diseases are one of important tasks of development of regional model of palliative care. The strategies of palliative care are considered in the context of quality of life of patients with diseases of blood circulation system. The indicator of quality of life determined according the WHO questionnaire "Life Quality-100" is a multifactorial criterion of evaluation of condition of patients in case of diseases of blood circulation system. The results of study proved that disease results in alterations of indices of quality of life in "physical" sphere and "level of independence» sphere determine tendencies in rehabilitation direction of palliative care in case of diseases of blood circulation system at non-terminal stage. The evaluation of indicator of quality of life permits to objectify strategies of palliative care of this category of patients.

Quality of life after morphine treatment in patients with advanced and terminal cancer.

2017 ◽  
Vol 35 (8_suppl) ◽  
pp. 54-54
Author(s):  
Tammy Alonso
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Adverse Effects ◽  
Life Quality ◽  
Palliative Care Unit ◽  
Stage Iii ◽  
Oncological Patients ◽  
Morphine Administration ◽  
The Impact

54 Background: Life quality evaluation is the main indicator of the impact of palliative care, which has the objective of diminished suffering. It includes symptoms control and the satisfactions of patients and relatives. Opioids constitute a milestone in pain treatment. Present work is aimed to evaluate the secondary effects in oncological patients with bad prognosis treated with morphine at the Palliative Care Unit (PCU) of the National institute of Oncology and Radiobiology. Methods: The sample includes 72 cancer patients that arrive to the Palliative Care Unit of the National Institute of Oncology and Radiobiology of Cuba, from May 2015 to May 2016. It was characterized in terms of the demographic and clinical parameters. Severity of symptoms was evaluated using the Visual Analogue Scale (VAS). Pain was evaluated using Analogue Visual Scale. Morphine was administered subcutaneously. Incidence of adverse effects related to morphine administration and accuracy of moderate to severe pain was measured. Results: The age range was from 41 to 50 and females predominate. Gynecological cancers were the most frequent pathology. Most frequent adverse effects related to morphine administration were: constipation (35%), nauseas and vomiting (25%) and somnolence (22%). Despite of morphine myths that terrify many physicians and make them use this drug at the end of analgesic scale, in the present work was used in patients in clinical stage III (58.6 % of the 63.8 % survivors) with an effective pain control. Life quality, that includes mood, functional capacity, social interaction and recurrent symptoms, was improved. Conclusions: The use of morphine for pain relief in stage III oncological patients increases the quality of life of patients and relatives for a longer period of time.

scholarly journals Effect of early palliative care on quality of life in patients with non-small-cell lung cancer

2018 ◽  
Vol 25 (1) ◽  
pp. 54 ◽  
Author(s):  
H. Zhuang ◽  
Y. Ma ◽  
L. Wang ◽  
H. Zhang
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Pulmonary Function ◽  
Rating Scale ◽  
Life Quality ◽  
Small Cell ◽  
Control Group ◽  
Small Cell Lung ◽  
Early Palliative Care

Background Patients with metastatic non-small-cell lung cancer (nsclc) experience great pain and stress. Our study aimed to explore the effect of early palliative care on quality of life in patients with nsclc.Methods A total of 150 patients were randomly divided into two groups: control group with conventional care and study group with early palliative care. The quality of life (qol) rating scale and self-rating scale of life quality (sslq) were used to analyze the patients’ quality of life. The Hospital Anxiety and Depression Scale-D/A (hads-d/a) and Patient Health Questionnaire 9 (phq-9) were used to analyze the patients’ mood. Pulmonary function indexes of peak expiratory flow (pef), functional residual capacity (frc), and trachea-esophageal fistula 25% (tef 25%) were analyzed using the lung function detector.Results The qol and sslq scales scores of patients receiving early palliative care were significantly higher than those in the control group (p < 0.05). Moreover, the questionnaire results of the hads-d/a and phq-9 were better in patients receiving palliative care than in the control group (p < 0.05 or p < 0.01). In addition, analytical results of pulmonary function showed that the levels of pef, frc, and tef 25% in patients assigned to early palliative care were remarkably higher than those in the control group (p < 0.01 or p < 0.001).Conclusions These data demonstrate that early palliative care improves life quality, mood, and pulmonary function of nsclc patients, indicating that early palliative care could be used as a clinically meaningful and feasible care model for patients with metastatic nsclc.

scholarly journals AB0247 LIFE QUALITY AND DEPRESSION LEVEL ASSESSMENT IN PATIENTS WITH RHEUMATOID ARTHRITIS

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1424.2-1424
Author(s):  
T. Janković ◽  
J. Zvekic-Svorcan ◽  
B. Milić ◽  
D. Vukliš ◽  
R. Krasnik ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Rheumatoid Arthritis ◽  
Disease Activity ◽  
Pain Intensity ◽  
Life Quality ◽  
Activity Level ◽  
Depression Symptoms ◽  
Global Disease Activity ◽  
Anxiety Depression

Background:Depression is a common and significant rheumatoid arthritis (RA) comorbidity that develops under the influence of severalfactors, the most important being disease activity, pain intensity and degree of disability.Objectives:The goal of the investigation was to determine existence of depression and assess life quality in patients living with RA.Methods:The study sample comprised of 150 patients of average age 59.2 years, 79.2% of whom were women and 20.8% were men, who have lived with RA for an average of 9.6 years. For determining disease activity level, Disease Activity ScoreDAS28was utilized. Pain intensity and global disease activity were rated using a visual analogue scale ranging from 1 to 100mm. For functional capacity assessments, Health Assessment Questionnaire(HAQ) index was adopted,depressions severity was determined through Back Depression Inventory (BDI), and Serbian version of the health-related quality of life instrument EQ-5Dwas employed to assess patients’ quality of life.Results:Average DAS28 score for the sample was4.46±1.32, suggesting moderate RA activity. Pain intensity was on average scored at 53.2±18.6, whereas global disease activity was measured at 49.63±20.2, and theHAQ indexof 1.0±0.70 was obtained. According to theBDI, 21.4% of the patients exhibited no signs of depression, whereas 12.9% had mild, 54.3% moderate, and11.4% severe form of depression.Quality of life, as measured by EQ-5D, was compromised in all life domains, withpain/discomfort, anxiety/depression, inability to partake in usual activities, compromised mobility and self-caremost frequently reported. In patients suffering from moderate and severe depression, high statistically significant positive correlation between depression score and HAQ index was noted.BDIscore was statistically significantly positively correlatedwith the ratings on the EQ-5D scales pertaining to self-care, usual activities, pain/discomfort, and anxiety/depression.Conclusion:Depression symptoms are common in patients with RA and can compromise quality of life in all life domains.When assessing disease severity and general status of patients with RA, depression symptoms should also be considered, given their high prevalence and influence on patients’ everyday life.Acknowledgments:notDisclosure of Interests:None declared

Quality of life of patients with Sjogren’s disease with ongoing therapy with diseasemodifying antirheumatic drugs

2020 ◽  
pp. 33-38
Author(s):  
E. Yu. Gan ◽  
L. P. Evstigneeva
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Life Quality ◽  
Well Being ◽  
Disease Modifying Antirheumatic Drugs ◽  
Antirheumatic Drugs ◽  
Sf 36 ◽  
Disease Modifying ◽  
Sjögren’S Disease

Purpose of the study. Assessing the association between the life quality of patients with Sjogren’s Disease and ongoing therapy with various disease-modifying antirheumatic drugs.Material and methods. The study was conducted on the basis of the regional rheumatology center of the consultative diagnostic clinic of the Sverdlovsk Regional Clinical Hospital No. 1. This work is based on the results of a simultaneous study of 74 patients with primary Sjogren’s Disease (SD), distributed in three comparison groups receiving various disease-modifying antirheumatic drugs chlorambucil, methotrexate and hydroxychloroquine. The diagnosis of SD was carried out according to European-American criteria AECGC (2002) [18]. In order to analyze the quality of life of patients with SD, the 36-Item Short Form Health Survey (SF‑36) was used. Statistical data processing was carried out using Statistica 7.0 program.Results. Assessment of the quality of life of patients with SD, which is an integrative criterion of human health and well-being, revealed the absence of statistically significant differences (p > 0.05) on eight scales and two health components of the SF‑36 questionnaire in the analyzed groups that differ in the treatment of disease-modifying antirheumatic drugs chlorambucil, methotrexate and hydroxychloroquine.Conclusions. The obtained data indicate an equivalent quality of life in SD patients treated with different disease-modifying antirheumatic drugs methotrexate, chlorambucil and hydroxychloroquine, and therefore hydroxychloroquine can be considered as an alternative basic therapy in patients with SD with certain limitations and contraindications methotrexate and chlorambucil.

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