scholarly journals THE OBJECTIFICATION OF STRATEGIES OF PALLIATIVE CARE OF PATIENTS WITH CHRONIC DISEASES IN THE CONTEXT OF REGIONAL MODEL

2017 ◽  
Vol 16 (1) ◽  
pp. 62-64
Author(s):  
I. L Krom ◽  
M. V Erugina ◽  
A. B Shmerkevitch ◽  
A. V Vodolagin ◽  
D. L Dorogaikin
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Chronic Diseases ◽  
Blood Circulation ◽  
Life Quality ◽  
Regional Model ◽  
Circulation System ◽  
Terminal Stage ◽  
Blood Circulation System

The prevention of medicalization and objectification of strategies of palliative care of patients with chronic diseases are one of important tasks of development of regional model of palliative care. The strategies of palliative care are considered in the context of quality of life of patients with diseases of blood circulation system. The indicator of quality of life determined according the WHO questionnaire "Life Quality-100" is a multifactorial criterion of evaluation of condition of patients in case of diseases of blood circulation system. The results of study proved that disease results in alterations of indices of quality of life in "physical" sphere and "level of independence» sphere determine tendencies in rehabilitation direction of palliative care in case of diseases of blood circulation system at non-terminal stage. The evaluation of indicator of quality of life permits to objectify strategies of palliative care of this category of patients.

scholarly journals Principles of questionnaires’ validation on the example the Caregiver Quality of Life-Cancer (CQOL-C) questionnaire

2014 ◽  
Vol 8 (3) ◽  
pp. 26-29
Author(s):  
Marta Gawlik ◽  
Donata Kurpas
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cancer Patients ◽  
English Language ◽  
Life Quality ◽  
Burnout Syndrome ◽  
World Health ◽  
Polish Version ◽  
Four Levels

In Poland, the statistics on the number of people diagnosed with cancer reveal an increase in the enormity of the problem. In consequence, these include an increase in the number of people taking care of cancer patients at homes. There are currently no available Polish version questionnaire, which allows the assessment of the quality of life for home caregivers. English-language questionnaire examining the quality of life of cancer patients’ caregivers has been developed by the team supervised by M.A.Weitzner and has been widely used since 1999. It contains 35 questions, which are aimed at assessing the level of functioning on four levels: mental, emotional, spiritual and financial. The validation of this questionnaire fulfils the guidelines of translation and validation for the questionnaires, which are deterrmined in a document about the process of translation and adaptation of the instruments of the World Health Organization. Cultural adaptation was an indispensable element for validation, which has met four criteria: allegiance to the translation of the questionnaire into Polish language, the criterion of functional equivalence, the principle of the facade equivalence and the criterion of accuracy reconstruction. The main goal of therapeutic teams in the palliative care is continuous enhancement of their patients and families life quality, including home environments. Both the Polish validation and the application of the questionnaire assessing the life quality of the cancer patients’ caregivers will make it possible to focus on the issues and needs of that population better. The scale may become a useful research tool for evaluation and prevention of the burnout syndrome experienced among family members providing care for cancer patients. Polish version of the CQOL-C questionnaire has met all the validation criteria and can be applied by the therapeutic teams in the palliative care.

scholarly journals Updates on palliative care: what, for whom, and how?

2021 ◽  
Vol 29 (1) ◽  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Palliative Care ◽  
Cancer Survivors ◽  
Chronic Diseases ◽  
Current Literature ◽  
Curative Treatment

Palliative care is a new specialty that focuses on relieving pain and other symptoms in patients with serious chronic diseases regardless the diagnosis or the stage of the disease. Palliative care professionals aspire to improve the quality of life for the affected patients, their families and caregivers. This type of care is provided alongside with curative treatment and other interventions that the patient may receive. This study came as a review of the current literature published in scientific peer-reviewed journals and presented as a summary of these studies. This article aims to provide an update on the latest definitions and concept of palliative care, as well as to highlight the various aspects and dimensions of palliative care and the nature of patients who need palliative care. In summary, we can say that palliative care adds a new dimension to health care that is concerned with the quality of life of the patient and his family. Palliative care is not only restricted to cancer survivors but also cares for all patients with chronic diseases that have no cure but their agonizing symptoms can be managed or at least reduced.

Quality of life after morphine treatment in patients with advanced and terminal cancer.

2017 ◽  
Vol 35 (8_suppl) ◽  
pp. 54-54
Author(s):  
Tammy Alonso
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Adverse Effects ◽  
Life Quality ◽  
Palliative Care Unit ◽  
Stage Iii ◽  
Oncological Patients ◽  
Morphine Administration ◽  
The Impact

54 Background: Life quality evaluation is the main indicator of the impact of palliative care, which has the objective of diminished suffering. It includes symptoms control and the satisfactions of patients and relatives. Opioids constitute a milestone in pain treatment. Present work is aimed to evaluate the secondary effects in oncological patients with bad prognosis treated with morphine at the Palliative Care Unit (PCU) of the National institute of Oncology and Radiobiology. Methods: The sample includes 72 cancer patients that arrive to the Palliative Care Unit of the National Institute of Oncology and Radiobiology of Cuba, from May 2015 to May 2016. It was characterized in terms of the demographic and clinical parameters. Severity of symptoms was evaluated using the Visual Analogue Scale (VAS). Pain was evaluated using Analogue Visual Scale. Morphine was administered subcutaneously. Incidence of adverse effects related to morphine administration and accuracy of moderate to severe pain was measured. Results: The age range was from 41 to 50 and females predominate. Gynecological cancers were the most frequent pathology. Most frequent adverse effects related to morphine administration were: constipation (35%), nauseas and vomiting (25%) and somnolence (22%). Despite of morphine myths that terrify many physicians and make them use this drug at the end of analgesic scale, in the present work was used in patients in clinical stage III (58.6 % of the 63.8 % survivors) with an effective pain control. Life quality, that includes mood, functional capacity, social interaction and recurrent symptoms, was improved. Conclusions: The use of morphine for pain relief in stage III oncological patients increases the quality of life of patients and relatives for a longer period of time.

Anxiety

2017 ◽  
Author(s):  
Maria Gatto ◽  
Patricia Thomas ◽  
Ann Berger
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Clinical Practice ◽  
Chronic Diseases ◽  
Practice Guidelines ◽  
Evidence Based ◽  
Family Coping ◽  
Specific Symptom ◽  
Disease States

Anxiety is an inherent aspect of human existence. Anxiety and chronic diseases are interchangeable in their causal relationship: chronic diseases can exacerbate symptoms of anxiety, and anxiety disorders can lead to chronic diseases. Anxiety is a specific symptom emphasized in the National Consensus Project for Quality Palliative Care Clinical Practice Guidelines. Assessment is interdisciplinary and must address both the psychological and psychiatric aspects of care. To assure appropriate management, an understanding of etiologies for anxiety across populations and disease states is essential. Treatment relies on evidence-based pharmacological and nonpharmacological strategies to maximize patient and family coping and quality of life.

scholarly journals Effect of early palliative care on quality of life in patients with non-small-cell lung cancer

2018 ◽  
Vol 25 (1) ◽  
pp. 54 ◽  
Author(s):  
H. Zhuang ◽  
Y. Ma ◽  
L. Wang ◽  
H. Zhang
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Pulmonary Function ◽  
Rating Scale ◽  
Life Quality ◽  
Small Cell ◽  
Control Group ◽  
Small Cell Lung ◽  
Early Palliative Care

Background Patients with metastatic non-small-cell lung cancer (nsclc) experience great pain and stress. Our study aimed to explore the effect of early palliative care on quality of life in patients with nsclc.Methods A total of 150 patients were randomly divided into two groups: control group with conventional care and study group with early palliative care. The quality of life (qol) rating scale and self-rating scale of life quality (sslq) were used to analyze the patients’ quality of life. The Hospital Anxiety and Depression Scale-D/A (hads-d/a) and Patient Health Questionnaire 9 (phq-9) were used to analyze the patients’ mood. Pulmonary function indexes of peak expiratory flow (pef), functional residual capacity (frc), and trachea-esophageal fistula 25% (tef 25%) were analyzed using the lung function detector.Results The qol and sslq scales scores of patients receiving early palliative care were significantly higher than those in the control group (p < 0.05). Moreover, the questionnaire results of the hads-d/a and phq-9 were better in patients receiving palliative care than in the control group (p < 0.05 or p < 0.01). In addition, analytical results of pulmonary function showed that the levels of pef, frc, and tef 25% in patients assigned to early palliative care were remarkably higher than those in the control group (p < 0.01 or p < 0.001).Conclusions These data demonstrate that early palliative care improves life quality, mood, and pulmonary function of nsclc patients, indicating that early palliative care could be used as a clinically meaningful and feasible care model for patients with metastatic nsclc.

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