A scoping review of the literature on benefits and challenges of participating in patient education programs aimed at promoting self-management for people living with chronic illness

Abstract Background Chronic cardiovascular disease (CAD) still is the leading cause of death in industrialized countries in spite of substantial progress in diagnostics and therapy. Programs of lifestyle management are effective but insufficiently established in usual patient care. The authors provide multi professional educational courses to strengthen self management capabilities for cardiovascular patients in five different institutions in Europe since up to 20 years in modification of the program of Dr. Dean Ornish. Physicians, psychologists, dietitians and artistic and movement therapists work together in courses lasting from half a year to one year. To implement their programs in daily care, an association of these five institutions will evaluate a common lifestyle management program in four phases: 1. development of a common curriculum, 2. pilot study, 3. interventional study, 4. implementation study. Phase 1 is now completed. The evaluation will show, whether this lifestyle management program leads to improvement of health in patients and in the therapeutic team. Purpose of phase 1: development of a common curriculum by the five active members of the association. Methods The five existing educational programs were assessed and differences between the programs themselves and other existing programs of patient education were defined. Distinctive and common features of the different institutions were recorded. Structured interviews with members of all institutions acquired content, methods and eductional goals of the interventions according to predefined criteria for patient education programs in the respective countries. The results were discussed, reflected and a common curriculum was consented. Results The consented multi professional curriculum, comprising the activities of five active heart education programs defines five different levels of competence which are key of their patient education goals: (1) reflective self-awareness (I-competence), (2) artistic competence, (3) competence of ensouled movement, (4) nutritional competence and (5) social competence. The main difference between the already existing programs for patients with CAD and the newly developed curriculum is the emphasis on training the participants' self awareness and social competence, for example by biography work in an interdisciplinary approach. Levels of competence Conclusion The process of generating a common curriculum of competence levels, educational goals and necessary methods comprising the work of five different but associated institutions was successful. A pilot study will now be performed to show the effects of this program on cardiovascular health and quality of live of study participants and the therapeutic team as well to show, whether this intervention reduces the risk of burn out for the therapists. By this the authors hope to implement their education program according to the curriculum as an improvement of standard therapy for patients with cardiovascular disease. Acknowledgement/Funding Universität Witten-Herdecke

Download Full-text

The Impact of Asthma Education Programs on Children's Life Aspects: A Scoping Review

Current Respiratory Medicine Reviews ◽

10.2174/1573398x17666210129130547 ◽

2021 ◽

Vol 17 ◽

Author(s):

Nashi Alreshidi ◽

. Mahmoud Al-Kalaldeh

Keyword(s):

Quality Of Life ◽

Scoping Review ◽

Activity Level ◽

Self Management ◽

Cochrane Library ◽

School Absenteeism ◽

Education Programs ◽

Asthma Education ◽

The Impact

Objective: This scoping review was conducted to explore the impact of education programme on asthmatic children's knowledge of asthma, quality of life, school absenteeism, and self-management. Data sources: The review was restricted to randomized controlled trials and quasi-experimental designs. Studies published in English between 2000 and 2017 were retrieved from CINAHL, MEDLINE, Ovid SP, The Cochrane Library, ProQuest, and Google Scholar databases. Study selections: Along with specific inclusion and exclusion criteria for selecting studies, an evaluation for the quality of the experimental research based on the level of evidence was applied to categorize studies into poor to good quality. Results: Of 1256 items initially identified references, 18 studies were included in the review to cover the impact of asthma education on major four areas; children's knowledge of asthma, quality of life, school absenteeism, and self-management. Conclusion: Despite some inconsistencies between the reviewed studies, asthma education programs demonstrated a positive effect on children's knowledge of asthma, quality of life, school absenteeism, and self-management. Further research on the effect of asthma education on children's activity level, symptoms, and emotional domains are recommended.

Download Full-text

A systematic review of the literature reporting on studies that examined the impact of interactive, computer-based patient education programs

Patient Education and Counseling ◽

10.1016/j.pec.2009.02.011 ◽

2009 ◽

Vol 77 (1) ◽

pp. 6-13 ◽

Cited By ~ 67

Author(s):

Martin P. Fox

Keyword(s):

Systematic Review ◽

Patient Education ◽

Review Of The Literature ◽

Education Programs ◽

Computer Based ◽

The Impact

Download Full-text

Adapting to, integrating and self-managing HIV as a chronic illness: a scoping review protocol

BMJ Open ◽

10.1136/bmjopen-2020-047870 ◽

2021 ◽

Vol 11 (6) ◽

pp. e047870

Author(s):

Neo Phyllis Sematlane ◽

Lucia Knight ◽

Caroline Masquillier ◽

Edwin Wouters

Keyword(s):

Chronic Illness ◽

Scoping Review ◽

Selection Process ◽

Grey Literature ◽

Social Science Research ◽

Research Network ◽

Self Management ◽

Cochrane Library ◽

Scoping Reviews ◽

Living With Hiv

IntroductionThe process of adapting to a life with a chronic illness, is a well-researched phenomenon for a number of common chronic illnesses. The construct, adaptation, embeds the notions of integration of the chronic illness into identity and self-management. Integration precedes self-management and is key to living positively with a chronic illness. Adaptation is an important concept in understanding trajectory and outcomes of living with a chronic illness. Applicability of these concepts to HIV as a chronic illness; when suppressive adherence has been achieved, however, is unknown. Specifically, the adaptation process to living with HIV as a chronic illness, the integration of HIV into identity and the resulting self-management behaviours by adults living with HIV are relatively unexplored. We describe a protocol for a scoping review of adaptation to living with HIV, we structure the enquiry around integration of HIV into identity and self-management and interrogate theories, models and frameworks that have been proposed and studied and we evaluate them for relevance and usefulness in the care and management of HIV.Methods and analysisMethods proposed by the Johanna Briggs Institute will be followed. The protocol was drafted using the Preferred Reporting Items for Systematic Reviews and Meta-analysis extension for Scoping Reviews and was registered with the Open Science Framework. MEDLINE, SCOPUS, Cochrane Library, CINHAL and SocINDEX databases will be searched. A search in Social Science Research Network eLibrary and Open Access Theses and Dissertations will gather grey literature and reference lists of included sources will be screened. Study selection process will involve a title and abstract review and full text review, guided by clearly defined inclusion and exclusion criteria.Ethics and disseminationEthical approval is not required because this is a proposed review and collection of data on publicly available materials. The results will be published in a topic relevant journal and presented at related scientific events.

Download Full-text

Patient education in bronchial asthma: analysis of feedback from parents

International Journal of Contemporary Pediatrics ◽

10.18203/2349-3291.ijcp20181565 ◽

2018 ◽

Vol 5 (3) ◽

pp. 1159

Author(s):

Sunil Taneja ◽

Samarth Vohra ◽

Neha Agarwal ◽

Debasis Kundu

Keyword(s):

Chronic Illness ◽

Patient Education ◽

Healthcare Provider ◽

Bronchial Asthma ◽

Education Program ◽

Patient Adherence ◽

Provider Education ◽

Education Programs

Bronchial asthma is the most common chronic illness encountered in day to day practice. In spite of a sound knowledge of its pathogenesis and availability of proper medications patient adherence to Asthma medications does not exceed fifty percent. A variety of patients, healthcare provider education programs have been conducted but none has been ideal and probably each centre or practicing pediatrician needs to develop his own education program as there is none which is ideal.

Download Full-text

Education programs for people living with chronic pain: a scoping review

Frontiers of Nursing ◽

10.2478/fon-2020-0040 ◽

2021 ◽

Vol 7 (4) ◽

pp. 307-319

Author(s):

Hai-Ying Wang ◽

Carol Grech ◽

David Evans ◽

Rasika Jayasekara

Keyword(s):

Chronic Pain ◽

Pain Management ◽

Patient Education ◽

Scoping Review ◽

General Information ◽

Chronic Pain Management ◽

Education Programs ◽

Education Practice ◽

Education Delivery ◽

Delivery Formats

AbstractObjectiveThe aim of this scoping review was to provide evidence for health practitioners to improve patient education practice for chronic pain management.MethodsA scoping review was guided by Arksey and O'Malley's (2005)1 five-stage framework, investigated contemporary patient education programs (2007–2018) for chronic pain management in education content, formats of delivery, and tools used for evaluation. Content analysis and description were used for the outcome report.ResultsSeven quantitative studies were included. Education content consisted of General information, Cognitive behavior therapy (CBT), Self-management, and Pain neurophysiology (PN). Education delivery formats varied from workbook to workbook, face-to-face, online, when given for a group or individual or in a combined way. In total, 19 tools were reported for the evaluation of the education programs.ConclusionsThere is a variety in the education content and the delivery formats. The majority of programs showed effectiveness in patients’ chronic pain management based on their selected evaluation tools. This review showed that patient education programs can be useful in chronic pain management. The effectiveness of patient education programs focuses on the improved patients’ physical function and quality of life rather than the cessation of pain only.

Download Full-text

Coaching for behaviour change in chronic disease: A review of the literature and the implications for coaching as a self-management intervention

Australian Journal of Primary Health ◽

10.1071/py03044 ◽

2003 ◽

Vol 9 (3) ◽

pp. 177 ◽

Cited By ~ 44

Author(s):

Helen Lindner ◽

David Menzies ◽

Jill Kelly ◽

Sonya Taylor ◽

Marianne Shearer

Keyword(s):

Chronic Illness ◽

Health Professional ◽

Behaviour Change ◽

Professional Support ◽

Self Management ◽

Chronic Obstructive ◽

Review Of The Literature ◽

Adherence To Medication ◽

Wide Range

Self-management is a necessary aim in the treatment of chronic illnesses, such as diabetes, heart disease, arthritis, lupus, and chronic obstructive pulmonary disease. Although effective treatments are available for these serious conditions, the rate of adherence to medication, dietary changes, physical activity, blood monitoring, or attendance to regular medical screenings is reported to be approximately only 50%. The role of health professional support in effective self-management of chronic illness has been recently acknowledged. Furthermore, numerous studies on professional support for self-management of chronic illness have focused on the health professional as a ?coach?. Coaching has been defined as an interactive role undertaken by a peer or professional individual to support a patient to be an active participant in the self-management of a chronic illness. A review of the literature revealed a limited number of empirical studies on coaching, with these focusing on one of three areas: disease-related education; behaviour change strategies; or, psychosocial support. Due to the small number of research investigations, only tentative support can be given to the efficacy of the different coaching approaches. However, it was apparent that education-based interventions have a significant role in self-management, but that these were not sufficient by themselves. The role of behaviour change-focused coaching was also shown to be an important factor. However, not all patients are ready for change, and therefore the need for coach interactions that move a patient to a stage of action were evident, as was the need to consider the emotional state of the patient. The challenges for future research is to investigate the relative strengths of these coaching approaches for the support of patient self-management of chronic illness, and the means to effectively integrate these approaches into routine health care, through a wide range of health professional groups.

Download Full-text

Self-Management Interventions to Prevent the Secondary Condition of Pain in People with Disability Due to Mobility Limitations

Rehabilitation Process and Outcome ◽

10.4137/rpo.s12339 ◽

2016 ◽

Vol 5 ◽

pp. RPO.S12339 ◽

Cited By ~ 1

Author(s):

Katherine Froehlich-Grobe ◽

Simon J. Driver ◽

Katherine D. Sanches

Keyword(s):

Health Care Providers ◽

Scoping Review ◽

Management Strategies ◽

Self Management ◽

Secondary Outcome ◽

Care Providers ◽

Mobility Limitations ◽

Review Of The Literature ◽

Mobility Impairment ◽

Management Interventions

Introduction This focused review examines the use and effectiveness of self-management strategies in preventing or managing pain, which is among the most common secondary conditions faced by individuals with a mobility disability. Methods This focused review was part of a two-phase comprehensive scoping review. Phase I was a comprehensive scoping review of the literature targeting multiple outcomes of self-management interventions for those with mobility impairment, and Phase II was a focused review of the literature on self-management interventions that target pain as a primary or secondary outcome. Two authors searched CINAHL, PubMed, and PsyclNFO for papers published from January 1988 through August 2014 using specified search terms. Following the scoping review, the authors independently screened and selected the studies and reviewed the eligible studies, and the first author extracted data from the included studies. Results The scoping review yielded 40 studies that addressed pain self-management interventions for those living with mobility impairment. These 40 accumulated papers revealed a heterogeneous evidence base in terms of setting (clinic, community, and online), target populations, intervention duration (3 weeks to 24 months), and mode (health-care providers and lay leaders). Most of the reviewed studies reported that the self-management intervention led to significant reduction of pain over time, suggesting that self-management may be a promising approach for addressing pain experienced by people who live with mobility limitations. Discussion This review also reveals moderate-to-high bias across studies, and findings indicate that future research should enhance the methodological quality to provide stronger evidence about the effectiveness of self-management strategies for reducing pain among those with mobility impairments.

Download Full-text

Bringing person-centeredness and active involvement into reality

Health Education ◽

10.1108/he-05-2014-0064 ◽

2015 ◽

Vol 115 (6) ◽

pp. 518-533 ◽

Cited By ~ 9

Author(s):

Rikke Torenholt ◽

Gitte Engelund ◽

Ingrid Willaing

Keyword(s):

Chronic Illness ◽

Patient Education ◽

Group Dynamics ◽

Focal Point ◽

Self Management ◽

Patient Centeredness ◽

Content Type ◽

Active Involvement ◽

High Degree ◽

Very High

Purpose – The purpose of this paper is to examine the use and applicability of cultural probes – an explorative participatory method to gain insights into a person’s life and thoughts – to achieve person-centeredness and active involvement in self-management education for people with chronic illness. Design/methodology/approach – An education toolkit inspired by the ideas of cultural probes was developed and feasibility tested in 49 education settings in Denmark. Questionnaires, interviews, and observations were used to collect data, which were analysed using descriptive statistics, analysis of variance, and systematic text condensation. Findings – Educators emphasized the applicability of the toolkit, and between 69 and 82 per cent of educators reported that the toolkit supported them in facilitating person-centred education and active involvement to a high or very high degree. Most educators (81 per cent) reported that they would like to apply the toolkit again in future education to a high or very high degree. Five categories of educator experiences were identified: interaction and activity; person-centeredness; group dynamics and synergy; openness; and light and cheerful atmosphere. Educators talked significantly less in situations where the toolkit was applied. This indicates the ability of the toolkit to facilitate talk among participants and thereby let participants become the focal point of education. Applying cultural probes in patient education targeting people with chronic illness seems to be a useful method to achieve patient-centeredness and active involvement in patient education and to support educators in facilitating this process. Originality/value – Introducing fully flexible education toolkits inspired by cultural probes may, in the future, lead to improved self-management patient education among people with chronic illness.

Download Full-text