scholarly journals 342 - The Dementia Early Stage Cognitive Aids New Trial (DESCANT) intervention: Goal Attainment Scaling

2020 ◽  
Vol 32 (S1) ◽  
pp. 102-102
Author(s):  
Helen Chester ◽  
Rebecca Beresford ◽  
Paul Clarkson ◽  
Charlotte Entwistle ◽  
Vincent Gillan ◽  
...  
Keyword(s):  
Goal Setting ◽  
Goal Attainment ◽  
Early Stage ◽  
Randomised Trial ◽  
Well Being ◽  
Clinical Psychologist ◽  
Goal Attainment Scaling ◽  
Structured Interviews ◽  
Cognitive Aids ◽  
People With Dementia

The DESCANT (Dementia Early Stage Cognitive Aids New Trial) intervention provided a personalised care package to improve the cognitive abilities, function and well -being of people with early-stage dementia and their carers by providing a range of memory aids, with training and support for use. This presentation will explore findings from a goal attainment scaling exercise undertaken within a multi-site pragmatic randomised trial, part of a NIHR-funded research programme ‘Effective Home Support in Dementia Care: Components, Impacts and Costs of Tertiary Prevention.’The aim was to describe the Goal Attainment Scaling (GAS) approach developed; investigate the types of goals identified by people with dementia and their carers and subsequent attainment; and explore the role of Dementia Support Practitioners (DSPs) in the process. This GAS exercise was designed by researchers, a clinical psychologist, a clinician and a DSP. Goal setting and attainment were conducted with the person with dementia and their carer and recorded by DSPs. Data were obtained from 117 intervention records and semi-structured interviews with five DSPs delivering the intervention across seven NHS Trusts in England and Wales. The GAS exercise was conducted as planned with goals and extent of involvement in the exercise tailored to individual participants and engagement was high. Demographic characteristics from the trial baseline dataset were analysed. Measures were created from intervention records to permit quantification and descriptive analysis. Interviews were professionally transcribed and subject to thematic analysis to identify salient themes.A total of 293 goals were identified across the 117 participants. From these 17 goal types were distinguished across six domains: self -care; household tasks; daily occupation; orientation; communication; and well-being and safety. A measure of goal attainment appropriate to both the client group and a modest intervention was obtained. On average participants had evidenced some improvement regarding goals set. Qualitative findings suggested overall DSPs were positive about their experience of goal setting. Although several challenges were identified, if these were overcome, measuring goal attainment was generally viewed as straightforward. GAS can be used in the context of a psychosocial intervention for people with early-stage dementia to identify and measure attainment of personalised care goals.

Library services enriching community engagement for dementia care: The Tales & Travels Program at a Canadian Public Library as a case study

2021 ◽  
pp. 096100062110651
Author(s):  
Jiamin Dai ◽  
Joan C. Bartlett ◽  
Karyn Moffatt
Keyword(s):  
Public Libraries ◽  
Public Library ◽  
Well Being ◽  
Dementia Care ◽  
Future Research ◽  
Library Services ◽  
Structured Interviews ◽  
Community Based ◽  
People With Dementia

Growing dementia-friendly library services are contributing to community-based dementia care. Emerging community programs in libraries and museums provide notable opportunities for promoting engagement and inclusivity, but these programs have yet to receive in-depth assessments and analyses to guide future research and practice. This paper presents a case study examining a social and storytelling program for people with dementia run by a Canadian public library. It investigates two research questions: How can public library programs contribute to community-based dementia care? And what are public libraries’ strengths and challenges in running programs for people with dementia? The study involves participant observations of the program and semi-structured interviews with people with dementia, caregivers, and program facilitators (librarians and Alzheimer Society coordinators). Through thematic analysis of fieldnotes and transcripts, the study reveals how this inclusive platform supports engagement, fosters relationships, helps caregivers, and reaches broader communities. This research further uncovers the librarians’ diversified roles as demonstrated through their collaboration with professionals, preparation and research, and facilitation of the sessions. This paper advances librarianship research on enriching community-based dementia care, including furthering inclusivity and engagement and extending accessible library services. By analyzing library programming for the dementia community and assessing its strengths and challenges, the paper highlights librarians’ awareness of the community’s evolving needs and their collaboration with other professionals. It offers practical insights on useful resources and emerging best practices that will hopefully inspire other initiatives in which information professionals can help improve the well-being of vulnerable populations.

scholarly journals A qualitative study of the shared experience of humour between people living with dementia and their partners

Dementia ◽  
2018 ◽  
Vol 19 (6) ◽  
pp. 1794-1810
Author(s):  
Helen Hickman ◽  
Chris Clarke ◽  
Emma Wolverson
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Emotional Experience ◽  
Well Being ◽  
Future Research ◽  
Structured Interviews ◽  
Relationship Strength ◽  
Social And Emotional ◽  
People With Dementia ◽  
Care Partners ◽  
Person With Dementia

Humour is a complex social and emotional experience which could constitute a positive resource for people endeavouring to live well with dementia. However, little is currently known about the shared use and value of humour in dyads where one person has dementia. The purpose of this study was therefore to explore how people with dementia and their care-partners experience, use and draw meaning from humour in relation to their shared experiences of dementia and their ongoing relationships. Ten participant dyads (the person with dementia and their spousal partner) took part in joint semi-structured interviews. Interpretative Phenomenological Analysis revealed eight subthemes that were subsumed under three super-ordinate themes: ‘Humour Has Always Been There (and Always Will Be)’; ‘Withstanding Dementia’ and ‘Renewing the Value of Humour in Dementia’. Overall, the findings suggest that humour, in different forms, can represent a salient and enduring relationship strength that helps dyads maintain well-being and couplehood by providing a buffer against stressors associated with dementia. The findings highlight the potential value of integrating a dyadic perspective with strengths-based approaches in future research into how people live well with dementia.

Comparing a clinician-assisted and app-supported behavioral activation intervention to promote brain health and well-being in frontline care

2020 ◽  
pp. 1-11
Author(s):  
Keri-Leigh Cassidy ◽  
Michael Vallis ◽  
David Conn ◽  
Ariane S. Massie ◽  
Claire Checkland ◽  
...  
Keyword(s):  
Goal Setting ◽  
Psychological Health ◽  
Goal Attainment ◽  
Behavioral Activation ◽  
Behavioral Outcomes ◽  
Well Being ◽  
Completion Rates ◽  
Brain Health ◽  
The Difference ◽  
Health And Well Being

ABSTRACT Background: Positive psychiatry offers an unique approach to promote brain health and well-being in aging populations. Minimal interventions through behavioral activation to promote wellness are increasingly available using self-guided apps, yet little is known about the effectiveness of app technology or the difference between clinician-supported behavioral activation versus self-guided app methodologies. Objectives: Investigate the difference in users and outcomes between two methods of the Fountain of Health (FoH) positive psychiatry intervention for behavioral activation to promote brain health and well-being: (1) clinician-assisted and (2) independent app use for behavioral self-management. Design and setting: As part of a larger knowledge translation intervention in positive psychiatry, two specific methods of a behavioral activation intervention were retrospectively compared. Participants: Two subsets of patients were compared; 254 clinician-assisted patients; 333 independent app users. Intervention: A minimal positive psychiatry intervention in frontline care using the FoH health and behavior change clinical tools Measurements: Main outcomes were changes in psychological (health and resilience, well-being scores) and behavioral indices (goal attainment, items of goal SMART-ness). User profiles (age, sex and completion rates) were also compared. Results: Clinician-assisted patients were more likely to be male, older, and have lower health and resilience scores at baseline. Clinician-assisted patients had notably higher completion rates (99.2% vs. 10.8%). Psychological outcomes (improved health and resilience, and well-being) were similar regardless of intervention method for those who completed the intervention. Behavioral outcomes revealed clinician-assisted patients set goals that better adhered to key goal-setting items. Conclusions: Clinician–patient relationships appear to be an important factor for intervention completion and behavioral outcomes, while further exploration of best practices for intervention completion using health apps in clinical practice is needed. A preliminary goal-setting methodology for effective behavioral activation, to promote brain health and wellness, is given.

Impact of a dementia-specific program of equine-assisted activities: providers’ perspectives

2019 ◽  
Vol 20 (2) ◽  
pp. 37-47
Author(s):  
Beth Fields ◽  
Wendy Wood ◽  
Rebecca Lassell
Keyword(s):  
Service Providers ◽  
Institutional Care ◽  
Complex Interventions ◽  
Well Being ◽  
Scientific Development ◽  
Structured Interviews ◽  
Content Type ◽  
People With Dementia ◽  
Person With Dementia ◽  
Equine Assisted

Purpose Establishing acceptability of complex interventions to stakeholders is vital in early scientific development. The purpose of this paper is to ascertain the acceptability of a program of equine-assisted activities (EAAP) for people with dementia by elucidating programmatic practices needed to enhance their safety and quality of life (QoL) from the perspectives of service providers. Design/methodology/approach Semi-structured interviews with five providers were analyzed using a basic qualitative approach. Findings Providers perceived the EAAP as acceptable and revealed potential mechanisms of change supporting well-being, including aspects related to the physical and social environment and person with dementia. Linkages identified among the EAAP and its physical and social context support its complexity. Providers explicated program practices that promoted safety and QoL, such as implementing staff trainings and tailoring activities to each person’s preferences and needs. These practices aligned with best dementia care approaches, underscoring that the EAAP is a promising complex intervention that merits further scientific development. Originality/value This work is novel and adds to the literature by illuminating the role of a community-based, animal-assisted program for enhancing the QoL of older adults with dementia residing in institutional care facilities.

Dementia from the inside: how people with early-stage dementia evaluate their quality of life

2005 ◽  
Vol 25 (2) ◽  
pp. 197-214 ◽  
Author(s):  
TOWAKO KATSUNO
Keyword(s):  
Quality Of Life ◽  
Health Care Professionals ◽  
Early Stage ◽  
Structured Interviews ◽  
Psychosocial Wellbeing ◽  
People With Dementia ◽  
Quality Of Life Scale ◽  
Quality Of Life Index ◽  
Item Quality

The purposes of this study were to explore the self-rated and objectively measured quality of life of people with early-stage dementia and to describe their personal experiences and reactions to the negative public view of dementia. Information was collected from 23 participants who lived in a mid-western United States metropolitan area. Self-ratings were collected by semi-structured and structured interviews, and the objective measures were the Quality of Life Index (QLI) and the Single Item Quality of Life Scale (SIQLS). It was found that 21 of the participants perceived their current QOL as ‘good’ or better, and that the mean scores for the QLI and the SIQLS were 22.8 and 7.3 respectively. Triangulation of the subjective and objective data established their congruence. The QLI scores suggested that people with early-stage dementia often perceived their current life as good and that the participants were as satisfied with their life as the general population. Their accounts also revealed that many had experienced stigma and that this appreciably affected their psychosocial wellbeing. The findings of this study provide new insights into the ways in which health-care professionals and the general public can and should view and treat people with dementia.

Strengthening the Planning Process of Motivational Interviewing Using Goal Attainment Scaling

2017 ◽  
Vol 39 (3) ◽  
pp. 195-210 ◽  
Author(s):  
Todd F. Lewis ◽  
Mary F. Larson ◽  
James S. Korcuska
Keyword(s):  
Mental Health ◽  
Motivational Interviewing ◽  
Goal Setting ◽  
Goal Attainment ◽  
Planning Process ◽  
Goal Attainment Scaling ◽  
Clinical Tool ◽  
Health Counseling ◽  
Mental Health Settings

Client-centered, outcomes-based mental health counseling is driving the behavioral health field toward identifying mechanisms to facilitate specific, measurable goal setting and tracking with clients. Motivational interviewing (MI) is an evidence-based, collaborative, goal-oriented style of counseling; however, the fourth process of MI, planning, is not as well defined as the other MI processes, especially related to goal setting. Goal attainment scaling (GAS) is a method for setting measurable goals and assessing clinical progress. The combination of MI and GAS has potential to be a valuable clinical tool to establish client-centered goals, monitor goal attainment, and provide feedback within clinical mental health settings. Therefore, we propose that the MI planning process can be enhanced by incorporating GAS. However, research is needed to substantiate the feasibility of the proposed integration. A brief case study is provided to illustrate key concepts.

Goal Setting in Sport and Performance

2018 ◽  
Author(s):  
Laura Healy ◽  
Alison Tincknell-Smith ◽  
Nikos Ntoumanis
Keyword(s):  
Goal Setting ◽  
Goal Attainment ◽  
Goal Pursuit ◽  
Well Being ◽  
Effective Technique ◽  
Goal Progress ◽  
Research And Practice ◽  
Academic Literature ◽  
Critical Commentary ◽  
And Performance

Within sporting contexts, goal setting is a commonly used technique that can lead to enhanced performance. Recommendations for goal setting have been widely embraced in sport and performance settings by researchers, practitioners, athletes, and coaches. However, it could be argued that these recommendations are overly simplistic, and that a lack of critical commentary in the sporting literature fails to acknowledge the complexity of goal setting in practice. For example, there has been limited acknowledgement within the applied recommendations of important factors such as personal differences with those individuals setting goals, contextual and environmental factors, and the characteristics of goals being pursed. Equally, the focus of goal setting research and practice has predominantly been on goal progress or goal attainment, thus overlooking the wider benefits of effective goal pursuit on additional aspects such as well-being. Similarly, the interactions between these factors has gained little attention with the academic literature or applied recommendations. This may result in diminished effectiveness of goal setting for athletes, and ultimately lead to sub-optimal performance and well-being. Critical and comprehensive reviews of the literature are timely and necessary, in order to develop a deeper understanding of goal setting in sport and performance. Combining research from both within sport and from theorists examining goals within other contexts can enhance our understanding of how to promote and support adaptive goal pursuit within sport and performance. Overall, this may lead to more appropriate and useful recommendations for researchers, athletes, coaches, and applied practitioners, ensuring that goal setting can be an effective technique for a range of individuals within sport and performance contexts.

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