scholarly journals 436 - Scaling up a community-based intervention for people affected by dementia: what is the value?

2021 ◽  
Vol 33 (S1) ◽  
pp. 53-54
Author(s):  
Nathan Stephens

The Meeting Centres Support Programme [MCSP] provides community-based social, emotional and practical support for people affected by dementia to adjust to the changes dementia brings. Since development in the Netherlands the MCSP has been successfully adapted and implemented in the UK led by the Association for Dementia Studies, University of Worcester. In January (2020), Worcestershire County Council announced £540,000 to scale up the provision of MCSPs across the county: Worcestershire Meeting Centres Community Support Programme [WMCCSP].The novel county-wide approach will build real capacity, increasing the amount of people accessing post-diagnostic support, integrating services, reducing inequalities, and improving health and wellbeing; fundamental to the COVD-19 recovery plan (Department of Health and Social Care, 2020). This raises questions about the type of ‘value’ interventions such as the WCCMCSP should seek to achieve, including how it is captured and measured (Redding, 2016). This becomes more relevant when recognising only a portion of outcomes will be related to health, but much of it is likely to support individual and community wellbeing and development. In this context, understanding and measuring the ‘value’ is timely.A Concept Analysis (Rogers, 2000) of value in the context of community-based interventions for people affected by dementia informed a robust and systematic definition to assess the value created and/or destroyed by the WMCCSP. The research will develop definitions of value in this area from the perspective of key stakeholders including people affected by dementia.Social Return on Investment principles will be employed to understand outcomes created and/or destroyed by the WMCCSP for stakeholders and measure them within an endogenous framework that encapsulates what is, per say, valuable. Progress on the process, challenges, and breakthroughs of this innovative and developmental approach will be presented at the conference.

2005 ◽  
Vol 34 (3) ◽  
pp. 427-445 ◽  
Author(s):  
LINDA BAULD ◽  
KEN JUDGE ◽  
MARIAN BARNES ◽  
MICHAELA BENZEVAL ◽  
MHAIRI MACKENZIE ◽  
...  

When New Labour came to power in the UK in 1997 it brought with it a strong commitment to reducing inequality and social exclusion. One strand of its strategy involved a focus on area-based initiatives to reduce the effects of persistent disadvantage. Health Action Zones (HAZs) were the first example of this type of intervention, and their focus on community-based initiatives to tackle the wider social determinants of health inequalities excited great interest both nationally and internationally. This article draws on findings from the national evaluation of the initiative. It provides an overview of the HAZ experience, and explores why many of the great expectations associated with HAZs at their launch failed to materialise. It suggests that, despite their relatively limited impact, it is best to consider that they made a good start in difficult circumstances rather than that they failed. As a result there are some important lessons to be learned about the role of complex community-based interventions in tackling seemingly intractable social problems for policy-makers, practitioners and evaluators. Social programs are complex undertakings. They are an amalgam of dreams and personalities, rooms and theories, paper clips and organisational structure, clients and activities, budgets and photocopies, and great intentions. (Weiss, 1998: 48)


2015 ◽  
Vol 100 (7) ◽  
pp. 637-642 ◽  
Author(s):  
Alison J Waite ◽  
Robert C Coombs ◽  
Angela McKenzie ◽  
Charlotte Daman-Willems ◽  
Marta C Cohen ◽  
...  

ObjectiveTo report mortality in babies enrolled on a community-based programme, Care of Next Infant Plus (CONI PLUS), which primarily supports parents anxious because of previous sudden unexpected death in infancy (SUDI) in their extended family or following an apparent life threatening event (ALTE) in their baby.DesignProspective observational study from 1996 to 2010 in the UK.ResultsOf 6487 babies enrolled, 37 died (5.7 per 1000). There were 2789 (43.0%) SUDI related babies of whom, six died suddenly and unexpectedly (2.15 per 1000). Four babies were sharing a sofa at night or a bed with parent(s) who smoked or had consumed alcohol. Of the 1882 (29.0%) babies enrolled following an ALTE, five died suddenly and unexpectedly (2.66 per 1000): four unexplained and one due to infection. None occurred while sharing a sleep surface, and at least three died during the day. The remaining 1816 (28%) babies were enrolled for other reasons. Seven died suddenly and unexpectedly (3.85 per 1000), two were unexplained and none associated with bed sharing.ConclusionsThe number of SUDI deaths in babies enrolled on CONI PLUS is higher than expected from UK averages. Deaths in babies enrolled because of family history of SUDI were mostly associated with inappropriate sharing of a sleep surface at night and mostly outside the peak age range for sudden infant death. The opposite is true for those enrolled following an ALTE. The number of deaths is small but findings suggest a different mechanism for death in these two groups.


2018 ◽  
Vol 12 (3/4) ◽  
pp. 91-98 ◽  
Author(s):  
Bhathika Perera ◽  
Ken Courtenay

Purpose Services for people with intellectual disabilities in the UK have evolved over the years from hospital-based care to more community provision. There are multiple reasons for these changes, however, often it was due to changes in social policy or following a scandal in provision. The paper aims to discuss these issues. Design/methodology/approach Providing services to meet the health and social care needs of people with intellectual disabilities is well-established in the four countries of the UK with support from legislation. There are often specialist mental health and social care teams. Dedicated professionals work with people with intellectual disabilities who experience mental health problems with a focus on support in the community. A range of services for children and adults and for offenders exist across the UK that often vary in composition and structure. Findings The challenges in providing mental health services for children and adults with intellectual disabilities in the future include recruitment and training of the workforce with the remit of enhancing community support and reduced in-patient care. Practical implications This paper helps the reader to understand how ID mental health services are organised in the UK. Originality/value This paper gives a summary of the ID mental health services in the UK. Even though there are various papers looking at different aspects of mental health services for people with ID in the UK, this paper brings all that information together to help reader get a better understanding of the mental health services for people with ID.


2019 ◽  
Vol 1 (2) ◽  
pp. 30-41 ◽  
Author(s):  
Dominic Murphy ◽  
Dominic Murphy ◽  
Lucy Spencer- Harper ◽  
David Turgoose

Background Romantic partners living alongside veterans with Post Traumatic Stress Disorder (PTSD) appear at increased risk of secondary traumatic stress (sPTSD) and common mental health difficulties (CMD) compared to the general population. The severity of symptoms implies the need for structured, bespoke and evidence-based interventions. Objective The aim of this study was to explore the feasibility of offering a community support programme (The Together Programme, TTP) for military partners. TTP was developed based upon a number of US programmes and consisted of 10 hours of group-based support delivered over a five-week course. 56 participants engaged in TTP over a year at nine locations across the UK and were followed up three months later. Methods Measures of CMD, sPTSD, alcohol use and relationship satisfaction were used to assess benefits. Data were also collected on attendance and participant feedback. Results Significant reductions were observed for symptoms of sPTSD and CMD at follow up. 51/56 (90.1%) participants completed TTP. The majority of participants reported positive experiences. However, several individuals stated wanting more sessions and that barriers such as work, and family commitments made it difficult to attend. Conclusions Whilst limitations exist, the data presented suggests cautious optimism for the efficacy of offering a structured programme of support to address the needs of military partners living alongside PTSD.


Author(s):  
Catherine Dearie ◽  
Shamieka Dubois ◽  
David Simmons ◽  
Freya MacMillan ◽  
Kate A. McBride

Rates of diabetes are high in many communities of Pacific Island peoples, including people from Fiji. This qualitative study explores knowledge and attitudes towards diabetes among i-Taukei Fijians to facilitate the cultural tailoring of diabetes prevention and management programs for this community. Fijians aged 26 to 71 years (n = 15), residing in Australia, participated in semi-structured interviews; 53% (n = 8) were male. Interviews were audio-recorded, transcribed verbatim, then thematically analyzed. Diabetes is recognized as an important and increasing health problem requiring action in the i-Taukei Fijian community. Widespread support for culturally appropriate lifestyle interventions utilizing existing societal structures, like family networks and church groups, was apparent. These structures were also seen as a crucial motivator for health action. Intervention content suggestions included diabetes risk awareness and education, as well as skills development to improve lifestyle behaviors. Leveraging existing social structures and both faith and family experiences of diabetes within the Fijian community may help convert increased awareness and understanding into lifestyle change. Ongoing in-community support to prevent and manage diabetes was also regarded as important. We recommend building upon experience from prior community-based interventions in other high-risk populations, alongside our findings, to assist in developing tailored diabetes programs for Fijians.


2021 ◽  
pp. 1-14
Author(s):  
Ferruccio Pelone ◽  
Paul Jacklin ◽  
Jennifer M. Francis ◽  
Benjamin Purchase

ABSTRACT Background: Policy making increasingly needs cost-effectiveness evidence to inform resource allocation. The objective of this review is to identify and to investigate evidence evaluating the cost-effectiveness of interventions aimed to support adult carers, drawing on the National Institute for Health and Care guideline on Supporting Adult Carers. Methods: The protocol of the review was aimed to identify the economic studies published from 2003 onwards on all types of interventions for supporting adult carers. The applicability to the review and methodological quality of included economic evaluations were assessed using pre-established checklists specified in the National Institute for Health and Care (NICE) manual for developing guidelines. Results: Our search yielded 10 economic evaluations. The main types of strategies evaluated were psychological and emotional support, training, and education support interventions. We found that the interventions more likely to be cost-effective were usually tailored to the specific carers’ circumstances and delivered face-to-face and were multi-component in nature, including elements of psycho-education, training, psychological and practical support. The narrative synthesis of results indicated a wide variation in cost-effectiveness findings and methodological quality. Conclusions: This article indicates that systematic reviews of economic evaluations can be considered as an appropriate means to support decision makers in allocating health and social care resources. Given the high economic and social impact of unpaid caring, and based on the research gaps identified, we recommend that future economics research should be targeted on interventions for identifying carers; and programs for providing carers with support and advice to help them to enter, remain in or return to paid work.


2017 ◽  
Vol 13 (4) ◽  
pp. 397-410 ◽  
Author(s):  
Katie Strudwick ◽  
Jill Jameson ◽  
Jackie Rowe

Abstract Community or reassurance policing in the UK has developed concurrently with diversification and expansion of the policing family, including the broadening of volunteer opportunities beyond the traditional Special Constable and Police Support Volunteer roles. To increase capacity and capability in community-based policing, one Force introduced Volunteer Police Community Support Officers (VPCSOs) to complement that of employed PCSOs. This paper presents an exploratory discussion on a small-scale study of a previously un-researched and evolutionary area of police volunteering; evaluating the effectiveness of the VPCSO role reviewing its impact as a means of increasing community connectivity and meeting public demands for visibility policing. The introduction of VPCSOs was seen as successful by the Force involved which continues to develop the role as a useful ‘policing resource’. However, challenges to success were identified, not least the uncertainty surrounding the delegation of powers to volunteers that required a change in primary legislation.


Author(s):  
Paul Burstow

This chapter examines the significance of Care Act 2014, a piece of legislation that modernises more than six decades of care and support law into a single, clear statute, which takes into account people's needs and what they want to achieve in their lives. Before discussing the main features of the Care Act, the chapter considers the Poor Law and how the Care Act breaks with the Poor Law principle of less eligibility, which persisted in National Assistance Act 1948. The National Assistance Act was the legal framework governing adult social care in England and Wales and replaced the Poor Law. The chapter also describes community-based approaches to social care, how well-being became the new organising principle for the Care Act, and the negative health and wealth impacts of caring. It concludes by analysing the debates about integrating health and social care in the UK.


BMJ Open ◽  
2019 ◽  
Vol 9 (3) ◽  
pp. e023385
Author(s):  
Mark Llewellyn ◽  
Jennifer Hilgart ◽  
Puja Joshi ◽  
Aelwyn Williams

ObjectivesTo explore the impact of eye clinic liaison officers (ECLOs, also known as sight loss advisors) on the processes, functions and quality of ophthalmology clinics through the experiences of ophthalmology staff in the UK.DesignQualitative study.SettingUK hospital ophthalmology clinics.ParticipantsHealth and social care professionals in the UK.ResultsECLOs who had a presence in hospital ophthalmology clinics were seen as valuable in streamlining processes within the clinic, particularly in relation to the certification of visual impairment process, and providing continuity of care for patients when they were discharged from medical treatment. ECLOs also saved staff time in the clinic, as they were often responsible for providing emotional and practical support for patients living with sight loss.ConclusionsECLOs are well placed in ophthalmology clinics. They can relieve pressure on clinical staff by taking on information giving and referring duties, allowing other staff to focus on their clinical responsibilities. The impact of ECLOs may depend on efficient communication with the clinical team, being trusted by other staff and having a good knowledge of local and national sight loss support services outside of the hospital setting. Further research could enhance our understanding of how much time and associated costs ECLOs substitute in the ophthalmology clinic.


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