Family Support in Early Hearing Detection and Intervention (EHDI) Systems

2012 ◽  
Vol 22 (1) ◽  
pp. 11-21
Author(s):  
Patti Martin ◽  
Nannette Nicholson ◽  
Charia Hall

Family support has evolved from a buzzword of the 1990s to a concept founded in theory, mandated by federal law, valued across disciplines, and espoused by both parents and professionals. This emphasis on family-centered practices for families of young children with disabilities, coupled with federal policy initiatives and technological advances, served as the impetus for the development of Early Hearing Detection and Intervention (EHDI) programs (Nicholson & Martin, in press). White, Forsman, Eichwald, and Muñoz (2010) provide an excellent review of the evolution of EHDI systems, which include family support as one of their 9 components. The National Center for Hearing Assessment and Management (NCHAM), the Maternal and Child Health Bureau, and the Center for Disease Control Centers cosponsored the first National EHDI Conference. This conference brought stakeholders including parents, practitioners, and researchers from diverse backgrounds together to form a learning collaborative (Forsman, 2002). Attendees represented a variety of state, national, and/or federal agencies and organizations. This forum focused effort on the development of EHDI programs infused with translating research into practices and policy. When NCHAM, recognizing the critical role of family support in the improvement of outcomes for both children and families, created a think tank to investigate the concept of a conference centered on support for families of children who are deaf or hard of hearing in 2005, the “Investing in Family Support” (IFSC) conference was born. This conference was specifically designed to facilitate and enhance EHDI efforts within the family support arena. From this venue, a model of family support was conceptualized and has served as the cornerstone of the IFSC annual conference since 2006. Designed to be a functional framework, the IFSC model delineates where and how families find support. In this article, we will promote and encourage continued efforts towards defining operational measures and program components to ultimately quantify success as it relates to improved outcomes for these children and their families. The authors view this opportunity to revisit the theoretical underpinnings of family support, the emerging research in this area, and the basics of the IFSC Model of Family Support as a call to action. We challenge professionals who work with children identified as deaf or hard of hearing to move family support from conceptualization to practices that are grounded in evidence and ever mindful of the unique and dynamic nature of individual families.

Author(s):  
Stuti Bhatnagar

The role of think tanks as policy actors has developed over time and created significant global scholarship. Widely understood as non-state policy actors, think tanks established either with or without the support of government have evolved in various political contexts with varied characteristics. They are avenues for the discussion of new policy ideas as well as used for the consolidation of existing understandings of global and national political issues. As ideational actors think tanks interact with policy frameworks at different levels, either in the framing stage or at the stage of consensus building towards certain policies. Intellectual elites at think tanks allow for the introduction of think tank ideas into the policy frames as well as the creation of public opinion towards foreign policy decisions. Think tank deliberations involve an interaction with policymakers, academic experts, business and social actors, as well as the media to disseminate ideas. Institutionally, think tanks in a wide variety of political contexts play a critical role in the making of foreign policy and bring closer attention to processes of state–society interactions in different political environments.


2020 ◽  
pp. 1-6
Author(s):  
Samuel Ojima Adejoh ◽  
Adetayo Olorunlana ◽  
Adeola Adejayan

Abstract Objective The objectives of this study are to describe patients’ experiences of family members’ reactions to diagnosis of breast cancer and investigate the role of family support in the management of breast cancer. Method The study used the descriptive qualitative method in data collection and analysis. Fifteen participants, who were undergoing either radiotherapy or chemotherapy treatment at a private hospital, consented and participated in the study. Data were content analyzed under two specific themes on family members’ reactions and family support received. Findings The findings show that some participants reported negative reactions of some family members, and this affected them negatively. While some participants received support from their families, others did not. Significance of findings The findings of our study show the critical role of family support in the management of breast cancer; therefore, family members should be encouraged to give breast cancer patient the necessary support to help them manage their sick role behavior since their illness has no cure.


Ból ◽  
2017 ◽  
Vol 18 (1) ◽  
pp. 15-27 ◽  
Author(s):  
Teodor Goroszeniuk ◽  
Andrzej Król

Peripheral nerve stimulation (PNS) is rapidly expanding area of neuromodulation with multiple new indications for chronic pain treatment and function improvement. Since the first percutaneous lead insertion in 1999, the proliferation of nonsurgical techniques with increasingly diverse stimulating targets has resulted that PNS is now a firmly established part of neuromodulation where the majority of new exciting developments are taking place. Non Invasive Peripheral External Stimulation plays an important part in the progress. It can offer a frequently less expensive alternative to the implantable techniques and it can be used outside specialised centers. Technological advances are allowing safer and more efficient uses of PNS with improved outcomes.


2004 ◽  
Vol 17 (3) ◽  
pp. 214-218 ◽  
Author(s):  
Desarom Teso ◽  
Jared C. Frattini ◽  
Alan Dardik

2017 ◽  
Vol 89 (2) ◽  
pp. 183-188
Author(s):  
Robert E. Belford ◽  
Jonathan E. Forman

AbstractIn May and June of 2016 the Organisation for the Prohibition of Chemical Weapons (OPCW), IUPAC and the ACS CHED Committee on Computers in Chemical Education (CCCE) collaboratively ran an online conference hosted with the online ConfChem conference system on “Science, Disarmament and Diplomacy in Chemical Education.”This ConfChem Online Conference was designed to highlight the work of the OPCW and the important contribution of scientists and educators to achieving its goals, the science that underpins the Chemical Weapons Convention, and how scientific and technological advances will help to better implement the Convention in the future.The OPCW is the implementing body for Chemical Weapons Convention, an international disarmament treaty banning chemical weapons. The organisation is now approaching the 20th anniversary of the entry into force of the Chemical Weapons Convention in 1997. Twenty years that have seen the destruction of more than 67 000 metric ton of the world’s declared military stockpiles of chemical weapons and a Nobel Peace Prize in 2013. With 192 States Parties (the governments that have agreed to uphold the norms and obligations required by the treaty), the Chemical Weapons Convention is the most widely subscribed disarmament treaty in history.Despite the aforementioned successes, the OPCW is not widely recognized outside disarmament-focused diplomatic circles. This is in spite of the fact that the science of chemistry played a critical role in informing the negotiations that lead to the signing of the Chemical Weapons Convention, and underpinning the articles of implementation. Science represents an important dimension in international disarmament policy and diplomacy, requiring that organizations like the OPCW interact with the scientific communities – especially in the field of chemistry. In order to achieve its goals in the future, the OPCW will need to reach out to new stakeholders and strengthen its ties with its existing partners. To this end, the OPCW has been placing increasing priority on education and engagement to raise awareness of its work and the contributions both from and to science in chemical disarmament.The objective of this internationally open access ConfChem online conference was to bring forth educational material that could usefully introduce chemistry educators and students to the nexus of science and multilateral diplomacy in chemical disarmament. To this end, we introduce the seven papers of the ConfChem and their authors. We hope you enjoy this collection of papers at the intersection of science and international disarmament policy. A collection that looks to stimulate interest in the role of scientists and educators, especially chemists in making the world a safer place.


Author(s):  
Les Nunn ◽  
Brian L. McGuire ◽  
Carrie Whitcomb ◽  
Eric Jost

<p class="MsoBodyText" style="line-height: normal; margin: 0in 0.6in 0pt 0.5in;"><span style="font-size: 10pt;"><span style="font-family: Times New Roman;">The public fraud scandals with companies like Enron and WorldCom, the Internet and other technological advances, and even the threat of terrorists have created a large demand for the skills and services provided by forensic accountants.<span style="mso-spacerun: yes;">&nbsp; </span>Forensic accountants are in high demand because they play a critical role in an investigation of suspected financial scandals and misappropriation of assets.<span style="mso-spacerun: yes;">&nbsp; </span>It is their job to bring independence and credibility to these investigations.</span></span></p>


2019 ◽  
Vol 9 (4) ◽  
pp. 20180089 ◽  
Author(s):  
Shayanti Mukherjee ◽  
Saeedeh Darzi ◽  
Kallyanashis Paul ◽  
Jerome A. Werkmeister ◽  
Caroline E. Gargett

An excessive foreign body response (FBR) has contributed to the adverse events associated with polypropylene mesh usage for augmenting pelvic organ prolapse surgery. Consequently, current biomaterial research considers the critical role of the FBR and now focuses on developing better biocompatible biomaterials rather than using inert implants to improve the clinical outcomes of their use. Tissue engineering approaches using mesenchymal stem cells (MSCs) have improved outcomes over traditional implants in other biological systems through their interaction with macrophages, the main cellular player in the FBR. The unique angiogenic, immunomodulatory and regenerative properties of MSCs have a direct impact on the FBR following biomaterial implantation. In this review, we focus on key aspects of the FBR to tissue-engineered MSC-based implants for supporting pelvic organs and beyond. We also discuss the immunomodulatory effects of the recently discovered endometrial MSCs on the macrophage response to new biomaterials designed for use in pelvic floor reconstructive surgery. We conclude with a focus on considerations in biomaterial design that take into account the FBR and will likely influence the development of the next generation of biomaterials for gynaecological applications.


2017 ◽  
Vol 22 (1) ◽  
pp. 5-32
Author(s):  
Elsa Hansen ◽  
Julie Ernst ◽  
Julia Washburn

Interpretation plays a critical role in fulfilling the mission of the National Park Service (NPS). This study used survey research to describe the interpretive accommodations currently provided to NPS visitors who are d/Deaf or hard of hearing (HoH). Results show that most park units have completed accessibility assessments and provide some form of interpretive accommodations for visitors who are d/Deaf or HoH. However, many park units perceived their unit was not sufficiently meeting the needs of visitors who are d/Deaf or HoH, and felt that their unit should be doing more. Perceived barriers to providing interpretive accommodations included budget and staffing constraints, lack of familiarity with possible services used by visitors who are d/Deaf or HoH, and limited knowledge of legal responsibilities or guidelines pertaining to visitors who are d/Deaf or HoH. Recommendations stemming from this study include the following: staff training; incorporation of the Principles of Universal Design; inclusion of individuals who are d/ Deaf or HoH in planning and evaluation of interpretive services; regular assessments for accessibility; personal and agency-level commitment toward equitable service; use of websites as source of information regarding interpretive accommodations; development of Standard Operating Procedures (SOPs) for accommodative services; creation of a collateral duty for general accessibility; and additional research regarding what services visitors who are d/Deaf or HoH would find most useful to prioritize limited time and budget.


2012 ◽  
Vol 22 (2) ◽  
pp. 57-67 ◽  
Author(s):  
Susan Wiley

Additional learning problems are common in children who are deaf or hard of hearing (HoH). This higher rate of additional disabilities beyond the general population may be related to the overlap of causes for hearing loss, such as prematurity, that also can impact child development. Delayed identification of atypical learning strategies impacts appropriate interventions for all of a child's needs and, furthermore, may impact communication strategies, thus negatively impacting language outcomes. In this article, I outline some red flags for additional disabilities in children who are deaf or HoH. I will present an algorithm for thinking systematically through causes of slow language progress in children who are deaf or HoH to guide professionals who work with children. I will stress strategies to identify expanded team members and collaborate towards improved outcomes for children with different learning needs.


Author(s):  
Jacqueline M. Chapman ◽  
Lisa A. Kelly ◽  
Amy K. Teffer ◽  
Kristina M. Miller ◽  
Steven J. Cooke

Surmounting evidence supports that infectious agents play a critical role in shaping fish physiology, behaviour, and survival. The exclusion of disease-causing agents from fisheries research has resulted in major knowledge gaps that may limit the predictive capacity of ecological models. A major barrier in wild fisheries epidemiology is the logistical constraints associated with observing disease and obtaining samples from free-ranging fish, restricting the vast majority of research to laboratory studies or aquaculture facilities. For fisheries ecologists, including infectious agents can provide greater insight into observed phenomena, particularly with respect to fish physiology (e.g. metabolism), movement (e.g. migration rates), behaviour (e.g. habitat selection), personality (e.g. bold vs. shy), and survival. Here we provide a brief introduction to the current understanding of disease ecology in wild fish and describe technological advances in both epidemiology and fisheries and aquatic sciences that can be used in tandem to create comprehensive studies of disease ecology in wild fishes. Combining non-lethal sampling and molecular genetic-based identification methods with field studies creates vast opportunities for innovative study designs that have the potential to address the true complexity of aquatic ecosystems.


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