scholarly journals Burden of Care: Management of Cleft Lip and Palate

2019 ◽  
Vol 52 (03) ◽  
pp. 343-348
Author(s):  
Jyotsna Murthy
Keyword(s):  
Care Management ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
World Health ◽  
Treatment Intervention ◽  
Interdisciplinary Care ◽  
Burden Of Care ◽  
Health Organization

AbstractBurden of care has become a commonly used terminology in healthcare in the recent years. Burden of care is the balance how much patients and families commit to their time, compromise quality of life, undergo multiple interventions, and take risks weighing against the benefits the patients and families receive. Cleft lip and palate, congenital anomaly, demands a long-term and interdisciplinary care. These children are at high risk of various treatment/intervention episodes increasing the burden of care. This subject has been widely discussed with many other diseases and health conditions at national, international meetings, and World Health Organization as well. We bring out some facts and practices affecting the burden of care in cleft lip and palate.

scholarly journals Psychometric validation of the Chinese version of the PaArticular Scales among elderly residents in long-term care facilities with joint contractures

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Yi-chang Chen ◽  
Keh-chung Lin ◽  
Chen-Jung Chen ◽  
Shu-Hui Yeh ◽  
Ay-Woan Pan ◽  
...  
Keyword(s):  
World Health Organization ◽  
Long Term Care ◽  
Chinese Version ◽  
World Health ◽  
Term Care ◽  
Joint Contractures ◽  
The World ◽  
Health Organization

Abstract Background Joint contractures, which affect activity, participation, and quality of life, are common complications of neurological conditions among elderly residents in long-term care facilities. This study examined the reliability and validity of the Chinese version of the PaArticular Scales in a population with joint contractures. Methods A cross-sectional study design was used. The sample included elderly residents older than 64 years with joint contractures in an important joint who had lived at one of 12 long-term care facilities in Taiwan for more than 6 months (N = 243). The Chinese version of the PaArticular Scales for joint contractures was generated from the English version through five stages: translation, review, back-translation, review by a panel of specialists, and a pretest. Test-retest reliability, internal consistency reliability, construct validity, and criterion validity were evaluated, and the results were compared with those for the World Health Organization Quality of Life scale and the World Health Organization Disability Assessment Schedule. Results The Chinese version of the PaArticular Scales had excellent reliability, with a Cronbach α coefficient of 0.975 (mean score, 28.98; standard deviation, 17.34). An exploratory factor analysis showed three factors and one factor with an eigenvalue > 1 that explained 75.176 and 62.83 % of the total variance in the Activity subscale and Participation subscale, respectively. The subscale-to-total scale correlation analysis showed Pearson correlation coefficients of 0.881 for the Activity subscale and 0.843 for the Participation subscale. Pearson’s product-moment correlation revealed that the correlation coefficient (r) between the Chinese version of the PaArticular Scales and the World Health Organization Disability Assessment Schedule was 0.770, whereas that for the World Health Organization Quality of Life scale was − 0.553; these values were interpreted as large coefficients. Conclusions The underlying theoretical model of the Chinese version of the PaArticular Scales functions well in Taiwan and has acceptable levels of reliability and validity. However, the Chinese version must be further tested for applicability and generalizability in future studies, preferably with a larger sample and in different clinical domains.

scholarly journals Developing WHO guidelines: Time to formally include evidence from mathematical modelling studies

F1000Research ◽  
2017 ◽  
Vol 6 ◽  
pp. 1584 ◽  
Author(s):  
Matthias Egger ◽  
Leigh Johnson ◽  
Christian Althaus ◽  
Anna Schöni ◽  
Georgia Salanti ◽  
...  
Keyword(s):  
Mathematical Modelling ◽  
The Body ◽  
World Health ◽  
Who Guidelines ◽  
Problem Model ◽  
Assessment Development ◽  
Modelling Studies ◽  
Health Organization

In recent years, the number of mathematical modelling studies has increased steeply. Many of the questions addressed in these studies are relevant to the development of World Health Organization (WHO) guidelines, but modelling studies are rarely formally included as part of the body of evidence. An expert consultation hosted by WHO, a survey of modellers and users of modelling studies, and literature reviews informed the development of recommendations on when and how to incorporate the results of modelling studies into WHO guidelines. In this article, we argue that modelling studies should routinely be considered in the process of developing WHO guidelines, but particularly in the evaluation of public health programmes, long-term effectiveness or comparative effectiveness.  There should be a systematic and transparent approach to identifying relevant published models, and to commissioning new models.  We believe that the inclusion of evidence from modelling studies into the Grading of Recommendations Assessment, Development and Evaluation (GRADE) process is possible and desirable, with relatively few adaptations.  No single “one-size-fits-all” approach is appropriate to assess the quality of modelling studies. The concept of the ‘credibility’ of the model, which takes the conceptualization of the problem, model structure, input data, different dimensions of uncertainty, as well as transparency and validation into account, is more appropriate than ‘risk of bias’.

scholarly journals COVID-19 pandemic. Effects of stress

2020 ◽  
Vol 1 (2) ◽  
pp. 16-24
Author(s):  
Elena S. Akarachkova ◽  
◽  
Anton A. Beliaev ◽  
Dmitrii V. Blinov ◽  
Evgenii V. Bugorskii ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Preventive Health Care ◽  
Preventive Health ◽  
World Health ◽  
Social Stability ◽  
Short Term ◽  
Health Organization

World Health Organization declared COVID-19 outbreak a pandemic on March 11, 2020. Fear of illness, self-isolation/quarantine, and reduced quality of life dramatically increased the prevalence of stress-related disorders in the population. Therefore, it is necessary to implement the preventive health-care measures aimed at short-term and long-term COVID-19 pandemic consequences reduction and promotion of social stability.

scholarly journals Correlation between quality of life and burden of family caregivers of infants with cleft lip and palate

2019 ◽  
Vol 53 ◽  
Author(s):  
Marli Luiz Beluci ◽  
Cleide Carolina da Silva Demoro Mondini ◽  
Armando dos Santos Trettene ◽  
Rosana Aparecida Spadoti Dantas
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Cleft Lip ◽  
Family Income ◽  
Cleft Lip And Palate ◽  
World Health ◽  
Cross Sectional ◽  
World Health Organization Quality ◽  
Environment Domain

ABSTRACT Objective: To evaluate the correlation between measures of quality of life and burden in family caregivers of infants with cleft lip and palate and to analyze possible associations between quality of life and sociodemographic variables. Method: Exploratory, cross-sectional study conducted in hospital specialized in the treatment of craniofacial anomalies, with caregivers who answered the following data collection instruments: sociodemographic characterization form, World Health Organization Quality of Life - BREF questionnaire and the Burden Interview Scale. The statistical analysis was conducted using the Pearson’s Correlation test, the Student’s t-test and the ANOVA test with a level of significance of 0.05. Results: 77 caregivers participated in the study. There was an inverse correlation between quality of life and burden in the Physical Health, Psychological, Social Relationships and Environment domains. There was a positive correlation between quality of life and family income in the Environment domain. Conclusion: The greater the burden on the caregiver, the lower was their perception of quality of life. Caregivers with higher family income and greater level of education presented a better perception quality of life in the Environment domain.

scholarly journals Measuring Industrial Health Using a Diminished Quality of Life Instrument

Safety ◽  
2018 ◽  
Vol 4 (4) ◽  
pp. 55 ◽  
Author(s):  
Zuzhen Ji ◽  
Dirk Pons ◽  
John Pearse
Keyword(s):  
Quality Of Life ◽  
Health And Safety ◽  
World Health ◽  
Workplace Health ◽  
Monitoring And Surveillance ◽  
Industrial Health ◽  
Health Organization ◽  
Protective Systems

Historically, the focus of industrial health and safety (H&S) has been on safety and accident avoidance with relatively less attention to long-term occupational health other than via health monitoring and surveillance. The difficulty is the multiple overlapping health consequences that are difficult to separate, measure, and attribute to a source. Furthermore, many health problems occur later, not immediately on exposure, and may be cumulative. Consequently, it is difficult to conclusively identify the cause. Workers may lack knowledge of long-term consequences, and thus not use protective systems effectively. Compounding this is the lack of instruments and methodologies to measure exposure to harm. Historically, the existing risk methodologies for calculating safety risk are based on the construct of consequence and likelihood. However, this may not be appropriate for health, especially for the long-term harm, as both the consequence and likelihood may be indeterminate. This paper develops an instrument to measure the health component of workplace H&S. This is achieved by adapting the established World Health Organization Disability Assessment Schedule (WHODAS) quality of life score to workplace health. Specifically, the method is to identify the likelihood of an exposure incident arising (as estimated by engineering technologists and H&S officers), followed by evaluation of the biological harm consequences. Those consequences are then scored by using the WHODAS 12-item inventory. The result is an assessment of the Diminished Quality of Life (DQL) associated with a workplace hazard. This may then be used to manage the minimization of harm, exposure monitoring, and the design of safe systems of work.

scholarly journals Developing WHO guidelines: Time to formally include evidence from mathematical modelling studies

F1000Research ◽  
2018 ◽  
Vol 6 ◽  
pp. 1584 ◽  
Author(s):  
Matthias Egger ◽  
Leigh Johnson ◽  
Christian Althaus ◽  
Anna Schöni ◽  
Georgia Salanti ◽  
...  
Keyword(s):  
Mathematical Modelling ◽  
The Body ◽  
World Health ◽  
Who Guidelines ◽  
Problem Model ◽  
Assessment Development ◽  
Modelling Studies ◽  
Health Organization

In recent years, the number of mathematical modelling studies has increased steeply. Many of the questions addressed in these studies are relevant to the development of World Health Organization (WHO) guidelines, but modelling studies are rarely formally included as part of the body of evidence. An expert consultation hosted by WHO, a survey of modellers and users of modelling studies, and literature reviews informed the development of recommendations on when and how to incorporate the results of modelling studies into WHO guidelines. In this article, we argue that modelling studies should routinely be considered in the process of developing WHO guidelines, but particularly in the evaluation of public health programmes, long-term effectiveness or comparative effectiveness.  There should be a systematic and transparent approach to identifying relevant published models, and to commissioning new models.  We believe that the inclusion of evidence from modelling studies into the Grading of Recommendations Assessment, Development and Evaluation (GRADE) process is possible and desirable, with relatively few adaptations.  No single “one-size-fits-all” approach is appropriate to assess the quality of modelling studies. The concept of the ‘credibility’ of the model, which takes the conceptualization of the problem, model structure, input data, different dimensions of uncertainty, as well as transparency and validation into account, is more appropriate than ‘risk of bias’.

scholarly journals Quality of life of individuals with cleft lip and palate pre- and post-surgical correction of dentofacial deformity

2016 ◽  
Vol 50 (2) ◽  
pp. 217-223 ◽  
Author(s):  
Marli Luiz Beluci ◽  
Katia Flores Genaro
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Surgical Correction ◽  
Wilcoxon Test ◽  
World Health ◽  
Dentofacial Deformity ◽  
The Impact

Abstract OBJECTIVE To assesses the quality of life and the impact of oral health conditions in the pre- and post-surgical correction of dentofacial deformity of individuals with cleft lip and palate. METHOD Quantitative and prospective study in a referral hospital in the period from June 2011 to May 2013. A total of 50 participants responded the questionnaires World Health Organization Quality of Life - Bref (WHOQOL-Bref) and Oral Health Impact Profile - 14 (OHIP-14), approximately 3 days before and 3 to 12 months after surgery. The "t" test for paired samples and Wilcoxon test were used for statistical analysis with a significance level of 5%. RESULTS After surgery, differences were found in the domains: Physical, Psychological, Environmental and General Questions of the WHOQOL-Bref and domains: Psychological Discomfort, Psychological Disability, Social Disability, Handicap and Overall Score of OHIP-14. CONCLUSION Surgical correction of dentofacial deformity improved quality of life and had positive impact of oral health condition.

The Prevalence of Caries in Children with a Cleft Lip and/or Palate in Southern Vietnam

2004 ◽  
Vol 41 (6) ◽  
pp. 629-632 ◽  
Author(s):  
Sjobbe Besseling ◽  
Leander Dubois
Keyword(s):  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
World Health ◽  
Age Group ◽  
Oral Cleft ◽  
Southern Vietnam ◽  
The World ◽  
Bilateral Cleft Lip ◽  
The Mean ◽  
Health Organization

Objective The aim of this study was to investigate the prevalence of caries in South Vietnamese children with a known oral cleft. Setting The children were screened at local dental hospitals in five different cities in southern Vietnam. Participants One hundred fifty-four children aged 4 to 6, 11 to 13, and 14 to 16 years old with a cleft lip, cleft palate, or both were included in the study. Outcome Measurements For every age group, clefts were divided in four types. The dmft/DMFT was specified according to criteria of the World Health Organization (1997). Results The mean number of teeth affected by caries was 9.95 for 4- to 6-year-old children, 2.97 for 11- to 13-year-old children, and 4.93 for 14- to 16-year-old children, respectively. Four- to 6-year-old children with a unilateral or bilateral cleft lip and palate had significantly more caries and a higher dmft (decayed, missing, and filled teeth index) than children of the same age with only a cleft lip or a cleft lip and alveolus. Conclusions Vietnamese children with an oral cleft have high numbers of teeth affected by dental caries, and special attention will be necessary for their oral health.

scholarly journals Psychometric validation of the Chinese version of the PaArticular Scales among elderly residents in long-term care facilities with joint contractures

2021 ◽  
Author(s):  
Yi-Chang Chen ◽  
Keh-Chung Lin ◽  
Shu-Hui Yeh ◽  
Ay-Woan Pan ◽  
Hao-Ling Chen ◽  
...  
Keyword(s):  
World Health Organization ◽  
Long Term Care ◽  
Chinese Version ◽  
World Health ◽  
Term Care ◽  
Joint Contractures ◽  
The World ◽  
Health Organization

Abstract Background: Joint contractures, which affect activity, participation, and quality of life, are common complications of neurological conditions among elderly residents in long-term care facilities. The aim of this study is to examine the reliability and validity of the Chinese version of the PaArticular Scales in a population with joint contractures. Methods: A cross-sectional study design was used. The sample included elderly residents older than 64 years with joint contractures in an important joint who had lived at one of 12 long-term care facilities in Taiwan for more than 6 months (N = 243). The Chinese version of the PaArticular Scales of joint contractures was generated in 5 stages: translation, review, back-translation, review by a panel of specialists, and a pretest. Test-retest reliability, internal consistency reliability, construct validity, and criterion validity were evaluated, and the results were compared with those for the World Health Organization Quality of Life scale and the World Health Organization Disability Assessment Schedule.Results: The Chinese version of the PaArticular Scales had excellent reliability with a Cronbach’s α coefficient of .975 (M = 28.98; SD = 17.34). An exploratory factor analysis showed 3 factors and 1 factor with an eigenvalue > 1 that explained 75.176% and 62.83% of the total variance in the Activity subscale and Participation subscale, respectively. The subscale-to-total scale correlation analysis showed a Pearson correlation coefficient of .881 for the Activity subscale and .843 for the Participation subscale. Pearson’s product-moment correlation revealed that the correlation coefficient (r) between the Chinese version of the PaArticular Scales and the World Health Organization Disability Assessment Schedule was .770, and that for the World Health Organization Quality of Life scale was -.553; these values were interpreted as large coefficients. Conclusions: The underlying theoretical model of the Chinese version of the PaArticular Scales functions well in Taiwan, and it has acceptable levels of reliability and validity. However, the Chinese version needs to be further tested for applicability and generalizability in future studies, preferably with a larger sample and in different clinical domains.Trial registration: Chinese Clinical Trial Registry, ChiCTR2000030413. Registered 1 March 2020, http://www.chictr.org.cn/usercenter.aspx

scholarly journals Weight Gain in Children with Cleft Lip and Palate without Use of Palatal Plates

2012 ◽  
Vol 2012 ◽  
pp. 1-4 ◽  
Author(s):  
Renato da Silva Freitas ◽  
Andrey Bernardo Lopes-Grego ◽  
Helena Luiza Douat Dietrich ◽  
Natacha Regina de Moraes Cerchiari ◽  
Tabatha Nakakogue ◽  
...  
Keyword(s):  
Weight Gain ◽  
Cleft Palate ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
World Health ◽  
First Year ◽  
Average Weight ◽  
Syndromic Diagnosis ◽  
Health Organization ◽  
First Year Of Life

Goals/Background. To evaluate children’s growth in the first year of life, who have cleft palate and lip, without the use of palatal plates. Materials/Method. Chart review was conducted, retrospectively, in the Center for Integral Assistance of Cleft Lip and Palate (CAIF), in Brazil, between 2008 and 2009. Results for both genders were compared to the data published by the World Health Organization (WHO) regarding average weight gain in children during their first year of life. Results. Patients with syndromic diagnosis and with cleft classified as preforamen were excluded, resulting in a final number of 112 patients: 56 male and 56 female. Similar patterns were seen comparing the two genders. Although it was observed weight gain below the average until the 11th month in male patients and until 9 months in female patients, both genders remained at the 50th percentile (p50) and improved after the 4th month of age for boys and the 9th month of age for girls. Conclusion. Children with cleft palate weigh less than regular children during their first months of life. At the end of the first year, weight gain is similar comparing normal and affected children. However, factors that optimized weight gain included choosing the best treatment for each case, proper guidance, and multiprofessional integrated care.

Sign in / Sign up

Export Citation Format

Share Document