scholarly journals Outpatient follow-up of high-risk babies at Lapa Specialized Rehabilitation Center (SRC)

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
I Stoever ◽  
A Alpius ◽  
C S Stoever ◽  
S E Dias ◽  
R S Soares

Abstract Background The Brazilian Ministry of Health has published, in 2012, the MS/GM Ordinance No. 793/12, establishing a Disability Care Network in order to extend access to people with temporary or permanent disabilities (progressive or stable, intermittent or continuous), to qualify the service care, to articulate and integrate the health services (from basic to specialized and hospital care) in such a way to guarantee an integrality care for these disabled people. The State and Municipal Health Departments of São Paulo have legitimized the guidelines with promotion, protection, prevention, monitoring, treatment and rehabilitation actions, providing, according to the principle of equity, greater emphasis on families with greater difficulty of access to health services due to issues of social vulnerability. Child health care is an essential task for health promotion, prevention of illness and identification of neuropsychomotor developmental delays by monitoring child development in the early years of life. As a consequence of low referral of high-risk babies to the Outpatient Care Plan established by SRC Lapa, the following consequences are expected: increase in children with physical, sensory, intellectual, social, emotional, speech and/or language disabilities. Objective To qualify the referral of high-risk babies to capacitate primary health care professionals (PHC) to identify them. Methods matrix support and permanent education meetings for PHC professionals in the Lapa region. Results After the proposed intervention, there was a significant increase in the number of at-risk infants referred to the outpatient clinic. Conclusions An integral and articulated care between the services of basic and specialized care of the Health Care Network made it possible to achieve greater functionality for children who presented some disability, thus allowing a future with more autonomy and social inclusion. Key message Prevention of diseases of at-risk babies an innovative technology in developing countries.

Rev Rene ◽  
2022 ◽  
Vol 23 ◽  
pp. e71313
Author(s):  
Tífani de Vargas Bueno ◽  
Andressa da Silveira ◽  
Alexa Pupiara Flores Coelho Centenaro ◽  
Fernanda Beheregaray Cabral ◽  
Marta Cocco da Costa

Objective: to understand the access to the care network for children and adolescents with special needs from the perspective of professionals. Methods: qualitative study carried out in an Association of Parents and Friends of Exceptional Children. The semi-structured interview was used,with representation through the cloud of words. Participated in the research 11 professionals who work in health care and special education. Results: from the professionals’ perspective, the access to the network of care for children and adolescents comes from the special care and education offered by the Association. The participants highlighted the difficulties of access of children and adolescents to health services and the diversity of activities used so that they can socialize, interact, and form bonds. Conclusion: the access of children and adolescents to the attention network occurs through the services of the Association, represented by the clinic for health care and the school for development and social inclusion.


2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
C S Cardoso ◽  
N R Baldoni ◽  
C F Melo ◽  
L O Rezende ◽  
K Noronha ◽  
...  

Abstract Background Health assessments are necessary for the (re) formulation of effective public policies and to guarantee the quality of care offered. This study aim to evaluate the perception of health professionals concerning the institutional capacity of the health system to care for Chronic Conditions (CC) after intervention in a medium-sized municipality in Minas Gerais, Brazil. Methods It is a panel study with evaluation before, during and after an intervention in the health system with a focus on three CC, i.e., i) diabetes; ii) hypertension; and iii) pregnant women. Health care professionals from primary and specialized care units were interviewed using the Assessment of Chronic Illness Care (ACIC) scale, which was applied in nine focal groups organized by health care unit. Results A total of 240 professionals participated of this evaluation, being 94, 63 and 82 participants in 2013, 2015 and 2018 respectively. The ACIC scores showed an positive evolution in the capacity of the health system to care for CC over the years. In the first wave the global score was 5.40 (basic capacity), while in the third wave the score was 9.38 (optimal capacity), with a significant increase in the scores (p < 0.01). Conclusions An important gain in the institutional capacity of the municipality was evidenced for the care of chronic conditions after intervention in the health system. Such an enhancement of the health system to operate in the CC might be sustainable over the time. Furthermore, its impact may directly reflect on the health indicators of the population. Key messages The results showed a strengthening of the local health system. These findings can subsidize other municipalities with a similar reality in the organization of the health care network and, consequently improve the care provided to chronic conditions.


Author(s):  
Chelsea Jones ◽  
Lorraine Smith-MacDonald ◽  
Suzette Brémault-Phillips

Lay Summary Canadian Armed Forces (CAF) Service Members (SMs) experience mild traumatic brain injuries (mTBI), which can affect cognitive functioning. Adequate cognitive functioning is needed to perform military duties safely and function in all aspects of life. A standardized process that includes cognitive screen/assessment within a mTBI rehabilitation strategy is not widely used within Canadian Forces Health Services (CFHS). A qualitative thematic analysis nested within an implementation science approach was used to explore the experiences of 17 CFHS health care professionals who perform cognitive screens/assessments. Perceived facilitators, barriers, and recommendations for improving cog-nitive assessment practices for injured CAF-SMs were identified within 5 themes. Development and implementation of cognitive screen/assessment policies and protocols will enable CFHS to best assess and treat cognitive dysfunction among CAF-SMs.


PEDIATRICS ◽  
1993 ◽  
Vol 91 (5) ◽  
pp. ii-ii

In June 1992, 35 health care professionals, child and disability advocates, researchers, clinicians, and parents met at Wingspread Center in Racine, Wisconsin, for an invitational conference on Culture and Chronic Illness in Childhood. The meeting had as its goal the identification of the state of knowledge on the interface between culture, chronic illness, child development, and family functioning so as to lay the foundations for "culturally appropriate" health policy formulation, "culturally sensitive" services, and "culturally competent" clinicians. The purpose of this special supplement is to establish a national agenda for research, policy, service delivery, and training in addressing the needs of all children with chronic illnesses and disabilities that takes the family, ethnicity, socioeconomic status, and culture into full account. To meet this task, five papers were commissioned. The first, by Newacheck et al, addresses the changes in incidence and prevalence of chronic illness and disability among children and youth by ethnic group. The second paper, by McManus et al, focuses on the trends in health services organization, delivery, and financing as they vary among ethnic groups in the United States. What emerges is a rhetoric of cultural sensitivity not paralleled in the organization or financing of health services. Groce and Zola's paper addresses how cultural attitudes and beliefs are the foundations of our perceptions about health and illness. Those perceptions at times are predisposed to conflict with a health care professional who, coming from a different culture, may hold different norms and beliefs. Brookins grounds her discussion within the context of child development and argues that for a child of color or one whose ethnic heritage is other than mainstream, the key to developmental success is bicultural competence—the ability to walk in and between two worlds.


2020 ◽  
Author(s):  
Martine W J Huygens ◽  
Helene R Voogdt-Pruis ◽  
Myrah Wouters ◽  
Maaike M Meurs ◽  
Britt van Lettow ◽  
...  

BACKGROUND Telemonitoring could offer solutions to the mounting challenges for health care and could improve patient self-management. Studies have addressed the benefits and challenges of telemonitoring for certain patient groups. OBJECTIVE This paper will examine the nationwide uptake of telemonitoring in chronic care in the Netherlands from 2014 to 2019 by means of an annual representative survey among patients and health care professionals. METHODS Between 2014 and 2019, approximately 2900 patients with chronic diseases, 700 nurses, and 500 general practitioners (GPs) and medical specialists received a questionnaire. About 30 questions addressed topics about the use of eHealth and experiences with it, including data about telemonitoring. RESULTS Between 2014 and 2019, the use of telemonitoring remained stable for all groups except medical specialists. In medical specialist departments, the use of telemonitoring increased from 11.2% (18/161) in 2014 to 19.6% (36/184) in 2019 (<i>χ</i><sup>2</sup><sub>4</sub>=12.3; <i>P</i>=.02). In 2019, telemonitoring was used by 5.8% (28/485) of people with chronic disease. This was 18.2% (41/225) in GP organizations and 40.4% (44/109), 38.0% (78/205), and 8.9% (29/325) in the organizations of nurses working in primary, secondary, and elderly care, respectively. Up to 10% of the targeted patient group such as diabetics were regarded by health care professionals as suitable for using telemonitoring. The main benefits mentioned by the patients were “comfort” (421/1043, 40.4%) and “living at home for longer/more comfortably” (334/1047, 31.9%). Health care professionals added “improvement of self-management” (63/176, 35.8% to 57/71, 80.3%), “better understanding of the patient’s condition” (47/176, 26.7% to 42/71, 59.2%), “reduction of workload” (53/134, 39.6% of nurses in elderly care), “better tailoring of care plan to the patient’s situation” (95/225, 42.2% of GPs), and “saves time for patients/caregivers” (61/176, 34.7% of medical specialists). Disadvantages mentioned by professionals were that “it takes time to monitor data” (13/130, 10% to 108/225, 48.0%), “it takes time to follow up alerts” (15/130, 11.5% to 117/225, 52.0%), and “it is difficult to estimate which patients can work with telemonitoring” (22/113, 19.5% to 94/225, 41.8%). CONCLUSIONS The uptake of telemonitoring in Dutch chronic care remained stable during 2014-2019 but increased among medical specialists. According to both patients and professionals, telemonitoring improves the quality of life and quality of care. Skills for suitably including eligible patients and for allocating the tasks of data monitoring and follow-up care within the team would help to further increase the use of telemonitoring.


Author(s):  
OJS Admin

The wrist and hand work related musculoskeletal (MSK) problems are very high in individuals performing prolonged hand task and repeated movements. The profession required manual dealing with additionally repetitive movement and hard work are at high risk of developing work related MSK problems.


PEDIATRICS ◽  
1980 ◽  
Vol 65 (4) ◽  
pp. 863-863
Author(s):  
Frank J. Volpe

Recently I received the pamphlet "Age 3 - Age 7" from the American Association of Orthodontists. It strikes me as a not-so-subtle marketing effort to increase the business of orthodontists. Could it be that pediatricians are being asked to do their marketing for them? At a time when health care professionals should be doing their utmost to decrease costs and unnecessary utilization of health services, this pamphlet encourages increased utilization of services of questionable worth.


Introduction 80 The cancer journey 82 Calendars 84 Diagnosis 86 Reactions to diagnosis and treatment 88 Living with cancer 90 Fear of recurrence 92 Recurrence and facing death 94 Survivorship 96 Government health policy in the UK aims to put the patient, or service user, at the heart of local health services. For this to happen, health care professionals must gain an appreciation of what it is like to be a person with cancer, or a carer of someone with cancer. It is hard to know or understand the experience of another person, but there are various ways that we can gain insights into their experience. This section reviews ways of understanding the experience of cancer, and then goes on to look at different aspects of that experience for individuals, using the words of people with cancer....


2019 ◽  
pp. 1-11 ◽  
Author(s):  
Janine Vetsch ◽  
Claire E. Wakefield ◽  
Emily Duve ◽  
Brittany C. McGill ◽  
Meera Warby ◽  
...  

PURPOSE Children with high-risk cancers have low survival rates because current treatment options are limited. Precision medicine trials are designed to offer patients individualized treatment recommendations, potentially improving their clinical outcomes. However, parents’ understanding is often limited, and expectations of benefit to their own child can be high. Health care professionals (HCPs) are often not familiar with precision medicine and might find managing families’ expectations challenging. Scientists find themselves working with high expectations among different stakeholders to rapidly translate their identification of actionable targets in real time. Therefore, we wanted to gain an in-depth understanding of the experiences of all stakeholders involved in a new precision medicine pilot trial called TARGET, including parents, their child’s HCPs, and the scientists who conducted the laboratory research and generated the data used to make treatment recommendations. METHODS We conducted semistructured interviews with all participants and analyzed the interviews thematically. RESULTS We interviewed 15 parents (9 mothers; 66.7% bereaved), 17 HCPs, and 16 scientists. We identified the following themes in parents’ interviews: minimal understanding and need for more information, hope as a driver of participation, challenges around biopsies, timing, and drug access, and few regrets. HCP and scientist interviews revealed themes such as embracing new technologies and collaborations and challenges managing families’ expectations, timing of testing and test results, and drug access. CONCLUSION Educating families, HCPs, and scientists to better understand the benefits and limitations of precision medicine trials may improve the transparency of the translation of discovery genomics to novel therapies, increase satisfaction with the child’s care, and ameliorate the additional long-term psychosocial burden for families already affected by high-risk childhood cancer.


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