scholarly journals Access to the care network by children and adolescents with special health needs

Rev Rene ◽  
2022 ◽  
Vol 23 ◽  
pp. e71313
Author(s):  
Tífani de Vargas Bueno ◽  
Andressa da Silveira ◽  
Alexa Pupiara Flores Coelho Centenaro ◽  
Fernanda Beheregaray Cabral ◽  
Marta Cocco da Costa

Objective: to understand the access to the care network for children and adolescents with special needs from the perspective of professionals. Methods: qualitative study carried out in an Association of Parents and Friends of Exceptional Children. The semi-structured interview was used,with representation through the cloud of words. Participated in the research 11 professionals who work in health care and special education. Results: from the professionals’ perspective, the access to the network of care for children and adolescents comes from the special care and education offered by the Association. The participants highlighted the difficulties of access of children and adolescents to health services and the diversity of activities used so that they can socialize, interact, and form bonds. Conclusion: the access of children and adolescents to the attention network occurs through the services of the Association, represented by the clinic for health care and the school for development and social inclusion.

2019 ◽  
Vol 72 (suppl 3) ◽  
pp. 65-71
Author(s):  
Eliane Tatsch Neves ◽  
Aline Cristiane Cavicchioli Okido ◽  
Fernanda Luisa Buboltz ◽  
Raíssa Passos dos Santos ◽  
Regina Aparecida Garcia de Lima

ABSTRACT Objective: To know how children with special health needs access the health care network. Method: This is a qualitative research of descriptive-exploratory type, developed using semi-structured interviews mediated by the Talking Map design. Participants were 19 family caregivers of these children in two Brazilian municipalities. Data were submitted to inductive thematic analysis. Results: Difficulties were mentioned from the diagnosis moment to the specialized follow-up, something represented by the itinerary of the c hild and his/her family in the search for the definition of the medical diagnosis and the access to a specialized professional; a gap between the children’s needs and the care offered was observed in primary health care. Conclusion: The access of children with special health needs is filled with obstacles such as slowness in the process of defining the child’s diagnosis and referral to a specialist. Primary health care services were replaced by care in emergency care units.


2020 ◽  
Vol 42 ◽  
pp. e51311
Author(s):  
Iven Giovanna Trindade Lino ◽  
Patrícia Chatalov Ferreira ◽  
Vanessa Carla Batista ◽  
Sonia Silva Marcon ◽  
Marcela de Oliveira Demitto ◽  
...  

To describe the family's experience in home care for children and adolescents with special health needs. Qualitative research supported by the theoretical framework of Patient- and Family-Centered Care, carried out in an Association that serves Children and Adolescents who need special health care in a municipality in the southern region of Brazil. Data were collected through semi-structured interviews with eight mothers of children and adolescents with special health care needs, which were recorded and transcribed verbatim, and subjected to content analysis in the thematic modality. Two categories were identified: Family reorganization to care for children with special health care needs at home; and Invisibility of the woman/mother. Caring for CSHCN at home imposes on families the need to reorganize themselves, so that the mother can dedicate herself, almost entirely, to this function, including neglecting health care. Despite this dedication, mothers do not recognize activities developed as difficult; however they make self-care invisible in relation to child care.


2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
I Stoever ◽  
A Alpius ◽  
C S Stoever ◽  
S E Dias ◽  
R S Soares

Abstract Background The Brazilian Ministry of Health has published, in 2012, the MS/GM Ordinance No. 793/12, establishing a Disability Care Network in order to extend access to people with temporary or permanent disabilities (progressive or stable, intermittent or continuous), to qualify the service care, to articulate and integrate the health services (from basic to specialized and hospital care) in such a way to guarantee an integrality care for these disabled people. The State and Municipal Health Departments of São Paulo have legitimized the guidelines with promotion, protection, prevention, monitoring, treatment and rehabilitation actions, providing, according to the principle of equity, greater emphasis on families with greater difficulty of access to health services due to issues of social vulnerability. Child health care is an essential task for health promotion, prevention of illness and identification of neuropsychomotor developmental delays by monitoring child development in the early years of life. As a consequence of low referral of high-risk babies to the Outpatient Care Plan established by SRC Lapa, the following consequences are expected: increase in children with physical, sensory, intellectual, social, emotional, speech and/or language disabilities. Objective To qualify the referral of high-risk babies to capacitate primary health care professionals (PHC) to identify them. Methods matrix support and permanent education meetings for PHC professionals in the Lapa region. Results After the proposed intervention, there was a significant increase in the number of at-risk infants referred to the outpatient clinic. Conclusions An integral and articulated care between the services of basic and specialized care of the Health Care Network made it possible to achieve greater functionality for children who presented some disability, thus allowing a future with more autonomy and social inclusion. Key message Prevention of diseases of at-risk babies an innovative technology in developing countries.


Author(s):  
Norlela Yacob ◽  
Wan Mohamad Nasir Wan Othman

The curriculum of the Bachelor of Dental Surgery in Faculty of Dentistry, USIM is based on the integration of naqli (revealed) and aqli (acquired) knowledge. It aspires its graduates to exhibit the values of balanced professionals in providing community oral health care by being technically competent, socially responsible, spiritually enlighted and professionally accountable. Their clinical supervisors are in an enviable position to assess them from these perspectives. The aim of this paper was to determine the supervisors’ perception on the performance of the graduates from the Faculty of Dentistry, USIM who were under their charge. It was a qualitative study on the performance of 100 graduates from the first three batches. A total of 21 supervisors spread across the country responded to an open-ended questionnaire on the qualities of USIM graduates under their supervision.  They may supervise more than one graduate. The perceptions of the supervisors were categorised into three major themes. They felt that the graduates were socially responsible in performing their functions with competence in the community oral health services They were seen to have good personal and leadership qualities. Their supervisors also perceived them to require further exposure, guidance and training as they were new to the service.  The results indicated that the Bachelor of Dental Surgery programme at USIM was able to instill the values of a balanced professional in dentistry among its graduates but these values need to be further enhanced in providing care in the community. These findings can provide the principles in curriculum development to enhanced the qualities of the graduates in the context of balanced professional.  


2020 ◽  
Author(s):  
N Gasteiger ◽  
Theresa Fleming ◽  
K Day

© 2020 The Authors Background: Patient portals have the potential to increase access to mental health services. However, a lack of research is available to guide practices on extending patient portals into mental health services. This study explored stakeholder (student service users' and health providers') expectations and perceptions of extending patient portals into a New Zealand university-based mental health service. Materials and methods: This qualitative study explored the perspectives of 17 students and staff members at a university-based health and counselling service on an Internet-based patient portal through a software demonstration, two focus groups and 13 interviews. Data were analyzed thematically. Results: Staff and students perceived the patient portal as useful, easy to use and expected it to help make mental health care more accessible. Staff were most concerned with the portal's ability to support their triage processes and that it might enable students to ‘counselor hop’ (see multiple counselors). Staff recommended extension into services that do not require triage. Most students expected the portal to enhance patient-counselor contact and rapport, through continuity of care. Students were concerned with appointment waiting times, the stigmatization of poor mental health and their capacity to seek help. They considered the portal might assist with this. Students recommended extension into all services, including urgent appointments. After viewing findings from initial student and staff groups, staff concluded that extending a patient portal into their counseling services should be prioritized. Conclusion: This research suggests that there is value in extending patient portals into mental health care, especially into low-risk services. Future research should explore opportunities to support triage and appointment-making processes for mental health services, via patient portals.


PEDIATRICS ◽  
1973 ◽  
Vol 52 (5) ◽  
pp. 756-756
Author(s):  
Daniel P. Kohen ◽  
Gerald Yost ◽  
Jerry Lyle

We applaud Dr. Edward Mortimer's Commentary on the health status of the American Indian population (Pediatrics, 51:1065, 1973). Public statements that "Indian health care is inadequate because it is inadequately funded" and ". . . less than the minimum (money) is provided" are long overdue, and we concur completely with the necessity for us all to help Indians express and fulfill their health needs. We wish, however, to take issue with several remarks regarding the quality and scope of care provided in and through the Indian Health Service.


2016 ◽  
Vol 22 (6) ◽  
pp. 523 ◽  
Author(s):  
Penelope Abbott ◽  
Parker Magin ◽  
Wendy Hu

When women come into prison, many have unmet health needs. In this study we examine the health care provided to women in prison and their identified health needs, and discuss opportunities for improved healthcare delivery. We undertook a medical record review of women released from a minimum 6-week period of incarceration in New South Wales correctional centres between May 2013 and January 2014. Records from 231 periods of incarceration were reviewed. At reception, 52% of women were identified as having anxiety or depression. Hearing health was not documented despite 30% of records being of women from an Aboriginal and Torres Strait Islander background, a high-risk group for whom hearing screening is recommended. Most women had multiple in-prison clinical contacts, including interactions with general and specialised nurses (97%), general practitioners (65%) and psychiatrists (35%). At release, 49% were on psychotropic medication and most required ongoing management for: mental health (71%), substance misuse (65%) and physical health (61%) problems. External specialist appointments were pending in 7% at release. Health management plans generated in prison were not always completed before release for reasons including custodial factors and waits for hospital-based appointments. Provision of effective health care in prison requires improved integration with community health services, including timely access to a wide range of health services while women are in prison, and continuity of care at release.


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