scholarly journals Experiences and Implications on Family Relationships for Grandmothers Raising Their Grandchildren

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 345-345
Author(s):  
Carol Musil ◽  
Elizabeth Tracy ◽  
Rashon Braxton ◽  
McKenzie Wallace ◽  
Alexandra Jeanblanc
Keyword(s):  
Family Relationships ◽  
Research Team ◽  
Family Members ◽  
Primary Caregivers ◽  
Grandparent Caregivers ◽  
Spousal Relationships ◽  
Need Support ◽  
The Impact ◽  
The U.S

Abstract In the U.S., over 2.7 million grandparents are primary caregivers to grandchildren. It is critical to understand the experiences of grandparent caregivers to design tailored, supportive programs. Our aim was to analyze written journals of 129 grandmothers with respect to the impact of raising grandchildren on relationships with family members. As part of a national RCT study of grandmother caregivers, participants completed daily journals for 4 weeks. Employing thematic data analysis, three members of the research team coded using NVIVO 12 Plus. The research team met regularly to compare and resolve discrepancies in coding. Percent agreement was > 80%. Relationships with the grandchild’s mother were characterized by anger/tension, resentment, and the realization that the mother was incapable of parenting while at the same time expressing worry/concern for her. Relationships with the grandchild’s father mirrored these dynamics while also depicting the father as a distant figure, inconsistent, and financially absent. Spousal relationships were marked by challenges faced by the spouse, their shared role/influence as a grandparent, and the quality of their time spent together. The other relationships described were often focused on their other adult children, as well as their own adult siblings. Grandmother caregivers expressed stress or strain and frustration within these relationships. Caregivers also verbalized gratitude for support from family members within the context of familial and financial stress. Grandmother caregivers may need support in managing familial relationships and stress within these relationships, which may be a target for future interventions.

scholarly journals Technology Makes the Heart Grow Fonder? A Test of Media Multiplexity Theory for Family Closeness

2021 ◽  
Vol 10 (1) ◽  
pp. 25
Author(s):  
Bhoj Balayar ◽  
Michael Langlais
Keyword(s):  
Undergraduate Students ◽  
Family Relationships ◽  
Online Survey ◽  
Family Members ◽  
Face To Face ◽  
Relationship Closeness ◽  
Media Multiplexity ◽  
Family Closeness ◽  
The Impact

Technology can be helpful for family relationships. Media multiplexity theory illustrates that the more technological connections (i.e., multimodality) an individual has with their family members, the stronger that relationship. Yet, this theory assumes that spending time face to face (FtF) is equitable to multimodality for relationship quality. The goal of this study is to examine the impact of online and offline interactions for the quality of family relationships. Data are from undergraduate students completing an online survey (N = 154). Results reveal that spending time FtF is better for the quality of relationships for one parent, but not the other. Although FtF was not significantly different for grandparent and sibling relationships, participants felt closer to siblings when they texted. Correlational analyses revealed that individuals scoring high in collectivism report that spending time FtF is associated with higher relationship closeness and love, particularly with parents, but not other family members. These results provide some evidence for the importance of spending quality time with family members, particularly for those who identify as collectivistic.

A systematic approach to analyse health-related quality of life in multiple sclerosis: the GEDMA study

2004 ◽  
Vol 10 (1) ◽  
pp. 47-54 ◽  
Author(s):  
J M Morales-Gonzáles ◽  
J Benito-León ◽  
J Rivera-Navarro ◽  
A J Mitchell ◽  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Family Relationships ◽  
Primary Caregivers ◽  
Health Related Quality ◽  
Specific Protocol ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Objective: To describe a holistic and comprehensive approach to the assessment of sufferer’s perceptio ns of health-related quality of life (HRQ oL) in a cohort of multiple sclerosis (MS) patients. Methods: The G EDMA (Grupo de Enfermedades Desmielinizantes de Madrid, in Spanish) study is an ongoing longitudinal survey using quantitative and qualitative methodologies. The baseline cohort consisted of a large sample of MS patients recruited from 13 hospitals in Madrid, Spain. Using a standardized protocol we collected data concerning the sociodemographic and health status characteristics of patients, as well as implementing a modified Spanish version of the Functio nal A ssessment of Multiple Sclerosis quality of life instrument. Primary caregivers were interviewed using a specific protocol combined with the Zarit Burden Interview. Results: The index cohort comprised 371 MS patients (68.7% female) of mean age 38.9 ± 0.9 years. A ge, sex and clinical form distribution were similar to other MS population-based surveys. There were 258 (69.5%) relapsing-remitting (RR) MS patients and 113 (30.5%) progressive MS patients. More than one-third of the married patients with progressive MS and almost a quarter of the RRMS patients separated or divorced following a diagnosis of MS; 71.3% of the progressive MS patients as well as 65.8% of the RRMS patients were unemployed as a consequence of the disease. Q ualitative analysis showed that friendship and family relationships and occupational status were the most significant dimensions influenced by MS. O n the other hand, the speech analysis of primary caregivers showed that emotional burden was related to patients’ physical disability. Furthermore, primary caregivers described the influence of MS on their own occupatio nal status, their nonacceptance of the disease, a perceptio n of a lack of support by other members of the family as well as a ‘selfish and intransigent’ attitude of the patients themselves. Conclusions: The analysis of the G EDMA cohort provides valuable information that helps clarify the impact of MS on patients’ HRQ oL.

scholarly journals EFFECT OF ADVERSE CHILDHOOD EXPERIENCES ON DAILY SUPPORT TO FAMILY AND EMOTIONAL WELL-BEING IN ADULTHOOD

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S235-S235
Author(s):  
Jooyoung Kong ◽  
Yin Liu ◽  
David Almeida
Keyword(s):  
Negative Affect ◽  
Family Relationships ◽  
Emotional Support ◽  
Adverse Childhood Experiences ◽  
Family Members ◽  
Well Being ◽  
National Study ◽  
Childhood Experiences ◽  
Adverse Childhood ◽  
The Impact

Abstract Extensive evidence suggests that adverse childhood experiences (ACEs) can lead to negative health effects across a lifetime. This study examines the impact of ACEs on the frequency of providing daily support (i.e., unpaid assistance, emotional support, and disability-related assistance) to family members and the moderating effects of ACEs in the association between providing daily support to family and daily negative affect. Using the National Study of Daily Experiences II, we analyzed a total of 14,912 daily interviews from 2,022 respondents aged 56 on average. Key results showed that a greater number of ACEs were associated with providing more frequent emotional support to family. We also found the significant interaction effect that adults with more ACEs showed greater negative affect on the days when they provided assistance to family members with disabilities. The findings underscore the long-term negative impact of ACEs on daily well-being in the context of family relationships.

scholarly journals Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
R. Shah ◽  
F. M. Ali ◽  
A. Y. Finlay ◽  
M. S. Salek
Keyword(s):  
Quality Of Life ◽  
Family Members ◽  
Unmet Need ◽  
Reliability And Validity ◽  
Chronic Health Condition ◽  
Family Quality Of Life ◽  
Good Reliability ◽  
Huge Impact ◽  
The Impact

Abstract Background A person’s chronic health condition or disability can have a huge impact on the quality of life (QoL) of the whole family, but this important impact is often ignored. This literature review aims to understand the impact of patients' disease on family members across all medical specialities, and appraise existing generic and disease-specific family quality of life (QoL) measures. Methods The databases Medline, EMBASE, CINHAL, ASSIA, PsycINFO and Scopus were searched for original articles in English measuring the impact of health conditions on patients' family members/partner using a valid instrument. Results Of 114 articles screened, 86 met the inclusion criteria. They explored the impact of a relative's disease on 14,661 family members, mostly 'parents' or 'mothers', using 50 different instruments across 18 specialities including neurology, oncology and dermatology, in 33 countries including the USA, China and Australia. These studies revealed a huge impact of patients' illness on family members. An appraisal of family QoL instruments identified 48 instruments, 42 disease/speciality specific and six generic measures. Five of the six generics are aimed at carers of children, people with disability or restricted to chronic disease. The only generic instrument that measures the impact of any condition on family members across all specialities is the Family Reported Outcome Measure (FROM-16). Although most instruments demonstrated good reliability and validity, only 11 reported responsiveness and only one reported the minimal clinically important difference. Conclusions Family members' QoL is greatly impacted by a relative's condition. To support family members, there is a need for a generic tool that offers flexibility and brevity for use in clinical settings across all areas of medicine. FROM-16 could be the tool of choice, provided its robustness is demonstrated with further validation of its psychometric properties.

scholarly journals ‘You see the empty bed which means it’s either a transplant or a death’: a qualitative study exploring the impact of death in the haemodialysis community

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e046537
Author(s):  
Sheera Sutherland ◽  
Kirsty E Durley ◽  
Kirsty Gillies ◽  
Margaret Glogowska ◽  
Daniel S Lasserson ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Clinical Setting ◽  
Support Services ◽  
Research Team ◽  
Central Importance ◽  
Semistructured Interviews ◽  
Age Range ◽  
The Impact ◽  
Community Patients

ObjectiveTo explore the impact of the death of a patient in the haemodialysis unit on fellow patients.MethodsWe interviewed patients on dialysis in a tertiary dialysis centre using semistructured interviews. We purposively sampled patients who had experienced the death of a fellow patient. After interviews were transcribed, they were thematically analysed by independent members of the research team using inductive analysis. Input from the team during analysis ensured the rigour and quality of the findings.Results10 participants completed the interviews (6 females and 4 males with an age range of 42–88 years). The four core themes that emerged from the interviews included: (1) patients’ relationship to haemodialysis, (2) how patients define the haemodialysis community, (3) patients’ views on death and bereavement and (4) patients’ expectations around death in the dialysis community. Patients noticed avoidance behaviour by staff in relation to discussing death in the unit and would prefer a culture of open acknowledgement.ConclusionStaff acknowledgement of death is of central importance to patients on haemodialysis who feel that the staff are part of their community. This should guide the development of appropriate bereavement support services and a framework that promotes the provision of guidance for staff and patients in this unique clinical setting. However, the authors acknowledge the homogenous sample recruited in a single setting may limit the transferability of the study. Further work is needed to understand diverse patient and nurse experiences and perceptions when sharing the knowledge of a patient’s death and how they react to loss.

scholarly journals Impact of Pediatric COVID-19 on Family Health-Related Quality of Life: A Qualitative Study from Latvia

2021 ◽  
Vol 8 ◽  
pp. 2333794X2110123
Author(s):  
Inese Stars ◽  
Liene Smane ◽  
Zanda Pucuka ◽  
Ieva Roge ◽  
Jana Pavare
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Family Relationships ◽  
Family Health ◽  
Support Network ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Information on family health-related quality of life (FHRQoL) among families of children with the coronavirus disease 2019 (COVID-19) is limited. This qualitative study explores the impact of pediatric COVID-19 on FHRQoL from the parents’ perspective. Semi-structured interviews were conducted with parents (n = 20) whose children had tested positive for the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). Inductive thematic analysis revealed the following 10 themes that represented parents’ perception of FHRQoL while taking care of a child with COVID-19: pediatric COVID-19 as a disease with many unknowns; emotional saturation; internal family relationships in the context of “a new experience”; routine household activities and daily regimen while family is in lockdown; plenty of free time; a wide social support network; social stigma associated with COVID-19; different options for work; savings and debts; challenges with family housing and transport availability. Our results show that parents experience multiple effects of pediatric COVID-19 with regard to FHRQoL.

scholarly journals Stigma and cystic fibrosis

2010 ◽  
Vol 18 (1) ◽  
pp. 139-142 ◽  
Author(s):  
Tainá Maues Peluci Pizzignacco ◽  
Débora Falleiros de Mello ◽  
Regina Aparecida Garcia de Lima
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Chronic Disease ◽  
Children And Adolescents ◽  
Treatment Adherence ◽  
Family Relationships ◽  
Life Histories ◽  
Autosomal Recessive ◽  
Family Members

Cystic Fibrosis (CF), also known as Mucoviscidosis, is a chronic disease of autosomal recessive origin and so far incurable. This analysis considers some characteristics of patients and family members that indicate it is a stigmatizing disease. The CF stigma’s impact on the lives of children and adolescents can affect treatment adherence, socialization, family relationships and the formation of their life histories, with direct consequences on their quality of life.

scholarly journals Crianças com incontinência urinária: impacto na convivência dos familiares

2018 ◽  
Vol 12 (7) ◽  
pp. 2061
Author(s):  
Ivanda Araújo Matias Issa de Oliveira ◽  
Cristiane Feitosa Salviano ◽  
Gisele Martins
Keyword(s):  
Urinary Incontinence ◽  
Family Members ◽  
Health Science ◽  
Related Family ◽  
Calidad De Vida ◽  
Family Routine ◽  
As Stress ◽  
The Impact

RESUMOObjetivo: Identificar fatores que impactam na convivência dos familiares de crianças com incontinência urinária. Método: Estudo bibliográfico, descritivo, tipo revisão integrativa, com busca de artigos no mês de setembro de 2017, nas bases de dados LILACS, BDENF, MEDLINE e CINAHL. Considerou-se o recorte temporal de janeiro de 2012 a dezembro de 2017, utilizando os Descritores em Ciência da Saúde (DeCS) controlados e não controlados no idioma inglês e português. Resultados: Foram incluídos 11 artigos, publicados entre 2012 e 2016, destacando-se três categorias: 1) O nível educacional dos pais como um fator de impacto; 2) O impacto na qualidade de vida dos familiares; e 3) As mudanças que impactam no cotidiano familiar. Conclusões: A incontinência urinária afeta a rotina familiar e pode provocar transtornos psicológicos como estresse, ansiedade e depressão nas crianças e em seus familiares. Houve escassez de produções que relacionassem a percepção do familiar ante a incontinência urinária diurna e fecal com o nível escolar dos pais. Evidencia-se o papel do enfermeiro que atua em uropediatria sobre a importância da compreensão da convivência familiar, a fim de contribuir com o delinear de orientações voltadas para a educação e compreensão das experiências vividas pelos cuidadores. Descritores: Incontinência Urinária; Família; Cuidadores; Crianças; Enurese; Incontinência Urinária por Estresse.ABSTRACTObjective: To identify factors that have an impact on the coexistence of family members of children with urinary incontinence. Method: Bibliographic, descriptive, integrative review type study with search of articles in September 2017, in LILACS, BDENF, MEDLIN, and CINAHL databases. We considered the temporal cut from January 2012 to December 2017, using controlled and uncontrolled Health Science Descriptors (DeCS) in English and Portuguese. Results: We included 11 articles, published between 2012 and 2016, highlighting three categories: 1) The educational level of parents as an impact factor; 2) The impact on the quality of life of family members; and 3) The changes that impact on daily family life. Conclusions: Urinary incontinence affects the family routine and can cause psychological disorders, such as stress, anxiety, and depression in children and their family members. There was a shortage of productions that related family members' perceptions of diurnal urinary incontinence and fecal incontinence to the parents' education level. The role of nurses working in pediatric urology was evident with respect to the importance of understanding family coexistence in order to contribute to the delineation of guidelines aimed at the education and understanding of caregivers' experiences. Descriptors: Urinary Incontinence; Family; Caregivers; Children; Enuresis; Urinary Incontinence Due to Stress.RESUMENObjetivo: Identificar factores que impactan en la convivencia de los familiares de niños con incontinencia urinaria. Método: Estudio bibliográfico, descriptivo, tipo revisión integradora, con búsqueda de artículos en el mes de septiembre de 2017, en las bases de datos LILACS, BDENF, MEDLINE y CINAHL. Fue considerado el recorte temporal de enero de 2012 a diciembre de 2017, utilizando los Descriptores en Ciencias de la Salud (DeCS) controlados y no controlados en idioma Inglés y portugués. Resultados: Se incluyeron 11 artículos publicados entre 2012 y 2016, destacándose tres categorías: 1) El nivel educativo de los padres como un factor de impacto; 2) El impacto en la calidad de vida de los familiares; y 3) Los cambios que impactan en el cotidiano familiar. Conclusiones: La incontinencia urinaria afecta la rutina familiar y puede provocar trastornos psicológicos como estrés, ansiedad y depresión en los niños y en sus familiares. Hubo escasez de producciones que relacionaran la percepción de los familiares ante la incontinencia urinaria diurna e incontinencia fecal con el nivel escolar de los padres. Se evidencia el papel del enfermero que actúa en urología pediátrica con respecto a la importancia de la comprensión de la convivencia familiar, a fin de contribuir con el delinear de orientaciones sobre la educación y comprensión de las experiencias vividas por los cuidadores. Descriptores: Incontinencia Urinaria; Familia; Cuidadores; Niños; Enuresis; Incontinencia Urinaria por Estrés.

Impact of Career Experiences on Health Outcomes Among Immigrants in the Midwest

2021 ◽  
pp. 101-123
Author(s):  
Caroline Kingori ◽  
Mohammad Rifat Haider ◽  
Seleshi Ayalew Asfaw ◽  
Senya Afi Ghamli
Keyword(s):  
Health Outcomes ◽  
High Growth ◽  
Immigrant Workers ◽  
Career Experiences ◽  
Skilled Immigrants ◽  
Playing Field ◽  
The Us ◽  
The Impact ◽  
The U.S

Immigrants in the US work in diverse professions and contribute to the economy. They play an important role in the economies in which they settle by complementing the skills lacking and create a level playing field for wages in the labor market. The U.S. Midwest has seen exceptionally high growth in immigrant populations in recent decades. While employment leads to a better quality of life when workers can afford basic necessities, immigrants encounter dire health challenges due to unemployment, underemployment, extreme working conditions, long work hours, and no paid leave. There is limited research examining the connection between career development experiences with the health of immigrant workers. This chapter examines the impact that employment circumstances have on skilled immigrants' health outcomes in the Midwest.

Sign in / Sign up

Export Citation Format

Share Document