Social Exclusion in Health and Social Services Offered to Minority Patients: Do Racialization and Racism Play Roles?

Abstract Cultural and ethnic differences stemming from migration are a source of social exclusion in old age. This topic is of concern in part because an increased migration flow coupled with growing anti-immigrants sentiments in much of the Western world can ignite social exclusion mechanisms even when unintended. Given these trends, we ask whether racism figures in research on ethno-cultural and racial older minorities. Thus, based on a scoping review of peer-reviewed articles published between 1998-2017 (n=336), this presentation asks if, and how, racialization and racism inform this research. In answering these questions, this presentation will argue that the role that racism plays as a social exclusion mechanism that affects older ethnic and racial minorities needs to be studied in a systematic fashion. Part of a symposium sponsored by the International Aging and Migration Interest Group.

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Strategies for involving patients and the public in scaling-up initiatives in health and social services: protocol for a scoping review and Delphi survey

Systematic Reviews ◽

10.1186/s13643-021-01597-6 ◽

2021 ◽

Vol 10 (1) ◽

Author(s):

Ali Ben Charif ◽

◽

Karine V. Plourde ◽

Sabrina Guay-Bélanger ◽

Hervé Tchala Vignon Zomahoun ◽

...

Keyword(s):

Social Services ◽

Scoping Review ◽

Delphi Study ◽

Public Involvement ◽

Scale Up ◽

Scaling Up ◽

Delphi Survey ◽

The Public ◽

Health And Social Services ◽

Scoping Reviews

Abstract Background The scale-up of evidence-based innovations is required to reduce waste and inequities in health and social services (HSS). However, it often tends to be a top-down process initiated by policy makers, and the values of the intended beneficiaries are forgotten. Involving multiple stakeholders including patients and the public in the scaling-up process is thus essential but highly complex. We propose to identify relevant strategies for meaningfully and equitably involving patients and the public in the science and practice of scaling up in HSS. Methods We will adapt our overall method from the RAND/UCLA Appropriateness Method. Following this, we will perform a two-prong study design (knowledge synthesis and Delphi study) grounded in an integrated knowledge translation approach. This approach involves extensive participation of a network of stakeholders interested in patient and public involvement (PPI) in scaling up and a multidisciplinary steering committee. We will conduct a systematic scoping review following the methodology recommended in the Joanna Briggs Institute Reviewers Manual. We will use the following eligibility criteria: (1) participants—any stakeholder involved in creating or testing a strategy for PPI; (2) intervention—any PPI strategy proposed for scaling-up initiatives; (3) comparator—no restriction; (4) outcomes: any process or outcome metrics related to PPI; and (5) setting—HSS. We will search electronic databases (e.g., Medline, Web of Science, Sociological Abstract) from inception onwards, hand search relevant websites, screen the reference lists of included records, and consult experts in the field. Two reviewers will independently select and extract eligible studies. We will summarize data quantitatively and qualitatively and report results using the PRISMA extension for Scoping Reviews (PRISMA-ScR) checklist. We will conduct an online Delphi survey to achieve consensus on the relevant strategies for PPI in scaling-up initiatives in HSS. Participants will include stakeholders from low-, middle-, and high-income countries. We anticipate that three rounds will allow an acceptable degree of agreement on research priorities. Discussion Our findings will advance understanding of how to meaningfully and equitably involve patients and the public in scaling-up initiatives for sustainable HSS. Systematic review registration We registered this protocol with the Open Science Framework on August 19, 2020 (https://osf.io/zqpx7/).

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Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: A scoping review

Dementia ◽

10.1177/14713012211053971 ◽

2021 ◽

pp. 147130122110539

Author(s):

Patricia Masterson-Algar ◽

Maria Cheshire Allen ◽

Martin Hyde ◽

Norah Keating ◽

Gill Windle

Keyword(s):

Quality Of Life ◽

Social Services ◽

Scoping Review ◽

Negative Impact ◽

Care Needs ◽

Health And Social Services ◽

People With Dementia ◽

Severity Of Dementia ◽

The Impact

This article reports on findings of a scoping review aimed to map the published literature concerning the impact of Covid-19 on the care and quality of life of people living with dementia and their carers. Twenty-nine articles were included in the review. Three overarching themes were identified: (1) Impact on people with dementia – unmet and increased care needs; (2) Impact on carers – increased stress and burden and (3) Impact according to demographics. Overall, findings show that Covid-19 has led to a reduction in support from health and social services and to a move towards technology-based support. Furthermore, Covid-19 has had a negative impact on the care and quality of life of people living with dementia and their carers, and that this impact was influenced by the severity of dementia.

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Strategies for involving patients and the public in scaling-up initiatives in health and social services: study protocol for a scoping review and Delphi survey

10.21203/rs.3.rs-63534/v2 ◽

2021 ◽

Author(s):

Ali Ben Charif ◽

Karine V. Plourde ◽

Sabrina Guay-Belanger ◽

Hervé Tchala Vignon Zomahoun ◽

Amédé Gogovor ◽

...

Keyword(s):

Social Services ◽

Scoping Review ◽

Delphi Study ◽

Public Involvement ◽

Scale Up ◽

Scaling Up ◽

Delphi Survey ◽

The Public ◽

Health And Social Services ◽

Scoping Reviews

Abstract Background: The scale-up of evidence-based innovations is required to reduce waste and inequities in health and social services (HSS). However, it often tends to be a top-down process initiated by policy-makers, and the values of the intended beneficiaries are forgotten. Involving multiple stakeholders including patients and the public in the scaling-up process is thus essential but highly complex. We propose to identify relevant strategies for meaningfully and equitably involving patients and the public in the science and practice of scaling up in HSS.Methods: We will adapt our overall method from the RAND/UCLA Appropriateness Method. Following this, we will perform a two-prong study design (knowledge synthesis and Delphi study) grounded in an integrated knowledge translation approach. This approach involves extensive participation of a network of stakeholders interested in patient and public involvement (PPI) in scaling up and a multidisciplinary steering committee. We will conduct a systematic scoping review following the methodology recommended in the Joanna Briggs Institute Reviewers Manual. We will use the following eligibility criteria: 1) Participants – any stakeholder involved in creating or testing a strategy for PPI; 2) Intervention – any PPI strategy proposed for scaling-up initiatives; 3) Comparator – no restriction; 4) Outcomes: any process or outcome metrics related to PPI; and 5) Setting – HSS. We will search electronic databases (e.g., Medline, Web of Science, Sociological Abstract) from inception onwards, hand searching relevant websites, screen the reference lists of included records, and consult experts in the field. Two reviewers will independently select and extract eligible studies. We will summarize data quantitatively and qualitatively and report results using the PRISMA extension for Scoping Reviews (PRISMA-ScR) checklist. We will conduct an online Delphi survey to achieve consensus on the relevant strategies for PPI in scaling-up initiatives in HSS. Participants will include stakeholders from low-, middle-, and high-income countries. We anticipate that three rounds will allow an acceptable degree of agreement on research priorities. Discussion: Our findings will advance understanding of how to meaningfully and equitably involve patients and the public in scaling-up initiatives for sustainable HSS.Registration: We registered this protocol with the Open Science Framework on August 19, 2020 (https://osf.io/zqpx7/).

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Aligning healthcare, public health and social services: A scoping review of the role of purpose, governance, finance and data

Health & Social Care in the Community ◽

10.1111/hsc.13374 ◽

2021 ◽

Author(s):

Daniel Lanford ◽

Aliza Petiwala ◽

Glenn Landers ◽

Karen Minyard

Keyword(s):

Public Health ◽

Social Services ◽

Scoping Review ◽

Health And Social Services

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Nationwide evidence that education disrupts the intergenerational transmission of disadvantage

Proceedings of the National Academy of Sciences ◽

10.1073/pnas.2103896118 ◽

2021 ◽

Vol 118 (31) ◽

pp. e2103896118

Author(s):

Signe Hald Andersen ◽

Leah S. Richmond-Rakerd ◽

Terrie E. Moffitt ◽

Avshalom Caspi

Keyword(s):

Social Services ◽

Family Background ◽

Later Life ◽

Poor Mental Health ◽

World Health ◽

Administrative Databases ◽

Western World ◽

Social Disparities ◽

Protective Services ◽

Health And Social Services

Despite overall improvements in health and living standards in the Western world, health and social disadvantages persist across generations. Using nationwide administrative databases linked for 2.1 million Danish citizens, we leveraged a three-generation approach to test whether multiple, different health and social disadvantages—poor physical health, poor mental health, social welfare dependency, criminal offending, and Child Protective Services involvement—were transmitted within families and whether education disrupted these statistical associations. Health and social disadvantages concentrated, aggregated, and accumulated within a small, high-need segment of families: Adults who relied disproportionately on multiple, different health and social services tended to have parents who relied disproportionately on multiple, different health and social services and tended to have children who evidenced risk for disadvantage at an early age, through appearance in protective services records. Intra- and intergenerational comparisons were consistent with the possibility that education disrupted this transmission. Within families, siblings who obtained more education were at a reduced risk for later-life disadvantage compared with their cosiblings who obtained less education, despite shared family background. Supporting the education potential of the most vulnerable citizens might mitigate the multigenerational transmission of multiple disadvantages and reduce health and social disparities.

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A Scoping Review of the Implementation of Local Health and Social Services for Older Adults

Healthcare Policy | Politiques de Santé ◽

10.12927/hcpol.2021.26654 ◽

2021 ◽

Vol 17 (2) ◽

pp. 105-118

Author(s):

Alexandra Ethier ◽

Annie Carrier

Keyword(s):

Older Adults ◽

Social Services ◽

Scoping Review ◽

Local Health ◽

Health And Social Services

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Protocol for a scoping review about ethics in transition programmes for adolescents and young adults with neurodisabilities

BMJ Open ◽

10.1136/bmjopen-2017-020914 ◽

2018 ◽

Vol 8 (8) ◽

pp. e020914 ◽

Cited By ~ 4

Author(s):

Aline Bogossian ◽

Jan Willem Gorter ◽

Eric Racine

Keyword(s):

Social Services ◽

Scoping Review ◽

Transitional Care ◽

Ethical Issues ◽

Empirical Studies ◽

Ethical Principles ◽

Plain Language ◽

Health And Social Services ◽

Analytic Process ◽

Point Of Departure

IntroductionAs adolescents with neurodisabilities near adulthood, they and their caregivers will face the challenge of transferring from paediatric to adult healthcare systems. Despite the growing number of programmes designed to support healthcare transitions, little is known about practices that result in positive outcomes or how ethical issues are addressed. The objective of this review is to identify and document the ethical principles that may be embedded in the vision of transitional care programmes and to map ethical issues encountered in transitional care as well as the strategies employed to recognise and address these ethical issues.Method and analysisWe will document hidden and explicit ethical principles and issues from empirical studies on transition programmes for youth with neurodisabilities. An initial framework developed through a content extraction strategy will serve as a point of departure for data analysis and will be iteratively refined through our analytic process and with feedback from our stakeholders, including youth with neurodisabilities and their families. Findings will then be shared in different formats with health and social services professionals, healthcare decision and policymakers.DisseminationScoping review results will be shared at key conferences and disseminated in peer-reviewed publications as well as plain language summaries with stakeholders and the general public. Opportunities will be sought to discuss this project and its preliminary findings with partners in the paediatric, adult healthcare and rehabilitation communities comprising young people with neurodisabilities, their families, clinicians, programme managers and researchers.

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Community-based support for children who are next-of-kin for a parent experiencing illness or disability – a scoping review

BMC Health Services Research ◽

10.1186/s12913-021-07270-x ◽

2021 ◽

Vol 21 (1) ◽

Author(s):

Anne Kjersti Myhrene Steffenak ◽

Agneta Anderzén-Carlsson ◽

Elin Opheim ◽

Tuva Sandsdalen

Keyword(s):

Community Health ◽

Social Services ◽

Peer Support ◽

Scoping Review ◽

Psychosocial Support ◽

Current Knowledge ◽

Research Question ◽

Community Health Services ◽

Next Of Kin ◽

Health And Social Services

Abstract Introduction Children who are next-of-kin, for a parent who experience illness or disability, need support. In Norway, guidelines, routines and structured approaches in the community health services are lacking regarding involving children in the care of a parent and for services when supporting children as next-of-kin. Additionally, no existing international review has focused on support from community health and social services for children who are next-of-kin to a parent regardless of the specific illness or disability. Aims This scoping review examined the current knowledge regarding the types of community health and social services support to children 0 to 17 years old living with a parent experiencing illness or disability. The review also identified children’s support preferences and needs. Methods The scoping review involved five stages; identifying research question; identifying relevant articles; selecting articles; charting the data and finally, collating, summarizing and reporting the results. Results Articles which included community health and social services interventions and children’s preferences or needs for support were included. The foci of interventions included preventive education, peer support, psychosocial support, and interventions focusing on family communication and recovery planning. Articles focusing on children’s preferences or need for support described their wish to be recognized as a next-of-kin, having someone to talk to and professional and peer support. Conclusion The review highlighted the importance of children receiving support according to their preferences. It is important to elicit children’s voices, to ensure community health and social services are developed for and tailored to this population.

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