scholarly journals Communication in Home Care: The Experiences of Formal Caregivers in Communicating with Persons Living with Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 899-899
Author(s):  
Pabiththa Kamalraj ◽  
Marie Savundranayagam ◽  
J B Orange ◽  
Marita Kloseck
Keyword(s):  
Home Care ◽  
Care Home ◽  
Personal Space ◽  
Phenomenological Approach ◽  
Structured Interviews ◽  
Term Care ◽  
Caregiver Support ◽  
Formal Caregivers ◽  
Personal Support ◽  
Hermeneutic Phenomenological

Abstract There is limited literature on formal caregivers’ communication with persons living with dementia (PLWD) in home settings. Most research comes from studies of long-term care home settings or informal home care contexts. Yet, there are expected needs and rising demands for formal caregiver support within home care. The aim of this study was to understand better the lived experiences of personal support workers (PSWs) regarding their communication with PLWD in home settings. A hermeneutic phenomenological approach guided this research. Semi-structured interviews were conducted with 15 PSW participants. Three major themes were identified through thematic analysis: (1) challenged by dementia-related impairments; (2) valuing communication in care; and (3) home is a personal space. PSWs experienced difficulties in their communication with PLWD despite recognizing the importance of communication in providing optimal home care. This suggests that while PSWs possess good intentions, they do not possess the skills necessary to ensure effective interactions. Dementia-specific education and training are recommended to improve PSWs’ communication skills and to enhance quality of care. Findings highlight further the uniqueness of the personal home space itself on PSWs experiences with communication. Aspects of the home care environment can enable, but also complicate, successful communication between PSWs and PLWD. Consequently, findings also have implications for family members of PLWD and home care employers regarding optimizing practice and improving care.

scholarly journals EMPOWERMENT AMONG FORMAL CAREGIVERS WORKING WITH PERSONS WITH DEMENTIA IN HOME CARE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S466-S467
Author(s):  
Heather A McIlveen ◽  
Marie Y Savundranayagam ◽  
J B Orange ◽  
Marita Kloseck
Keyword(s):  
Experiential Learning ◽  
Home Care ◽  
Phenomenological Approach ◽  
Self Determination ◽  
Structured Interviews ◽  
Term Care ◽  
Formal Caregivers ◽  
Personal Support ◽  
Employer Support ◽  
At Home

Abstract There is significant literature on workplace empowerment that focuses on individuals in positions of power rather than those who lack it. However, there is limited research on empowerment of home care workers, such as personal support workers (PSW) who work in dementia care. Empowerment is an active process based on a multifaceted model consisting of four components: meaning, self-determination, impact and competence. This study explored the roles of education and employer support in empowering PSWs to care for persons with dementia who live at home. Empowerment was investigated using semi-structured interviews with PSWs (N=15). A phenomenological approach was to understand the lived experiences of home-care based PSWs who work with persons with dementia. Components of empowerment were reflected through five emerging themes: “providing best care”, “autonomy”, “employer support”, “career long learning”, and “experiential learning”. The theme “providing best care possible” support the component of meaning, which included the motivation for training among PSWs and their value of aging in place. The theme “autonomy” supported the component of self-determination, which focused on PSW workload and feelings regarding their control working in home care versus long term care. The theme “employer support” supported the component impact, which included both PSW compensation and their perceived lack of emotional support. Finally, the themes “career-long learning” and “experiential learning”, were linked with impact and competence components, respectively. Overall, these findings support relationships between education and employer support in empowering PSWs who care for persons with dementia who live at home.

Dietetic Students’ Experiences: Providing Meal Assistance in Long-term Care Facilities

2013 ◽  
Vol 74 (2) ◽  
pp. 88-91 ◽  
Author(s):  
Nicole Osinga ◽  
Heather Keller
Keyword(s):  
Long Term Care ◽  
Care Home ◽  
Structured Interviews ◽  
Term Care ◽  
Face To Face ◽  
Qualitative Thematic Analysis ◽  
Care Facilities ◽  
Role Learning ◽  
Dietetic Students

Purpose: This qualitative study involved describing the experiences of dietetic students who provided meal help to older adults. Of interest were benefits and challenges, and how training could be enhanced. Methods: Individual, face-to-face, semi-structured interviews were conducted with nine undergraduate dietetic students. In the preceding year, these students had volunteered as meal helpers in a long-term care home. Interviews were digitally recorded and transcribed verbatim. Qualitative thematic analysis was used to analyze the transcripts. Results: All participating students were female and from one undergraduate program. Three main themes emerged: growing into the role, learning outside the classroom, and providing quality assistance. Conclusions: This study provides an understanding of how meal helping can be a valuable experience for emerging dietitians. It also gives insights into training and the development of the meal helper role.

scholarly journals Study of Physical, Psychological, and Spiritual Impact of Family Caregiver In Home-Based Stroke Treatment: A Systematic Review

2021 ◽  
Vol 9 (T4) ◽  
pp. 236-239
Author(s):  
Anggi Stiexs ◽  
Nur Chayati
Keyword(s):  
Systematic Review ◽  
Home Care ◽  
Family Caregiver ◽  
Care Home ◽  
Stroke Patients ◽  
Term Care ◽  
Stroke Treatment ◽  
Home Based ◽  
The Family ◽  
Home Based Care

BACKGROUND: Family support during stroke treatment at home is crucial. However, post-stroke patients’ long-term care will be a problem for families, reducing the level of life satisfaction and physical burden for caregivers. Furthermore, families may experience depression. AIM: Analyzing family conditions related to physical, psychological, and spiritual conditions that receive home-based health worker interventions. METHODS: Study implemented systematic review design with Prisma guidelines, initially with the identification of article sources, following by article screening, checking the eligibility of studies then appraised the selected articles. Three databases were used, Ebsco, PubMed, and PROQUEST. Only studies using quasi-experimental, pre-experimental, and RCT designs were included in this study. Furthermore, those articles were published between 2014 until 2019, full type article and conducted anykind of home intervention for stroke patients and/or family member. Keywords that were employed “Stroke, Apoplexy, Cerebrovascular Accident, Vascular Accident, Home Care Services, home care, Home Health Care, Domiciliary Care, Physical, Physics, Psychological Factors, Psychological Side Effects, Psychosocial Factors, Spirituality.” Totally, 19,528 articles were obtained. Finally, only six eligible articles met review requirements. RESULTS: Implementation of home-based care lowered the physical fatigue of the family. In psychological responses showed that home-based care could reduce the incidence of depression and anxiety levels. Another impact was that the family felt helped because patients could more independently do their activities. Furthermore, the family always supported to motivate the patients to do their daily tasks. CONCLUSION: Home-based interventions for stroke patients can reduce depression, anxiety, and fatigue for the family caregiver.

scholarly journals Costs of formal and informal care at home for people with dementia: ‘Expert panel’ opinions from staff and informal carers

Dementia ◽  
2016 ◽  
Vol 18 (1) ◽  
pp. 210-227 ◽  
Author(s):  
Clarissa M Giebel ◽  
Susan Davies ◽  
Paul Clarkson ◽  
Caroline Sutcliffe ◽  
David Challis ◽  
...  
Keyword(s):  
Home Care ◽  
Care Home ◽  
Nursing Home Admission ◽  
Term Care ◽  
Data Set ◽  
Home Support ◽  
People With Dementia ◽  
Individual Needs ◽  
Informal Carers ◽  
The Individual

Effective home support in dementia is key in delaying nursing home admission. However, home support is frequently not tailored to the individual needs of people with dementia. Staff allocating home support services may not identify important care needs, which only be recognised by informal carers. The purpose of this study was to explore the balance of informal and formal home support and their associated costs from the perspectives of both informal carers and paid staff. Five case vignettes of people with dementia were designed based on an existing English data set from a European study into transition into long-term care (the RightTimePlaceCare programme), representing 42 per cent of the English sample. In total, 14 informal carers and 14 paid staff were consulted in separate groups, as expert panels, regarding their recommendations for home care services for each vignette. Care recommendations of carers and staff were costed based on nationally available unit costs and compared. Informal carers allocated fewer hours of care than staff. Personal and domestic home care and day care centres were the most frequently recommended formal services by both groups, and some vignettes of people with dementia were recommended for care home admission. The ratio of costs of informal versus formal support was relatively equal for paid staff, yet unbalanced from the perspectives of informal carers with a greater proportion of formal care costs. Recommendations from this study can help shape dementia care to be more tailored to the individual needs of people with dementia and their carers.

Dementia families: Relinquishing home care to aged care services: Guilt, traumatic loss and growth

Dementia ◽  
2020 ◽  
pp. 147130122097078
Author(s):  
Bruce D Walmsley ◽  
Lynne McCormack
Keyword(s):  
Home Care ◽  
Family Member ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Study ◽  
Care Home ◽  
Family Members ◽  
Well Being ◽  
Aged Care ◽  
Structured Interviews ◽  
The Impact

Background and Objectives Few studies explore both negative and positive perspectives of family members who relinquish home care of a family member with dementia for systemic aged care. Research Design and Methods This phenomenological study sought the ‘lived’ experience of relinquishing the role of home carer for a family member with mild to severe dementia to others within care home settings, by seeking to understand the impact of aged care on family members’ psychological well-being. Using semi-structured interviews, positive and negative subjective interpretations from 17 families (27 individuals) provided data for analysis, following the protocols of interpretative phenomenological analysis. Results One superordinate theme, mistrust/integrity, overarched oscillation between mistrust of the aged care system and a struggle for personal integrity in caring for these participants. Two sub-themes emerged: intrinsic trauma and extrinsic trauma. Intrinsic trauma explained feelings of helplessness and guilt, and internally directed responses that triggered a retreat into submission ultimately reducing the participant’s role in advocacy. Extrinsic trauma represented externally directed responses such as anger and frustration, where family members became more engaged and watchful and recognised a need for vigilance and advocacy. Paradoxically oscillating between these personal struggles, participants exhibited growth, a third theme that defined assertive/advocacy utilised to nurture hope, gratitude, courage and change. Discussion and Implications Family members experienced complex distress as they relinquished home care to others within systemic aged care for a member with dementia. By developing adaptive responses as appropriate, for example, advocating for their family member or accepting compliance with treatment, collaborative care between family and staff created better outcomes for the family member with dementia.

scholarly journals Health service experiences and preferences of frail home care clients and their family and friend caregivers during the COVID-19 pandemic

2021 ◽  
Vol 14 (1) ◽  
Author(s):  
Lori E. Weeks ◽  
Sue Nesto ◽  
Bradley Hiebert ◽  
Grace Warner ◽  
Wendy Luciano ◽  
...  
Keyword(s):  
Older Adults ◽  
Home Care ◽  
Controlled Trial ◽  
Home Care Services ◽  
Term Care ◽  
Caregiver Support ◽  
Care Services ◽  
Focus On Results ◽  
Study Participants ◽  
Service Experiences

Abstract Objective The COVID-19 pandemic has brought about a major upheaval in the lives of older adults and their family/friend caregivers, including those utilizing home care services. In this article, we focus on results from a qualitative component added to a pragmatic randomized controlled trial that focuses on the experiences of our study participants during COVID-19. A total of 29 participants responded to the COVID-19 related questions focused on their health services experiences and preferences from March-June 2020 including 10 home care clients and 19 family/friend caregivers in the provinces of Ontario and Nova Scotia, Canada. Results Many participants were affected drastically by the elimination or reduction of access to services, highlighting the vulnerability of home care clients and their caregivers during COVID-19. This took an emotional toll on home care clients and increased the need for family/friend caregiver support. While many participants expressed reduced desire to utilize residential long-term care homes, some caregivers found that passive remote monitoring technology was particularly useful within the COVID-19 context. Our results provide important insights into the ways the older adults and their caregivers have been affected during the COVID-19 context and how to better support them in the future.

scholarly journals Sources of Resilience in Frontline Health Professionals during COVID-19

Healthcare ◽  
2021 ◽  
Vol 9 (12) ◽  
pp. 1699
Author(s):  
Lydia Brown ◽  
Simon Haines ◽  
Hermioni L. Amonoo ◽  
Cathy Jones ◽  
Jeffrey Woods ◽  
...  
Keyword(s):  
Health Professionals ◽  
Healthcare Workers ◽  
Well Being ◽  
Phenomenological Approach ◽  
Structured Interviews ◽  
Support Teams ◽  
Personal Support ◽  
Relational Resilience ◽  
Personal Resilience ◽  
Frontline Healthcare Workers

Background: While the challenges for psychological well-being for Australian healthcare workers have been documented, there has been a dearth of qualitative research on the sources of resilience that sustained workers during the COVID-19 pandemic. This study identified sources of resilience that clinicians used to cope with frontline challenges during the COVID-19 pandemic. Methods: Semi-structured interviews were conducted with 20 frontline health professionals, across five Australian hospitals, between October 2020 and April 2021. The interviews were recorded and transcribed, and the results were analysed using thematic analysis based on a phenomenological approach. Results: Three sources of resilience were identified by respondents: personal, relational, and organisational. A positive mindset, sense of purpose, and self-care behaviours emerged as key sources of personal resilience. Teamwork, altruism, and social support from family and friends contributed to relational resilience. Leadership, effective communication, and effective implementation of COVID-19 policies were associated with resilience at the organisational level. Frontline healthcare workers also voiced the need for the implementation of further strategies to support personal resilience whilst nurturing resilience within clinical teams and across entire healthcare organisations. Conclusions: Trust in healthcare systems, organisation leaders, colleagues, and personal support teams was an overarching theme supporting resilience.

scholarly journals Job Demands and Job Resources of Academics in Higher Education

2021 ◽  
Vol 12 ◽  
Author(s):  
Mineshree Naidoo-Chetty ◽  
Marieta du Plessis
Keyword(s):  
Higher Education ◽  
Academic Staff ◽  
Job Demands ◽  
Meaningful Work ◽  
Well Being ◽  
Phenomenological Approach ◽  
Job Resources ◽  
Limited Information ◽  
Structured Interviews ◽  
Personal Support

Too many job demands and not enough job resources can negatively influence the well-being of employees. Currently, limited information exists surrounding the job demands and resources as experienced by academic employees in the higher education sector. Therefore, the aim of this study was to identify the job demands and job resources experienced by academic employees using qualitative methods. Semi-structured interviews were conducted with 23 academic employees, using an Interpretative Phenomenological Approach. Thematic analysis, specifically template analysis was used to categorize the themes. Job demands were divided into three categories: quantitative (publication pressure, overburdened with the load, and competing time demands), qualitative (work/home balance, complexity of student support, organizational politics, and lack of mental health support) and organizational demands (using technology-mediated learning and lack of structural resources). Job resources were organized into two categories: organizational (social support) and personal resources (autonomy, meaningful work, and personal support). Participant experiences are highlighted to provide a better understanding of the job demands and job resources encountered. The framework of job demands and job resources gleaned from the study could be used for further research to manage and monitor motivational processes for academic staff, and to reduce strain due to high job demands.

scholarly journals Health Service Experiences and Preferences of Frail Home Care Clients and Their Family and Friend Caregivers During the COVID-19 Pandemic

2021 ◽  
Author(s):  
Lori E. Weeks ◽  
Sue Nesto ◽  
Bradley Hiebert ◽  
Grace Warner ◽  
Wendy Luciano ◽  
...  
Keyword(s):  
Older Adults ◽  
Home Care ◽  
Controlled Trial ◽  
Home Care Services ◽  
Term Care ◽  
Caregiver Support ◽  
Care Services ◽  
Focus On Results ◽  
Study Participants ◽  
Service Experiences

Abstract ObjectiveThe COVID-19 pandemic has brought about a major upheaval in the lives of older adults and their family/friend caregivers, including those utilizing home care services. In this article, we focus on results from a qualitative component added to a pragmatic randomized controlled trial that focuses on the experiences of our study participants during COVID-19. A total of 29 participants responded to the COVID-19 related questions focused on their health services experiences and preferences from March-June 2020 including 10 home care clients and 19 family/friend caregivers in the provinces of Ontario and Nova Scotia, Canada. ResultsMany participants were affected drastically by the elimination or reduction of access to services, highlighting the vulnerability of home care clients and their caregivers during COVID-19. This took an emotional toll on home care clients and increased the need for family/friend caregiver support. While many participants expressed reduced desire to utilize residential long-term care homes, some caregivers found that passive remote monitoring technology was particularly useful within the COVID-19 context. Our results provide important insights into the ways the older adults and their caregivers have been affected during the COVID-19 context and how to better support them in the future.

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