scholarly journals INTEREST GROUP SESSION—BEHAVIORAL INTERVENTIONS FOR OLDER ADULTS: ADDRESSING CLINICAL SYMPTOMS OF DEMENTIA: PRELIMINARY RESULTS FROM DEMENTIA BEHAVIOR TRIAL

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S182-S182
Author(s):  
Katherine A Marx ◽  
Laura N Gitlin ◽  
Joseph E Gaugler
Keyword(s):  
Family Caregiver ◽  
Behavioral Interventions ◽  
Clinical Symptoms ◽  
Psychological Symptoms ◽  
Functional Dependence ◽  
Community Setting ◽  
Control Group ◽  
People With Dementia ◽  
The Family ◽  
Managing Behaviors

Abstract Currently, just under six million people living in America are diagnosed with Alzheimer’s disease or related dementia. Most people with dementia live in a community setting and are cared for by a family member. Persons living with dementia almost universally experience behavioral and psychological symptoms (BPSD), such as agitation, aggression, and rejection of care as well as functional dependence. These symptoms are related to negative outcomes for both the person living with dementia and the family caregiver. Prior research shows that nonpharmacologic interventions such as meaningful activities, education, and multicomponent interventions have promise in managing behaviors. This symposium focuses on preliminary outcomes from the Dementia Behavior Study (DBS), a Randomized Control study that examined the effect of the Tailored Activity Program (TAP) in a community setting on BPSD and functional dependence in persons living with dementia, and caregiver wellbeing (e.g. depression, burden, perceived change). Gitlin et al will present outcomes of the primary aim (BPSD) and secondary aims (functional dependence and caregiver wellbeing) of the DBS. Pizzi et al explore the cost analysis of the TAP intervention versus the active control group. Scerpella et al describe the alerts and adverse events that were associated with the DBS. Marx et al present the relationship between race and caregiver readiness to participate in TAP. Regier et al explore the BPSD Rejection of Care and the association to caregiver burden. Tailoring interventions, such as activities may improve quality of life for both the person with dementia and the family caregiver.

Effectiveness of a Primary Care Program to Increase Physical Activity in People With Dementia and Their Family Caregivers (AFISDEMYF Study).

2021 ◽  
Author(s):  
Elena DE DIOS-RODRIGUEZ ◽  
María C PATINO-ALONSO ◽  
Susana GONZÁLEZ-SÁNCHEZ ◽  
Joana RIPOLL ◽  
Olaya TAMAYO-MORALES ◽  
...  
Keyword(s):  
Physical Activity ◽  
Blood Pressure ◽  
Primary Care ◽  
Systolic Blood Pressure ◽  
Family Caregivers ◽  
Intervention Group ◽  
Care Program ◽  
Control Group ◽  
People With Dementia ◽  
The Family

Abstract Aim: To evaluate the effectiveness of an intervention in primary health care designed to increase physical activity in people with dementia and their family caregivers.Methods: A cluster-randomized multicentre clinical trial was carried out.Participants: 140 people with dementia (median age 82 years;63.6% women) and 176 caregivers (median age 62 years ;72.7% women). Seventy patients and 80 caregivers were assigned to the Control Group (CG) and 70 patients and 96 caregivers to the Intervention Group (IG). The physical activity was measured with the pedometer and with the IPAQ-SF questionnaire. The intervention consisted of applying in primary care the program promoting physical activity (PEPAF) for 3 months. The changes observed at 6 months were analyzed. Results:In people with dementia, in the pedometer assessment a decrease was observed in both groups, but it was larger in the CG both in the total number step/day lower in the IG than in the CG and in the aerobic steps / day (52.89 vs -615.93). The activity reported with the IPAQ-SF decreased more in IG, both in the MET/min/week (-258.470 vs -148.23) and in the MVPA min/week. In caregivers the pedometer assessment showed that total steps/day increased more in the IG, as did aerobic steps/day (356.91 vs -12.95). The IPAQ-SF a smaller increase in global activity was declared in the IG than in the CG (545.25 MET/min/week vs 609.55), but the increase in vigorous activity was greater. No differences were found in changes in the functional status and the cognitive performances of people with dementia nor in the mental health in the caregivers, but systolic blood pressure, the Family APGAR and overload in the IG did improve.Conclusions: The results suggest that the intervention carried out may be effective on physical activity in both patients and caregivers. It can also improve systolic blood pressure, the Family APGAR and overload in caregivers. This is the first study to implement a primary care intervention aimed at simultaneously increasing physical activity in people with dementia and their relatives. These results reinforce the importance of using objective measures in clinical trials in people with dementia.Trial registration number: NCT 02044887.

scholarly journals Effect of a Music Therapy Intervention Using Gerdner and Colleagues’ Protocol for Caregivers and Elderly Patients with Dementia: A Single-Blind Randomized Controlled Study

2021 ◽  
Vol 11 (6) ◽  
pp. 455
Author(s):  
Guido Edoardo D’Aniello ◽  
Davide Maria Cammisuli ◽  
Alice Cattaneo ◽  
Gian Mauro Manzoni ◽  
Enrico Molinari ◽  
...  
Keyword(s):  
Music Therapy ◽  
Mixed Model ◽  
Psychological Symptoms ◽  
Controlled Study ◽  
Control Group ◽  
Penn State Worry Questionnaire ◽  
People With Dementia ◽  
Before And After ◽  
Penn State ◽  
State Worry

Music therapy (MT) is considered one of the complementary strategies to pharmacological treatment for behavioral and psychological symptoms (BPSD) of dementia. However, studies adopting MT protocols tailored for institutionalized people with dementia are limited and their usefulness for supporting caregivers is under investigated to date. Our study aimed at evaluating the effects of an MT intervention according to Gerdner and colleagues’ protocol in a sample of 60 elderly people with moderate-to-severe dementia of the Auxologico Institute (Milan, Italy) and associated caregivers, randomly assigned to an Experimental Group (EG) (n = 30) undergoing 30 min of MT two times a week for 8 weeks and to a Control Group (n = 30) (CG) receiving standard care. Before and after the intervention, residents-associated caregivers were administered the Caregiver Burden Inventory (CBI) and the Neuropsychiatric Inventory (NPI). Depression and worry were also assessed in caregivers prior to the intervention, by the Beck Depression Inventory-II and the Penn State Worry Questionnaire, respectively. A mixed model ANCOVA revealed a Time*Group effect (p = 0.006) with regard to CBI decreasing after the intervention for the EG and Time*Group effects (p = 0.001) with regard to NPI_frequencyXseverity and NPI_distress, with a greater effect for the EG than the CG. Implications for MT protocols implementations are discussed.

scholarly journals Psychoeducational Program for the Family Member Caregivers of People with Dementia to Reduce Perceived Burden and Increase Patient’s Quality of Life: A Randomized Controlled Trial

2021 ◽  
Vol 12 ◽  
pp. 215013272110140
Author(s):  
Nadia M. Tawfik ◽  
Noha A. Sabry ◽  
Hatem Darwish ◽  
Maha Mowafy ◽  
Saeed S.A. Soliman
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Controlled Trial ◽  
Control Group ◽  
Study Group ◽  
Psychoeducational Program ◽  
People With Dementia ◽  
Perceived Burden ◽  
The Family

Background: Dementia is one of the world’s greatest public health issues. Most people with dementia receive home care, and family members are vulnerable to feeling burdened and depressed that reinforces the need for caregiver-driven services to mitigate these negative effects. Objective: The purpose of this research was to evaluate the effect of the psychoeducational program on burden and quality of life of family caregivers for people with dementia. Methods: This randomized controlled trial (RCT) was conducted on 60 family caregivers. Participants were randomly assigned to receive either the 8-session psychoeducational program (study group) or routine care only (control group). The demographic data of the caregivers and their patients, the burden of caregivers using Zarit Burden Interview (ZBI), and the quality of life of the patients using Quality of Life in Alzheimer Disease (QoL-AD) questionnaire were measured before and after the psychoeducational program and compared between the study group and the control group. Results: The results revealed that 80% of the family caregivers were female and 42% were daughters. The mean ± SD of the baseline burden was 61 ± 13.7 and 60.9 ± 10 in the study and the control group, respectively. ZBI burden score in the study group demonstrated a significant drop after the psychoeducational program compared to the control group. Logistic regression analysis showed that caregivers who received the psychoeducational program have OR (95% CI) of 14 (3.1-67.8) compared to those who did not receive the psychoeducational program. Conclusions: Psychoeducational program is effective in reducing the family caregivers’ perceived burden. These findings need to be considered in developing comprehensive dementia care programs to well increase the strategies that help caregivers to deal with their patients.

scholarly journals Pelatihan Shalat Khusyuk Meningkatkan Kebahagiaan pada Family Caregiver Pasien Stroke

2020 ◽  
Vol 12 (2) ◽  
pp. 81-96
Author(s):  
Futyhat Nikmatul Millah ◽  
Qurotul Uyun ◽  
Rr. Indahria Sulistyarini
Keyword(s):  
Family Caregiver ◽  
Control Group ◽  
Control Group Design ◽  
Prayer Training ◽  
The Family ◽  
Measurement Tools ◽  
Post Test ◽  
The Subject ◽  
And Control

This research aims to observe the effectiveness of the devout prayer training to improve the happiness of the family caregiver of the patients with stroke. Eight caregivers of patients with stroke were involved in this research. The subject was divided into two groups: experimental group (n= 4) and control group (n = 4). The research design used was pretest-post test control group design measured by three times (pretest, post test, and follow-up within two weeks). The measurement tools used in this research was the scale of happiness by Seligman. The result of the research showed a significant improvement in the happiness score in the family caregiver of the patients with stroke after given the treatment in the form of the devout prayer training.

scholarly journals PENDIDIKAN KESEHATAN MENIGKATKAN KEMAMPUAN TUGAS PERAWATAN HIPERTENSI FAMILY CAREGIVER

2018 ◽  
pp. 254-262
Author(s):  
Riani Pradara Jati ◽  
Fery Agusman Mendrova ◽  
Rita Hadi Widyastuti
Keyword(s):  
Health Education ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Intervention Group ◽  
T Test ◽  
Control Group ◽  
P Value ◽  
Hypertension Treatment ◽  
The Family ◽  
Post Test

ABSTRAK Hipertensi  pada  lansia  merupakan  peningkatan  tekanan  darah  sistolik  diatas  140mmHg  dan tekanan diastolik 90mmHg atau lebih dan menduduki peringkat pertama masalah kesehatan. Perawatan hipertensi memerlukan peran aktif keluarga sebagi suatu sistem pendukung. Pemberian pendidikan kesehatan tentang teknik terapi relaksasi nafas dalam berguna untuk menurunkan stres sebagai dampak yang muncul dari hipertensi. Penelitian ini bertujuan untuk mengetahui pengaruh pendidikan kesehatan terhadap kemampuan tugas perawatan hipertensi family caregiver di Kelurahan Langenharjo Kabupaten Kendal. Desain penelitian yang digunakan adalah quasi experiment dengan desain pre and post-test with control group. Populasi penelitian adalah family caregiver di Kabupaten Kendal. Sampel diambil dengan teknik purposive sampling sejumlah 68 yang terbagi dalam kelompok intervensi (n=34) dan kelompok kontrol (n=34). Intervensi berupa pendidikan kesehatan tentang teknik terapi relaksasi nafas dalam diberikan pada kelompok intervensi. Data diambil melalui kuesioner dan dianalisa melalui uji sampel (paired t-test dan independentt-test). Hasil penelitian menunjukan setelah diberikan pendidikan kesehatan, kemampuan tugas perawatan family caregiver pada kelompok intervensi adalah 60,97 (SD 2,30), dan mengalami peningkatan sebesar 34% dari sebelum intervensi. Sementara pada kelompok kontrol, kemampuan tugas perawatan menunjukan nilai 46,14 (SD 2,94). Hasil analisis mendapatkan nilai p-value = 0,002 α=0,05, yang mengindikasikan adanya pengaruh pendidikan kesehatan terhadap kemampuan tugas perawatan hipertensi family caregiver. Berdasarkan hasil penelitian, direkomendasikan bagi tenaga kesehatan untuk melibatkan keluarga dalam mengatasi masalah kesehatan pasien melalui pendidikan kesehatan.   Kata kunci: Pendidikan kesehatan, hipertensi, stress, family caregiver       ABSTRACTHypertension in the elderly describes an increase in the systolic blood pressure of above 140 mmHg and the diastolic pressure of 90 mmHg or more and becomes the first ranked health problem. The treatment of hypertension requires an active participation of the family as a support system. The provision of health education about deep breathing relaxation therapy is useful for reducing stress as an impact arising from hypertension. This study aimed to determine the effects of health education on the ability to perform hypertension treatment among the family caregivers in Langenharjo urban-village in Kendal regency. This study employed a quasi-experimental design with pre and post-test with a control group The population was the family caregivers in Kendal. The samples were taken by using purposive sampling and involved 68 caregivers who were assigned to the intervention group (n = 34) and the control group (n = 34). An intervention of health education about deep breathing relaxation therapy was given to the intervention group. The data were collected through the questionnaires and analyzed by the paired t-test and the independent t-test. The results showed that after given the intervention, the ability to perform hypertension treatment among the family caregivers in the intervention group was 60.97 (SD 2.30), indicating an increase of 34% as before the intervention. Meanwhile, in the control group, the ability of the family caregivers demonstrated a value of 46.14 (SD 2.94). The result of the analysis obtained a p-value of 0.002, and α of 0.05, indicating the effects of health education on the ability of performing hypertension treatment among the family caregivers. Based on the findings, it is recommended that the healthcare providers involve the family to address the patient’ health problems through the health education programs.   Keywords: Health education, hypertension, stress, family caregivers

Self-Perceived Burden to Others: Patient and Family Caregiver Correlates

2007 ◽  
Vol 23 (3) ◽  
pp. 135-142 ◽  
Author(s):  
Christine J. Mcpherson ◽  
Keith G. Wilson ◽  
Michelle M. Lobchuk ◽  
Susan Brajtman
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Psychological Symptoms ◽  
Sense Of Self ◽  
Family Members ◽  
Physical Symptoms ◽  
Perceived Burden ◽  
The Family ◽  
Burden Scale

Aims To provide further evidence about the prevalence and correlates of the sense of “self-perceived burden” (SPB) to others, and to examine its association with caregiver reports of burden. Methods The participants were 65 patients with advanced cancer and their family caregivers. Patients completed measures of SPB and family members completed a caregiver burden scale. Results SPB was experienced at minimal to mild levels by 35% of patients, and at moderate to extreme levels by another 28%. It was correlated with some physical symptoms, but more frequently with psychological symptoms. The family members of patients who reported that SPB was a significant problem had higher scores on the caregiver burden scale than family members of other patients (p=0.048), although the overall correlation was modest. Conclusions SPB is a common and distressing concern for many patients receiving palliative care and is associated with a number of other distressing concerns.

Effectiveness of high-frequency individual reminiscence interventions using life story books on persons with dementia

2020 ◽  
pp. 030802262094593
Author(s):  
Tomoaki Asano ◽  
Chih-Wen Wang ◽  
Megumi Tsugaruya ◽  
Takashi Ishikawa
Keyword(s):  
Life Story ◽  
Psychological Symptoms ◽  
Control Group ◽  
Structured Interviews ◽  
Severe Dementia ◽  
Care Services ◽  
People With Dementia ◽  
Psychosocial Benefits ◽  
Experimental Group

Introduction Reminiscence therapy, using life story books, is a non-pharmacological treatment and helps promote psychosocial benefits in people with dementia. This research thus aimed to determine the effects of life story books among participants with dementia of different severities. Method The experimental group ( n = 36) underwent three semi-structured interviews over 10 weeks. After a 2-week life story books-production interval, the experimental group received the intervention over 4 weeks, five times weekly. The following 12 weeks were the follow-up period. The control group ( n = 30) underwent the first and last assessments, with a 6-month interval, while receiving their usual care services. Results Participants’ cognitive functioning was mostly maintained at follow-up in the experimental group, but significantly declined in the control group. The experimental group showed no significant change in cognition among participants with severe dementia during all periods, assessed using the behavioural and psychological symptoms of dementia, and the caregivers’ burden decreased significantly from before to after the intervention. Conclusion These results demonstrate that life story book interventions are an effective tool in improving the relationship between caregivers and people with dementia, and could help people with dementia maintain cognitive function, even those with severe dementia.

scholarly journals Association Between Family Caregiver Burden and Affiliate Stigma in the Families of People with Dementia

2020 ◽  
Vol 17 (8) ◽  
pp. 2772 ◽  
Author(s):  
Jian-An Su ◽  
Chih-Cheng Chang
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Affiliate Stigma ◽  
People With Dementia ◽  
The Family ◽  
Male Caregivers ◽  
Family Caregiver Burden

Family caregivers of people with dementia (PWD) have a heavy care burden. Affiliate stigma is the stigma internalized by individuals associated with PWD. Limited research has addressed the affiliate stigma among caregivers of PWD and its influence on caregiver burden. Thus, our study investigated the burden of caregivers of PWD and its relationship with affiliate stigma. In addition, we examined the factors related to affiliate stigma. This cross-sectional study was conducted in a general hospital in Taiwan. We recruited 270 PWD and their family caregivers from the outpatient department. Relevant demographic and clinical assessment data of the patients and caregivers were evaluated. Regression analysis was performed to examine the factors associated with affiliate stigma. In total, 23.7% of the family caregivers had depression and 37.4% had anxiety. Male caregivers had higher levels of anxiety and heavier care burdens related to affiliate stigma compared with female caregivers. Moreover, characteristics such as younger age and low levels of dependence in daily activities among PWD were associated with increased affiliate stigma. A higher family caregiver burden was related to more severe affiliate stigma. Interventions for decreasing the family caregiver burden might reduce the effect of affiliate stigma.

scholarly journals Effect of hormone replacement therapy on biochemical parameters in post-menopausal women

2017 ◽  
Vol 6 (10) ◽  
pp. 4631 ◽  
Author(s):  
Jayaprada Thigula
Keyword(s):  
Hormone Replacement Therapy ◽  
Lipid Profile ◽  
Replacement Therapy ◽  
Clinical Symptoms ◽  
Psychological Symptoms ◽  
Hormone Replacement ◽  
Control Group ◽  
Urine Examination ◽  
Health Complications ◽  
Post Menopausal

Background: In females, menopause is a loss of natural events that marks the end of the reproductive years. Menopause its associated complications can be managed by hormone replacement therapy (HRT). This study hypothesized to evaluate the effect of hormone replacement therapy on clinico biochemical levels in postmenopausal women.Methods: A total one hundred postmenopausal females were considered. Based on medication administered patients were divided in to five groups i.e. Premarin group, Ovral-L group, Evalon group, Transdermal E2 Gel group and Control group with oral calcium placebo therapy. A complete Haemogram, ECG, Urine examination, lipid profile were investigated.Results: Most common clinical symptoms is vasomotor/psychological (45% in all groups) related followed by urogenital/psychological symptoms (22% in all groups). The mean lipid lipoproteins before therapy, after 2 months and 6 months follow up showed significant change in all the groups.Conclusions: HRT can be a safe method to manage urogenital complication and vasomotor symptoms in postmenopausal women. It has a notable impact on the lipid profile and lipoproteins which helps to reduce the chances to get associated health complications.

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