scholarly journals A Seat at the Table: The Positioning of Families During Care Conferences in Nursing Homes

Author(s):  
Gloria Puurveen ◽  
Heather Cooke ◽  
Rupali Gill ◽  
Jennifer Baumbusch

AbstractBackground and ObjectivesCurrent nursing home policy emphasizes the need for collaborative, team-based care planning in which families and/or residents are actively involved. Resident care conferences are common where care providers, families, and/or residents discuss and coordinate resident care needs and evaluate care goals. This study critically examines the process, structure, and content of care conferences to expand our understanding of how resident care is negotiated among care providers and families in this context.Research Design and MethodsThis study was part of a larger critical ethnography examining the negotiation of care work among care providers, families, and residents in three purposively selected nursing homes in British Columbia, Canada. Thirty-seven care conferences were observed. Field notes and interview data were thematically analyzed with a focus on what was said, who said what and to whom, whose voice was privileged, and how power manifested between care providers, families, and/or residents.ResultsAs illustrated by three key themes, Exclusion by Process—Following Script, Exclusion by Content—Scripted Reports, and Exclusion through Devalued Knowledge, families were overtly and covertly excluded from contributing to the care conferences. As such, families’ presence did not guarantee open communication or active solicitation of their perspectives.Discussion and ImplicationsThe use of predetermined agendas and processes, clinically generic reporting, and technical jargon reproduced the structural inequality between care providers and families making collaboration difficult to effectively negotiate. For care conferences to meaningfully contribute to person-centered care, it is imperative that mutual exchange be promoted and families empowered to participate as equals.

2018 ◽  
Vol 32 (5) ◽  
pp. 342-351
Author(s):  
Panita Krongyuth ◽  
Pimpan Silpasuwan ◽  
Chukiat Viwatwongkasem ◽  
Cathy Campbell

Purpose The purpose of this paper is to explore the needs of people with cancer in advanced stages and to analyze factors that influence them. Design/methodology/approach A concurrent mixed-method design was used. Descriptive design was conducted in Ubon Ratchathani Province, Thailand. Data were collected from a convenience sample of patients with advanced cancer of any tissue or organ. Questionnaires were completed by 110 patients aged 60 years and above (response rate 110/130=84.6 percent). In-depth interviews were conducted with a total of eight patients. Content analysis of semi-structured interviews of a sub-sample was subsequently performed to better understand the real needs of patients with advanced stages of cancer at home setting. Findings The majority (77.5 percent) reported a preference to spend their final days at home. The four most common palliative care needs were more information about disease and medical treatment (98.2 percent), more treatment for pain (97.3 percent), health education for family caregivers (95.5 percent) and health volunteers visit at home (95.5 percent). Content analysis of the qualitative data suggested that patient needs health care providers to deliver open communication, pain management and provide psychosocial supports. Originality/value The result showed that patients-related variables are associated with the palliative care needs in patients with advanced stages of cancer. Communication skills and pain management are the key components to support the need for palliative care at home and to benefit the quality of life in terminally ill patients.


2020 ◽  
Vol 60 (8) ◽  
pp. 1504-1514
Author(s):  
Heather J Campbell-Enns ◽  
Megan Campbell ◽  
Kendra L Rieger ◽  
Genevieve N Thompson ◽  
Malcolm B Doupe

Abstract Background and Objectives Nursing homes are intended for older adults with the highest care needs. However, approximately 12% of all nursing home residents have similar care needs as older adults who live in the community and the reasons they are admitted to nursing homes is largely unstudied. The purpose of this study was to explore the reasons why lower-care nursing home residents are living in nursing homes. Research Design and Methods A qualitative interpretive description methodology was used to gather and analyze data describing lower-care nursing home resident and family member perspectives regarding factors influencing nursing home admission, including the facilitators and barriers to living in a community setting. Data were collected via semistructured interviews and field notes. Data were coded and sorted, and patterns were identified. This resulted in themes describing this experience. Results The main problem experienced by lower-care residents was living alone in the community. Residents and family members used many strategies to avoid safety crises in the community but experienced multiple care breakdowns in both community and health care settings. Nursing home admission was a strategy used to avoid a crisis when residents did not receive the needed support to remain in the community. Discussion and Implications To successfully remain in the community, older adults require specialized supports targeting mental health and substance use needs, as well as enhanced hospital discharge plans and improved information about community-based care options. Implications involve reforming policies and practices in both hospital and community-based care settings.


2021 ◽  
pp. 073346482110236
Author(s):  
Kallol Kumar Bhattacharyya ◽  
Jennifer Craft Morgan ◽  
Elisabeth O. Burgess

A person-centered approach to care shifts the mind-set of care partners from a traditional medical model to a social model in managing chronic conditions. Using a qualitative descriptive approach, this study examines the barriers and facilitators to the implementation of person-centered care (PCC) and how the integration of complementary and alternative approaches (CAA) has the potential to improve residents’ quality of life in nursing homes (NHs). Findings indicate that NHs offer a wide range of engagement activities, but these activities are not purposefully integrated into a person-centered plan of care. Factors such as turnover, “working short,” supervisor support, and rising resident care needs make it challenging to implement PCC in NHs. This knowledge of the landscape of activities will help us identify and improve strategies for supporting residents at a deeper, more meaningful level. CAA has the potential to be therapeutic for residents if integrated into collaborative approaches to care.


2021 ◽  
Author(s):  
Kornelia Basinska ◽  
Patrizia Künzler-Heule ◽  
Raphaëlle Ashley Guerbaai ◽  
Franziska Zúñiga ◽  
Michael Simon ◽  
...  

Abstract Background and Objectives As new models of care aiming to reduce hospitalizations from nursing homes emerge, their implementers must consider residents’ and relatives’ needs and experiences with acute changes in the residents’ health situations. As part of the larger INTERCARE implementation study, we explored these persons’ experiences of acute situations in Swiss nursing homes. Research Design and Methods 3 focus groups were conducted with residents and their relatives and analyzed via reflexive thematic analysis. Results The first theme, the orchestra plays its standards, describes experiences of structured everyday care in nursing homes, which functions well despite limited professional and competency resources. The second theme, the orchestra reaches its limits, illustrates accounts of acute situations in which resources were insufficient to meet residents’ needs. Interestingly, participants’ perceptions of acute situations went well beyond our own professional view, that is, changes in health situations, and included situations best summarized as “changes that might have negative consequences for residents if not handled adequately by care workers.” Within the third theme, the audience compensates for the orchestra’s limitations, participants’ strategies to cope with resource limitations in acute situations are summarized. Discussion and Implications Our findings suggest differences between care providers’ and participants’ perspectives regarding acute situations and care priority setting. Alongside efforts to promote staff awareness of and responsiveness to acute situations, care staff must commit to learning and meeting individual residents’ and relatives’ needs. Implications for the development and implementation of a new nurse-led model of care are discussed.


2020 ◽  
Vol 25 (Supplement_2) ◽  
pp. e17-e17
Author(s):  
Denise Clarke ◽  
Matt Hicks ◽  
Karen Foss ◽  
Natasha Lifeso

Abstract Introduction/Background Neonatal Abstinence Syndrome (NAS) occurs in newborns exposed to drugs in-utero. In Canada, maternal opiate use in pregnancy has been steadily rising resulting in as many as 1850 babies born with NAS per year. Management of babies born with NAS requires supportive, interdisciplinary care. Depending on the severity of NAS, babies may be cared for with non-pharmacological interventions or some may need to be admitted to the Neonatal Intensive Care Unit for extended hospital stays to receive medication and management of ongoing complex health care needs. Hospital and community health care providers have expressed concerns around the continuity of care for these babies in their stay in hospital and their transition to home. Objectives This study examined the experiences of hospital and community-based health care providers and families regarding the management of babies with NAS. The driving force behind our inquiry related to our interest in streamlining care for these babies in highly complex health and social systems. Design/Methods In total, 47 interdisciplinary participants were interviewed over a four-month period with individuals from Women’s and Child Health, Community, and family members. Interviewed transcripts were reviewed over several months and were completed in December 2019 using an inductive thematic analysis which culminated in the identification of an overarching theme linked with primary themes. ​ Results The study identified existing gaps in the management of these patients, determined how to improve communication between hospital and community networks, and provided a better understanding of the attitudes, perceptions and experiences of hospital and community personnel. The overarching theme identified was hope, with the primary themes being: system, mental health, mother/baby, judgement, and knowledge (see Figure 1). Several gaps identified in the system included fear, stigma, and language. Certain solutions proposed for improvement included focused care in a rooming in model for the mother and baby dyad, supporting mothers’ well-being, involving mothers and families, and supporting care providers in a family centered care model. In Figure 1, green lines indicate themes that are linked with and support hope, and red lines indicate themes that are barriers to hope. Conclusion This research demonstrates that programs and interventions implemented when working with mothers and babies with NAS must foster hope in mothers, families, and in the extended care provider team.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S73-S73
Author(s):  
Linda J Hoek ◽  
Hilde Verbeek ◽  
Erica De Vries ◽  
Jolanda C Van Haastregt ◽  
Ramona Backhaus ◽  
...  

Abstract People with dementia in nursing homes need their social environment in supporting their autonomy. This study explored how this relational autonomy is supported by staff for residents with dementia during morning care in nursing homes. Structured observations (n=1815) were carried out to assess how resident choice is supported within staff-resident interaction. Observation of morning care consisted of four main categories: ‘getting up’, ‘physical care’, ‘physical appearance’ and ‘breakfast’. In addition, qualitative field notes were taken to support observations. In total, 55 residents with dementia were included from eight nursing home wards in The Netherlands. Results indicated that resident autonomy during morning care was only limitedly supported. Individual staff members took over tasks, regardless of resident’s individual capabilities to make a choice. Staff controlled resident’s choice for almost all observed categories. The findings of this study implicate that person-centered care during morning routine can be improved by addressing individual needs


1970 ◽  
Vol 5 (2) ◽  
Author(s):  
Sri Hendrawati ◽  
Sari Fatimah ◽  
Siti Yuyun Rahayu Fitri ◽  
Ikeu Nurhidayah

Sistem perawatan bayi di NICU memberikan dampak negatif bagi bayi dan orang tua. Upaya yang dapat dikembangkan untuk meminimalkan dampak tersebut yaitu dengan mengaplikasikan family centered care (FCC). Langkah pertama upaya tersebut adalah mengidentifikasi kebutuhan orang tua. Dalam penelitian sebelumnya, kebutuhan orang tua sangat bervariasi. Penelitian bertujuan mengidentifikasi kebutuhan FCC dalam perawatan bayi sakit kritis di NICU. Metode penelitian menggunakan mixed method dengan strategi eksplanatoris sekuensial. Penelitian kuantitatif dilakukan terhadap 45 responden dan menggunakan kuesioner NICU Family Need Inventory. Analisis data dilakukan dengan mean. Penelitian kualitatif dilakukan terhadap 7 partisipan dengan menggunakan pedoman wawancara. Analisis data menerapkan teknik content analysis. Penelitian dilaksanakan di NICU Rumah Sakit Pemerintah Wilayah Bandung Raya. Orang tua memiliki urutan prioritas kebutuhan terhadap kepastian (M = 3,90), informasi (M = 3,82), kedekatan (M = 3,76), dukungan (M = 3,49), dan kenyamanan (M = 3,37). Pada penelitian kualitatif didapatkan, orang tua lebih membutuhkan kepastian terkait jaminan bayinya mendapatkan perawatan terbaik; kebutuhan terhadap informasi jujur, jelas, dan rutin mengenai kondisi, perkembangan, dan tindakan yang dilakukan terhadap bayi; dan kebutuhan terhadap kedekatan untuk selalu dekat dan melakukan kontak dengan bayi. Kebutuhan orang tua lebih berfokus pada kesejahteraan bayi. Dalam melakukan asuhan keperawatan, selain meningkatkan pelayanan terhadap bayi, perawat harus memerhatikan kebutuhan orang tua terkait jaminan kepastian bayinya mendapatkan perawatan terbaik, penyampaian informasi dengan komunikasi terbuka, dan menjalin kontak dengan bayi. Dengan mengidentifikasi kebutuhan orang tua, dapat menuntun perawat mengintegrasikan kebutuhan orang tua kedalam FCC sehingga orang tua dapat memenuhi kebutuhannya, mendapatkan kepuasan, dan meningkatkan kualitas hidup bayi.Kata kunci: Bayi sakit kritis, kebutuhan orang tua, perawatan berpusat pada keluarga. Study of Family Centered Care Needs in Critically Ill Infants Care in the Neonatal Intensive Care UnitAbstractInfants hospitalization in the NICU adversely affect for infants and parents. Efforts can be developed to minimize this impact is by applying family centered care (FCC). The first step is identify needs of parents. In previous study examined the differences needs of parents. This study aimed to identify the FCC needs in critically ill infants care in the NICU. The research method was mixed method design with sequential explanatory strategy. The samples in quantitative research were 45 respondents and using questionnaires NICU Family Need Inventory. Data analysis was done by mean. Qualitative research using 7 participants and using interview guidelines. Data analysis used analysis content technique. This research has been carried out in the NICU Government Hospital of Bandung Raya. The quantitative result indicated that parents with critically ill infants in the NICU need assurance most (M = 3.90), followed by information (M = 3.82), proximity (M = 3.76), support (M = 3.49), and comfort (M = 3.37). The main themes from qualitative analysis demonstrated needs of parents in assurance associated with assured the best care possible is being given to infants; information is honest, clear, and routine regarding condition, prognosis, and procedures that performed to infants; and proximity to always close and make contact with the infants. Needs of parents are focused on the wellbeing of their infants. In doing nursing care, beside improving care to the infants, the nurses should pay attention to needs of parents related the assurance their infants get the best care, open communication, and close contact with their infants. By identifying the needs of parents in the NICU, it can allow nurses to integrate the needs of parents into FCC so that parents can meet these needs, get satisfaction, and can improve the quality of life infants.Keywords: Critically ill infants, family centered care, needs of parents.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S700-S700
Author(s):  
Whitney L Mills ◽  
Mark E Kunik ◽  
Lea Kiefer ◽  
Hannah Curren-Vo ◽  
Amy Mochel ◽  
...  

Abstract Because nursing homes are both a residence and a treatment setting, care providers are faced with the challenge of balancing resident autonomy and safety on a daily basis. While there are standardized approaches for determining a capacity to make larger decisions such as providing consent for medical procedures, there are virtually no methods for assessing capacity to make everyday decisions (e.g., food choices, smoking, navigating outside the nursing home). While it is easier for staff to prevent residents from making decisions they deem risky, to truly offer person-centered care, it is important to support a resident’s right to make decisions if they have the capacity to do so. Currently, little is known about how nursing home staff conceptualize and determine everyday decision-making capacity and how that information is used in care planning. To understand the current processes and language nursing home staff use when considering a resident’s decision-making capacity, we conducted interviews with 37 staff at two Veterans Affairs (VA) Community Living Centers (VA-operated nursing homes; CLCs). Using qualitative content analysis, we coded the transcribed interviews and identified several overarching themes: autonomy vs. safety, communication (e.g., pathways, with caregivers, with residents), determining capacity (e.g., information gathering, assessment, assumptions, indicators, interdisciplinary team member roles, referrals), interventions (e.g., legal and staff-led), and terminology used. We will describe how the findings from this study can be used to tailor development and adaptation of tools to help nursing home staff assess resident everyday decision-making capacity and to incorporate the results into person-centered care approaches.


2019 ◽  
Vol 60 (5) ◽  
pp. 859-867 ◽  
Author(s):  
Rebecca Baxter ◽  
Per-Olof Sandman ◽  
Sabine Björk ◽  
Qarin Lood ◽  
David Edvardsson

Abstract Background and Objectives Thriving has been described as a multidimensional concept that can be used to explore place-related well-being; however, there has been limited research into the meaning of thriving in aged care. This study aimed to illuminate meanings of thriving as narrated by persons living in nursing homes. Research Design and Methods Narrative interviews were conducted with 21 persons residing in a rural Australian nursing home. The interviews were audio-recorded, transcribed, and interpreted using a phenomenological hermeneutic approach. Results Meanings of thriving could be understood as: Striving toward acceptance of being in a nursing home while maintaining a positive outlook; Feeling supported and cared for while maintaining a sense of independence; Balancing opportunities for solitude and company while living with others; and, Feeling a sense of home while residing in an institutional environment. The meanings of thriving, as presented through the interpretive lens of Gaston Bachelard’s “Poetics of Space,” encompassed having access to literal, metaphorical, and symbolic doors, as well as having the freedom to open, close, and use these doors however the person wishes. Discussion Exploring meanings of thriving in nursing homes could contribute towards understanding and implementing positive life-world constructs in research and practice. These findings could be used to inform and enhance person-centered care practices by maximizing opportunities for persons residing in nursing homes to have options and choices, and the agency to make decisions where possible, in relation to their everyday care and living environment.


2021 ◽  
Vol 39 (15_suppl) ◽  
pp. e24088-e24088
Author(s):  
M. Tezer Kutluk ◽  
Fahad Ahmed ◽  
Mustafa Cemaloğlu ◽  
Burca Aydin ◽  
Meltem Sengelen ◽  
...  

e24088 Background: Palliative care is patient and family-centered care provided to optimize the quality of life in serious illness, and is an essential health service under Universal Health Coverage. Given the burden of cancer and other chronic disease diseases along with demographic changes, the need for palliative care is growing in Turkey. This study aimed to review of the available scientific literature on palliative cancer care needs, models and outcomes Turkey. Methods: A comprehensive literature review was conducted with English and Turkish keywords in PubMed, Scopus, Embase, ScienceDirect, Web of Science, Google Scholar, The Turkish Academic Network and Information Centre databases, Turkish Ministry of Health documents, Turkish Council of Higher Education’s doctoral thesis, and renowned national and international palliative care as well as cancer conferences 01/ 2000 to 07/ 2020. Results: Out of 27489 papers identified, 320 met the criteria for inclusion. The main focus of these studies was; historical development in palliative care, legislative regulation, professional training, use of opioids, symptom management, care for patients, palliative care centers, public awareness, psychosocial support, and end of life ethics. The majority of this literature used descriptive design, although a few case-control, cohort, and randomized control trials were also found. Our analysis showed that the development of PC in Turkey can be divided into three period. The first (early initiatives, before 2000), the second (dissemination phase, 2000-2010), and the third stage (government & societial engagement, after 2010). Several studies also analyzed the barriers such as low public & professional awareness, disconnection from cancer care, the opioidfobia and the lack of trained palliative care providers. The lack of integration of palliative care to cancer care is a major challenge for palliative care implementation. Conclusions: This review presents the evidence of the significant progress in PC during the last 20 years and the opportunities for further progress. Bringing research into practice is needed for shaping the integration of palliative care to cancer care in Turkey. The stakeholders and policy makers should not neglect the need for PC under the current pressure of COVID-19 pandemic on health and economy.


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