scholarly journals Patient-generated health data and electronic health record integration: a scoping review

JAMIA Open ◽  
2020 ◽  
Author(s):  
Victoria L Tiase ◽  
William Hull ◽  
Mary M McFarland ◽  
Katherine A Sward ◽  
Guilherme Del Fiol ◽  
...  
Keyword(s):  
Scoping Review ◽  
Care Setting ◽  
Early Stage ◽  
Health Data ◽  
Inclusion Criteria ◽  
Health History ◽  
Resource Requirements ◽  
Care Gaps ◽  
Electronic Health ◽  
Study Designs

Abstract Objectives Patient-generated health data (PGHD) are clinically relevant data captured by patients outside of the traditional care setting. Clinical use of PGHD has emerged as an essential issue. This study explored the evidence to determine the extent of and describe the characteristics of PGHD integration into electronic health records (EHRs). Methods In August 2019, we conducted a systematic scoping review. We included studies with complete, partial, or in-progress PGHD and EHR integration within a clinical setting. The retrieved articles were screened for eligibility by 2 researchers, and data from eligible articles were abstracted, coded, and analyzed. Results A total of 19 studies met inclusion criteria after screening 9463 abstracts. Most of the study designs were pilots and all were published between 2013 and 2019. Types of PGHD were biometric and patient activity (57.9%), questionnaires and surveys (36.8%), and health history (5.3%). Diabetes was the most common patient condition (42.1%) for PGHD collection. Active integration (57.9%) was slightly more common than passive integration (31.6%). We categorized emergent themes into the 3 steps of PGHD flow. Themes emerged concerning resource requirements, data delivery to the EHR, and preferences for review. Discussion PGHD integration into EHRs appears to be at an early stage. PGHD have the potential to close health care gaps and support personalized medicine. Efforts are needed to understand how to optimize PGHD integration into EHRs considering resources, standards for EHR delivery, and clinical workflows.

scholarly journals Reasonable adjustments for people with intellectual disability in acute care: a scoping review of the evidence

BMJ Open ◽  
2021 ◽  
Vol 11 (2) ◽  
pp. e039647
Author(s):  
Mairead Moloney ◽  
Therese Hennessy ◽  
Owen Doody
Keyword(s):  
Intellectual Disability ◽  
Acute Care ◽  
Scoping Review ◽  
Service Provision ◽  
Care Setting ◽  
Acute Care Setting ◽  
Inclusion Criteria ◽  
Health Service Provision ◽  
Acute Care Settings ◽  
Fair Access

ObjectivesPeople with intellectual disability are vulnerable in terms of health service provision due to increased comorbidity, higher dependency and cognitive impairment. This review explored the literature to ascertain what reasonable adjustments are evident in acute care to support people with intellectual disability, ensuring they have fair access and utilisation of health services.DesignScoping review.SettingAcute care settings.MethodsFive databases were systematically searched to identify studies that reported on the implementation of reasonable adjustments. Authors worked in pairs to screen studies for inclusion, data were extracted and charted and findings were synthesised according to content and themes.ResultsOf the 7770 records identified, six studies were included in the review. The volume of evidence was influenced by specific inclusion criteria, and only papers that reported on the actual implementation of a reasonable adjustment within an acute care setting were included. Many papers reported on the concept of reasonable adjustment; however, few identified its applications in practice.ConclusionsThe scoping review highlights a lack of research on the practice and implementation of reasonable adjustments within acute care settings. There is a need for increased support, education and the provision of intellectual disability specialists across acute care settings.

scholarly journals Patient-generated health data and electronic health record integration: protocol for a scoping review

BMJ Open ◽  
2019 ◽  
Vol 9 (12) ◽  
pp. e033073 ◽  
Author(s):  
Victoria L Tiase ◽  
William Hull ◽  
Mary M McFarland ◽  
Katherine A Sward ◽  
Guilherme Del Fiol ◽  
...  
Keyword(s):  
Scoping Review ◽  
Search Strategy ◽  
Routine Care ◽  
Health Data ◽  
Future Research ◽  
Research Gaps ◽  
Health Records ◽  
Care Visit ◽  
Activity Trackers ◽  
Electronic Health

IntroductionThe objective of this study is to determine the extent and describe the nature of patient-generated health data (PGHD) integration into electronic health records (EHRs) using systematic scoping methods to review the available literature. PGHD have the potential to enhance decision making by providing the valuable information that may not be ordinarily captured during a routine care visit. These data which are captured from mobile devices, such as smartphones, activity trackers and other sensors, should be integrated into clinical workflows to allow for optimal use by clinicians.Methods and analysisThis study aims to conduct a rigorous scoping review to explore evidence related to the integration of PGHD into EHRs. Using the framework developed by Arksey and O’Malley, we will create a systematic search strategy, chart data from the relevant articles, and use a qualitative, thematic approach to analyse the data. This review will enable the identification of types of integration and describe challenges and barriers to integrating PGHD.Ethics and disseminationDatabase searches will be initiated in June 2019. The review is expected to be completed by October 2019. As the content of the full-text articles emerges, the authors will summarise the characteristics related to the integration of PGHD. The findings of this scoping review will identify research gaps and present implications for future research.

Rehabilitation therapies in Rett syndrome across the lifespan: A scoping review of human and animal studies

2020 ◽  
pp. 1-30
Author(s):  
David Yang ◽  
Helen Lee Robertson ◽  
Elizabeth G. Condliffe ◽  
Melissa T. Carter ◽  
Tammie Dewan ◽  
...  
Keyword(s):  
Rett Syndrome ◽  
Scoping Review ◽  
Animal Studies ◽  
Age Groups ◽  
Case Series ◽  
Therapeutic Interventions ◽  
Functional Impairments ◽  
Inclusion Criteria ◽  
Model Studies ◽  
Study Designs

PURPOSE: To perform a scoping review of the evidence for therapeutic interventions to manage functional impairments associated with Rett syndrome (RTT) throughout the lifespan. METHODS: MEDLINE, EMBASE, PsycINFO, CENTRAL, CINAHL, Scopus and Index to Chiropractic Literature were searched systematically up to December 2019. Two investigators independently reviewed all search results and extracted those that met the inclusion criteria. Human and animal model studies pertaining to therapies that increase functional ability or treat RTT-associated symptoms in all age groups were included. Relevant studies were grouped into intervention categories and rated using the Oxford Centre of Evidence Based Medicine Levels of Evidence. Demographics of participants, interventions, and outcomes were summarized. RESULTS: Ninety-one articles representing 88 studies met the inclusion criteria, of which 80 were human clinical studies and eight were studies using animal models. Study designs were primarily case series and only six studies involved participants above the age of 40. CONCLUSION: A small number of rigorously studied rehabilitation interventions have been published. Published studies aim to address a wide variety of functional impairments. Research regarding implementation of therapies for older patients with RTT is lacking and requires further exploration.

scholarly journals The effect of cochlear implantation on autonomy, participation and work in postlingually deafened adults: a scoping review

2020 ◽  
Author(s):  
Hugo G. B. Nijmeijer ◽  
Noud M. Keijsers ◽  
Wendy J. Huinck ◽  
Emmanuel A. M. Mylanus
Keyword(s):  
Scoping Review ◽  
Cochlear Implantation ◽  
Data Extraction ◽  
Small Body ◽  
Cochrane Library ◽  
Inclusion Criteria ◽  
Cross Sectional ◽  
Study Characteristics ◽  
Work Autonomy ◽  
Study Designs

Abstract Purpose This scoping review examines the available evidence on the effect of unilateral cochlear implantation (CI) in adults with postlingual bilateral hearing loss on societal-related outcomes in terms of work, autonomy and participation. Methods Five databases were searched (Pubmed, Web of Science, Embase, PsycINFO and Cochrane Library). Publications were screened in three steps on inclusion criteria. Of the 4230 screened publications, 110 met the inclusion criteria and were assessed for data extraction regarding outcomes “work”, “autonomy”, “participation”. Study characteristics and key findings are presented and narratively described. Results Twenty-seven publications were included and categorized into retrospective (n = 3), cross-sectional (n = 18) or prospective (n = 6) study designs. Measurement or identification of number of outcomes (no) were related to work (no = 20), participation (no = 9) and autonomy or independency (no = 10). Most studies indicated benefits of CI on these outcomes. However, some studies did not or indicated additional barriers for benefits. Eleven publications primarily aimed to study one or more of our primary outcomes. Conclusion In this literature search, scientific databases are reviewed. The results indicate that there is a relatively small body of evidence regarding the effect of CI on the outcomes “work”, “autonomy” and “participation”. Even though there are some limitations of the current study including some overlap in outcome definitions, most included studies indicate a beneficial effect of CI on work, autonomy and participation. The lack of consensus in definitions and the small body of evidence indicates a need for additional prospective studies investigating the societal outcomes of CI in postlingually deafened adults.

scholarly journals OUTCOMES MEASUREMENT IN EARLY-STAGE MEMORY LOSS INTERVENTIONS: A SCOPING REVIEW

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S596-S596
Author(s):  
Anita Marie Souza ◽  
Boeun Kim ◽  
Christina Miyawaki ◽  
Basia Belza ◽  
Mee Kyung Lee ◽  
...  
Keyword(s):  
Scoping Review ◽  
Intervention Studies ◽  
Early Stage ◽  
Controlled Trial ◽  
Memory Loss ◽  
Assessment Tools ◽  
Psychosocial Assessment ◽  
Inclusion Criteria ◽  
Psychoeducational Groups ◽  
Measurement Tools

Abstract Psychosocial and psychoeducational groups are widely recommended for individuals with early stage Alzheimer’s disease and related dementias (ADRD). However, measurement challenges have hindered researchers’ efforts to demonstrate the efficacy of these groups. The purpose of this scoping review was to identify common measurement tools used in interventions for individuals with early stage ADRD and to develop suggestions for future investigations. CINAHL, Embase, PsycINFO, and PubMed were searched; 102 studies were reviewed. Inclusion criteria were set to capture intervention studies that utilized quantifiable measures with participants over age 50. Eleven articles met inclusion criteria. The majority of studies (73%) employed randomized controlled trial designs. Sample sizes ranged from N=20-236. Most commonly measured outcomes included depression, self-efficacy, self-esteem, and quality of life, but there was little consensus on how to best measure these outcomes. Standardization of psychosocial assessment tools are needed for future intervention studies with early stage ADRD.

scholarly journals A SCOPING REVIEW OF KNOWLEDGE EVALUATION INSTRUMENTS FOR FORMAL AND INFORMAL DEMENTIA CAREGIVER PROGRAMS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S596-S597
Author(s):  
Nicholas V Resciniti ◽  
Weizhou Tang ◽  
Masroora Tabassum ◽  
Dana Al-Hasan ◽  
Matthe C Lohman ◽  
...  
Keyword(s):  
Scoping Review ◽  
Adult Population ◽  
Inclusion Criteria ◽  
Dementia Caregivers ◽  
Time Saving ◽  
Dementia Caregiver ◽  
Search Terms ◽  
Study Designs ◽  
Older Adult Population ◽  
Knowledge Evaluation

Abstract With the increase in our older adult population there is a need for dementia training for informal and formal dementia caregivers. The objective of this scoping study was to assess dementia knowledge instruments utilized in educational programs and interventions intended for formal and informal dementia caregivers. Scoping review methodology was used to search PubMed, PsycInfo, CINAHL, and Web of Science with tailored database search terms. The search yielded 8,101 results, with 35 studies meeting inclusion criteria. Studies were conducted in eight countries, had varying study designs (RCTs=9, non-RCTs=6, one-group study design=20), and utilized previously published (19) and author-developed (16) instruments. Only two studies focused on minority populations. While author-developed instruments may be more relevant and time-saving, studies should strive to validate instruments or use previously published instruments to help standardize findings across studies and better understand the effects of education programs on caregiver knowledge.

Inpatient Treatment of Functional Neurological Disorder: A Scoping Review

2020 ◽  
pp. 1-14
Author(s):  
Gabriela S. Gilmour ◽  
Jessica D. Jenkins
Keyword(s):  
Scoping Review ◽  
Neurological Disorder ◽  
Inpatient Treatment ◽  
Search Strategy ◽  
Care Setting ◽  
Positive Impact ◽  
Inpatient Rehabilitation ◽  
Inclusion Criteria ◽  
Elective Admission ◽  
Functional Neurological Disorder

ABSTRACT: Background: The aim of this scoping review is to describe the characteristics of patients requiring admission to hospital for functional neurological disorder (FND), assess interventions provided, and evaluate outcomes in the context of acute hospital presentation or elective admission with chronic symptoms (>3 months). Methods: A scoping review was performed. Included articles described adult patients admitted with FND to an inpatient care setting. Articles focusing on psychogenic non-epileptic attacks (PNEA) were excluded. Results: The search strategy identified 1963 citations. A total of 34 articles met inclusion criteria, with 458 patients (66% female) described. The pooled mean age of patients in all studies was 40.6 years. Eleven studies described patients with acute presentation, and 16 studies described patients with chronic FND symptoms admitted to the hospital. Motor symptoms were most common. Interventions were most commonly physiotherapy and psychotherapy. Most studies reported partial or complete resolution of symptoms. Conclusions: This scoping review summarizes the literature on the characteristics of patients admitted to the hospital, both with acute and chronic symptoms, for inpatient treatment of FND. When comparing patients with acute to those with chronic symptoms, we found that acute presentations were older (46.9 vs. 43.7 years) and had a higher representation of men (33% vs. 30%). Those presenting with chronic symptoms were more likely to not improve or relapse. We postulate that early diagnosis and inpatient rehabilitation could have a positive impact on outcomes for patients with FND.

Assessing the effectiveness of actionable nutrigenomics and lifestyle genomics interventions for weight management in clinical practice: A critical, scoping review with directions for future research

2020 ◽  
Vol 26 (3) ◽  
pp. 167-173 ◽  
Author(s):  
Justine Horne ◽  
Jason Gilliland ◽  
Janet Madill
Keyword(s):  
Clinical Practice ◽  
Weight Management ◽  
Scoping Review ◽  
Genetic Risk ◽  
Future Research ◽  
Use Of Self ◽  
Lifestyle Advice ◽  
Inclusion Criteria ◽  
Body Of Knowledge ◽  
Study Designs

Background: The use of nutrigenomics and lifestyle genomics in clinical practice has the potential to optimize weight-related outcomes for patients. Aim: A scoping review was conducted to summarize and evaluate the current body of knowledge related to the effectiveness of providing DNA-based lifestyle advice on weight-related outcomes, with the aim of providing direction for future research. Method: Primary studies were included if they were written in English, evaluated weight-related and/or body mass index and/or body composition outcomes, and provided participants with an actionable genetic-based lifestyle intervention; interventions that only provided information on genetic risk for diseases/conditions were excluded. Data was extracted from each article meeting inclusion criteria ( N=3) and the studies were critically appraised for methodological limitations. Results: Research in this area is promising, but limited. Specific limitations relate to study designs, the nature of the recommendations provided to participants, small (underpowered) sample sizes, the use of self-reported weight/BMI data and lack of consideration of important confounding factors. Conclusions: Therefore, the effectiveness of nutrigenomics and lifestyle genomics interventions for weight management in clinical practice cannot yet be conclusively determined. Recommendations for future research are detailed in the present manuscript.

Integrating Exosomal MicroRNA and Electronic Health Data Improves Tuberculosis Diagnosis

2018 ◽  
Author(s):  
Xuejiao Hu ◽  
Shun Liao ◽  
Hao Bai ◽  
Lijuan Wu ◽  
Minjin Wang ◽  
...  
Keyword(s):  
Health Data ◽  
Tuberculosis Diagnosis ◽  
Electronic Health ◽  
Exosomal Microrna

A Scoping Review of Interventions Aimed at Improving Knowledge, Detection Practices and Management of Dementia among Health Professionals (Preprint)

2020 ◽  
Author(s):  
Krishna Krishna Prasad Pathak
Keyword(s):  
Health Care ◽  
Scoping Review ◽  
Health Professionals ◽  
Educational Program ◽  
Best Practice ◽  
Intervention Studies ◽  
Educational Interventions ◽  
Learning Activities ◽  
Inclusion Criteria ◽  
Improving Health Care

BACKGROUND Health professionals (HPs) play a key role in dementia management and detection. However, there is a gap in the literature as to what represents best practice with regard to educating HPs to improve their dementia detection practices and management. OBJECTIVE The objective of this scoping review is to synthesize the aggregated studies aimed at improving health care knowledge, detection practices and management of dementia among HPs. METHODS We searched electronically published relevant articles with inclusion criteria; (1) intervention studies aimed at improving HPs practices concerning dementia care and (2) educational interventions focused on nurses and doctors’ knowledge, detection practice and management of dementia. Twenty-five articles fit the inclusion criteria. RESULTS Collaborative programs of practice based workshops, interactive learning activities with community and multi-faced educational program were the most effective. CONCLUSIONS HPs should be supported to improve their knowledge, tackle behavioural problems associated with dementia, be made aware of services and be enabled to engage in more early diagnosis. CLINICALTRIAL no applicable

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