scholarly journals Evaluation and recommendations for effective data visualization for seizure forecasting algorithms

JAMIA Open ◽  
2021 ◽  
Vol 4 (1) ◽  
Author(s):  
Sharon Chiang ◽  
Robert Moss ◽  
Angela P Black ◽  
Michele Jackson ◽  
Chuck Moss ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Health Outcomes ◽  
Data Visualization ◽  
Quantitative Methods ◽  
Healthcare Providers ◽  
Quality Criteria ◽  
Line Graphs ◽  
Heat Maps ◽  
Data Visualizations ◽  
Effective Translation

Abstract Objective Seizure forecasting algorithms have become increasingly accurate and may reduce the morbidity and mortality caused by seizure unpredictability. Translating these benefits into meaningful health outcomes for people with epilepsy requires effective data visualization of algorithm outputs. To date, no studies have investigated patient and physician perspectives on effective translation of algorithm outputs into data visualizations through health information technology. Materials and Methods We developed front-end data visualizations as part of a Seizure Forecast Visualization Toolkit. We surveyed 627 people living with epilepsy and caregivers, and 28 epilepsy healthcare providers. Respondents scored each visualization in terms of international standardized software quality criteria for functionality, appropriateness, and usability. Results People with epilepsy and caregivers ranked hourly radar charts highest for protecting against errors in interpreting forecasts, reducing anxiety from seizure unpredictability, and understanding seizure patterns. Accuracy in interpreting visuals, such as a risk gauge, was dependent on seizure frequency. Visuals showing hourly/daily forecasts were more useful for patients who experienced seizure cycling than those who did not. Hourly line graphs and monthly heat maps were rated highest among clinicians for ease of understanding, anticipated integration into clinical practice, and the likelihood of clinical usage. Epilepsy providers indicated that daily heat maps, daily line graphs, and hourly line graphs were most useful for interpreting seizure diary patterns, assessing therapy impact, and counseling on seizure safety. Discussion The choice of data visualization impacts the effective translation of seizure forecast algorithms into meaningful health outcomes. Conclusion This effort underlines the importance of incorporating standardized, quantitative methods for assessing the effectiveness of data visualization to translate seizure forecast algorithms into clinical practice.

scholarly journals Disabling stroke in persons already with a disability

Neurology ◽  
2020 ◽  
Vol 94 (7) ◽  
pp. 306-310 ◽  
Author(s):  
Michael J. Young ◽  
Robert W. Regenhardt ◽  
Thabele M. Leslie-Mazwi ◽  
Michael Ashley Stein
Keyword(s):  
Clinical Practice ◽  
Health Outcomes ◽  
Acute Stroke ◽  
Care Delivery ◽  
Stroke Care ◽  
Clinical Practices ◽  
Acute Stroke Care ◽  
Persons With Disabilities ◽  
Stroke Research ◽  
Scant Attention

Stroke is the second leading cause of death worldwide and a leading cause of adult disability worldwide. More than a third of individuals presenting with strokes are estimated to have a preexisting disability. Despite unprecedented advances in stroke research and clinical practice over the past decade, approaches to acute stroke care for persons with preexisting disability have received scant attention. Current standards of research and clinical practice are influenced by an underexplored range of biases that may hinder acute stroke care for persons with disability. These trends may exacerbate unequal health outcomes by rendering novel stroke therapies inaccessible to many persons with disabilities. Here, we explore the underpinnings and implications of biases involving persons with disability in stroke research and practice. Recent insights from bioethics, disability rights, and health law are explained and critically evaluated in the context of prevailing research and clinical practices. Allowing disability to drive decisions to withhold acute stroke interventions may perpetuate disparate health outcomes and undermine ethically resilient stroke care. Advocacy for inclusion of persons with disability in future stroke trials can improve equity in stroke care delivery.

scholarly journals A view into clinical practice guidelines: who uses them, who doesn’t and possibly, why

2017 ◽  
Vol 1 (2) ◽  
Author(s):  
Mihaela C. Munteanu ◽  
Julie Choi Jordan
Keyword(s):  
Clinical Practice ◽  
Clinical Practice Guidelines ◽  
Practice Guidelines ◽  
Healthcare Providers ◽  
Medical Professional ◽  
Physician Attitudes ◽  
Negative Consequences ◽  
Access To Treatment ◽  
Medical Specialties ◽  
And Behavior

Medical professional societies each develop specific clinical practice guidelines (CPGs). Based on the best available evidence, CPGs are intended to control variability and optimize quality of care in clinical practice. Yet, healthcare providers often do not accept or adhere to guidelines, but their reasons are not fully understood. When providers opt to choose not to follow CPGs, unfavorable patient outcomes including unequal access to treatment become negative consequences. In this small qualitative study, we will explore what causes non-adherence to CPGs and what changes have been made to CPGs from when physicians completed their medical residencies to the present. We interviewed physicians from a variety of medical specialties to assess how these changes may influence guideline adherence as well as the consequences of not following them. We found that guidelines may not be followed in cases where patients have comorbidities that are not described in the guidelines or when physicians do not incorporate new evidence and technology advances into their practice. In some specialties, physicians can develop a poor reputation if they do not adhere to the CPGs, and managed care agencies may deny reimbursement for care they provided. To best serve the physician and the patient, we need to find ways to improve CPG adherence. Tactics such as improving the methodology of CPG formation, using information technology, and creating ways to change physician attitudes and behavior are all viable options.

scholarly journals Developing quality criteria for patient‐directed knowledge tools related to clinical practice guidelines. A development and consensus study

2018 ◽  
Vol 22 (2) ◽  
pp. 201-208 ◽  
Author(s):  
Trudy van der Weijden ◽  
Dunja Dreesens ◽  
Marjan J. Faber ◽  
Nanne Bos ◽  
Ton Drenthen ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Clinical Practice Guidelines ◽  
Practice Guidelines ◽  
Quality Criteria

scholarly journals Evidence-based Clinical Practice Guidelines for the Periodic Eye Exam in Children Aged 0 to 5 Years in Canada

2019 ◽  
Vol 81 (4) ◽  
pp. 9-28
Author(s):  
Walter Delpero ◽  
Barbara Robinson ◽  
Rhona Lahey
Keyword(s):  
Clinical Practice ◽  
Early Detection ◽  
Practice Guidelines ◽  
School System ◽  
Healthcare Providers ◽  
Evidence Based ◽  
Vision Screening ◽  
Eye Care ◽  
Timely Fashion ◽  
Primary Healthcare Providers

Vision screening performed by primary healthcare providers during routine well-baby/child visits and scheduled vaccinations is an essential part of the detection of ocular disease. However, this early detection potential is limited and a full oculovisual assessment is also recommended prior to the child entering the school system. If amblyopia, strabismus or other eye pathology is detected or suspected that is beyond the scope of the eye care professional examining the patient, a referral to the appropriate specialist can be made, allowing treatment to be initiated in a timely fashion.

scholarly journals Data Visualization + Scrollytelling for Election News Stories : Challenges and Perspectives

2019 ◽  
Author(s):  
Jean-Philippe Corbeil ◽  
Florent Daudens ◽  
Thomas Hurtut
Keyword(s):  
Data Visualization ◽  
French Language ◽  
Daily Newspaper ◽  
Canadian French ◽  
News Stories ◽  
The Past ◽  
Narrative Format ◽  
Election News ◽  
Data Visualizations

This visual case study is conducted by Le Devoir, a Canadian french-language independent daily newspaper gathering around 50 journalists and one million readers every week. During the past twelve months, in collaboration with Polytechnique Montreal, we investigated a scrollytelling format strongly relying on combined series of data visualizations. This visual case study will specifically present one of the news stories we published, which communicates electoral results the day after the last Quebec general election. It gathers all the lessons that we learnt from this experience, the challenges that we tackled and the perspectives for the future. Beyond the specific electoral context of this work, these conclusions might be useful for any practitioner willing to communicate data visualization based stories, using a scrollytelling narrative format.

What we talk about when we talk about beautiful data visualizations

2020 ◽  
Author(s):  
Sara Brinch
Keyword(s):  
Data Visualization ◽  
Best Practice ◽  
Visualization Design ◽  
Data Visualizations

‘Beautiful’ is an adjective often used in descriptions of well-designed data visualizations. How the concept is used, however, reveals that it is applied to characterize a variety of qualities. Going beyond mere descriptions, the use of the concept also lays bare a certain ambivalence among scholars and practitioners towards how beauty matters, and which means it serves in data visualization. Interrogating ‘beautiful’ as a characterizing word, combined with a study of cases of ‘best practice’ used as examples of beautiful visualizations in various discourses, this chapter presents an analysis of what is regarded as beautiful within the field of data visualization design. This, in turn, can inform the understanding of what beauty means in visualizing data, in the purpose of facilitating the viewer’s comprehension and engagement.

The political significance of data visualization: Four key perspectives

2020 ◽  
Author(s):  
Torgeir Uberg Nærland
Keyword(s):  
Social Theory ◽  
Data Visualization ◽  
Status Quo ◽  
Public Deliberation ◽  
The Political ◽  
Progressive Change ◽  
The Status ◽  
Data Visualizations

Practitioners and scholars alike assume that data visualization can have political significance—as vehicle for progressive change, manipulation, or maintaining the status quo. There are, however, a variety of ways in which we can think of data visualization as politically significant. These perspectives imply differing notions of both ‘politics’ and ‘significance’. Drawing upon political and social theory, this chapter identifies and outlines four key perspectives: data visualization and 1) public deliberation, 2) ideology, 3) citizenship, and 4) as a political-administrative steering tool. The aim of this chapter is thus to provide a framework that helps clarify the various contexts, processes, and capacities through which data visualizations attain political significance.

scholarly journals The effectiveness of training in emergency obstetric care: a systematic literature review

2019 ◽  
Vol 34 (4) ◽  
pp. 257-270 ◽  
Author(s):  
Charles A Ameh ◽  
Mselenge Mdegela ◽  
Sarah White ◽  
Nynke van den Broek
Keyword(s):  
Clinical Practice ◽  
Maternal Mortality ◽  
Health Outcomes ◽  
Emergency Obstetric Care ◽  
Case Fatality ◽  
Obstetric Care ◽  
Team Work ◽  
Knowledge And Skills ◽  
Effectiveness Of Training ◽  
Four Levels

Abstract Providing quality emergency obstetric care (EmOC) reduces the risk of maternal and newborn mortality and morbidity. There is evidence that over 50% of maternal health programmes that result in improving access to EmOC and reduce maternal mortality have an EmOC training component. The objective was to review the evidence for the effectiveness of training in EmOC. Eleven databases and websites were searched for publications describing EmOC training evaluations between 1997 and 2017. Effectiveness was assessed at four levels: (1) participant reaction, (2) knowledge and skills, (3) change in behaviour and clinical practice and (4) availability of EmOC and health outcomes. Weighted means for change in knowledge and skills obtained, narrative synthesis of results for other levels. One hundred and one studies including before–after studies (n = 44) and randomized controlled trials (RCTs) (n = 15). Level 1 and/or 2 was assessed in 68 studies; Level 3 in 51, Level 4 in 21 studies. Only three studies assessed effectiveness at all four levels. Weighted mean scores pre-training, and change after training were 67.0% and 10.6% for knowledge (7750 participants) and 53.1% and 29.8% for skills (6054 participants; 13 studies). There is strong evidence for improved clinical practice (adherence to protocols, resuscitation technique, communication and team work) and improved neonatal outcomes (reduced trauma after shoulder dystocia, reduced number of babies with hypothermia and hypoxia). Evidence for a reduction in the number of cases of post-partum haemorrhage, case fatality rates, stillbirths and institutional maternal mortality is less strong. Short competency-based training in EmOC results in significant improvements in healthcare provider knowledge/skills and change in clinical practice. There is emerging evidence that this results in improved health outcomes.

scholarly journals Using podcasts to deliver pediatric educational content: Development and reach of PediaCast CME

2019 ◽  
Vol 5 ◽  
pp. 205520761983484 ◽  
Author(s):  
Michael D. Patrick ◽  
David R. Stukus ◽  
Kathryn E. Nuss
Keyword(s):  
Medical Education ◽  
Healthcare Providers ◽  
Geographic Location ◽  
Quality Criteria ◽  
Educational Content ◽  
Digital Platforms ◽  
Post Graduate ◽  
Content Development ◽  
Media Channels ◽  
Future Work

Objective Pediatricians have used podcasts to communicate with the public since 2006 and medical students since 2008. Previous work has established quality criteria for medical education podcasts and examined the benefit of offering continuing medical education (CME) credit for online activities. This is the first descriptive study to outline the development and reach of a pediatric podcast that targets post-graduate healthcare providers, enhances communication by incorporating quality criteria, and offers free accredited CME to listeners. Methods We produced 26 podcast episodes from March 2015 to May 2017. Episodes incorporated quality criteria for medical education podcasts and offered free CME credit. They were published on a website, available for listening on multiple digital platforms and promoted through several social media channels. Data were analyzed for frequency of downloads and geographic location of listeners. Results The cumulative total of episode downloads was 91,159 with listeners representing 50 U.S. states and 108 countries. Podcast listenership grew over time. Individual episodes had their largest number of downloads immediately following release, but continued recruiting new listeners longitudinally, suggesting use of the archive as an “on-demand” source of educational content. Conclusions Pediatric podcasts that incorporate quality criteria and offer free CME credit can be used to deliver educational content to a large global audience of post-graduate healthcare providers. Since podcast communication is rapidly growing, future work should focus on identifying the professional roles of listeners; exploring listener perceptions of quality, value and satisfaction; and examining podcast impact on knowledge transfer, clinical practice, public policy and health outcomes.

Patient-reported quality of life and biopsychosocial health outcomes in pediatric epilepsy: An update for healthcare providers

2018 ◽  
Vol 86 ◽  
pp. 19-24 ◽  
Author(s):  
Gabriel M. Ronen ◽  
Peter L. Rosenbaum ◽  
Michael H. Boyle ◽  
David L. Streiner
Keyword(s):  
Quality Of Life ◽  
Health Outcomes ◽  
Healthcare Providers ◽  
Pediatric Epilepsy ◽  
Patient Reported ◽  
Biopsychosocial Health
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