Fatigue

2019 ◽  
pp. 132-139
Author(s):  
Edith O’Neil-Page ◽  
Grace E. Dean ◽  
Paula R. Anderson
Keyword(s):  
End Of Life ◽  
Side Effect ◽  
Healthcare Providers ◽  
Self Care ◽  
Significant Others ◽  
Daily Activities ◽  
Course Of Disease ◽  
Cancer Related Fatigue ◽  
Care Requirements ◽  
The Impact

Individuals suffering from chronic or malignant disease may experience overwhelming and debilitating symptoms of extensive tiredness or sleepiness or an inability to meet daily self-care requirements and maintain personal interaction with significant others. However, they may be unable to verbalize the impact of fatigue on their daily activities. Fatigue is both personal and communal, affecting all aspects of life. Fatigue is often unrecognized by family and healthcare providers or is accepted as a “side effect” of disease and treatment. Cancer-related fatigue affects all aspects of life, at all ages, and may remain unacknowledged by healthcare providers. Yet with recognition and intervention, fatigue can be successfully managed throughout the course of disease, recovery, or through end of life.

Fatigue

2015 ◽  
pp. 154-166 ◽  
Author(s):  
Edith O’Neil-Page ◽  
Paula R. Anderson ◽  
Grace E. Dean
Keyword(s):  
End Of Life ◽  
Life Experience ◽  
Management Strategies ◽  
Psychological Impact ◽  
Healthcare Providers ◽  
Human Suffering ◽  
Complex Phenomenon ◽  
Illness Trajectory ◽  
Cancer Related Fatigue ◽  
Chronic Progressive Disease

This chapter provides an overview of fatigue as it spans the illness trajectory and end-of-life experience for patients with chronic progressive disease. While fatigue is a complex phenomenon that has been widely studied, there is still no universally accepted definition. Individuals with cancer and many other chronic, progressive diseases continue to experience fatigue and its costs, not only in the economic sense but also in its physical, emotional, and psychological impact on life. Cancer-related fatigue is a serious problem that interferes with physical, psychological, emotional, social, and economic functions. The need for healthcare providers to recognize and identify symptoms and explore management strategies is crucial to the lessening of human suffering.

scholarly journals In-home monitoring evaluation by home-dwelling older adults, caregivers and healthcare providers

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
B Pais ◽  
P Buluschek ◽  
T Nef ◽  
N Schütz ◽  
H Saner ◽  
...  
Keyword(s):  
Older Adults ◽  
Home Care ◽  
Older People ◽  
Healthcare Providers ◽  
Home Monitoring ◽  
Daily Activities ◽  
Healthcare Needs ◽  
Monitoring Technologies ◽  
The Impact ◽  
At Home

Abstract Background In Europe, population ageing is increasing the healthcare needs and costs. Both frailty and chronic diseases affecting older people reduce their ability to live independently. However, most older people prefer to age in their own homes. New development of in-home monitoring can play a role in staying independent, active and healthy. Our objective was to evaluate a new in-home monitoring system among home-dwelling older adults (OA), their family caregivers (FC), and their healthcare providers (HCP) for the support of home care. Methods The system continuously monitored OA’s daily activities (e.g., mobility, sleep habits, fridge visits, door events) at home by ambient sensor system (DomoCare®) and health-related events by wearable sensors (Fitbit®, ECG). In case of deviations in daily activities (e.g., changes in mobility), alerts were transmitted to HCP via email. Using specific questionnaires, the opinion of 13 OA, 13 FC, and 20 HCP were collected at the end of 12-month of follow-up focusing on their user experience and the impact of in-home monitoring on home care services. Results These preliminary results underlined that the majority of OA, FC, and HCP consider that in-home sensors can help staying at home, improving home care, reducing family stress, and preventing domestic accidents. The opinion tended to be more favourable toward ambient sensors (80%) than toward Fitbit® (67%) and ECG (64%). On average, OA (80%) and FC (73%) tended to be more enthusiast than HCP (63%). Some barriers reported by HCP were a fear of weakening of the relationship with OA and an excessive surveillance. Conclusions Overall, the opinion of OA, FC and HCP were positive related to in-home sensors, with HCP being more mixed about their use in clinical practice. Key messages In-home monitoring technologies seem to be generally well accepted. In-home monitoring technologies could be help facilitating home care of older people.

A systematic review of the integration of palliative care in dementia management

2019 ◽  
Vol 18 (4) ◽  
pp. 495-506 ◽  
Author(s):  
Helen Senderovich ◽  
Sivarajini Retnasothie
Keyword(s):  
Systematic Review ◽  
Palliative Care ◽  
End Of Life ◽  
Symptom Management ◽  
Healthcare Providers ◽  
Cross Sectional ◽  
Prescribing Behavior ◽  
Palliative Care Consultation ◽  
Palliative Care Teams ◽  
The Impact

AbstractObjectiveDementia is a progressive illness with a complex biopsychosocial constellation of symptoms faced by millions of individuals and families worldwide. Palliative care teams have specialized in symptom management and end-of-life care for decades; however, the role of palliative care in dementia management is not yet well elucidated. The aim of this systematic review was to understand the impact of palliative care in dementia management.MethodThis systematic review was conducted using a prospective study protocol. Medline and PubMed were searched from January 1, 1998 to October 2017. Eligible studies included single-blind cluster, two-arm parallel cluster, or unblinded randomized controlled trials (RCTs), observational studies, retrospective cohort studies, cross-sectional studies, concurrent mixed methods study, qualitative study, and Delphi studies.ResultsFour key themes were identified in this review: goals of care and end-of-life conversations, symptom management, emergency room visits, and prescribing behavior. In each domain, palliative care consultation either showed benefit or was postulated to have benefit if implemented.Significance of resultsAlthough the literature to support or refute thematic conclusions is not large, there was a trend toward patient care benefit across several domains. Large RCTs with longer follow-up across different settings should be undertaken to solidify the themes and trends outlined in this review. Understanding the views of healthcare providers including referral sources (i.e., general practitioners and specialists) through qualitative research could optimize palliative care referrals, implement palliative care recommendations, and improve a targeted palliative care education curriculum.

scholarly journals The Impact of Attire and Occupation on the Accuracy of Blood Pressure Measurements

2015 ◽  
Vol 8 (1) ◽  
Author(s):  
Arjun Pandey
Keyword(s):  
Blood Pressure ◽  
Blood Pressure Monitoring ◽  
Healthcare Providers ◽  
Daily Activities ◽  
White Coat ◽  
White Coat Hypertension ◽  
Pressure Measurements ◽  
Pressure Monitoring ◽  
Medical Facilities ◽  
The Impact

White coat hypertension describes individuals with elevated blood pressure (BP) in medical facilities, such as clinics, and hospitals, but whose BP is normal when they are going about their daily activities. The purpose of this study was to assess whether certain types of healthcare providers are more accurately able to determine BP in comparison to the twenty four hour ambulatory blood pressure monitoring (ABPM), as well as to assess the effect of a healthcare provider’s attire on BP reading. The results show that BP readings were significantly higher when any of the healthcare providers wore a white lab coat. This suggests that attire of the healthcare provider has an impact on the BP readings. Cardiologists were most prone to causing white coat hypertension compared to nurses or cardiovascular technicians. It is therefore advised that alternate healthcare providers check BP to minimize the risk of erroneous BP readings and reduce the risk of white coat hypertension.

scholarly journals Observational vignette study to examine patient and healthcare provider perceived impact of asthma-related exacerbations in the US

2019 ◽  
Vol 14 ◽  
Author(s):  
Phaedra T. Johnson ◽  
Christopher F. Bell ◽  
John White ◽  
Breanna Essoi ◽  
Linda Nelsen ◽  
...  
Keyword(s):  
Financial Burden ◽  
Healthcare Providers ◽  
Self Care ◽  
Web Based ◽  
The Us ◽  
Household Costs ◽  
Patient Responses ◽  
Care Problems ◽  
Anxiety Depression ◽  
The Impact

Background: Little is known about how patients and healthcare providers (HCPs) perceive the impact of asthmarelated exacerbations. This study examined the impact of asthma-related exacerbations on patients’ lives from these different perspectives. Methods: Web-based surveys were administered to a US sample of adult patients with asthma, and HCPs. Participants reviewed six vignettes describing two hypothetical patients with asthma (25-year-old/single/unemployed/ no dependents; and 45-year-old/married/employed/two young children) experiencing mild, moderate, or severe exacerbations and rated the impact on eight measures: EuroQoL-5 Dimensions (mobility, self-care, usual activities, pain/ discomfort, and anxiety/depression), sleep, household costs, and medical costs. The proportions reporting impact for each measure were calculated for each vignette; and patient responses were compared with HCP responses. Results: 302 patients with asthma and 300 HCPs completed the survey. As exacerbation severity increased, a higher proportion of patients and HCPs reported impact of exacerbations on patients with asthma. Compared with HCPs, a greater proportion of patients reported problems with pain/discomfort related to mild and moderate exacerbations. Compared with patients, HCPs were more likely to indicate sleep impact, mobility problems, and financial burden across all exacerbation severity levels; self-care problems with moderate and severe exacerbations; and problems with usual activities and anxiety/depression for severe exacerbations. Conclusions: Understanding the distinctions between how patients and HCPs perceive the impact of exacerbations is important for optimizing patient care. HCPs may be less aware of patient’s concerns about exacerbation-related pain/ discomfort. Studies are needed to further understand patient-HCP interactions regarding asthma-related exacerbations.

The impact of physician communication on diabetes management in cancer survivors.

2018 ◽  
Vol 36 (7_suppl) ◽  
pp. 77-77
Author(s):  
Yvonne Okaka ◽  
Kimberly A. Muellers ◽  
Juan P. Wisnivesky ◽  
Jenny J. Lin
Keyword(s):  
Cancer Survivors ◽  
Diabetes Management ◽  
Early Stage ◽  
Healthcare Providers ◽  
Self Care ◽  
Self Management ◽  
Physician Communication ◽  
Diet And Exercise ◽  
The Impact ◽  
Management Behaviors

77 Background: As cancer survivors live longer and many die from other comorbidities, it becomes increasingly important to understand factors associated with self-management behaviors for common comorbidities such as diabetes (DM). Provider guidance and inclusive communication have been found to promote self- management behaviors (SMB) in patients with DM. This study aims to explore the impact of provider communication on DM SMB in cancer survivors with DM. Methods: Patients with pre-existing DM who were newly diagnosed with early-stage breast, prostate, colorectal or lung cancer were enrolled. The Summary of Diabetes Self-Care Activities instrument was used to assess patients’ SMBs. The Patient Reaction Assessment scale was used to assess physician communication. Additional survey questions elicited the range of DM self-care recommendations made by patients’ healthcare providers. Mann-Whitney U test was used to assess the association between provider recommendations and communication and SMBs. Results: Of the 74 patients enrolled, the average age was 62 years and 64% were female. Patients who reported their healthcare providers recommended exercise reported more days of specific physical activity (median 5 vs. 0, p = 0.029). Patients who reported that their providers recommended checking their sugar checked their blood sugar more days out of the last 7 days (median 4 vs. 0, p < 0.001). Patients who reported that is hard to talk to their provider about how their treatment is going reported eating more sweets per week (median 2 vs. 1, p = 0.015) and fewer vegetables (median 0 vs. 1, p = 0.043). Conversely, patients who felt that their providers were interested in them as a person reported following a healthful eating plan for more days in a week (median 5.5 vs. 2, p = 0.016) and checked their feet more often (median 6.5 vs. 0, p = 0.008). Conclusions: Cancer survivors with DM whose healthcare providers recommend specific DM SMBs and who report better provider relationships perform DM SMBs more often. Healthcare providers should recognize that supportive recommendations for diet and exercise may improve survivors’ self-management of comorbidities.

The Impact of Internal Work Environment on the Retention of Healthcare Providers at Turaif General Hospital

2019 ◽  
Vol 10 (12) ◽  
pp. 1183-1199
Author(s):  
Mohammed Alrouili ◽  
Keyword(s):  
Work Environment ◽  
General Hospital ◽  
Professional Growth ◽  
Healthcare Providers ◽  
Entire Study ◽  
Internal Work ◽  
Research Findings ◽  
Study Population ◽  
The Right ◽  
The Impact

This study attempted to identify the impact of internal work environment on the retention of healthcare providers at Turaif General Hospital in the Kingdom of Saudi Arabia. In particular, the study aimed to identify the dimensions of work circumstances, compensation, and relationship with colleagues, professional growth, and the level of healthcare providers’ retention. In order to achieve the study goals, the researcher used the descriptive analytical approach. The researcher used the questionnaire as the study tool. The study population comprised all the healthcare providers at Turaif General Hospital. Questionnaires were distributed to the entire study sample that consisted of 220 individuals. The number of questionnaires valid for study was 183 questionnaires. The research findings were as follows: the participants’ estimate of the work circumstances dimension was high (3.64), the participants’ estimate of the compensation dimension was moderate (3.32), the participants’ estimate of the relationship with colleagues dimension was high (3.62), the participants’ estimate of the professional growth dimension was weak (2.39), and the participants’ estimate of healthcare providers’ retention level was intermediate (2.75). Accordingly, the researcher’s major recommendations are: the need to create the right atmosphere for personnel in hospitals, the interest of the hospital to provide the appropriate conditions for the staff in terms of the physical and moral aspects for building the work adjustment in the staff, and conducting training courses and educational lectures for personnel in hospitals on how to cope with the work pressures.

scholarly journals Patient-reported effectiveness and safety of Pamidronate in NSAIDs-refractory chronic recurrent multifocal osteomyelitis in children

2021 ◽  
Author(s):  
Bartłomiej Juszczak ◽  
Jerzy Sułko
Keyword(s):  
Adverse Drug Reactions ◽  
Social Life ◽  
Chronic Recurrent Multifocal Osteomyelitis ◽  
Daily Activities ◽  
Drug Reactions ◽  
Patient Reported ◽  
Multifocal Osteomyelitis ◽  
Drug Dependent ◽  
Treatment Onset ◽  
The Impact

AbstractTo evaluate patient-reported effectiveness, safety and social influence of Pamidronate in the therapy of NSAIDs-refractory Chronic Recurrent Multifocal Osteomyelitis in children. Authors reviewed self-created questionnaires, which asked patients for symptoms alleviation, adverse drug reactions frequency and degree of severity and daily activities self-reliance. Only surveys with complete answers, which were returned to authors by an e-mail from juvenile patients treated for NSAIDs-refractory Chronic Recurrent Multifocal Osteomyelitis at the University Children’s Hospital of Cracow were analyzed. Between 2010 and 2019, 61 children were diagnosed with NSAIDs-refractory Chronic Recurrent Multifocal Osteomyelitis at our department. Out of 61 requests sent, 42 complete replies (33 females, 9 males) were gathered and analyzed. All patients included in this research were administered with at least one set of Pamidronate intravenously in the dose of 1 mg/kg/day for 3 consecutive days. Our analysis shows remarkable in terms of patient’s impressions decrease of pain intensity after 2.5 series of Pamidronate on average, and total pain resolution after 5.9 series on average. Overall number of adverse drug reaction events reported by responders was 105. One patient developed drug-dependent renal insufficiency in the course of therapy. Outcome assessment indicates that nearly 50% of the studied population was more eager to participate in social life just after the first infusion of the drug. 95% of the surveyed unanimously agreed to recommend Pamidronate therapy to cure NSAIDs-refractory CRMO. 39 out of 42 (93%) patients considered Pamidronate effective at the end of the treatment. Onset of Pamidronate’s action is gradual and differs in terms of symptoms alleviation between sexes. The therapy can induce considerable number of adverse drug reactions (2.5 per patient). Only 3 out of 42 (7%) patients were free from any ADRs. To demonstrate the impact of the use of Pamidronate on daily activities more precisely, further research with quantification of the quality of life is warranted.

scholarly journals Lightweight Cement Conglomerates Based on End-of-Life Tire Rubber: Effect of the Grain Size, Dosage and Addition of Perlite on the Physical and Mechanical Properties

Materials ◽  
2021 ◽  
Vol 14 (1) ◽  
pp. 225
Author(s):  
Andrea Petrella ◽  
Michele Notarnicola
Keyword(s):  
Grain Size ◽  
End Of Life ◽  
Compression Tests ◽  
Tire Rubber ◽  
Impact Compression ◽  
Weight Percentage ◽  
Deep Groove ◽  
Mechanical Strengths ◽  
The Impact ◽  
Thermal Conductivities

Lightweight cement mortars containing end-of-life tire rubber (TR) as aggregate were prepared and characterized by rheological, thermal, mechanical, microstructural, and wetting tests. The mixtures were obtained after total replacement of the conventional sand aggregate with untreated TR with different grain sizes (0–2 mm and 2–4 mm) and distributions (25%, 32%, and 40% by weight). The mortars showed lower thermal conductivities (≈90%) with respect to the sand reference due to the differences in the conductivities of the two phases associated with the low density of the aggregates and, to a minor extent, to the lack of adhesion of tire to the cement paste (evidenced by microstructural detection). In this respect, a decrease of the thermal conductivities was observed with the increase of the TR weight percentage together with a decrease of fluidity of the fresh mixture and a decrease of the mechanical strengths. The addition of expanded perlite (P, 0–1 mm grain size) to the mixture allowed us to obtain mortars with an improvement of the mechanical strengths and negligible modification of the thermal properties. Moreover, in this case, a decrease of the thermal conductivities was observed with the increase of the P/TR dosage together with a decrease of fluidity and of the mechanical strengths. TR mortars showed discrete cracks after failure without separation of the two parts of the specimens, and similar results were observed in the case of the perlite/TR samples thanks to the rubber particles bridging the crack faces. The super-elastic properties of the specimens were also observed in the impact compression tests in which the best performances of the tire and P/TR composites were evidenced by a deep groove before complete failure. Moreover, these mortars showed very low water penetration through the surface and also through the bulk of the samples thanks to the hydrophobic nature of the end-of-life aggregate, which makes these environmentally sustainable materials suitable for indoor and outdoor elements.

scholarly journals Experiences and impact of international medical volunteering: a multi-country mixed methods study

BMJ Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. e041599 ◽  
Author(s):  
Mary McCauley ◽  
Joanna Raven ◽  
Nynke van den Broek
Keyword(s):  
Low Income ◽  
Online Survey ◽  
Positive Impact ◽  
Healthcare Providers ◽  
International Medical ◽  
Middle Income ◽  
Use Of Resources ◽  
The Uk ◽  
Medical Volunteers ◽  
The Impact

ObjectiveTo assess the experience and impact of medical volunteers who facilitated training workshops for healthcare providers in maternal and newborn emergency care in 13 countries.SettingsBangladesh, Ghana, India, Kenya, Malawi, Namibia, Nigeria, Pakistan, Sierra Leone, South Africa, Tanzania, UK and Zimbabwe.ParticipantsMedical volunteers from the UK (n=162) and from low-income and middle-income countries (LMIC) (n=138).Outcome measuresExpectations, experience, views, personal and professional impact of the experience of volunteering on medical volunteers based in the UK and in LMIC.ResultsUK-based medical volunteers (n=38) were interviewed using focus group discussions (n=12) and key informant interviews (n=26). 262 volunteers (UK-based n=124 (47.3%), and LMIC-based n=138 (52.7%)) responded to the online survey (62% response rate), covering 506 volunteering episodes. UK-based medical volunteers were motivated by altruism, and perceived volunteering as a valuable opportunity to develop their skills in leadership, teaching and communication, skills reported to be transferable to their home workplace. Medical volunteers based in the UK and in LMIC (n=244) reported increased confidence (98%, n=239); improved teamwork (95%, n=232); strengthened leadership skills (90%, n=220); and reported that volunteering had a positive impact for the host country (96%, n=234) and healthcare providers trained (99%, n=241); formed sustainable partnerships (97%, n=237); promoted multidisciplinary team working (98%, n=239); and was a good use of resources (98%, n=239). Medical volunteers based in LMIC reported higher satisfaction scores than those from the UK with regards to impact on personal and professional development.ConclusionHealthcare providers from the UK and LMIC are highly motivated to volunteer to increase local healthcare providers’ knowledge and skills in low-resource settings. Further research is necessary to understand the experiences of local partners and communities regarding how the impact of international medical volunteering can be mutually beneficial and sustainable with measurable outcomes.

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