scholarly journals Observational vignette study to examine patient and healthcare provider perceived impact of asthma-related exacerbations in the US

2019 ◽  
Vol 14 ◽  
Author(s):  
Phaedra T. Johnson ◽  
Christopher F. Bell ◽  
John White ◽  
Breanna Essoi ◽  
Linda Nelsen ◽  
...  
Keyword(s):  
Financial Burden ◽  
Healthcare Providers ◽  
Self Care ◽  
Web Based ◽  
The Us ◽  
Household Costs ◽  
Patient Responses ◽  
Care Problems ◽  
Anxiety Depression ◽  
The Impact

Background: Little is known about how patients and healthcare providers (HCPs) perceive the impact of asthmarelated exacerbations. This study examined the impact of asthma-related exacerbations on patients’ lives from these different perspectives. Methods: Web-based surveys were administered to a US sample of adult patients with asthma, and HCPs. Participants reviewed six vignettes describing two hypothetical patients with asthma (25-year-old/single/unemployed/ no dependents; and 45-year-old/married/employed/two young children) experiencing mild, moderate, or severe exacerbations and rated the impact on eight measures: EuroQoL-5 Dimensions (mobility, self-care, usual activities, pain/ discomfort, and anxiety/depression), sleep, household costs, and medical costs. The proportions reporting impact for each measure were calculated for each vignette; and patient responses were compared with HCP responses. Results: 302 patients with asthma and 300 HCPs completed the survey. As exacerbation severity increased, a higher proportion of patients and HCPs reported impact of exacerbations on patients with asthma. Compared with HCPs, a greater proportion of patients reported problems with pain/discomfort related to mild and moderate exacerbations. Compared with patients, HCPs were more likely to indicate sleep impact, mobility problems, and financial burden across all exacerbation severity levels; self-care problems with moderate and severe exacerbations; and problems with usual activities and anxiety/depression for severe exacerbations. Conclusions: Understanding the distinctions between how patients and HCPs perceive the impact of exacerbations is important for optimizing patient care. HCPs may be less aware of patient’s concerns about exacerbation-related pain/ discomfort. Studies are needed to further understand patient-HCP interactions regarding asthma-related exacerbations.

Abstract 247: Pilot Study Examining Heart Failure Patient Internet Use and Adherence to a Web Based Portal Designed to Support Self-Care.

2013 ◽  
Vol 6 (suppl_1) ◽  
Author(s):  
Redah Z Mahmood ◽  
Judith Grossi ◽  
Todd M Koelling
Keyword(s):  
Computer Use ◽  
Healthcare Providers ◽  
Intervention Group ◽  
Self Care ◽  
Web Based ◽  
Face To Face ◽  
Clinical Events ◽  
Home Based ◽  
Care Information ◽  
Use Of Internet

Background: Experts agree that HF patients should practice appropriate self-care behaviors to minimize the risk of adverse clinical events, including early unplanned readmissions. We sought to understand patient perceptions and adherence to a web-based system designed to support self-care of HF patients. Methods: 100 HF patients were surveyed regarding their computer use and attitudes toward using an internet based web-portal (WP) to support self-care, provide patient education, and communicate with healthcare providers (HCP’s). We then consented 42 patients to participate in a 12 week trial of using the WP to track clinical parameters (daily weights, blood pressure, sodium/fluid intake, exercise), provide links for HF self-education, and update HCP’s on their progress. Patients received a face to face teaching session on accessing and using the WP. Results: The computer use survey (N=100) demonstrated that 72% of patients reported having a computer at home, 67% used email and 71% used the internet. In the WP intervention group (N=41) only 24 (58.5%) were able to successfully access the WP and enter data during the pilot (see table 1). Conclusions: Pilot data showed a significant positive correlation (see table 1) between patients indicating use of internet to access heaIth care information (HCI) and adherence with the WP. Despite strong interest to use a home based WP for self-care and communication with providers, we found that many hurdles prevented patients from using the WP. Internet based educational tools for HF patients may be desirable, but limitations in patients’ ability to access internet based programs may ultimately render the tools ineffective.

scholarly journals RECRUITMENT INTO THE ALZHEIMER PREVENTION TRIALS (APT) WEBSTUDY FOR A TRIAL-READY COHORT FOR PRECLINICAL AND PRODROMAL ALZHEIMER’S DISEASE (TRCPAD)

2020 ◽  
pp. 1-7
Author(s):  
S. Walter ◽  
T.B. Clanton ◽  
O.G. Langford ◽  
M.S. Rafii ◽  
E.J. Shaffer ◽  
...  
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Effective Means ◽  
Web Based ◽  
The Us ◽  
Study Team ◽  
Prodromal Alzheimer’S Disease ◽  
Prevention Trials ◽  
Study Participants ◽  
The Impact

BACKGROUND: The Alzheimer Prevention Trials (APT) Webstudy is the first stage in establishing a Trial-ready Cohort for Preclinical and Prodromal Alzheimer’s disease (TRC-PAD). This paper describes recruitment approaches for the APT Webstudy. Objectives: To remotely enroll a cohort of individuals into a web-based longitudinal observational study. Participants are followed quarterly with brief cognitive and functional assessments, and referred to Sites for in-clinic testing and biomarker confirmation prior to enrolling in the Trial-ready Cohort (TRC). Design: Participants are referred to the APT Webstudy from existing registries of individuals interested in brain health and Alzheimer’s disease research, as well as through central and site recruitment efforts. The study team utilizes Urchin Tracking Modules (UTM) codes to better understand the impact of electronic recruitment methods. Setting: A remotely enrolled online study. Participants: Volunteers who are at least 50 years old and interested in Alzheimer’s research. Measurements: Demographics and recruitment source of participant where measured by UTM. Results: 30,650 participants consented to the APT Webstudy as of April 2020, with 69.7% resulting from referrals from online registries. Emails sent by the registry to participants were the most effective means of recruitment. Participants are distributed across the US, and the demographics of the APT Webstudy reflect the referral registries, with 73.1% female, 85.0% highly educated, and 92.5% Caucasian. Conclusions: We have demonstrated the feasibility of enrolling a remote web-based study utilizing existing registries as a primary referral source. The next priority of the study team is to engage in recruitment initiatives that will improve the diversity of the cohort, towards the goal of clinical trials that better represent the US population.

Fatigue

2019 ◽  
pp. 132-139
Author(s):  
Edith O’Neil-Page ◽  
Grace E. Dean ◽  
Paula R. Anderson
Keyword(s):  
End Of Life ◽  
Side Effect ◽  
Healthcare Providers ◽  
Self Care ◽  
Significant Others ◽  
Daily Activities ◽  
Course Of Disease ◽  
Cancer Related Fatigue ◽  
Care Requirements ◽  
The Impact

Individuals suffering from chronic or malignant disease may experience overwhelming and debilitating symptoms of extensive tiredness or sleepiness or an inability to meet daily self-care requirements and maintain personal interaction with significant others. However, they may be unable to verbalize the impact of fatigue on their daily activities. Fatigue is both personal and communal, affecting all aspects of life. Fatigue is often unrecognized by family and healthcare providers or is accepted as a “side effect” of disease and treatment. Cancer-related fatigue affects all aspects of life, at all ages, and may remain unacknowledged by healthcare providers. Yet with recognition and intervention, fatigue can be successfully managed throughout the course of disease, recovery, or through end of life.

Terrorism Involving Cyanide: The Prospect of Improving Preparedness in the Prehospital Setting

2006 ◽  
Vol 21 (S2) ◽  
pp. s56-s60 ◽  
Author(s):  
Mark E. Keim
Keyword(s):  
Public Awareness ◽  
Healthcare Providers ◽  
Large Degree ◽  
The United States ◽  
Social Consequences ◽  
Prehospital Setting ◽  
International Terrorism ◽  
Cyanide Poisoning ◽  
The Us ◽  
The Impact

AbstractThe potential for domestic or international terrorism involving cyanide has not diminished and in fact may have increased in recent years. This paper discusses cyanide as a terrorist weapon and the current state of readiness for a cyanide attack in the United States. Many of the factors that render cyanide appealing to terrorists are difficult to modify sufficiently to decrease the probability of a cyanide attack. For example, the relative ease with which cyanide can be used as a weapon without special training, its versatile means of delivery to intended victims, and to a large degree, its ready availability cannot be significantly modified through preparedness efforts. On the other hand, the impact of an attack can be mitigated through preparedness measures designed to minimize the physical, psychological, and social consequences of cyanide exposure. Although the nation remains ill-equipped to manage a cyanide disaster, significant progress is being realized in some aspects of preparedness. Hydroxocobalamin—a cyanide antidote that may be appropriate for use in the prehospital setting for presumptive cases of cyanide poisoning—currently is under development for potential introduction in the US. If it becomes available in the US, hydroxocobalamin could enhance the role of the prehospital emergency responder in providing care to victims of a cyanide disaster. Additional progress is required in the areas of ensuring local and regional availability of antidotal treatment and supportive interventions, educating emergency healthcare providers about cyanide poisoning and its management, and raising public awareness of the potential for a cyanide attack and how to respond.

Frequent mask-wearing during the COVID-19 pandemic and acne: an infodemiology study from Google research trends (Preprint)

2021 ◽  
Author(s):  
Samir Salah ◽  
Ann'Laure Demessant-Flavigny ◽  
Delphine Kerob
Keyword(s):  
Census Bureau ◽  
Web Based ◽  
Related Information ◽  
Maximum Value ◽  
The Us ◽  
Exposure Variable ◽  
Health Related ◽  
Us Census ◽  
The Impact ◽  
Calibration Control

BACKGROUND Researchers have been increasingly using the internet as a major source of health-related information and infodemiological methods have provided new approaches for studying the impact of coronavirus disease (COVID-19). OBJECTIVE To verify whether frequent mask-wearing during the COVID-19 pandemic was associated with an increase in acne search popularity. METHODS Data for mask-wearing were obtained from a NYT survey, with 250,000 responses between July 2 and 14, 2020, and from Google COVID-19 symptoms dataset for weekly acne and anxiety search popularity. All data in the study were presented in relation to US county levels. Each county was classified in the frequent mask-wearing group if the proportion of frequent users was above the third quartile. To make search trends comparable from one week to another and from one county to another, search trends were normalized on a relative 100-point scale, with the maximum value corresponding to the highest search popularity for a particular term in a specific week and a specific county. Other sources of data included the US census bureau datasets. Acne search popularity outcome was analyzed using a logistic regression, with COVID-19 incidence, metropolitan status of the county and anxiety search popularity as covariates, and mask-wearing status as the exposure variable. 2019 data, no mask-wearing, was used as a calibration control for acne search weight. RESULTS The final dataset consisted of 2893 counties with complete cases. Frequent mask-wearing was associated with an important increase in acne search popularity (OR=1.69; 95% CI (1.30-2.21); P<.001). A high relative incidence of COVID-19 was associated with an even greater acne search popularity (OR=8.42; 95% CI (6.48-10.96); P<.001). CONCLUSIONS Despite various biases, the use of infodemiology will keep increasing. Observational statistical methods need to be adapted to manage the large amounts of bias concerning web-based information more efficiently.

scholarly journals Pre-consultation information about one’s physician can affect trust and treatment outcome expectations

2020 ◽  
Author(s):  
Kaya Peerdeman ◽  
Chris Hinnen ◽  
Liesbeth van Vliet ◽  
Andrea W.M. Evers
Keyword(s):  
Treatment Outcome ◽  
Healthcare Providers ◽  
Outcome Expectations ◽  
Hospital Staff ◽  
Online Information ◽  
Web Based ◽  
High Severity ◽  
High Competence ◽  
Study Participants ◽  
The Impact

Objective: Information about physicians’ skills is increasingly available on the internet and consulted by patients. The impact of such information on patient expectations is largely unknown. The aim of the present study was to investigate whether pre-consultation information about the competence and empathic skills of a physician may impact pre-consultation trust and treatment outcome expectations in mild and severe medical conditions.Methods: In this experimental web-based study, participants (n=237) read vignettes describing competence and empathic skills (low versus high) of a fictive physician who would surgically remove a mole or melanoma (low versus high severity). Participants next rated trust in the physician and treatment outcome expectations.Results: High physician’s competence and empathy raised pre-consultation trust in the physician, regardless of condition severity. Both high competence and empathy also increased expected surgery success, while only high competence reduced expected side effects.Conclusion: Pre-consultation information highlighting a physician’s competence and/or empathy may lead to higher trust in that physician, higher expected surgery success, and lower expected side effects. Practice Implications: Physicians and hospital staff should be aware of the effects of online information available and might, for example, provide profiles on hospital websites emphasizing competence and empathy of healthcare providers.

scholarly journals Negligible Effects of the Survey Modes for Patient-Reported Outcomes: A Report From the Childhood Cancer Survivor Study

2020 ◽  
pp. 10-24
Author(s):  
Jin-ah Sim ◽  
Geehong Hyun ◽  
Todd M. Gibson ◽  
Yutaka Yasui ◽  
Wendy Leisenring ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Measurement Properties ◽  
Web Based ◽  
Scale Reliability ◽  
Patient Reported ◽  
Childhood Cancer Survivor Study ◽  
Survivors Of Childhood Cancer ◽  
Anxiety Depression ◽  
The Impact ◽  
Postal Mail

PURPOSE This study compared the measurement properties for multiple modes of survey administration, including postal mail, telephone interview, and Web-based completion of patient-reported outcomes (PROs) among survivors of childhood cancer. METHODS The population included 6,974 adult survivors of childhood cancer in the Childhood Cancer Survivor Study who completed the Brief Symptom Inventory-18 (BSI-18), which measured anxiety, depression, and somatization symptoms. Scale reliability, construct validity, and known-groups validity related to health status were tested for each mode of completion. The multiple indicators and multiple causes technique was used to identify differential item functioning (DIF) for the BSI-18 items that responded through a specific survey mode. The impact of the administration mode was tested by comparing differences in BSI-18 scores between the modes accounting for DIF effects. RESULTS Of the respondents, 58%, 27%, and 15% completed postal mail, Web-based, and telephone surveys, respectively. Survivors who were male; had lower education, lower household income, or poorer health status; or were treated with cranial radiotherapy were more likely to complete a telephone-based survey compared with either a postal mail or Web-based survey (all P < .05). Scale reliability and validity were equivalent across the 3 survey options. One, 2, and 5 items from the anxiety, depression, and somatization domains, respectively, were identified as having significant DIF among survivors who responded by telephone ( P < .05). However, estimated BSI-18 domain scores, especially depression and anxiety, between modes did not differ after accounting for DIF effects. CONCLUSION Certain survivor characteristics were associated with choosing a specific mode for PRO survey completion. However, measurement properties among these modes were equivalent, and the impact of using a specific mode on scores was minimal.

scholarly journals The Effect of Telemedicine and Social Media on Cancer patients' Self-Care: A Systematic Review

2021 ◽  
Vol 10 (1) ◽  
pp. 92
Author(s):  
Fariba Sadat Agha Seyyed Esmaeil Amiri ◽  
Fatemeh Bohlouly ◽  
Atefeh Khoshkangin ◽  
Negin Razmi ◽  
Kosar Ghaddaripouri ◽  
...  
Keyword(s):  
Social Media ◽  
Cancer Patients ◽  
Self Care ◽  
Self Management ◽  
Web Based ◽  
Incurable Disease ◽  
Cultural Status ◽  
The Impact ◽  
Positive Effect

Introduction: Cancer is an incurable disease that affects people regardless of age, sex, race and social, economic and cultural status. Most cancer patients are treated with a combination of treatments based on the type of tumor, the extent of the disease, and their physical condition. Self-management programs empower people to deal with illness and improve their quality of life. Telemedicine in the form of mobile applications, websites and social networks is one of the effective tools to achieve this goal. The aim of this study was to investigate the impact of telemedicine and social media on self-care of cancer patients.Method: English related articles were searched based on keywords in the title and abstract using PubMed and Scopus databases (from 1963 to December 2020). Keywords included telemedicine, social networking, self-care and m-health. Inclusion criteria included all studies published in English that examined the impact of telemedicine and social media on cancer patients' self-care. Review articles and non-intervention articles were excluded from the study.Results: A total of 516 articles were selected by title. After reviewing the abstract, 80 articles remained to be reviewed. After evaluating the full text of these articles, 9 eligible articles were selected for final review. In terms of the type of cancer among these studies, prostate cancer had the largest share (33%). In line with the main purpose of this study, in 7 articles (77.8%) telemedicine had a significant positive effect on self-care of cancer patients and increased self-care. In one article (11.1%) this effect was negative and reduced self-care. In 1 article (11.1%) no effect was observed.Conclusion: According to the results of the present study, it seems that web-based interventions and mobile health in most articles have been effective in increasing patients' self-care. However, due to the increasing number of cancers as well as the increasing use of telemedicine in the field of chronic diseases and cancer, the need for further studies is felt in this field.

The impact of physician communication on diabetes management in cancer survivors.

2018 ◽  
Vol 36 (7_suppl) ◽  
pp. 77-77
Author(s):  
Yvonne Okaka ◽  
Kimberly A. Muellers ◽  
Juan P. Wisnivesky ◽  
Jenny J. Lin
Keyword(s):  
Cancer Survivors ◽  
Diabetes Management ◽  
Early Stage ◽  
Healthcare Providers ◽  
Self Care ◽  
Self Management ◽  
Physician Communication ◽  
Diet And Exercise ◽  
The Impact ◽  
Management Behaviors

77 Background: As cancer survivors live longer and many die from other comorbidities, it becomes increasingly important to understand factors associated with self-management behaviors for common comorbidities such as diabetes (DM). Provider guidance and inclusive communication have been found to promote self- management behaviors (SMB) in patients with DM. This study aims to explore the impact of provider communication on DM SMB in cancer survivors with DM. Methods: Patients with pre-existing DM who were newly diagnosed with early-stage breast, prostate, colorectal or lung cancer were enrolled. The Summary of Diabetes Self-Care Activities instrument was used to assess patients’ SMBs. The Patient Reaction Assessment scale was used to assess physician communication. Additional survey questions elicited the range of DM self-care recommendations made by patients’ healthcare providers. Mann-Whitney U test was used to assess the association between provider recommendations and communication and SMBs. Results: Of the 74 patients enrolled, the average age was 62 years and 64% were female. Patients who reported their healthcare providers recommended exercise reported more days of specific physical activity (median 5 vs. 0, p = 0.029). Patients who reported that their providers recommended checking their sugar checked their blood sugar more days out of the last 7 days (median 4 vs. 0, p < 0.001). Patients who reported that is hard to talk to their provider about how their treatment is going reported eating more sweets per week (median 2 vs. 1, p = 0.015) and fewer vegetables (median 0 vs. 1, p = 0.043). Conversely, patients who felt that their providers were interested in them as a person reported following a healthful eating plan for more days in a week (median 5.5 vs. 2, p = 0.016) and checked their feet more often (median 6.5 vs. 0, p = 0.008). Conclusions: Cancer survivors with DM whose healthcare providers recommend specific DM SMBs and who report better provider relationships perform DM SMBs more often. Healthcare providers should recognize that supportive recommendations for diet and exercise may improve survivors’ self-management of comorbidities.

Patient reported outcomes in cancer patients: Psychological, physical and functional importance.

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e18209-e18209
Author(s):  
Shiva Shrotriya ◽  
Bassam N. Estfan ◽  
Mukta Sharma ◽  
Supratik Rayamajhi ◽  
Declan Walsh
Keyword(s):  
African Americans ◽  
Cancer Patients ◽  
Lower Risk ◽  
Patient Reported Outcomes ◽  
Linear Regression Analysis ◽  
Self Care ◽  
Cancer Center ◽  
Patient Reported ◽  
Care Problems ◽  
Anxiety Depression

e18209 Background: Patient-reported outcomes (PROs) allow consistent monitoring of patients’ symptoms and quality of life. We evaluated their prevalence among cancer patients. We also evaluated the association of PROs, Emotional Thermometer (ET) distress with demographic and disease characteristics. Methods: PROs were prospectively collected as cross sectional data. This was later combined with retrospectively obtained clinical data from the EMR. Predictors of ET component (Distress, Anxiety, Anger, Depression) was determined by linear regression analysis. The predictors of those who required Help with tablet computers was determined by logistic regression. Results: The mean age was 58 (±14) years; 54% male. The common cancer diagnoses were breast 17%, hematological (leukemia) 17% and lymphoma 12%. Few (7%) participants required help (N = 1076) with the tablet-based surveys. Age ≤ 30 and 51–70 years scored lower in mean depression ET. African Americans had higher ET Anger scale. African Americans scored higher in need of Help –ET. Age 31-50 years was at 13% lower risk and 51–70 years was at 72% lower risk of requiring help. Those with self-care problems were at higher risk of requiring Help with tablet computer. Conclusions: Many cancer patients visiting the cancer center had high pain/discomfort, anxiety/depression, problems with usual activities and mobility problems. Younger patients (31-50 years) had more distress and depression (ET). African Americans reported more problems with mobility, self-care, usual activities, pain/discomfort and anxiety/depression (EQ5D). Those with self-care problems were at risk to require help with tablet-based surveys.

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