HIV Advocacy

Author(s):  
Simon Collins ◽  
Tim Horn ◽  
Loon Gangte ◽  
Emmanuel Trenado ◽  
Vuyiseka Dubula

Community responses to the AIDS crisis have changed traditional approaches to medicine, healthcare, health systems, and research. Earlier approaches were rooted in widespread discrimination against key affected populations who were already socially marginalized. The background of community responses, first in the United States and then in other regions, each has a special history. This chapter provides an overview of historical community responses to HIV and is written by activists from the United States, India, South Africa and Western Europe. Examples of key projects include the role of peer advocacy and treatment literacy, which have enabled people living with HIV to learn more about HIV and treatment, adherence, treatment choice, drug resistance, and pipeline research for better drugs in the future. The outcome of this advocacy is that people living with HIV have been empowered to take an active role in their healthcare. HIV advocacy also provides an example of how the international activism that has changed the face of global healthcare is rooted in similar principles developed by early HIV-positive activists and is just as relevant today.

2019 ◽  
Vol 81 (5) ◽  
pp. e141-e147 ◽  
Author(s):  
Heidi M. Crane ◽  
Robin M. Nance ◽  
Susan R. Heckbert ◽  
Corey Ritchings ◽  
Lisa Rosenblatt ◽  
...  

AIDS ◽  
2019 ◽  
Vol 33 (9) ◽  
pp. 1491-1500 ◽  
Author(s):  
Benjamin Enns ◽  
Emanuel Krebs ◽  
William C. Mathews ◽  
Richard D. Moore ◽  
Kelly A. Gebo ◽  
...  

2018 ◽  
Vol 30 (3) ◽  
pp. 208-212
Author(s):  
Derrick D. Matthews

This year marks the 30th anniversary of AIDS Education and Prevention. As we approach the United Nations goal of ending the AIDS epidemic by 2030, it is a useful time to reflect on and learn from history. In the United States, no such endeavor can be successful without addressing the specific context of Black men who have sex with men. In this commentary I highlight factors that led us to a state in which Black MSM represent approximately a quarter of all people living with HIV in the United States. I also look back at the power of activism during the beginning of the HIV epidemic. Using Black Lives Matter as a contemporary framework, I highlight natural linkages between activism 30 years ago, its incarnation and relationship to public health today, and its promise as the way forward in achieving the elimination of AIDS for Black MSM by 2030.


2019 ◽  
Vol 17 (2) ◽  
pp. 171-189 ◽  
Author(s):  
Erin Reid ◽  
Gita Suneja ◽  
Richard F. Ambinder ◽  
Kevin Ard ◽  
Robert Baiocchi ◽  
...  

As treatment of HIV has improved, people living with HIV (PLWH) have experienced a decreased risk of AIDS and AIDS-defining cancers (non-Hodgkin’s lymphoma, Kaposi sarcoma, and cervical cancer), but the risk of Kaposi sarcoma in PLWH is still elevated about 500-fold compared with the general population in the United States. The NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines) for AIDS-Related Kaposi Sarcoma provide diagnosis, treatment, and surveillance recommendations for PLWH who develop limited cutaneous Kaposi sarcoma and for those with advanced cutaneous, oral, visceral, or nodal disease.


AIDS ◽  
2014 ◽  
Vol 28 (5) ◽  
pp. 633-656 ◽  
Author(s):  
Nicole Crepaz ◽  
Malu V. Tungol-Ashmon ◽  
Darrel H. Higa ◽  
Waverly Vosburgh ◽  
Mary M. Mullins ◽  
...  

2020 ◽  
Vol 8 ◽  
pp. 205031212091540
Author(s):  
Lisa Fleischer ◽  
Ann Avery

Objectives: Based on the 2015 U.S. Centers for Disease Control and Prevention data, 40% of people living with HIV in the United States with an HIV diagnosis and 18.5% of people living with HIV in HIV care in the United States are not virally suppressed. Many HIV care clinics have implemented recommendations to improve the percentage of people living with HIV on antiretroviral therapy. To understand what more could be done, we examine patients’ motivations and obstacles to maintaining adherence to antiretroviral therapy. Methods: We conducted qualitative analysis using a qualitative description framework of in-depth interviews with people living with HIV receiving care at an urban HIV care clinic in the midwestern United States. Results: We found that while many traditional barriers to care have been addressed by existing programs, there are key differences between those consistent with antiretroviral therapy and those inconsistent with antiretroviral therapy. In particular, self-motivation, diagnosis acceptance, treatment for depression, spiritual beliefs, perceived value of the HIV care team, and prior experience with health care distinguish these two groups. Most significantly, we found that people living with HIV consistent with antiretroviral therapy describe their main motivation as coming from themselves, whereas people living with HIV inconsistent with antiretroviral therapy more often describe their main motivation as coming from the HIV care team. Conclusion: Our results highlight the importance of the HIV care team’s encouragement of maintaining antiretroviral adherence, as well as encouraging treatment for depression.


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