The family perspective

2015 ◽  
Author(s):  
Carrie Lethborg ◽  
David W. Kissane
Keyword(s):  
Information Provision ◽  
Open Communication ◽  
Entire Family ◽  
Emotional Suffering ◽  
Family Perspective ◽  
The Family ◽  
Supportive Interventions ◽  
Family Based ◽  
Caregiver Role ◽  
The Impact

In considering cancer as an illness that affects not only the patient but their entire family, this chapter offers a model of family-centred care to encourage an understanding of the impact of illness on the family, the family in the caregiver role, and the needs of family-based caregivers. From a clinical perspective, the authors offer a guide for assessing these families for interventions, including the use of open communication and information provision, the recognition of past patterns of relating, the encouragement of acceptance of support, discussions with the family as a whole, and support during unpreventable emotional suffering that families experience. Specific interventions described include preventive and supportive interventions, interventions that challenge dysfunction, and interventions with the family when a patient is dying. Family-centred care is challenging as a paradigm but a useful harness to improved quality of life, one that warrants the effort involved to ease the suffering of all.

Family dynamics in the context of serious illness

2021 ◽  
pp. 295-302
Author(s):  
Carrie Lethborg ◽  
David W. Kissane
Keyword(s):  
Information Provision ◽  
Open Communication ◽  
Entire Family ◽  
Emotional Suffering ◽  
Patterns Of Relating ◽  
The Family ◽  
Supportive Interventions ◽  
Family Based ◽  
Caregiver Role ◽  
The Impact

In considering cancer as an illness that affects not only the patient but their entire family, recent research offers further insight into the depth of this impact and the complexity of culture, specific family challenges, and the patient–carer dyad. This chapter offers a model of family-centred care to encourage an understanding of the impact of illness on the family, the family in the caregiver role, and the needs of family-based caregivers. From a clinical perspective, the authors offer a guide for assessing these families for interventions, including the use of open communication and information provision, the recognition of past patterns of relating, the encouragement of acceptance of support, discussions with the family as a whole, and support during unpreventable emotional suffering that families experience. Specific interventions described include preventive and supportive interventions, interventions that challenge dysfunction, and interventions with the family when a patient is dying. Family-centred care is challenging as a paradigm but a useful harness to improved quality of life, one that warrants the effort involved to ease the suffering of all.

scholarly journals Breaking the silence about illness and death: Potential effects of a pilot study of the family talk intervention when a parent with dependent children receives specialized palliative home care

2021 ◽  
pp. 1-7
Author(s):  
Megan Weber Falk ◽  
Rakel Eklund ◽  
Ulrika Kreicbergs ◽  
Anette Alvariza ◽  
Malin Lövgren
Keyword(s):  
Home Care ◽  
Family Relationships ◽  
Family Members ◽  
Family Coping ◽  
Open Communication ◽  
Entire Family ◽  
Palliative Home Care ◽  
Dependent Children ◽  
Palliative Care Setting ◽  
The Family

Abstract Objective The entire family is affected when a parent is severely ill. Parents often need and appreciate professional support when talking to children about illness and death. The family talk intervention (FTI) is family-centered and intends to promote communication about the illness and its consequences, support parenting to enhance family coping and help family members share experiences with each other to create a shared family history. This study aimed to explore potential effects of FTI in specialized palliative home care, as reported by parents. Method This pre-post test intervention pilot was conducted in specialized palliative home care. A convergent mixed-method design was used to analyze interview and questionnaire data. Twenty families with dependent children were recruited from two specialized palliative home care units in Stockholm, Sweden. Results Parents reported that family communication improved after participation in FTI as family members learned communication strategies that facilitated open sharing of thoughts and feelings. Increased open communication helped family members gain a better understanding of each other's perspectives. Parents reported that relationships with their partner and children had improved as they now shared several strategies for maintaining family relationships. Parents were also less worried following participation in FTI. The ill parents stated that they gained a sense of security and were less worried about the future. Significance of results This study adds to the evidence that FTI may be a useful intervention for families with dependent children and an ill parent in a palliative care setting. This trial is registered at ClinicalTrials.gov Identifier NCT03119545.

A conceptual model and key variables for guiding supportive interventions for family caregivers of people receiving palliative care

2003 ◽  
Vol 1 (4) ◽  
pp. 353-365 ◽  
Author(s):  
PETER HUDSON
Keyword(s):  
Palliative Care ◽  
Conceptual Model ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Intervention Development ◽  
World Health ◽  
The Family ◽  
Key Variables ◽  
Supportive Interventions ◽  
The Impact

According to the World Health Organization, the patient and family should be viewed as the “unit of care” when palliative care is required. Therefore family caregivers should receive optimal supportive care from health professionals. However, the impact of supporting a dying relative is frequently described as having negative physical and psychosocial sequalae. Furthermore, family caregivers consistently report unmet needs and there has been a dearth of rigorous supportive interventions published. In addition, comprehensive conceptual frameworks to navigate the family caregiver experience and guide intervention development are lacking. This article draws on Lazarus and Folkman's seminal work on the transactional stress and coping framework to present a conceptual model specific to family caregivers of patients receiving palliative care. A comprehensive account of key variables to aid understanding of the family caregiver experience and intervention design is provided.

Teen Suicide Attempt: The Subjective Experience of the Family

2021 ◽  
Vol 6 (4) ◽  
Author(s):  
Szmulewicz T ◽  
◽  
Echávarri O ◽  
Morales S ◽  
Maino M de la P ◽  
...  
Keyword(s):  
Suicide Attempt ◽  
Subjective Experience ◽  
Family System ◽  
Metropolitan Region ◽  
Relational Dynamics ◽  
Entire Family ◽  
Analysis Process ◽  
The Family ◽  
Before And After ◽  
The Impact

This study aimed to understand the impact of a teenage child’s suicide attempt at a family level, based on the subjective experience of the family as a whole. A qualitative study based on an hour and a half interview with the entire family was performed within two weeks of the suicide attempt. Ten adolescents hospitalized in a psychiatric unit of a Health Service of the Metropolitan Region, in Chile, and their families, were interviewed. The interviews were recorded, transcribed and analyzed using the Grounded Theory methodology. Three major categories emerge from the analysis: Process Vision, Family Dynamics and Hospitalization Experience. Families perceive a before and after of the suicide attempt in the subsequent evolution of the family system. Changes occur in the way they ‘read’ the experiences and signs prior to the suicide attempt, in the understanding of what happened, and in the transformations of the relational dynamics as a consequence. Family resilience will depend on their history and how they have learned to cope with difficulties. Although one of the most recurrent reports regarding the suicide attempt refers to the traumatic component that it had in all the family members, they also state that this event has meant great learning as a family and an opportunity to grow, to get to know each other better and help each other. The benefits for the family of having a safe space to talk about how they feel and elaborate on what happened, without fear of being judged, has been highlighted. This enhance the need to incorporate the family as a whole when we think about an adolescent suicide attempt, both in understanding the phenomenon and in intervention and treatment.

scholarly journals O Impacto da Homossexualidade e da Homofobia na Adolescência / The Impact of Homosexuality and Homophobia on Adolescence

2021 ◽  
Vol 15 (58) ◽  
pp. 444-461
Author(s):  
Mikely Pereira de Souza ◽  
Hermínia Moreira Coelho da Costa ◽  
Julyanne De Oliveira Paes Barretto ◽  
Samuel Ilo Fernandes de Amorim ◽  
Eliane Da Silva Ferreira Moura ◽  
...  
Keyword(s):  
Sexual Orientation ◽  
Social Changes ◽  
Sexual Diversity ◽  
Whole Process ◽  
Family Perspective ◽  
The Social ◽  
The Family ◽  
The Face ◽  
The Subject ◽  
The Impact

 O presente trabalho tem a finalidade de mostrar a urgência na resolução dos problemas contextualizados sobre a homossexualidade e a homofobia na adolescência. Uma visão da perspectiva social e familiar do adolescente homossexual e que, de alguma maneira passou ou passa por situações homofóbicas decorrentes de sua escolha e orientação sexual. No cenário brasileiro atual, nos deparamos com inúmeras violências vividas e sofridas por diferentes grupos que compreendem a diversidade sexual. Esses fatos causam mudanças sociais que impactam, sobretudo, na vida dos adolescentes que definiram sua orientação sexual no âmbito familiar e social. Nesse artigo serão expostas o conceito de homossexualidade e homofobia, o princípio da proteção e os conflitos vividos face a discriminação que perduram em tempos atuais diante deste grupo. Muitas são as mudanças que protegem e amparam as vítimas de homofobia, entretanto, ainda podemos notar alguns aspectos negativos e que existem a milhares de anos dificultando todo o processo de aceitação e identidade da homossexualidade. Faz-se necessário, a correta abordagem do tema, no que concerne o respeito, a tolerância e os direitos dos adolescentes que fazem parte da diversidade sexual. Neste contexto, o trabalho foi construído a partir de pesquisas bibliográficas.---The present work has the purpose of showing the urgency in solving the contextualized problems on homosexuality and homophobia in adolescence. A view of the social and family perspective of the homosexual adolescent and that, in some way, passed through homophobic situations due to their choice and sexual orientation. In the current Brazilian scenario, we are faced with numerous violence experienced and suffered by different groups that understand sexual diversity. These facts cause social changes that impact, above all, the lives of adolescents who defined their sexual orientation in the family and social environment. In this article will be exposed the concept of homosexuality and homophobia, the principle of protection and the conflicts experienced in the face of discrimination that persist in the present times before this group. Many are the changes that protect and support the victims of homophobia; however, we can still notice some negative aspects that have existed for thousands of years, making the whole process of acceptance and identity of homosexuality difficult. It is necessary, the correct approach of the subject, with respect to the respect, the tolerance and the rights of the adolescents that are part of the sexual diversity. In this context, the work was constructed from bibliographical research. 

scholarly journals Environmental Print Model Based on Family Stimulation Solutions Ability Reading Initial Children in the Era of Pandemic Virus Dangerous

2020 ◽  
Vol 8 (1) ◽  
pp. 62-66
Author(s):  
Ismaniar Ismaniar
Keyword(s):  
Simulation Models ◽  
Environmental Print ◽  
The Family ◽  
Child Education ◽  
Family Based ◽  
Fear And Anxiety ◽  
The Impact ◽  
Health Experts ◽  
Stimulation Of

The turbulence of Coronaviruses sometime this past raises fear and anxiety for everyone. Moreover, the spread of this virus has penetrated all over the country so it is expressed as a pandemic condition. One of the solutions highly recommended by the WHO and supported by health experts and government policy is to keep social distance physically. These conditions include the impact on the application of the program at home only. In the educational world, social distancing policies also impact child education, which leads to the role of education in returning to the family. For the stimulation of children's education is not stopped, parents need to use creative models to stimulate children's abilities. One model that can be used in stimulating the ability of children, especially the ability to read early children is to use a family-based environmental Print model. This model is one of the simulation models by engineered the environment around the house by expanding the patch of the writings by observing the children's favorite places and favorites.Keywords: Environmental Print, Family, Solutions, Stimulation, Early Reading, Pandemic Era

scholarly journals Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis

2021 ◽  
Vol 18 (14) ◽  
pp. 7294
Author(s):  
Patricia Marín-Maicas ◽  
Silvia Corchón ◽  
Leire Ambrosio ◽  
Mari Carmen Portillo
Keyword(s):  
Family Caregivers ◽  
Scoping Review ◽  
Self Management ◽  
Narrative Synthesis ◽  
Long Term Conditions ◽  
Family Perspective ◽  
The Family ◽  
The Impact ◽  
Different Levels

(1) Background: When living with one or more long term conditions (LTCs), both the patient and the family experience the impact of the condition at different levels. The family’s needs and perceptions should be considered in the process of caring for people with LTCs. The aim of this review is to understand “the process of living with LTCs” from a family perspective. (2) Methods: A scoping review and narrative synthesis were conducted using a systematic methodology in MEDLINE, CINAHL, Web of Science and PsycINFO, in English and Spanish, including evidence from 2018. (3) Results: A total of 28 articles were included in the review. Acceptance, coping, self-management, integration, and adjustment were key attributes in the process of living with LTCs from the perspective of family caregivers that interrelated in a dynamic way through different mechanisms: being aware of the changing situation, personal networks, information and education, personal conditions, attitude to life and communication. (4) Conclusions: The five attributes that comprise living with LTCs from the perspective of the family caregiver are closely connected of to those of patients living with LTCs; however, self-management and integration have a different meaning and application.

scholarly journals Family Centeredness in Mental Health: A Concept Analysis

2020 ◽  
Vol 2 (1) ◽  
pp. 48-70
Author(s):  
Iril Panes
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Illness ◽  
Health Care Providers ◽  
Concept Analysis ◽  
Care Providers ◽  
Open Communication ◽  
Entire Family ◽  
The Family ◽  
Family Centeredness

Background: Mental illness affects the entire family structure. The family members are the main provider of care that results in caregiving burden. Thus, the care given should encompass the entire family system, termed as family centeredness. Purpose: This study clarifies the concept of "family centeredness" in mental health to enhance individual and family cares living amid mental illness. Methods: This research employed Walker and Avant's method of Concept Analysis. Literature was reviewed, and the characteristics that appeared repeatedly were noted and categorized. Data were mapped according to its definition, antecedents, attributes, and consequences. Results: Three key defining attributes were identified: (a) A mutual, collaborative partnership between the patient, family and health care providers based on knowledge exchange, open communication and cooperation; (b) A supportive, professional relationship/bond/engagement among health care providers, patient and family characterized by empathy, understanding, respect and empowerment; and (c) Individualized care wherein the process is defined by the family is supported, enabling the opportunity to choose, control over decisions and empowerment. Conclusion: The result of the study clearly defines family centeredness as a health care approach in mental health that acknowledges the patient and family as the experts on themselves, involves families as collaborative partners in all aspects of services and decisions about care through mutually beneficial supportive partnerships with health care providers; to help patients make progress towards recovery.

scholarly journals Profile of Dogs’ Breeders and Their Considerations on Female Reproduction, Maternal Care and the Peripartum Stress—An International Survey

Animals ◽  
2021 ◽  
Vol 11 (8) ◽  
pp. 2372
Author(s):  
Natalia Ribeiro Santos ◽  
Alexandra Beck ◽  
Cindy Maenhoudt ◽  
Charlotte Billy ◽  
Alain Fontbonne
Keyword(s):  
Human Interaction ◽  
Housing System ◽  
Maternal Behaviour ◽  
Female Reproduction ◽  
Behavioural Disorders ◽  
Online Questionnaire ◽  
The Family ◽  
Peripartum Period ◽  
Family Based ◽  
The Impact

Dogs are part of many households worldwide and in recent years in some western countries, more and more people describe them as members of the family. The accurate number of dogs per household and the actual demand for puppies are hard to estimate correctly. The sources of dogs seem to be an important element to consider before acquiring a dog since some behavioural disorders are more likely observed in dogs coming from puppy mills and pet stores. Therefore, there is an increased need to better-know dog breeders, theirs believes and practices. To full-fill this objective, an online questionnaire in five different languages (English, German, Polish, Portuguese and Spanish) was sent to dog breeders. The survey intended to study the demographics of dog breeders and to understand their perception and practices about reproduction, maternal behaviour and management of the dam during the peripartum period. We were also interested to evaluate the occurrence and the impact of stress around parturition and how breeders deal with overstressed bitches and if they believe that motherly quality could have a later-on effect on the livelihood of the dog. Six hundred and sixty-eight respondents participated in the survey, mainly from Australia, Brazil, Canada, Germany, Portugal, Poland, Spain, United Kingdom, United States of America and non-listed country (reported as ‘other’ in the survey). A country effect was observed in relation to housing system, human interaction, the use of techniques to define breeding and whelping time and different methods to manage stress during the peripartum period. Considering the demographics of the responders, breeding activity is, in general, a family based activity with an effect of country. Use of progesterone levels to manage reproduction and pregnancy diagnosis by ultrasound were cited as common practice. In general, parturition takes place under human supervision. Peripartum period was perceived as a stressful moment with a difference in the way of addressing the problem based on the country but reassuring the bitch by increasing human presence was frequently described. Inappropriate maternal behaviour was observed by half of responders and if presented primiparous bitches and parturition by C-section were overrepresented. Puppies stayed with the dams from 4 weeks to 9 weeks and dog breeders from Spain, Poland and Portugal are keeping puppies with their mother the longest. Overall, poor maternal behaviour has an impact on puppies’ cognitive development with German breeders being more convinced than their counterparts from Brazil and Spain.

Changes in Family Dynamics in Caregiving for People With Dementia in South Korea: A Qualitative Meta-Synthesis Study

2019 ◽  
Vol 30 (1) ◽  
pp. 60-72
Author(s):  
Seieun Oh ◽  
Mi Yu ◽  
Young Mi Ryu ◽  
Haejin Kim ◽  
Haeyoung Lee
Keyword(s):  
Family Dynamics ◽  
Qualitative Studies ◽  
Synthesis Methods ◽  
Dementia Caregivers ◽  
Entire Family ◽  
Dementia Caregiving ◽  
People With Dementia ◽  
The Family ◽  
Care Family ◽  
The Impact

Living with a person with dementia considerably affects the lives of both the primary caregiver and the entire family. This study aimed to synthesize the findings of qualitative studies that explored dementia caregivers’ experiences, to further understand the impact of dementia caregiving on family dynamics. Thirty-seven qualitative studies were analyzed and synthesized according to the meta-synthesis methods suggested by Sandelowski and Barroso. Four themes were identified to describe the impact of dementia caregiving on the family: cracked foundation of the family caused by dementia, voluntary or involuntary setup of a marked boundary of care, family as supportive foreground versus reluctant or interfering background, and re-established relationships within and outside the family. The findings illuminate that dementia caregiving has a destructive impact on the entire family, and therefore, it is imperative to develop interventions and infrastructures for both the caregiver and the entire family of individuals with dementia.

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