Dissemination and Implementation Research among Racial/Ethnic Minority and Other Vulnerable Populations

Author(s):  
Antronette (Toni) Yancey ◽  
Beth A. Glenn ◽  
Chandra L. Ford ◽  
LaShawnta Bell-Lewis

The evidence base on dissemination and implementation of interventions for racial/ethnic minority communities is expanding rapidly. Although the strength of the evidence varies depending on the health outcome, some general trends are apparent. Key lessons include that cultural appropriateness enhances community “buy-in” of interventions. Interventions that reflect a community’s cultural values and that are implemented in ubiquitous settings are also associated with success. Efforts that account for place characteristics (e.g., neighborhood geography, intervention setting) can also improve the uptake of interventions. In conclusion, the importance of inclusivity and equity in public health efforts to prevent and control disease is paramount. The best way to achieve social justice and improve the health of the entire population is to ensure that the strategies most effective in preventing disease are disseminated within the populations at greatest risk.

Fifteen to twenty years is how long it takes for the billions of dollars of health-related research to translate into evidence-based policies and programs suitable for public use. Over the past 15 years, an exciting science has emerged that seeks to narrow the gap between the discovery of new knowledge and its application in public health, mental health, and health care settings. Dissemination and implementation (D&I) research seeks to understand how to best apply scientific advances in the real world, by focusing on pushing the evidence-based knowledge base out into routine use. To help propel this crucial field forward, leading D&I scholars and researchers have collaborated to put together this volume to address a number of key issues, including: how to evaluate the evidence base on effective interventions; which strategies will produce the greatest impact; how to design an appropriate study; and how to track a set of essential outcomes. D&I studies must also take into account the barriers to uptake of evidence-based interventions in the communities where people live their lives and the social service agencies, hospitals, and clinics where they receive care. The challenges of moving research to practice and policy are universal, and future progress calls for collaborative partnerships and cross-country research. The fundamental tenet of D&I research—taking what we know about improving health and putting it into practice—must be the highest priority. This book is nothing less than a roadmap that will have broad appeal to researchers and practitioners across many disciplines.


Author(s):  
Ruban Dhaliwal ◽  
Rocio I Pereira ◽  
Alicia M Diaz-Thomas ◽  
Camille E Powe ◽  
Licy L Yanes Cardozo ◽  
...  

Abstract The Endocrine Society recognizes racism as a root cause of the health disparities that affect racial/ethnic minority communities in the United States and throughout the world. In this policy perspective, we review the sources and impact of racism on endocrine health disparities and propose interventions aimed at promoting an equitable, diverse, and just healthcare system. Racism in the healthcare system perpetuates health disparities through unequal access and quality of health services, inadequate representation of health professionals from racial/ethnic minority groups, and the propagation of the erroneous belief that socially constructed racial/ethnic groups constitute genetically and biologically distinct populations. Unequal care, particularly for common endocrine diseases such as diabetes, obesity, osteoporosis, and thyroid disease, results in high morbidity and mortality for individuals from racial/ethnic minority groups, leading to a high socioeconomic burden on minority communities and all members of our society. As health professionals, researchers, educators, and leaders, we have a responsibility to take action to eradicate racism from the healthcare system. Achieving this goal would result in high-quality health care services that are accessible to all, diverse workforces that are representative of the communities we serve, inclusive and equitable workplaces and educational settings that foster collaborative teamwork, and research systems that ensure that scientific advancements benefit all members of our society. The Endocrine Society will continue to prioritize and invest resources in a multifaceted approach to eradicate racism, focused on educating and engaging current and future health professionals, teachers, researchers, policy makers, and leaders.


2020 ◽  
Vol 30 (Suppl 1) ◽  
pp. 137-148 ◽  
Author(s):  
Lisa G. Rosas ◽  
Catherine Nasrallah ◽  
Van Ta Park ◽  
Jan J. Vasquez ◽  
Ysabel Duron ◽  
...  

 Background: In order for precision health to address health disparities, engagement of diverse racial/ethnic minority communi­ties and the physicians that serve them is critical.Methods: A community-based participatory research approach with mixed methods was employed to gain a deeper understanding of precision health research and practice among American Indian, African American, Latino, Chinese, and Vietnamese groups and physicians that serve these communi­ties. A survey assessed demographics and opinions of precision health, genetic testing, and precision health research. Focus groups (n=12) with each racial/ethnic minority group and physicians further explored at­titudes about these topics.Results: One hundred community mem­bers (American Indian [n=17], African American [n=13], Chinese [n=17], Latino [n=27], and Vietnamese [n=26]) and 14 physicians completed the survey and participated in the focus groups. Familiarity with precision health was low among com­munity members and high among physi­cians. Most groups were enthusiastic about the approach, especially if it considered influences on health in addition to genes (eg, environmental, behavioral, social fac­tors). Significant concerns were expressed by African American and American Indian participants about precision health practice and research based on past abuses in bio­medical research. In addition, physician and community members shared concerns such as security and confidentiality of genetic information, cost and affordability of genetic tests and precision medicine, discrimina­tion and disparities, distrust of medical and research and pharmaceutical institutions, language barriers, and physician’s specialty.Conclusions: Engagement of racial/ethnic minority communities and the providers who serve them is important for advancing a precision health approach to addressing health disparities.Ethn Dis. 2020;30(Suppl 1):137-148; doi:10.18865/ed.30.S1.137


2019 ◽  
Vol 17 (2) ◽  
pp. 148
Author(s):  
DeeDee M. Bennett, PhD

Women and racial/ethnic minorities have long been underrepresented in the field of emergency management. This is true for both practice and research. The lack of women and racial/ethnic minorities in the profession and their perceived absence in research or scholarly study may have impacts on the effectiveness of response and recovery efforts as well as the broader scientific knowledge within the field. Historically, women and racial/ethnic minority communities have disproportionately experienced negative impacts following disasters. Earlier related studies have pointed to the underrepresentation as a contributing factor in community vulnerability. The scarcity of women in practice and as students in this field has been particularly evident in the United States. Using data from a recent survey of emergency management programs nationwide, this article reviews the concerns in research with regards to women and ethnic minority communities during disasters, efforts to increase representation of these groups in the field, and discusses the implications for practice, policy, and future research. The findings show that women have a strong presence in emergency management programs nationwide, and while specific data on racial and ethnic minorities are lacking, the observed increases reported in this article encourages further study.


Author(s):  
Graham A. Colditz ◽  
Karen M. Emmons

Given the growing emphasis on dissemination and implementation as a means to increase the efficiency of the research enterprise, public policy, and the services with which we work, refining methods that facilitate translation and implementation are imperative. Bringing the dissemination and implementation research community to common understanding of answers to our overarching questions is a necessary step. Then we can more consistently answer the questions: How will we gather this information on effective interventions to form the evidence base? Will interventions be applicable to our setting? What methods should we use to decide what to disseminate or implement? Which strategies will give us the greatest impact on population health? What outcomes should be tracked to know if we are making progress? How long will it take to show progress, or when will it be observed? The methods outlined in this book will help in answering these and other important questions.


Ethnicities ◽  
2016 ◽  
Vol 17 (4) ◽  
pp. 469-490 ◽  
Author(s):  
Katharine Charsley ◽  
Marta Bolognani ◽  
Sarah Spencer

In both policy and academic debates in Britain, as elsewhere in Europe, concern is increasingly expressed over the implications of spousal immigration for ‘integration’. Continued practices of ‘homeland’ transnational marriage within some ethnic minority communities, in particular, are presented as problematic, and new immigration restrictions likely to particularly affect such groups are justified on the grounds of promoting integration. The evidence base to underpin this concern is, however, surprisingly limited and analysis is based on differing and often partial conceptualisations of integration. Through an examination of the evidence in recent studies, we interrogate the impact which spousal immigration can have within differing domains of integration. Exposing the complex processes at play we demonstrate the need for future research to deploy a nuanced, more comprehensive concept of integration if it is to avoid simplistic assertions that these forms of marriage migration have a single, direct impact on integration processes.


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