Learning from My Daughter

2019 ◽  
Author(s):  
Eva Feder Kittay
Keyword(s):  
Ethical Theory ◽  
Good Life ◽  
Ethic Of Care ◽  
Prenatal Testing ◽  
Cognitive Disability ◽  
Significant Disabilities ◽  
The Family ◽  
Adequate Understanding ◽  
The Disabled ◽  
Guide Care

Disability offers a significant challenge to long-held philosophical views of the nature of the good life, what offers meaning in our lives, the importance of care, and the centrality of reason, as well as questions of justice, dignity, and personhood. In Learning from My Daughter, the author claims that living with a daughter who has multiple and significant disabilities, including cognitive disabilities, has been utterly transformative for thinking about her training, career and research as a philosopher. Interweaving the personal voice with the philosophical, the book argues that cognitive disability should reorient us to what truly matters; raises the question of whether normalcy is necessary for a good life; considers the ethical questions regarding prenatal testing and what it implies for understanding disability, the family, and ethically informed bioethics; and discusses the importance of care and an ethic built on an adequate understanding of care as it ought to be—not simply in how it is—practiced. The end of the book takes on the controversial case of Ashley X and the ethics of growth attenuation. In Learning from My Daughter, the disabled person takes center stage, but so does the ethic that needs to guide care. An ethic of care—if properly understood, the author claims—can be an ethical theory that is most useful for fully integrating disabled people and allowing them to live lives that are joyful and fulfilling.

Zeit und gutes Leben

2020 ◽  
Vol 74 (4) ◽  
pp. 493-513
Author(s):  
Holmer Steinfath
Keyword(s):  
Internal Structure ◽  
Good Life ◽  
External Factor ◽  
Life Time ◽  
The Good Life ◽  
Adequate Understanding ◽  
Gutes Leben

Time is a neglected subject in recent, especially analytically minded reflections on the good life. The article highlights the fundamental role of time and temporality for an adequate understanding of the good life. Time functions both as an external factor with which we have to reckon in our practical deliberations and as an internal structure of living our lives. It is argued that striving for a good life also means striving for being in harmony with the time of one's life. The exploration of this idea allows to link analytical with phenomenological approaches to time and good life.

Who Cares for the Family?

1978 ◽  
Vol 7 (3) ◽  
pp. 257-284 ◽  
Author(s):  
Hilary Land
Keyword(s):  
Labour Market ◽  
Domestic Workers ◽  
Careful Examination ◽  
Family Policies ◽  
Adult Men ◽  
The Family ◽  
The Disabled ◽  
Unpaid Labour ◽  
Maintenance Systems ◽  
The Impact

ABSTRACTAlthough Britain has never had a set of policies explicitly labelled ‘family policies’, most if not all social policies are implicitly family policies because they are based on certain assumptions about the nature of relationships between the sexes and the generations. By careful examination of the detail of the legislation and administrative rules, together with the way in which services are allocated and used, it is possible to expose these assumptions and show that they are not only consistent between policies but very persistent over time. This paper first examines the assumptions concerning the division of unpaid labour within the family whereby women care for the young, the sick and the old and for able-bodied adult men (their husbands). The examples are selected from a variety of income maintenance systems and services for children, the old and the disabled. Particular attention is focused on the extent to which it is recognized that women are at the same time workers in the labour market and unpaid domestic workers in the home. The second part of the paper analyses the impact on their participation and opportunities in the labour market of the ideology which accords to women the primary responsibilities for caring for other members of their family. The perpetuation of such an ideology favours the interests of men and frequently the interests of the economically powerful, but it is not assumed that these interests always coincide.

scholarly journals Disability and work intensity in Italian households

2021 ◽  
Author(s):  
Elena Calegari ◽  
Enrico Fabrizi ◽  
Chiara Mussida
Keyword(s):  
Labour Market ◽  
Social Services ◽  
Family Relationship ◽  
Market Participation ◽  
Work Intensity ◽  
Persons With Disabilities ◽  
Labour Market Participation ◽  
The Family ◽  
Welfare Systems ◽  
The Disabled

AbstractThe 2030 Agenda of the United Nations clearly sets the inclusion of persons with disabilities in the labour market as a main goal. However, especially in care welfare systems characterized by a low level of social services, disability not only impacts the labour market participation of disabled people themselves but may also affect the labour opportunities of other members of their household. Using EU-SILC data to compute individual work intensity-as a better measure of the actual level of labour attainment-this paper aims to disentangle direct and indirect correlations between disability and labour market participation in Italian households. In confirming the negative direct correlation between disability and labour market participation, the results also show a negative indirect correlation that depends on the family relationship between the disabled person and household members.

Prenatal Diagnosis

1992 ◽  
Vol 13 (9) ◽  
pp. 334-342
Author(s):  
John H. DiLiberti ◽  
Mark A. Greenstein ◽  
Sally Shulman Rosengren
Keyword(s):  
Prenatal Diagnosis ◽  
Imaging Techniques ◽  
Three Dimensional ◽  
Prenatal Testing ◽  
The Past ◽  
Computerized Image Processing ◽  
The Family ◽  
Family History Assessment ◽  
Additional Explanation ◽  
Pediatric Disorders

The enormous progress witnessed in the field of prenatal diagnosis during the past two decades is likely to continue into the future. Improved imaging techniques are likely to enhance the resolution of noninvasively obtained fetal images considerably over their current excellent quality. Although this undoubtedly will be true for ultrasonography, the increased speed of magnetic resonance equipment may offer a new realm of imaging possibilities. Computerized image processing, analysis, and three-dimensional reconstructions all should make interpretation of fetal images easier and more understandable to the nonspecialist. Advances in molecular genetics will continue to accelerate, greatly expanding the range and accuracy of prenatal diagnosis. The alert pediatrician who is sensitive to genetic issues may, by early detection of pediatric disorders and careful family history assessment, be in a position to identify families at risk for serious genetic conditions and provide the opportunity to make informed decisions on reproductive options that avert a major tragedy. The pediatrician, working with obstetric colleagues, should be part of a team effort to support families going through prenatal testing. Familiarity with these rapidly changing technologies will make it far easier to support the family needing additional explanation about prenatal diagnosis issues.

Materialisation of the Good Life in the New House

2021 ◽  
pp. 1-30
Author(s):  
Lan Wei
Keyword(s):  
Family Life ◽  
Good Life ◽  
Intergenerational Relationships ◽  
Western Society ◽  
The Good Life ◽  
The Past ◽  
The Family ◽  
The Media ◽  
Rural Architecture ◽  
Family House

Abstract Over the past two decades, Chinese rural architecture has experienced dramatic changes through the Building the Chinese Socialist New Village movement. Thousands of new houses, particularly in the model of the New Village, have risen abruptly out of the ground. These Western-style new houses with a garden (huayuan yangfang), which often appear in the media as typical family houses in Western society, largely represent the image of the good life of the state and the peasant in contemporary China. In this article, I focus on how the family house is produced and consumed in Baikou New Village in south China. By presenting the materiality of the dwelling space, this paper probes the intertwined processes of the materialisation of the blueprint of the good life and how the new houses influence family life (especially intergenerational relationships) in post-socialist Baikou New Village.

scholarly journals A Translation into English of Khalil I. Al-Fuzai’s1“In the Café”2

2018 ◽  
Vol 6 (6) ◽  
Author(s):  
Gassim H. Dohal
Keyword(s):  
Good Life ◽  
Saudi Arabian ◽  
Human Being ◽  
The Family ◽  
State Of Mind ◽  
Pain And Suffering ◽  
Islamic Faith ◽  
The Village ◽  
As If ◽  
At Home

One of the principles of the Islamic faith is belief in destiny; “that Allah has power over all things and that Allah surrounds all things in (His) knowledge” (Al-Hilali 768). A human being does not have knowledge of his/her predestination, and thus acts in accordance with a choice and/or a desire from within him. Yet some people in the Saudi Arabian society blame destiny for their idleness as if fate were their problem. They should not attribute their laziness to destiny because Islam requires people to work, and their fate is unknown to them before it takes place. This story portrays how luck or fate can play an important role in the life of some people. The protagonist goes to the café to spend time and drink some coffee. There he gets acquainted with his rich uncle, who had left the village. While introducing the story setting, the author uses such words as “routine,” “mechanical,” “dull,” “gloom,” “boring,” etc.— words that reflect the protagonist’s state of mind, and how he envisions his life; it is a difficult and miserable life. Though he apparently goes to the café for a change of pace from the dull atmosphere at home, boredom follows him everywhere. Yousef is “alone to face the hardships of life....”; even in the café, he is alienated. So he wishes to marry, because a wife, as a partner, would support him, at least emotionally; but he questions “how can *I+ afford marriage expenses?” in a society where marriage requires wealth. He is no different from other main characters in this collection who are struggling to earn a living. Like Hassan, the protagonist of “Before the Station,” Yousef in this story assumes his late father’s responsibilities; he should “make a living for his mother and his two littlem brothers....3 ” The Saudi Arabian society expects the elder son to take care of the family if something bad happens to the father and, at the same time; it rarely provides any support for such families. Hence, Yousef should “become a sailor” who will face the “tyrannical cruelty” of the sea that delivered the deathblow to his father. He has no idea that his life will end up with such a struggle. It is Um-Kalthoom, a famous Arabian singer, whose songs give him momentum to struggle for survival. To him, she creates “an immortal melody” about pain and suffering—“a pleasant song chanted by sad people” like him. And as long as she manages to mold pain into “a pleasant song” between her lips, he has a chance to create a good life for his family out of the hardships he is facing through his daily struggle. Indeed, “a new dawn in *Yousef’s+ life” emerges after a lengthy night, and his fall changes into spring. While he is sitting in the café, a coincidence takes place: an old, rich man appears, looking for his nephew who, in the end, turns out to be Yousef himself. As is the case in “A Point of Change,” the author depicts in this story difficulties of living, and how chance or fate, as people there call it, may change one’s life.

The Pediatrician, the Disabled Child, and the Family: A Special Relationship

1987 ◽  
Vol 8 (7) ◽  
pp. 195-195
Author(s):  
Robert L. Miller
Keyword(s):  
Down Syndrome ◽  
Special Needs ◽  
Special Relationship ◽  
Long Period ◽  
Grief Reaction ◽  
Ideal Position ◽  
The Family ◽  
The Disabled

Sooner or later, every practicing pediatrician will be asked to care for a baby who will be permanently disabled, such as a child with Down syndrome. To some, the request will be an unwelcome burden, to be dealt with as quickly as possible. To others, however, a new baby with a disability challenges the pediatrician to use all of his or her skills over a long period of time, receiving unexpected rewards in the process. The first opportunity to establish a sound relationship comes when the pediatrician must inform the new parents about the diagnosis. The response to such unexpected news is always shock, denial, and guilt, with a healthy dose of anger. The pediatrician, who by nature is sensitive to the special needs of children and their parents, is in an ideal position to deal with the normal grief reaction.

5. Ethics

2018 ◽  
pp. 65-76
Author(s):  
Brad Inwood
Keyword(s):  
Human Nature ◽  
Good Life ◽  
Self Control ◽  
The Good Life ◽  
Human Being ◽  
Human Beings ◽  
Wise Person ◽  
The Family

Ethics is the part of the Stoics’ legacy that is most prominent and influential today. Their theory of the good life for human beings falls into the family of theories associated with Socrates and his followers. This tradition includes Plato and most Platonists, Xenophon, the Cynics, Aristotle, and later Aristotelians, all of whom share the view that virtue, the excellence of a human being, is the highest value and is its own reward. ‘Ethics’ discusses the Stoics’ views on human nature and rationality; the four basic virtues: justice, courage, wisdom, and moderation or self-control; and the doctrine that the fully rational and wise person will be free of passions.

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