Lessons Learned: How Studying Cochlear Implantation Reveals the Context in Which d/Deaf Identities Are Formed

Deaf Identities ◽

10.1093/oso/9780190887599.003.0005 ◽

2019 ◽

pp. 96-119

Author(s):

Laura Mauldin

Keyword(s):

Decision Making ◽

Cochlear Implants ◽

Well Being ◽

Lessons Learned ◽

Deaf Children ◽

Parental Decision Making ◽

Deaf Identity ◽

History Of ◽

Race Ethnicity ◽

Context Shapes

With the exponential increase in the use of cochlear implants, much has been written about how cochlear implants may have changed deaf identities. Recent research documents a trend toward a more hearing-oriented identity with potential for positive psychological well-being. In this chapter, a hearing sociologist and ethnographic researcher highlights how the clinical context shapes both parental decision making about obtaining cochlear implants for their deaf children and the far-reaching influence that hearing-oriented systems have on this decision-making process for parents, deaf individuals, and deaf communities. The author describes the nature of these hearing-oriented systems and highlights issues related to race, ethnicity, and socioeconomic status for cochlear-implanted children. The potential implications for these children are considered. There is a need for research that broadly examines the question of whether and how cochlear implants change the long history of narratives of finding one’s Deaf identity.

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Lessons Learned From an Early Hotspot During the COVID-19 Pandemic

The American Surgeon ◽

10.1177/0003134821994757 ◽

2021 ◽

pp. 000313482199475

Author(s):

Brett M. Chapman ◽

George M. Fuhrman

Keyword(s):

Decision Making ◽

Surgical Education ◽

Clinical Care ◽

Well Being ◽

Educational Environment ◽

Lessons Learned ◽

Residency Programs ◽

Surgical Residency ◽

The Impact

The Covid-19 pandemic has provided challenges for surgical residency programs demanding fluid decision making focused on providing care for our patients, maintaining an educational environment, and protecting the well-being of our residents. This brief report summarizes the impact of the impact on our residency programs clinical care and education. We have identified opportunities to improve our program using videoconferencing, managing recruitment, and maintaining a satisfactory caseload to ensure the highest possible quality of surgical education.

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Parental Perspectives on Inpatient Versus Outpatient Management of Pediatric Febrile Neutropenia

Journal of Pediatric Oncology Nursing ◽

10.1177/1043454211418665 ◽

2011 ◽

Vol 28 (6) ◽

pp. 355-362 ◽

Cited By ~ 7

Author(s):

Caroline Diorio ◽

Julia Martino ◽

Katherine Mary Boydell ◽

Marie-Chantal Ethier ◽

Chris Mayo ◽

...

Keyword(s):

Decision Making ◽

Febrile Neutropenia ◽

Program Implementation ◽

Well Being ◽

Outpatient Management ◽

Treatment Scenario ◽

Parental Decision ◽

Face To Face ◽

Parental Decision Making ◽

Research Assistants

To describe parent preference for treatment of febrile neutropenia and the key drivers of parental decision making, structured face-to-face interviews were used to elicit parent preferences for inpatient versus outpatient management of pediatric febrile neutropenia. Parents were presented with 4 different scenarios and asked to indicate which treatment option they preferred and to describe reasons for this preference during the face-to-face interview. Comments were recorded in writing by research assistants. A consensus approach to thematic analysis was used to identify themes from the written comments of the research assistants. A total of 155 parents participated in the study. Of these, 80 (51.6%) parents identified hospital-based intravenous treatment as the most preferred treatment scenario for febrile neutropenia. The major themes identified included convenience/disruptiveness, physical health, emotional well-being, and modifiers of parental decision making. Most parents preferred hospital-based treatment for febrile neutropenia. An understanding of issues that influence parental decision making may assist health care workers in planning program implementation and further support families in their decision-making process.

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Hearing Parents’ Voices: Parental Refusal of Cochlear Implants and the Zone of Parental Discretion

Journal of Bioethical Inquiry ◽

10.1007/s11673-021-10154-8 ◽

2021 ◽

Author(s):

Owen M. Bradfield

Keyword(s):

Cochlear Implant ◽

Cochlear Implants ◽

Cochlear Implantation ◽

Well Being ◽

Modern Medicine ◽

Deaf Children ◽

Parent Child Relationship ◽

Social Construct ◽

Child Relationship ◽

Parental Refusal

AbstractIt has been forty years since the first multi-channel cochlear implant was used in Australia. While heralded in the hearing world as one of the greatest inventions in modern medicine, not everyone reflects on this achievement with enthusiasm. For many people in the Deaf community, they see the cochlear implant as a tool that reinforces a social construct that pathologizes deafness and removes Deaf identity. In this paper, I set out the main arguments for and against cochlear implantation. While I conclude that, on balance, cochlear implants improve the well-being and broaden the open futures of deaf children, this does not justify mandating implants in circumstances where parents refuse them because this may compound unintended harms when society interferes in the parent-child relationship. For this reason, I argue that parental refusal of cochlear implantation falls within Gillam’s concept of the zone of parental discretion.

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Knowing Well-being: A History of Data

10.1007/978-3-030-72937-0_2 ◽

2021 ◽

pp. 35-66

Author(s):

Susan Oman

Keyword(s):

Decision Making ◽

Public Management ◽

Management Strategies ◽

Well Being ◽

Scientific Discipline ◽

Human Welfare ◽

Human Happiness ◽

History Of ◽

Universal Definition ◽

Rational Process

AbstractWhat is well-being? Well-being has become synonymous with the multi-billion-dollar wellness industry, whilst also being rooted in ancient philosophy and religious practices. It has no universal definition across time, place or scientific discipline, yet the very term ‘statistics’ was invented to measure human happiness.This chapter contextualises the history of well-being data and development as one which is tied to political and technological change, firstly, in the desire to monitor human welfare, and secondly, for policy. Public management strategies embraced economic approaches to auditing, as a means to define value and efficiency in social policy choices. The chapter considers how well-being data became co-opted into an ostensibly rational process of decision-making and evaluation, becoming a tool of policy—for good and bad.

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Participatory Research With Older Workers in a Pandemic: Innovations and Lessons Learned

Innovation in Aging ◽

10.1093/geroni/igab046.985 ◽

2021 ◽

Vol 5 (Supplement_1) ◽

pp. 256-256

Author(s):

Cal Halvorsen ◽

Kelsey Werner ◽

Elizabeth McColloch

Keyword(s):

Participatory Research ◽

Low Income ◽

Older Workers ◽

Well Being ◽

Case Managers ◽

Lessons Learned ◽

Workforce Training ◽

Future Research ◽

History Of ◽

Federal Workforce

Abstract In the spring of 2020, and as the implications of the COVID-19 pandemic became increasingly dire, in-person studies halted throughout the world. This included our planned study to examine the role of the Senior Community Service Employment Program (SCSEP)—the sole federal workforce training program for low-income older adults—in influencing participant financial, physical, and mental well-being. While our original plans were to hold a series of in-person workshops with SCSEP participants and case managers using a form of participatory research called community-based system dynamics (CBSD), we paused the launch of our study to determine the safest path forward. This presentation will describe how we responded as well as innovations and implications for future research with harder to reach populations. First, we met with the Massachusetts state SCSEP director to assess the feasibility of moving our sessions online with this particular population. After determining that virtual and telephone sessions would both be needed to increase accessibility, we identified virtual whiteboard software rigorous enough to utilize CBSD-specific activities, user-friendly enough for populations less familiar with virtual environments, and with security features that would be approved by our university, as well as discussed what types of activities to conduct on the telephone for such a visual research method. Our CBSD study was one of the first to utilize virtual and telephone formats in the history of this method, and our results indicate that it is possible—and sometimes beneficial—to move in-person participatory methods to these environments to increase inclusion and efficiency.

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The Impact of Audition on the Development of Visual Attention

Psychological Science ◽

10.1111/j.1467-9280.1994.tb00284.x ◽

1994 ◽

Vol 5 (6) ◽

pp. 347-353 ◽

Cited By ~ 80

Author(s):

Alexandra L. Quittner ◽

Linda B. Smith ◽

Mary Joe Osberger ◽

Teresa V. Mitchell ◽

Donald B. Katz

Keyword(s):

Visual Attention ◽

Cochlear Implants ◽

Longitudinal Design ◽

Visual Selective Attention ◽

Visual Signals ◽

Deaf Children ◽

History Of ◽

Hearing Children ◽

The Impact ◽

Better Than

Interactions between audition and vision were investigated in two experiments In the first experiment, school-age hearing children, deaf children with cochlear implants, and deaf children without implants participated in a task in which they were to respond to some visual signals and not others This task did not involve sound at all Deaf children without implants performed much more poorly than hearing children Deaf children with cochlear implants performed considerably better than deaf children without implants The second experiment employed a longitudinal design and showed that the rate of development in visual selective attention was faster for deaf children with cochlear implants than deaf children without implants Moreover, the gains were rapid—occurring within 2 years post-implant surgery The results suggest that a history of experience with sounds matters in the development of visual attention The results are discussed in terms of multimodal developmental processes

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Elaborating the role of reflection and individual differences in the study of folk-economic beliefs

Behavioral and Brain Sciences ◽

10.1017/s0140525x18000274 ◽

2018 ◽

Vol 41 ◽

Author(s):

Kevin Arceneaux

Keyword(s):

Decision Making ◽

Individual Differences ◽

Cognitive Processes ◽

Evolutionary History ◽

Behavioral Responses ◽

History Of ◽

Economic Beliefs

AbstractIntuitions guide decision-making, and looking to the evolutionary history of humans illuminates why some behavioral responses are more intuitive than others. Yet a place remains for cognitive processes to second-guess intuitive responses – that is, to be reflective – and individual differences abound in automatic, intuitive processing as well.

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The Relationship Between Hearing Loss Self-Management and Hearing Aid Benefit and Satisfaction

American Journal of Audiology ◽

10.1044/2018_aja-18-0130 ◽

2019 ◽

Vol 28 (2) ◽

pp. 274-284 ◽

Cited By ~ 6

Author(s):

Elizabeth Convery ◽

Gitte Keidser ◽

Louise Hickson ◽

Carly Meyer

Keyword(s):

Decision Making ◽

Hearing Loss ◽

Hearing Aids ◽

Clinical Decision Making ◽

Hearing Aid ◽

Well Being ◽

Self Report ◽

Self Management ◽

Hearing Aid Benefit ◽

The Relationship

Purpose Hearing loss self-management refers to the knowledge and skills people use to manage the effects of hearing loss on all aspects of their daily lives. The purpose of this study was to investigate the relationship between self-reported hearing loss self-management and hearing aid benefit and satisfaction. Method Thirty-seven adults with hearing loss, all of whom were current users of bilateral hearing aids, participated in this observational study. The participants completed self-report inventories probing their hearing loss self-management and hearing aid benefit and satisfaction. Correlation analysis was used to investigate the relationship between individual domains of hearing loss self-management and hearing aid benefit and satisfaction. Results Participants who reported better self-management of the effects of their hearing loss on their emotional well-being and social participation were more likely to report less aided listening difficulty in noisy and reverberant environments and greater satisfaction with the effect of their hearing aids on their self-image. Participants who reported better self-management in the areas of adhering to treatment, participating in shared decision making, accessing services and resources, attending appointments, and monitoring for changes in their hearing and functional status were more likely to report greater satisfaction with the sound quality and performance of their hearing aids. Conclusion Study findings highlight the potential for using information about a patient's hearing loss self-management in different domains as part of clinical decision making and management planning.

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