scholarly journals P078 Delivering far reaching patient education in rheumatological conditions and treatments: RadioRheumatology podcasts

Rheumatology ◽  
2021 ◽  
Vol 60 (Supplement_1) ◽  
Author(s):  
Rosealeen M Killick ◽  
Jeannette Cameron ◽  
Sandra Smith ◽  
Mark Lloyd ◽  
Julekha Wajed

Abstract Background/Aims  There is a need for accessible rheumatic patient education . Podcasts can be accessed globally, are simple and cheap to produce and enable access by patients who may have reading difficulties. They also allow local patients to connect personally with their rheumatology department staff. Hospital radio departments offer access to high quality recording equipment and often have spare capacity to facilitate recordings Methods  RadioRheumatology podcasts are recorded by our rheumatology clinical team with technical support from RadioFrimleyPark volunteers.Hospital radio departments are often under-utilised and have enthusiastic volunteers. The podcasts are uploaded to our podcast hosting website Buzzsprout (accessible at www.rheumatology.buzzsprout.com) and then propagated to Spotify, Apple Podcasts, Android Podcasts and other podcasts sites. Listeners can find our episodes via social media platforms or by searching their podcast provider of choice. We offer a 'QR' link to the podcasts for our patients in clinic and can send the link in a letter or email. In the last 11 months we have recorded podcasts on 'Steroids in Rheumatology', 'Methotrexate Overview' 'Early Inflammatory Arthritis' and 'Rheumatoid Arthritis'. Results  RadioRheumatology has been received well both locally and internationally with listeners in 62 different countries. Statistical data is sent from the podcast website on a monthly basis including 'top episodes', 'top apps', listener locations and devices used (to listen to the podcasts): The 'Methotrexate' episode has been the most popular to date and has had over 550 listeners at the time of writing.The United Kingdom has had the most 'listens' (570) followed by The United States (428). We have had listeners as far afield as New Zealand and Malaysia. Within the UK Islington,had the most listens (105), followed by Blackheath (91) Apple iPhone is the most commonly used device used to access (with 694 listens). Feedback so far has been positive.We have have had 5 star reviews and positive feedback from both patients and healthcare professionals. 5* review: A very easy to understand guide to RA: “Fantastic podcast which really explains rheumatoid arthritis but more importantly the help and support available to patients. As a Biologic Specialist Nurse I will certainly be directing my patients and families to this podcast to help them manage their conditions effectively" Conclusion  Podcasts can be an effective and cost-effective way to deliver patient education They enable both local and wider patient contact. Podcasts are an increasingly popular medium, particularly since the advent of COVID-19; listener number feedback and reviews enable us to assess the popularity of our episodes and tailor future podcasts accordingly. Hospital radio volunteers have been central to the success of this project by offering their time and championing the use of hospital radio to support clinical teams in delivering patient education. Disclosure  R.M. Killick: None. J. Cameron: None. S. Smith: None. M. Lloyd: None. J. Wajed: None.

Author(s):  
K D Stephen

Industry, universities and polytechnics in the UK are becoming aware of the benefits and extent of use being made of distance learning video courses (DLVCs) by their competitors in other countries. In the United States these courses for engineers, scientists and technical managers are now being distributed for credit towards a master's degree by satellite as well as by cassette. Experience in the UK using cassettes and the tutored video instruction (TVI) methodology has shown that the system, when used sensibly, is very cost effective and has several advantages when compared with traditional methods. Grants are now available in the UK to promote the production and use of DLVCs—but rate of adoption depends partly on the attitudes of top management.


2018 ◽  
Vol 22 (34) ◽  
pp. 1-280 ◽  
Author(s):  
Sarah Brown ◽  
Colin C Everett ◽  
Kamran Naraghi ◽  
Claire Davies ◽  
Bryony Dawkins ◽  
...  

Background Rheumatoid arthritis (RA), the most common autoimmune disease in the UK, is a chronic systemic inflammatory arthritis that affects 0.8% of the UK population. Objectives To determine whether or not an alternative class of biologic disease-modifying antirheumatic drugs (bDMARDs) are comparable to rituximab in terms of efficacy and safety outcomes in patients with RA in whom initial tumour necrosis factor inhibitor (TNFi) bDMARD and methotrexate (MTX) therapy failed because of inefficacy. Design Multicentre, Phase III, open-label, parallel-group, three-arm, non-inferiority randomised controlled trial comparing the clinical and cost-effectiveness of alternative TNFi and abatacept with that of rituximab (and background MTX therapy). Eligible consenting patients were randomised in a 1 : 1 : 1 ratio using minimisation incorporating a random element. Minimisation factors were centre, disease duration, non-response category and seropositive/seronegative status. Setting UK outpatient rheumatology departments. Participants Patients aged ≥ 18 years who were diagnosed with RA and were receiving MTX, but had not responded to two or more conventional synthetic disease-modifying antirheumatic drug therapies and had shown an inadequate treatment response to a first TNFi. Interventions Alternative TNFi, abatacept or rituximab (and continued background MTX). Main outcome measures The primary outcome was absolute reduction in the Disease Activity Score of 28 joints (DAS28) at 24 weeks post randomisation. Secondary outcome measures over 48 weeks were additional measures of disease activity, quality of life, cost-effectiveness, radiographic measures, safety and toxicity. Limitations Owing to third-party contractual issues, commissioning challenges delaying centre set-up and thus slower than expected recruitment, the funders terminated the trial early. Results Between July 2012 and December 2014, 149 patients in 35 centres were registered, of whom 122 were randomised to treatment (alternative TNFi, n = 41; abatacept, n = 41; rituximab, n = 40). The numbers, as specified, were analysed in each group [in line with the intention-to-treat (ITT) principle]. Comparing alternative TNFi with rituximab, the difference in mean reduction in DAS28 at 24 weeks post randomisation was 0.3 [95% confidence interval (CI) –0.45 to 1.05] in the ITT patient population and –0.58 (95% CI –1.72 to 0.55) in the per protocol (PP) population. Corresponding results for the abatacept and rituximab comparison were 0.04 (95% CI –0.72 to 0.79) in the ITT population and –0.15 (95% CI –1.27 to 0.98) in the PP population. General improvement in the Health Assessment Questionnaire Disability Index, Rheumatoid Arthritis Quality of Life and the patients’ general health was apparent over time, with no notable differences between treatment groups. There was a marked initial improvement in the patients’ global assessment of pain and arthritis at 12 weeks across all three treatment groups. Switching to alternative TNFi may be cost-effective compared with rituximab [incremental cost-effectiveness ratio (ICER) £5332.02 per quality-adjusted life-year gained]; however, switching to abatacept compared with switching to alternative TNFi is unlikely to be cost-effective (ICER £253,967.96), but there was substantial uncertainty in the decisions. The value of information analysis indicated that further research would be highly valuable to the NHS. Ten serious adverse events in nine patients were reported; none were suspected unexpected serious adverse reactions. Two patients died and 10 experienced toxicity. Future work The results will add to the randomised evidence base and could be included in future meta-analyses. Conclusions How to manage first-line TNFi treatment failures remains unresolved. Had the trial recruited to target, more credible evidence on whether or not either of the interventions were non-inferior to rituximab may have been provided, although this remains speculative. Trial registration Current Controlled Trials ISRCTN89222125 and ClinicalTrials.gov NCT01295151. Funding This project was funded by the National Institute for Health Research (NIHR) Health Technology Assessment programme and will be published in full in Health Technology Assessment; Vol. 22, No. 34. See the NIHR Journals Library website for further project information.


2019 ◽  
pp. 089443931987025 ◽  
Author(s):  
Karolina Koc-Michalska ◽  
Anya Schiffrin ◽  
Anamaria Lopez ◽  
Shelley Boulianne ◽  
Bruce Bimber

The gender dynamics of political discussion are important. These dynamics shape who shares their political views and how they share their views and reactions to these views. Using representative survey data from the United States and the UK, we investigate how social media platforms shape the gender dynamics of political posting. We find that on Facebook, gender does not predict political posting, whereas on Twitter, the gender gap is more pronounced. We also examine the concept of “mansplaining”—a term used to describe a patronizing form of communication directed at women by men. Firstly, we find that posting about political issues to Twitter is more likely to result in being an explainee but also being an explainer of political issues. Furthermore, posting to Twitter increases the likelihood of men reporting having been accused of mansplaining and women reporting having experienced it. In general, more than half of the women say they have experienced mansplaining, especially those who are younger, well educated, and left-leaning. We argue that the possibility of being mansplained affects who is willing to post their opinions online, and as such, caution should be exercised when using digital trace data to represent public opinion.


2013 ◽  
pp. 81-120 ◽  
Author(s):  
Susanne Durst

Intangibles are viewed as the key drivers in most industries, and current research shows that firms voluntarily disclose information about their investments in intangibles and their potential benefits. Yet little is known of the risks relating to such resources and the disclosures firms make about such risks. In order to obtain a more balanced and complete picture of firms' activities, information about the risky side of their intangibles is also needed. This exploratory study provides some descriptive insights into intangibles-related risk disclosure in a sample of 16 large banks from the United States (US), United Kingdom (UK), Germany and Italy. Annual report data is analyzed using the three Intellectual Capital dimensions. Study findings illustrate the variety of intangibles-related risk disclosure as demonstrated by the banks involved.


2014 ◽  
Vol 23 (3) ◽  
pp. 381-388 ◽  
Author(s):  
Euan Hague ◽  
Alan Mackie

The United States media have given rather little attention to the question of the Scottish referendum despite important economic, political and military links between the US and the UK/Scotland. For some in the US a ‘no’ vote would be greeted with relief given these ties: for others, a ‘yes’ vote would be acclaimed as an underdog escaping England's imperium, a narrative clearly echoing America's own founding story. This article explores commentary in the US press and media as well as reporting evidence from on-going interviews with the Scottish diaspora in the US. It concludes that there is as complex a picture of the 2014 referendum in the United States as there is in Scotland.


2020 ◽  
Vol 119 (820) ◽  
pp. 303-309
Author(s):  
J. Nicholas Ziegler

Comparing the virus responses in Germany, the United Kingdom, and the United States shows that in order for scientific expertise to result in effective policy, rational political leadership is required. Each of these three countries is known for advanced biomedical research, yet their experiences in the COVID-19 pandemic diverged widely. Germany’s political leadership carefully followed scientific advice and organized public–private partnerships to scale up testing, resulting in relatively low infection levels. The UK and US political responses were far more erratic and less informed by scientific advice—and proved much less effective.


2014 ◽  
Vol 10 (3) ◽  
pp. 249-261 ◽  
Author(s):  
Tessa Sanderson ◽  
Jo Angouri

The active involvement of patients in decision-making and the focus on patient expertise in managing chronic illness constitutes a priority in many healthcare systems including the NHS in the UK. With easier access to health information, patients are almost expected to be (or present self) as an ‘expert patient’ (Ziebland 2004). This paper draws on the meta-analysis of interview data collected for identifying treatment outcomes important to patients with rheumatoid arthritis (RA). Taking a discourse approach to identity, the discussion focuses on the resources used in the negotiation and co-construction of expert identities, including domain-specific knowledge, access to institutional resources, and ability to self-manage. The analysis shows that expertise is both projected (institutionally sanctioned) and claimed by the patient (self-defined). We close the paper by highlighting the limitations of our pilot study and suggest avenues for further research.


Author(s):  
Tochukwu Moses ◽  
David Heesom ◽  
David Oloke ◽  
Martin Crouch

The UK Construction Industry through its Government Construction Strategy has recently been mandated to implement Level 2 Building Information Modelling (BIM) on public sector projects. This move, along with other initiatives is key to driving a requirement for 25% cost reduction (establishing the most cost-effective means) on. Other key deliverables within the strategy include reduction in overall project time, early contractor involvement, improved sustainability and enhanced product quality. Collaboration and integrated project delivery is central to the level 2 implementation strategy yet the key protocols or standards relative to cost within BIM processes is not well defined. As offsite construction becomes more prolific within the UK construction sector, this construction approach coupled with BIM, particularly 5D automated quantification process, and early contractor involvement provides significant opportunities for the sector to meet government targets. Early contractor involvement is supported by both the industry and the successive Governments as a credible means to avoid and manage project risks, encourage innovation and value add, making cost and project time predictable, and improving outcomes. The contractor is seen as an expert in construction and could be counter intuitive to exclude such valuable expertise from the pre-construction phase especially with the BIM intent of äóÖbuild it twiceäó», once virtually and once physically. In particular when offsite construction is used, the contractoräó»s construction expertise should be leveraged for the virtual build in BIM-designed projects to ensure a fully streamlined process. Building in a layer of automated costing through 5D BIM will bring about a more robust method of quantification and can help to deliver the 25% reduction in overall cost of a project. Using a literature review and a case study, this paper will look into the benefits of Early Contractor Involvement (ECI) and the impact of 5D BIM on the offsite construction process.


2017 ◽  
Vol 1 (1) ◽  
Author(s):  
Eko Wahyono ◽  
Rizka Amalia ◽  
Ikma Citra Ranteallo

This research further examines the video entitled “what is the truth about post-factual politics?” about the case in the United States related to Trump and in the UK related to Brexit. The phenomenon of Post truth/post factual also occurs in Indonesia as seen in the political struggle experienced by Ahok in the governor election (DKI Jakarta). Through Michel Foucault's approach to post truth with assertive logic, the mass media is constructed for the interested parties and ignores the real reality. The conclusion of this study indicates that new media was able to spread various discourses ranging from influencing the way of thoughts, behavior of society to the ideology adopted by a society.Keywords: Post factual, post truth, new media


2016 ◽  
Vol 5 (3) ◽  
pp. 32-36 ◽  
Author(s):  
Allison Hope Bowersock ◽  
William Alexander Breeding ◽  
Carmel Alexander Sheppard

Purpose: The purpose of this survey was to identify factors that may be influencing the appreciation of exercise physiology as a discipline as demonstrated by hiring practices in regional clinical settings. Methods: A telephone survey was administered to 33 cardiac rehabilitation programs in 5 states in the Mid-Atlantic region of the United States (Kentucky, North Carolina, Tennessee, Virginia, and West Virginia). Results: The distribution of nurses and exercise physiologists (EPs) employed by the 33 facilities varied by state, but overall there were 86 nurses and 55 EPs working among the surveyed facilities. Of the 33 surveyed facilities, 12 (36%) reported a preference for hiring nurses over EPs; only 4 (12%) reported a preference for hiring EPs over nurses. The remaining facilities (n = 17; 52%) reported no preference (n = 12; 36%) or that the decision depends on a variety of factors (n = 5; 15%). Several common themes were identified from respondents. These included that, compared to nurses, EPs have greater expertise in exercise prescription and better understanding of safe exercise progression for patients. However, nurses were believed to possess greater assessment and clinical skill with an emphasis on emergency response preparedness and greater general patient education skills. Conclusion: Academic programs that prepare students for careers as EPs employed in clinical settings may benefit from additional coursework and internship site selection that focus on clinical assessment skills, emergency preparedness, and patient education to reinforce their work in an exercise science curriculum.


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