scholarly journals SYSTEMATIC SCOPING REVIEW – UPDATE OF PATIENT'S PERCEIVED NEEDS OF OSTEOARTHRITIS HEALTH INFORMATION (2015‐9)

2020 ◽  
Vol 50 (S1) ◽  
pp. 34-35
PLoS ONE ◽  
2018 ◽  
Vol 13 (4) ◽  
pp. e0195489 ◽  
Author(s):  
Louisa Chou ◽  
Lisa Ellis ◽  
Michelle Papandony ◽  
K. L. Maheeka D. Seneviwickrama ◽  
Flavia M. Cicuttini ◽  
...  

BMJ Open ◽  
2017 ◽  
Vol 7 (12) ◽  
pp. e019215 ◽  
Author(s):  
Azadeh Kamel Ghalibaf ◽  
Elham Nazari ◽  
Mahdi Gholian-Aval ◽  
Hamed Tabesh ◽  
Mahmood Tara

IntroductionTailoring health information to the needs of individuals has become an important part of modern health communications. Tailoring has been addressed by researchers from different disciplines leading to the emergence of a wide range of approaches, making the newcomers confused. In order to address this, a comprehensive overview of the field with the indications of research gaps, tendencies and trends will be helpful. As a result, a systematic protocol was outlined to conduct a scoping review within the field of computer-based health information tailoring.Methods and analysisThis protocol is based on the York’s five-stage framework outlined by Arksey and O’Malley. A field-specific structure was defined as a basis for undertaking each stage. The structure comprised three main aspects:system design,information communicationandevaluation. Five leading databases were searched: PubMed, Scopus, Science Direct, EBSCO and IEEE and a broad search strategy was used with less strict inclusion criteria to cover the breadth of evidence. Theoretical frameworks were used to develop the data extraction form and a rigorous approach was introduced to identify the categories from data. Several explanatory-descriptive methods were considered to analyse the data, from which some were proposed to be employed for the first time in scoping studies.Ethics and disseminationThis study investigates the breadth and depth of existing literature on computer-tailoring and as a secondary analysis, does not require ethics approval. We anticipate that the results will identify research gaps and novel ideas for future studies and provide direction to combine methods from different disciplines. The research findings will be submitted for publication to relevant peer-reviewed journals and conferences targeting health promotion and patient education.


2018 ◽  
Vol 25 (4) ◽  
pp. 230-238 ◽  
Author(s):  
Ather Akhlaq ◽  
Brian McKinstry ◽  
Aziz Sheikh

IntroductionDue to the many advantages of open source software (OSS), including reduced cost of licensing, more flexibility in terms of customisation and redistribution, better quality and no vendor lock-in, OSS in healthcare is increasingly gaining importance. Various open source health information technologies (OS-HITs) are continuously being designed and developed for different areas of healthcare to increase organisational efficiencies and quality of care at minimum costs. The objective of this scoping review is to identify the kinds of existing OS-HITs, their characteristics (e.g. functions) and capabilities (e.g. advantages/disadvantages) for various healthcare stakeholders (physicians and patients) and healthcare sectors (e.g. clinical, administrative).MethodsWe will conduct a scoping review to identify the range of available OS-HITs in international literature from 1980 to September 2018. Searches will be conducted in six major international databases, namely: Cumulative Index to Nursing and Allied Health Literature Plus, Excerpta Medica Database, Global Health, Library Information Science and Technology Abstracts, Medline and Web of Science to identify relevant published research. We will also search the Google search engine and Google Scholar for on-going and unpublished work and the grey literature. Searches will be peer-reviewed by two independent reviewers and will not be limited by methodology or language. Next, selected references will be tabulated for study characteristics by author affiliation, country of origin, the name of OS-HIT, healthcare area/sector, system requirements, stakeholders, complete solution and web link. Furthermore, functions, benefits/advantages, disadvantages and outcomes (e.g. usability) of OS-HITs will be extracted. Narrative and interpretative synthesis of data will be undertaken.ResultsWe will report our findings in a peer-reviewed journal.


PLoS ONE ◽  
2019 ◽  
Vol 14 (6) ◽  
pp. e0218342 ◽  
Author(s):  
Noha Abdel-Wahab ◽  
Devesh Rai ◽  
Harish Siddhanamatha ◽  
Abhinav Dodeja ◽  
Maria E. Suarez-Almazor ◽  
...  

2018 ◽  
Vol 27 (01) ◽  
pp. 029-036 ◽  
Author(s):  
Mowafa Househ ◽  
Rebecca Grainger ◽  
Carolyn Petersen ◽  
Panagiotis Bamidis ◽  
Mark Merolli

Objectives: With the increased use of participatory health enabling technologies, such as social media, balancing the need for health information with patient privacy and confidentiality has become a more complex and immediate concern. The purpose of this paper produced by the members of the IMIA Participatory Health and Social Media (PHSM) working group is to investigate patient needs for health information using participatory health enabling technologies, while balancing their needs for privacy and confidentiality. Methods: Six domain areas including media sharing platforms, patient portals, web-based platforms, crowdsourcing websites, medical avatars, and other mobile health technologies were identified by five members of the IMIA PHSM working group as relevant to participatory health and the balance between data sharing and patient needs for privacy and confidentiality. After identifying the relevant domain areas, our scoping review began by searching several databases such as PubMed, MEDLINE, Scopus, and Google Scholar using a variety of key search terms. Results: A total of 1,973 studies were identified, of which 68 studies met our inclusion criteria and were included in the analysis. Results showed that challenges for balancing patient needs for information and privacy and confidentiality concerns included: cross-cultural understanding, clinician and patient awareness, de-identification of data, and commercialization of patient data. Some opportunities identified were patient empowerment, connecting participatory health enabling technologies with clinical records, open data sharing agreement, and e-consent. Conclusion: Balancing between privacy and patient needs for health information in the age of participatory health and social media offers several opportunities and challenges. More people are engaging in actively managing health through participatory health enabling technologies. Such activity often includes sharing health information and with this comes a perennial tension between balancing individual needs and the desire to uphold privacy and confidentiality. We recommend that guidelines for both patients and clinicians, in terms of their use of participatory health-enabling technologies, are developed to ensure that patient privacy and confidentiality are protected, and a maximum benefit can be realized.


2019 ◽  
Author(s):  
Kathleen M Gray ◽  
Cecily A Gilbert

Background: The work of managing health data, health information or health knowledge is a vital, yet unacknowledged, function in our current health system. This protocol is for a literature review which explores the evolution and development of the concept of health information work. Methodology: A scoping review of published literature in the domains of health sciences, information technology and information sciences has been carried out. A thematic and bibliometric analysis of the resulting set of publications is currently being undertaken. Results: The review results will shed light on the responsibilities and the contribution of the health information workforce, with a synthesis of themes identified in the literature, and analysis of publication year spans, prominent authors, institutions and source journals.


2019 ◽  
Vol 2 (1) ◽  
Author(s):  
Albert Liu ◽  
Joy Lee ◽  
Michael Weiner

Background: Transgender people face many potential barriers in healthcare, such as real or perceived discrimination, inability to pay for healthcare services, and misinformation about transgender health needs. It has been hypothesized that, because of these barriers, transgender people may be more receptive to using health information technology than other populations. The purpose of this scoping review was to understand the ways transgender people use health information technology. Methods: This scoping review included English studies that addressed use of technology by transgender people in health sciences literature. The inclusion criteria was studies that documented transgender technology use and did not include studies that only focused on technology use by healthcare providers. Included studies were sorted into categories based on the type of technology transgender participants used. Results: Twenty-nine articles met the study inclusion criteria from an initial pool of 1,276 articles searched from online databases. Many studies were involved with multiple categories. Fourteen articles addressed websites targeting transgender people, twelve included the usage of online social media sites, seven articles involved transgender usage of online surveys, and four articles discussed transgender usage of smartphones in health management. Conclusion and potential impact: Twenty-two studies focused on the application of interventions through websites and social media sites, nineteen of which concluded that web-based health information or interventions were feasible methods to affect the health of transgender people. Sixteen studies concluded that online interactions were accepted, if not preferred, by their transgender participants. This review suggests that further integration of online interventions and healthcare information into these mediums may increase transgender engagement in healthcare and reduce healthcare barriers. Future research to improve understanding of the outcomes of health information technology on the health of transgender people would be an asset for treating a historically medically underserved community.


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