Health literacy in pressure injury: Findings from a mixed-methods study of community-based patients and carers

IntroductionHealth literacy research has focused predominantly on the adult population, and much less is understood about this concept from an adolescent perspective. The tools currently available to measure adolescent health literacy have been adapted from adult versions. This limits their applicability to young people because of the developmental characteristics that impact on adolescents’ behaviour, including impulse control and judgement skills. This protocol describes the intended development and validity testing of a questionnaire to measure health literacy in adolescents.Methods and analysisThis protocol describes this mixed methods study that has three phases: the first phase will involve grounded research with adolescents using qualitative group interviews, co-design and concept mapping workshops to understand what health and healthy behaviours mean to adolescents and to explore their health literacy needs and the potential domains for the questionnaire. The draft health literacy domains identified will be presented to the youth advisory panel, and the questionnaire will be altered based on their feedback. Cognitive pretesting of the questionnaire items will also be conducted. Phase 2 will involve piloting the questionnaire to a two-stage random sample of young people in five urban and rural schools in Ireland. Test–retest reliability will be conducted using Pearson correlation coefficient. Confirmatory factor analysis will also be conducted to analyse the psychometric properties of the questionnaire. Phase 3 will involve the questionnaire being rolled out to a nationally representative sample of adolescents (n=6052) in Ireland to assess their levels of health literacy.Ethics and disseminationEthical approval to conduct this study has been granted from the University College Dublin Human Research Ethics Committee – Sciences (LS-20–08). Informed assent from adolescents and informed consent from parents/guardians will be sought. The findings of this research will be disseminated at national and international conferences, as well as through publication in peer-reviewed journals.

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Perceptions and acceptability of mHealth interventions for improving patient care at a community-based HIV/AIDS clinic in Uganda: A mixed methods study

AIDS Care ◽

10.1080/09540121.2013.774315 ◽

2013 ◽

Vol 25 (7) ◽

pp. 874-880 ◽

Cited By ~ 52

Author(s):

Larry W. Chang ◽

Veronica Njie-Carr ◽

Sheila Kalenge ◽

Jack F. Kelly ◽

Robert C. Bollinger ◽

...

Keyword(s):

Mixed Methods ◽

Patient Care ◽

Mixed Methods Study ◽

Community Based ◽

Improving Patient Care ◽

Hiv Aids

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Trauma Healing: A Mixed Methods Study of Personal and Community-Based Healing

Journal of Aggression Maltreatment & Trauma ◽

10.1080/10926771.2014.920453 ◽

2014 ◽

Vol 23 (6) ◽

pp. 611-632 ◽

Cited By ~ 6

Author(s):

Jeffrey L. Todahl ◽

Elaine Walters ◽

Deepa Bharwdi ◽

Shanta R. Dube

Keyword(s):

Mixed Methods ◽

Mixed Methods Study ◽

Community Based ◽

Trauma Healing

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HIV Testing and Care in Canadian Aboriginal Youth: A community based mixed methods study

BMC Infectious Diseases ◽

10.1186/1471-2334-8-132 ◽

2008 ◽

Vol 8 (1) ◽

Cited By ~ 25

Author(s):

Judy E Mill ◽

Randy C Jackson ◽

Catherine A Worthington ◽

Chris P Archibald ◽

Tom Wong ◽

...

Keyword(s):

Mixed Methods ◽

Hiv Testing ◽

Mixed Methods Study ◽

Community Based ◽

Aboriginal Youth

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Integrated decision-making model for community-based rehabilitation service utilisation among persons with severe mental illness in China: protocol for a cross-sectional, mixed-methods study

BMJ Open ◽

10.1136/bmjopen-2018-021528 ◽

2018 ◽

Vol 8 (12) ◽

pp. e021528 ◽

Cited By ~ 2

Author(s):

Ruoxi Wang ◽

Shangfeng Tang ◽

Ian Shaw ◽

Zhanchun Feng ◽

Zhuo Chen ◽

...

Keyword(s):

Decision Making ◽

Mental Illness ◽

Mixed Methods ◽

Mixed Methods Study ◽

Service Utilisation ◽

Community Based ◽

Cross Sectional ◽

Community Based Rehabilitation ◽

Integrated Decision Making ◽

Different Levels

IntroductionA common problem low-income and middle-income countries face is the scarcity of community-based rehabilitation (CBR) resources and low service utilisation among persons with severe mental illness (SMI). Despite this problem, the factors and pathways followed influencing one’s decision on service utilisation in China have not been fully comprehended. This study aims to develop a theory-based model that systematically describes the integrated decision-making process of mental health CBR utilisation among persons with SMI in China.Methods/DesignThis cross-sectional, mixed-methods study involves three main stages and is expected to last 3 years, from January 2018 to December 2020. In stage 1, the Social Exchange Theory is deployed as an analytical framework to comprehensively capture factors associated with tendency to use CBR services in China using semistructured interview methodology involving patients with SMI, their primary caregivers and CBR service providers. In stage 2, interpretive structural modelling will be applied to analyse the relationships between factors in different dimensions, at different levels and with different levels of impact. Stage 3 involves a multiregion survey among at least 300 family decision-makers (either the patient or their caregivers) in six communities in three cities to statistically validate the initial model derived in stage 2 using a further structural equation modelling.Ethics and disseminationEthical approval was granted by the Ethics Committee of Tongji Medical College, Huazhong University of Science and Technology (No 2017S319). All interviewees will be provided with written information about the study, and a signed consent will be retrieved prior to the interview. Rules on confidentiality and anonymity of data will be strictly followed. The findings of this study will be disseminated via international and domestic peer-reviewed journals, reports, conference presentations and symposium discussions. Reports will be submitted to the National Natural Science Foundation of China.

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The impact of self-efficacy and health literacy on outcome after bariatric surgery in Sweden: a protocol for a prospective, longitudinal mixed-methods study

BMJ Open ◽

10.1136/bmjopen-2018-027272 ◽

2019 ◽

Vol 9 (5) ◽

pp. e027272 ◽

Cited By ~ 1

Author(s):

Maria Jaensson ◽

Karuna Dahlberg ◽

Ulrica Nilsson ◽

Erik Stenberg

Keyword(s):

Bariatric Surgery ◽

Mixed Methods ◽

Health Literacy ◽

Qualitative Study ◽

Self Efficacy ◽

Mixed Methods Study ◽

Inclusion Criteria ◽

Study Results ◽

Prospective Longitudinal ◽

The Impact

IntroductionA person-centred approach, to know about a person’s individual weaknesses and strengths, is warranted in today’s healthcare in Sweden. When a person suffers from obesity, there are not only risks for comorbidities but also increased risk for decreased health-related quality of life (HRQoL). After bariatric surgery, there are also risks for complications; however, healthcare service expects the person to have sufficient ability to handle recovery after surgery. The need is to investigate how a person’s self-efficacy and health literacy(HL) skills are important to determine their effect on recovery as well as HRQoL after bariatric surgery. It can, involve the person in the care, improve shared decision-making, and perhaps decrease complications and readmissions.Method and analysisThis is a prospective, longitudinal mixed-methods study with the intent of including 700 patients from three bariatric centres in Sweden (phase 1); 20 patients will be included in a qualitative study (phase 2). Inclusion criteria will be age >17 years, scheduled primary bariatric surgery and ability to read and understand the Swedish language in speech and in writing. Inclusion criteria for the qualitative study will be patients who reported a low self-efficacy, with a selection to ensure maximum variation regarding age and gender. Before bariatric surgery patients will answer a questionnaire including 20 items. Valid and reliable instruments will be used to investigate general self-efficacy (10 items) and functional and communicative and critical HL (10 items). This data collection will then be merged with data from the Scandinavian Obesity Surgery Registry. Analysis will be performed 30 days, 1 year and 2 years after bariatric surgery. One year after bariatric surgery the qualitative study will be performed. The main outcomes are the impact of a person’s self-efficacy and HL on recovery after bariatric surgery.Ethics and disseminationThe study has received approval from the ethical review board in Uppsala, Sweden (number 2018/256). The study results will be disseminated through peer-reviewed publications and conference presentations to the scientific community and social media.

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Integrating Community-based Research into a Senior Capstone Seminar: Lessons Learned from a Mixed-methods Study

Teaching Sociology ◽

10.1177/0092055x19841667 ◽

2019 ◽

Vol 47 (3) ◽

pp. 191-203 ◽

Cited By ~ 1

Author(s):

Sara Shostak ◽

Margarita Corral ◽

Ann G. Ward ◽

Alex Willett

Keyword(s):

Mixed Methods ◽

Research Methods ◽

Social Processes ◽

Lessons Learned ◽

Mixed Methods Study ◽

Important Work ◽

Community Based ◽

Community Based Research ◽

Community Based Organizations ◽

Sociology Departments

This article describes a senior capstone, Neighborhoods and Health, which used community-based research (CBR) as its primary pedagogy. Students in the course drew upon multiple research methods and forms of data to provide our partner, the Urban Farming Institute of Boston, with an array of research products in support of the revitalization of a historic farm in the Boston neighborhood of Mattapan. Based on pre- and posttest assessment and analysis of students’ reflections in their journals, we identify how a multimethods approach—combined with a commitment to producing usable research products—simultaneously contributed to students’ research methods proficiency and their understanding of complex social processes. For both sociology departments and interdisciplinary majors that draw on sociological perspectives, CBR offers a compelling means of providing seniors with meaningful capstone experiences while adding capacity to the important work of community-based organizations.

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