THU0628-HPR SSCENTRY: A PERSONAL DISEASE DIARY APP FOR SYSTEMIC SCLEROSIS PATIENTS

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 558-559
Author(s):  
E. Praino ◽  
F. Scioscia ◽  
C. Scioscia ◽  
G. Loseto ◽  
F. Gramegna ◽  
...  
Keyword(s):  
Systemic Sclerosis ◽  
Disease Activity ◽  
General Health ◽  
Clinical Investigation ◽  
Well Being ◽  
Data Encryption ◽  
Psychological Well Being ◽  
The Core ◽  
Investigation Methods ◽  
Qualitative Interview Study

Background:Systemic Sclerosis (SSc) is a connective tissue disease characterized by severe alterations in the microvasculature and progressive fibrosis of the skin and internal organs [1]. Management of SSc is not easy, for both patients and physicians [2]. Symptoms are manifold and have a significant impact on patient’s daily autonomy and psychological well-being.Objectives:SScEntry (SSc data Entry tool; Figure 1) is a solution conceived to assist SSc patients in monitoring their disease, as a kind of “sentry”. The core idea is to provide patients with a personal diary to annotate and track the onset, evolution and resolution of symptoms as well as any changes in their general health condition, through an app for iOS and Android smartphones and tablets.Figure 1.SScEntry logo.Methods:SScEntry is a smartphone/tablet app designed by rheumatology and computer science engineering specialists in close partnership [3]. A carefully designed user interface (UI), inspired to a social network wall, allows annotating the evolution of symptoms by means of standard clinical investigation methods such as scientifically validated questionnaires. The UI facilitates data collection through speech-based interaction as well as touch and gestures optimized for patients with finger skin lesions and joints impairments. User engagement over the course of time is fostered by: follow-up reminders to update information on the evolution of past events and periodic questionnaires for general health assessment; the integration of symptom photos taken with on-device camera and health data collected from wearable devices; gamification features. Privacy and security have been a primary design concern, with app access protection and full on-device data encryption; no personal data transmission occurs without explicit user consent. SScEntry generates a disease activity summary report, for displaying to the physician during visit or emailing/printing.Results:SScEntry is ready for Android and iOS smartphones and tablets. All planned features have been implemented (Figure 2). Currently supported languages are English and Italian. Areas of interest include vascular, cutaneous, articular, visceral (gastro-intestinal and cardio-pulmonary) as well as relationship, sexual and working life.Figure 2.SScEntry features.Conclusion:Novel Narrative-based Medicine approaches are getting increasing attention to enhance the mutual understanding between patient and physician, reinforcing the therapeutic adherence at the core of healthcare. This is particularly important with chronic and disabling diseases like SSc. Involving patients in disease management with SScEntry will increase their compliance and confidence, with benefits on psychological well-being. Expected benefits for rheumatologists include better evaluation of target therapy and outcomes, as no data on disease activity is lost during the patient clinical history.References:[1]J. Varga et al. (2017) Pathogenesis of systemic sclerosis: recent insights of molecular and cellular mechanisms and therapeutic opportunities. J Scleroderma Relat Disord 2:137–52.[2]L. Mouthon et al. (2017) Patients’ views and needs about systemic sclerosis and its management: a qualitative interview study. BMC Musculoskelet Disord 18(1):230.[3]M. Bradway et al. (2015) Mobile Health: empowering patients and driving change. Trends in Endocrinology & Metabolism, 26(3):114-117.Disclosure of Interests:Emanuela Praino: None declared, Floriano Scioscia: None declared, Crescenzio Scioscia: None declared, Giuseppe Loseto: None declared, Filippo Gramegna: None declared, Saverio Ieva: None declared, Agnese Pinto: None declared, Michele Ruta: None declared, Eugenio Di Sciascio: None declared, Giovanni Lapadula: None declared, Florenzo Iannone Consultant of: Speaker and consulting fees from AbbVie, Eli Lilly, Novartis, Pfizer, Roche, Sanofi, UCB, MSD, Speakers bureau: Speaker and consulting fees from AbbVie, Eli Lilly, Novartis, Pfizer, Roche, Sanofi, UCB, MSD

scholarly journals Impact of the COVID-19 pandemic on the core functions of primary care: will the cure be worse than the disease? A qualitative interview study in Flemish GPs

BMJ Open ◽  
2020 ◽  
Vol 10 (6) ◽  
pp. e039674 ◽  
Author(s):  
Veronique Verhoeven ◽  
Giannoula Tsakitzidis ◽  
Hilde Philips ◽  
Paul Van Royen
Keyword(s):  
Primary Care ◽  
General Practice ◽  
Clinical Decision Making ◽  
Core Competencies ◽  
Well Being ◽  
Clinical Decision ◽  
Framework Analysis ◽  
Profound Impact ◽  
The Core ◽  
Qualitative Interview Study

ObjectivesThe current COVID-19 pandemic, as well as the measures taken to control it, have a profound impact on healthcare. This study was set up to gain insights into the consequences of the COVID-19 outbreak on the core competencies of general practice, as they are experienced by general practitioners (GPs) on the frontline.Design, setting, participantsWe performed a descriptive study using semistructured interviews with 132 GPs in Flanders, using a topic list based on the WONCA definition of core competencies in general practice. Data were analysed qualitatively using framework analysis.ResultsChanges in practice management and in consultation strategies were quickly adopted. There was a major switch towards telephone triage and consults, for covid-related as well as for non-covid related problems. Patient-centred care is still a major objective. Clinical decision-making is largely focused on respiratory assessment and triage, and GPs feel that acute care is compromised, both by their own changed focus and by the fact that patients consult less frequently for non-covid problems. Chronic care is mostly postponed, and this will have consequences that will extend and become visible after the corona crisis. Through the holistic eyes of primary care, the current outbreak—as well as the measures taken to control it—will have a profound impact on psychological and socioeconomic well-being. This impact is already visible in vulnerable people and will continue to become clear in the medium and long terms. GPs think that they are at high risk of getting infected. Dropping out and being unable to contribute their part or becoming virus transmitters are reported to be greater concerns than getting ill themselves.ConclusionsThe current times have a profound impact on the core competences of primary care. Although the vast increase in patients soliciting medical help and the necessary separate covid and non-covid flows have been dealt with, GPs are worried about the continuity of regular care and the consequences of the anticovid measures. These may become a threat for the general health of the population and for the provision of primary healthcare in the near and distant future.

scholarly journals Enhancing Meaning in Life and Psychological Well-Being Among a European Cohort of Young Adults via a Gratitude Intervention

2022 ◽  
Vol 12 ◽  
Author(s):  
Natalia Czyżowska ◽  
Ewa Gurba
Keyword(s):  
Young Adults ◽  
Perceived Stress ◽  
General Health ◽  
Meaning In Life ◽  
Well Being ◽  
Depression Symptoms ◽  
Life Questionnaire ◽  
Psychological Well Being ◽  
Gratitude Intervention ◽  
Experimental Group

Background: Strengthening the sense of meaning in life and psychological well-being brings benefits for mental health. The group particularly vulnerable to mental problems are young adults, therefore the aim of our research was to explore how a gratitude intervention will affect the sense of meaning in life, psychological well-being, general health and perceived stress among them. The research also took into account the issue of expressing gratitude.Method: The study involved 80 young adults (58 women and 22 men) who were randomly assigned to the experimental group that filled out the specially prepared diaries for a week (participants were asked to list three things for which they feel grateful, to whom they are grateful and if and how they expressed their gratitude) or the control group. Participants completed the Meaning in Life Questionnaire (MLQ), the General Health Questionnaire – 28 (GHQ-28), the Perceived Stress Scale (PSS), and the Ryff Scales of Psychological Well-Being (PWBS) twice (before and after intervention).Results: In the experimental group significant increases were observed in three areas of psychological well-being: environmental mastery, relationships with others and purpose in life. The significant decrease was also noted in anxiety/insomnia and depression symptoms as well as in perceived stress. There were no differences in the level of meaning in life. There was a positive relationship between expressing gratitude and meaning in life and psychological well-being.Conclusion: Proposed gratitude intervention has the potential to enhance psychological well-being among young adults, however, it may not be effective in enhancing meaning in life.

The Psychological Well-being of Supporters of the Demented Elderly

1987 ◽  
Vol 150 (3) ◽  
pp. 293-298 ◽  
Author(s):  
J. M. Eagles ◽  
A. Craig ◽  
F. Rawlinson ◽  
D. B. Restall ◽  
J. A. G. Beattie ◽  
...  
Keyword(s):  
General Health ◽  
General Health Questionnaire ◽  
Psychiatric Morbidity ◽  
Well Being ◽  
Elderly Subjects ◽  
Health Questionnaire ◽  
Psychiatric Assessment ◽  
Psychological Well Being ◽  
Stress Scale

Interviews were conducted with the co-resident supporters of 79 elderly subjects. Forty of these elderly subjects had been diagnosed as being demented (20 mildly, 12 moderately and eight severely) following psychiatric assessment. The supporters were screened for psychological well-being with the 60-item General Health Questionnaire (GHQ) and the Relatives' Stress Scale (RSS). Supporters of demented relatives showed significantly raised levels of stress on the RSS, but no increase in psychiatric morbidity on the GHQ, when compared with the supporters of non-demented relatives. The implications of these findings are discussed.

scholarly journals CUSTODIAL GRANDPARENTS: AN ANALYSIS OF PARENTING AND ITS IMPACT ON HEALTH

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S898-S898
Author(s):  
Karen C Clark ◽  
Kari R Lane ◽  
Linda Bullock
Keyword(s):  
United States ◽  
Self Efficacy ◽  
General Health ◽  
Well Being ◽  
The United States ◽  
Full Time ◽  
Custodial Grandparents ◽  
Psychological Well Being ◽  
Custodial Grandmothers ◽  
The Relationship

Abstract In the United States, there are 2.7 million grandparents raising grandchildren without a biological parent present (U.S. Census, 2014). Caring for grandchildren can present challenges and stressors to custodial grandparents as they find themselves adjusting to this unanticipated role. Despite the growing knowledge base related to custodial grandparents, there has been limited research into the relationship between parenting self-efficacy and psychological well-being. This study was guided by the Parenting Self-Efficacy Theory derived from Bandura’s Social Cognitive Theory. The purpose of this study was to examine the relationship between parenting self-efficacy and psychological well-being (anxiety and depression) among custodial grandmothers. Additionally, self-reported general health was examined to determine if it moderated the relationship between parenting self-efficacy and psychological well-being. Sixty-eight custodial grandmothers recruited across the United States participated in the study. Their mean age was 58 years old; 57% were Caucasian, 35% African American, and 3% Hispanic. With a mean income of $26,000.00, most were retired (32%) or working full-time (29%). Participants responded to psychometrically sound instruments measuring anxiety, depression, general health and parenting self-efficacy. Findings indicated parenting self-efficacy scores were not significantly associated with anxiety scores (r = .029; p = .816) or depression scores (r= -.207; p = .090) among participants. Furthermore, general health did not moderate a relationship between parenting self-efficacy, anxiety (R2= .030; p= .5753) or depression (R2= .051; p= .3376). Further research is needed to determine whether the role of parenting self-efficacy in custodial grandparents. Implications for policy will also be discussed

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