Adolescents with chronic disease and social media: a cross-sectional study

2020 ◽  
Vol 105 (8) ◽  
pp. 744-748 ◽  
Author(s):  
Laura De Nardi ◽  
Andrea Trombetta ◽  
Sergio Ghirardo ◽  
Maria Rita Lucia Genovese ◽  
Egidio Barbi ◽  
...  

ObjectiveThis study aims to explore the attitude of adolescents with chronic diseases toward social media exposure, focusing in particular on Facebook.DesignCross-sectional study.SettingAn anonymous semistructured survey was distributed to an Italian hospital-based cohort of adolescents with chronic disease to explore the role of Facebook in their daily life.PatientsWe recruited 212 adolescents (aged between 13 and 24 years) with a diagnosis of inflammatory bowel disease, coeliac disease, diabetes mellitus type 1 and cystic fibrosis.ResultsTwo hundred and seven of the 212 (97.6%) expressed the need of sharing their illness experience with friends, 201 out of 212 (94.8%) usually searched information on the internet to find new therapies and to discover their prognosis. One hundred and forty-nine out of 212 adolescents (70.3%) perceived dependence on their parents as the most negative aspect of having a chronic disease, and 200 out of 212 (94.3%) were looking for friends with the same disease on Facebook. Two hundred and ten out of 212 (99.1%) did not want their doctors or nurse on their social media platforms. During the active disease periods, the time spent with social media increased from an average of 5 to 11 hours.ConclusionsThis descriptive analysis focused on the Facebook impact on chronic disease perception among affected adolescents. It showed that they used to spend an increased amount of time on this platform during disease flare-up and highlighted their wish of keeping doctors and nurses away from their social dimension.

2021 ◽  
Vol 20 (1) ◽  
pp. 169-175
Author(s):  
Ukamaka G. Okafor ◽  
Abubakar Ibrahim Jatau ◽  
Olukemi Alabi ◽  
Elijah N.A. Mohammed

Purpose: To assess the awareness and satisfaction of online renewal of practice licence among pharmacists in Nigeria.Methods: This was a cross-sectional study among pharmacists in Nigeria. Participants were recruited through; online (via social media platforms) or in person at Pharmacists Council of Nigeria (PCN) office during application for renewal of license.Results: A total of 878 participants completed the survey. Of this, 97.4 and 79.9 % were aware and satisfied with the online process, respectively. The respondents rated the process as excellent (19.1 %), fair (22.2 %), good (55.0 %) and poor (3.6 %). Most of the reported challenges included linking payment of association dues with license renewal, poor customer service and password retrieval.Conclusions: The level of awareness and satisfaction of the online renewal of annual licence among pharmacists in Nigeria is high. Measures are still needed to improve the online application process. Keywords: Pharmacists Council, Online, Licence, Pharmacist, Practice


10.2196/12619 ◽  
2020 ◽  
Vol 22 (7) ◽  
pp. e12619 ◽  
Author(s):  
David Cavallo ◽  
Rock Lim ◽  
Karen Ishler ◽  
Maria Pagano ◽  
Rachel Perovsek ◽  
...  

Background The prevalence of social media use among youth and young adults suggests it is an appropriate platform for study recruitment from this population. Previous studies have examined the use of social media for recruitment, but few have compared platforms, and none, to our knowledge, have attempted to recruit cigarillo users. Objective The purpose of this study was to examine the effectiveness of different social media platforms and advertisement images for recruiting cigarillo users aged 14-28 years to complete a cigarillo use survey. Methods We obtained objective data for advertisement impressions for a 39-week social media recruitment campaign. Advertisements were targeted to users based on their age, geography, and interests. Effectiveness was defined as the percentage of approved surveys per advertising impression. Chi-square tests were performed to compare the effectiveness of different advertisement images and platforms. Results Valid survey completers (n=1089) were predominately older (25-28 years old, n=839, 77%). Of the 1089 survey completers, 568 (52%) identified as male, 335 (31%) as African American, and 196 (18%) as Hispanic. Advertisements delivered via Facebook/Instagram were more effective than Twitter; 311/1,027,738 (0.03%) vs 661/2,998,715 (0.02%); χ21=21.45, N=4,026,453); P<.001. Across platforms, ads featuring exclusively an image of cigarillos were more effective (397/682,994, 0.06%) than ads with images of individuals smoking (254/1,308,675, 0.02%), individuals not smoking (239/1,393,134, .02%), and groups not smoking (82/641,650, 0.01%); χ23133.73, N=4,026,453; P<.001. Conclusions The campaign was effective in recruiting a diverse sample representative of relevant racial/ethnic categories. Advertisements on Facebook were more effective than Twitter. Advertisements that featured an image of a cigarillo were consistently the most effective and should be considered by others recruiting cigarillo users via social media.


PLoS ONE ◽  
2021 ◽  
Vol 16 (9) ◽  
pp. e0256927
Author(s):  
Jheelam Biswas ◽  
Palash Chandra Banik ◽  
Nezamuddin Ahmad

Introduction Palliative care is still a new concept in many developing countries like Bangladesh. Basic knowledge about palliative care is needed for all physicians to identify and provide this care. This study aims to assess the preliminary knowledge level and the misconceptions about this field among physicians. Methods This cross-sectional study was conducted among 479 physicians using a self-administered structured questionnaire adapted from Palliative Care Knowledge Scale (PaCKs) on various digital social media platforms from December 2019 to February 2020. Chi-square, Fisher’s extract test, and the Monte Carlo extract test was done to compare the knowledge level with the study subjects’ demographic variables. Results An almost equal number of physicians of both genders from four major specialties and their allied branches took part in the study (response rate 23.9%). The majority (71%) of the respondents had an average to an excellent level of knowledge about palliative care, with a median score of 11.0. Although most physicians had average knowledge about the primary goals and general concepts of palliative care, misconceptions are highly prevalent. The commonly present misconceptions were that palliative care discourages patients from consulting other specialties (88.9%), refrains them from taking curative treatments (83.1%), and this care is only for older adults (74.5%), cancer patients (63%), and the last six months of life (56.4%). Age, educational qualifications, and specialties had significant relationships (P<0.05) with the level of knowledge. Conclusion Despite having average or above knowledge about palliative care, the physicians’ prevailing misconceptions act as a barrier to recognizing the need among the target populations. So, proper education and awareness among the physicians are necessary to cross this field’s barrier and development.


2020 ◽  
Author(s):  
Chandrima Bhattacharya ◽  
Debaroti Chowdhury ◽  
Nova Ahmed ◽  
Su Ozgur ◽  
Bodhisatwa Bhattacharya ◽  
...  

AimsThe recent pandemic of COVID-19 has not only shaken the healthcare but also economic structure around the world. In addition to these direct effects, it has also brought in some indirect difficulties owing to the information epidemic on social media. As India experienced a later outbreak of COVID-19 and a prolonged uninterrupted lockdown, we aimed to understand the nature of panic social media users in India are experiencing due to the flow of (mis)information. We further extend this investigation to other countries.MethodsWe performed a cross-sectional study by conducting survey on multiple social media platforms. We received 1075 responses (sex ratio 2:1) through opportunity sampling from social media users of 30 different countries (between April 11, 2020 and May 15, 2020). We performed both quantitative and qualitative analyses on the 935 respondents from India. Several hypotheses are statistically tested on them and are further examined on rest of the 140 social media users from 29 other countries. We also performed a separate Twitter hashtag analysis and sentiment analysis on the responses. We applied a citizen science approach to involve the respondents in the analysis pipeline after the survey.ResultsThis cross-sectional study on 1075 social media users from India and 29 other countries revealed a significant increase of social media usage and rise of panic over time in India. Middle-aged people and female exhibit a higher panic in India. The amount of panic was independent of the nature of association with COVID-19. The change of mental health was associated with panic level and productivity. Further qualitative analysis highlights the occurrences of information panic, economic panic, moral panic and spiritual panic, among other causes.ConclusionsSeveral panic behaviors are unique to social media users in India possibly because COVID-19 broke out relatively later in comparison with the other countries and the uninterrupted lockdown prolonged for a long time. The amount of social media usage might not be causal but has a significant role in generating panic among the people in India. A significantly higher level of panic among the middle-aged people can be attributed to their higher amount of responsibility. The popularity of different hashtags, including the names of drugs under trial for COVID-19, in limited countries highlight that the causes of panic are not the same everywhere. As some of the respondents took part as citizen scientists a robust perspective to the outcome is obtained.


2018 ◽  
Author(s):  
David Cavallo ◽  
Rock Lim ◽  
Karen Ishler ◽  
Maria Pagano ◽  
Rachel Perovsek ◽  
...  

BACKGROUND The prevalence of social media use among youth and young adults suggests it is an appropriate platform for study recruitment from this population. Previous studies have examined the use of social media for recruitment, but few have compared platforms, and none, to our knowledge, have attempted to recruit cigarillo users. OBJECTIVE The purpose of this study was to examine the effectiveness of different social media platforms and advertisement images for recruiting cigarillo users aged 14-28 years to complete a cigarillo use survey. METHODS We obtained objective data for advertisement impressions for a 39-week social media recruitment campaign. Advertisements were targeted to users based on their age, geography, and interests. Effectiveness was defined as the percentage of approved surveys per advertising impression. Chi-square tests were performed to compare the effectiveness of different advertisement images and platforms. RESULTS Valid survey completers (n=1089) were predominately older (25-28 years old, n=839, 77%). Of the 1089 survey completers, 568 (52%) identified as male, 335 (31%) as African American, and 196 (18%) as Hispanic. Advertisements delivered via Facebook/Instagram were more effective than Twitter; 311/1,027,738 (0.03%) vs 661/2,998,715 (0.02%); <i>χ</i><sup>2</sup><sub>1</sub>=21.45, N=4,026,453); <i>P</i>&lt;.001. Across platforms, ads featuring exclusively an image of cigarillos were more effective (397/682,994, 0.06%) than ads with images of individuals smoking (254/1,308,675, 0.02%), individuals not smoking (239/1,393,134, .02%), and groups not smoking (82/641,650, 0.01%); <i>χ</i><sup>2</sup><sub>3</sub>133.73, N=4,026,453; <i>P</i>&lt;.001. CONCLUSIONS The campaign was effective in recruiting a diverse sample representative of relevant racial/ethnic categories. Advertisements on Facebook were more effective than Twitter. Advertisements that featured an image of a cigarillo were consistently the most effective and should be considered by others recruiting cigarillo users via social media.


2021 ◽  
Vol 5 (1) ◽  
pp. e000958
Author(s):  
Merel M Nap-van der Vlist ◽  
Geertje W Dalmeijer ◽  
Martha A Grootenhuis ◽  
Kors van der Ent ◽  
Marry M van den Heuvel-Eibrink ◽  
...  

ObjectiveTo determine: (1) which biological/lifestyle, psychological and/or social factors are associated with fatigue among children with a chronic disease and (2) how much each of these factors contributes to explaining variance in fatigue.Design and settingThis was a cross-sectional study across two children’s hospitals.PatientsWe included children aged 8–18 years who visited the outpatient clinic with cystic fibrosis, an autoimmune disease or postcancer treatment.Main outcome measuresFatigue was assessed using the PedsQL Multidimensional Fatigue Scale. Generic biological/lifestyle, psychological and social factors were assessed using clinical assessment tools and questionnaires. Multiple linear regression analyses were used to test the associations between these factors and fatigue. Finally, a multivariable regression model was used to determine which factor(s) have the strongest effect on fatigue.ResultsA total of 434 out of 902 children were included (48% participation rate), with a median age of 14.5 years; 42% were male. Among these 434 children, 21.8% were severely fatigued. Together, all biopsychosocial factors explained 74.6% of the variance in fatigue. More fatigue was uniquely associated with poorer physical functioning, more depressive symptoms, more pressure at school, poorer social functioning and older age.ConclusionsFatigue among children with a chronic disease is multidimensional. Multiple generic biological/lifestyle, psychological and social factors were strongly associated with fatigue, explaining 58.4%; 65.8% and 50.0% of the variance in fatigue, respectively. Altogether, almost three-quarters of the variance in fatigue was explained by this biopsychosocial model. Thus, when assessing and treating fatigue, a transdiagnostic approach is preferred, taking into account biological, psychological and social factors.


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